Copyright þ February 1995, Revised October 1995. Revised June 1996. Reproduction of any portion of this document is encouraged, but only permitted if the following credit is given: compiled by June Isaacson Kailes, Disability Policy Consultant for the Research and Training Center on Aging with a Disability, Rancho Los Amigos Medical Center, 7601 E. Imperial Highway Downey, CA 90242, 310 401 7402 Multiple copies of this document may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or any information storage or retrieval system without prior written permission. Copies of the Resource List can be obtained by: Internet: http://www.usc.edu/dept/gero/RRTConAging gopher://valdor.cc.buffalo.edu:70/00/11/.aging/.resource/.about Mail: Copies of this publication are available. Address a request to: Rehabilitation Research and Training Center (Aging with Disability) Rancho Los Amigos Medical Center 7601 E. Imperial Highway Downey, CA 90242 Telephone 310.401.7402 Please indicate desired format: print copy or disk copy (Word Perfect 5.1 or ASCII). Include $15 (International orders add 15% - U.S. currency only), make checkpayable to L.A.R.E.I., Rancho Los Amigos Medical Center, P.O. Box 3500, Downey, CA 90242. Table of Contents About the Resource List...................................................2 Additions Welcome.........................................................2 Why a Resource List?......................................................2 About the Research and Training Center....................................5 About the Author..........................................................7 How to Use This Resource List.............................................8 Subject Index.............................................................9 Author Index.............................................................14 Resource List............................................................18 "Eighty percent of health care today is self care, the actions people take to bring themselves relief or prevent the condition in the first place." - Molly Metter, National Program Director of Healthwise About the Resource List This Resource List focuses on wellness, self-care, health care, exercise, and aging with a disability. It is specifically compiled for people with disabilities and their families. This list includes articles, audio cassettes, bibliographies, books, conference proceedings, newsletters, papers, registries, resources, videos, and Internet resources. Listings here do not necessarily represent an endorsement by the Research and Training Center on Aging and Disability. This Resource List is not an exhaustive coverage of wellness, prevention, aging, etc. It is meant to list only resources which are disability-specific or pertain to the area of living and aging with a disability. There are many more resources available for the general population which may be helpful to the reader. Additions Welcome This Resource List is continually being updated. Things continue to change moment by moment and this list is only a snapshot in time. That is why each resource list has a date entered or updated. Additions, comments, and suggestions to improve this guide are encouraged. Please forward your comments to: Resource List - June Isaacson Kailes, Disability Policy Consultant, RTC on Aging with Disability, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293-7556. Internet: jkailes@tsbbs02.tnet.com, FAX 310-827-7470. Why a Resource List? In the past getting older was not an issue for people with disabilities. We didn't age, we just died! We are the first generation to live this long, so the question is not will we live, but how well will we live? Now people with disabilities are asking questions about the quality of our living and the quality of our aging. This Resource List is a growing document to help you locate information and resources. There are many people who live with disability long-term (five to forty plus years post onset) who are experiencing changes in function as well as new or more significant secondary disabilities as they age. Secondary conditions are those that occur because of the pressures of the primary disability and may include pain, fatigue, changes in function or physical condition, fractures, pressure sores, etc. (list # 51, Page I). Some of these changes may be part of the typical aging process but, in many cases, occur at earlier ages for people with disabilities than they do for people without long-term disabilities. People who have lived with disability long-term are experiencing signs of aging that combine elements of aging with conditions unique to living with disability. The process of aging not only relates to chronological age but to duration of time spent living with disability. Depending on one's lifestyle, genetic heritage and type of disability, living long-term with a disability produces wear and tear on muscles, skeletal and other body systems. People are reporting unexpected changes in their energy and activity levels as they age. Roberta Trieschmann in Aging With Disability, (List # 49) states most people with major physical disabilities of at least thirty years duration note some tenderness and soreness in joints, muscles and tendons which have been carrying the extra load of impaired physical function from other parts of the body. Heavy use or overuse of certain body parts to compensate for lost motor ability in other body parts can lead to problems over time. As people with disabilities age, the physical penalty increases. Many people with disabilities considered their disability to be static. A new or increased level of disability or a new or more significant secondary condition(s) was not anticipated. These issues and new realities for people with disabilities are significant and further influenced by newly revised life expectancy statistics which indicate the "longer you live the longer you are going to live!" This means we are living much longer and statistics show the older you get, the longer you're going to live. A male born today has a life expectancy of 72-73 years and a female, about 78 years. If you reach age 65, your life expectancy goes up an added 18 years for females and 12 years for males. What this means for people with disabilities is most of us will live longer than we think. As John Fries says in Aging Well, A Guide for Successful Seniors, we have much to think about regarding what we can influence or change in terms of the quality of our aging years. It will pay dividends to keep ourselves in the best health possible. The question remains, how do we do this? Baby boomers, with and without disability, are growing older and becoming more vocal in expressing concerns about aging. At the same time, providers are becoming more aware of what they don't know related to what constitutes the "typical course of aging" (List # 28, page 5). Even less is known about the phenomenon of aging with an existing disability. There is little general knowledge about the aging process and how it interacts with age-related changes in functional limitations associated with disability. There is little empirically-based information about how people with disabilities maintain or lose function as they get older and to what degree they experience atypical aging (List # 51, Page I-ii). What do people with disabilities do while researchers define exactly what these issues are and engage in slow, detailed longitudinal studies, confirming or denying the voluminous clinical and anecdotal information that already exists related to aging with disability? What do we do while we wait for the knowledge gap to be filled? The awesome number of years that often elapse from the time issues surface (anecdotal and clinical information), funds are allocated, the issues become research priorities, the literature is reviewed, proposals are written, proposals are reviewed, grants are awarded, research starts, research is completed and then maybe the results get published, results get disseminated, and finally results get utilized. The question is, in whose lifetime does this occur? For people with disabilities the clock is ticking and there is an urgent need for information now! We want to anticipate the type, severity and course of age-associated changes likely to occur as we reach middle age and older. We want to know what to expect; what preventative steps can be taken to prevent or slow effects of aging with disability; how to translate living longer into living better and actively; how to prevent losing independence; and what to do to delay new conditions and increasing disability. In other words, how do we mitigate risk factors (including effective use of assistive technology), access resources that will offer knowledgeable and periodic review, assessment and intervention; and find options and choices regarding fitness, physical, social, and financial options. This Resource List is a beginning attempt to identify available information. Most entries do not represent rigorous research information as such information does not yet exist. Entries cover: - suggested preventive health measures to reduce future complications and secondary conditions, - what changes some people with disabilities may expect, - what health-care options and choices are available and the impact of current health management techniques, - options for clinical and self-care practices and strategies useful to prevent secondary conditions, complications, and age-related conditions. Entries include resources as well as anecdotal information and clinical observations to help people with disabilities look at options in terms of what we can influence or change regarding the quality of our lives and the quality of our aging. About the Research and Training Center AGING WITH A DISABILITY RANCHO LOS AMIGOS MEDICAL CENTER Rehabilitation Research and Training Center on Aging With a Disability DESCRIPTION: The Rehabilitation Research and Training Center (RRTC) on Aging With a Disability is funded by the National Institute on Disability and Rehabilitation Research (NIDRR), a part of the U.S. Department of Education. There are about 40 such Centers, all of which focus on a specific problem affecting people who have a disability. This RRTC is a collaborative effort of Rancho Los Amigos Medical Center and the University of Southern California. The purposes of the Center are 1) to conduct research in our problem area, 2) to train others about findings in this area as well as how to conduct rehabilitation research, and 3) to disseminate information to consumers and professionals. STAFFING Center Director: Bryan Kemp, PhD Research Director: Margaret Campbell, PhD Training Director: Laura Mosqueda, MD Consumer Dissemination: June Kailes, MSW Principal Research Investigators: Rodney Adkins, PhD Phoebe Leibig, PhD Don McNeal, PhD Judith Mitchell, PhD Jacquelin Perry, MD Debra Sheets, RN Nancy Somerville, BS Chairperson of Advisory Committee: Leonard Matheson, PhD THE ISSUE: One of the most important changes in the United States over the last 50 years has been the rapid increase in the number of people living into their 70s, 80s and beyond. Today, average life expectancy is 78 years compared to 47 years in 1900. All persons are displaying increased longevity, including people who sustained a disability at some point earlier in their lives. While it used to be thought a condition such as polio or cerebral palsy was pretty static after its initial onset, evidence has shown many people experience the onset of medical, functional, social and psychological problems as they age. Muscle weakness, fatigue, pain, heart disease, respiratory infection, as well as premature job loss, discouragement, and worry have all been reported. Until recently, little research focused on understanding or treating these problems. Unless we have better diagnostic and assessment tools, better understanding of the processes involved and better ideas of what to do and how to help, we won't reduce the impact of aging on people who have a disability. RESEARCH PROGRAM: (See List #93) CONSUMER DISSEMINATION: A unique feature of this RRTC is its strong emphasis on getting useful and current information to people with disabilities and their families. These audiences are the ultimate beneficiaries of the RRTC's efforts. A variety of techniques are being used to disseminate information including articles in consumer publications, presentations at consumer meetings, computer network bulletin boards, distribution of updates on current research and publication of a resource manual. This Resource List is one product of the consumer dissemination initiative! TRAINING PROGRAM: (See List #93) Rehabilitation Research and Training Center Rancho Los Amigos Medical Center 7601 E. Imperial Highway Downey, CA 90242 310 940 7402 About the Author June Isaacson Kailes has been active as a disability rights advocate and program developer in the independent living movement since the late '60s. June provides consulting and training for businesses, universities, state associations, government entities, centers for independent living and other not-for-profit organizations. She consults in the areas of implementing the Americans with Disabilities Act of 1990; advocacy training and skills building (leadership development); aging with disability; planning (short-term, strategic and long-term); writing publications and grants; incorporating universal design theory into existing and new environments and products; targeting the disability market; managing, evaluating, program developing, and fund raising for centers for independent living and other social service agencies; planning barrier free meetings; telecommunications including using computer bulletin board systems effectively; and training in disaster preparedness for people with disabilities. Prior to establishing a full-time consulting practice in 1989, June was the Executive Director of the Westside Center for Independent Living (WCIL) in Los Angeles for eight years. June earned a Masters degree in Social Work from the University of Southern California and a Bachelor of Arts in Psychology from Hofstra University. One of the original national leaders in the Independent Living Movement, June held many offices in the National Council for Independent Living and the California Coalition of Independent Living Centers. June has written numerous articles, book chapters, monographs and training manuals. Her latest book is A Guide to Planning Accessible Meetings. How to Use This Resource List Entries may be located by using the author or the subject index. Entry categories include: List #: entries are listed in numeric order Type of information: Title/Subject: Author(s): Minutes/Pages: Produced/Published/Began: CONTENT: focus COST: price SEND: where to order or send for information INFO: contact person and phone/ TTY / FAX number Entered: initial entry or update For example: 2 - BOOK: A Resource Guide for Fitness Programs; 116 pages. CONTENT: Offers an approach to fitness programming for the older adult, including tips on how to assess individual, social, and institutional barriers to programming. The guide addresses walking programs, fitness fairs, and fitness education; COST: Order No. 2019, $5.00 Plus $2.00 shipping and handling. SEND: National Council on the Aging, Department 5087, Washington, DC 20061-5087. INFO: 202-479-1200. Entered 9/02/94. If an entry category is not listed, (i.e., cost, publication date or author) it is because the information was unavailable at the time this edition of the Resource List was published. SUBJECT LIST Subject Entry Number Advocacy Essential Services and Resources...................................162 Fitness Centers.................................................80,124 Mammography........................................................121 Self......................................29,31,32,75,120,144,162 Aging What is Aging?.....................................103,104,105,106,107 Assistive Technology...............................................162 Hearing............................................................110 With Disability.....16,20,23,49,51,59,60,65,68,69,70,93,98,117,122,162 Women..............................................................107 Videos.........................................104,105,106,107,110,111 Attendants (see Personal Attendant Services) Arthritis Audio Cassettes....................................................164 Living with Arthritis (video)..............................108,109,164 Autonomic Dysreflexia...................................................155 Breathing Support........................................................14 Cerebral Palsy.....................................20,21,27,30,51,70,94,139 Chronic Fatigue.........................................................143 Cross Disability Focus..................16,20,23,49,51,59,60,65,68,69,70,98 Depression...........................................................76,157 Developmental Disabilities................................43,44,45,46,47,56 Exercise Amputee..................................34,36,40,57,78,83,84,95,96,97 Arthritis..................................................108,114,157 Audio Cassettes......................................3,5,6,7,10,66,164 Balance\Coordination Difficulties (See Exercise: sitting)..........................................36 Caring for Muscles.................................................161 Cerebral Palsy......................................................39 Equipment...................................................78,124,133 Fitness Centers..................................................79,80 General Information...............................3,16,129,146,157,164 How to.............................................................138 Multiple Sclerosis..................................................86 Older Adult................................1,2,3,5,6,7,8,9,11,12,34,35 Paraplegics......................................................34,37 Parkinson's Disease................................................111 Polio....................................................... ....34,55Sitting (See Exercise:.....................3,5,6,9,34,37,40,57,66, Wheelchair Users)......................................71,83,85,123 Quadriplegics....................................................34,38 Self Help Guide....................................................157 Skiing..............................................................41 Spinal Cord Injury......................................92,115,116,157 Sports..............................................................42 Trainers............................................................78 Videos.......................8,9,11,12,34-36,41,59,81,84-92,96,123,164 Water.............................................................4,50 Wheelchair Sports...................................................33 Wheelchair Users............7,8,10-12,33,34,40,71,81,83,84,90,91,92,95 Falls....................................................................82 Fitness (See Exercise) Health Care Advocacy................................................18,149,150,152 Cross Disability.................................................18,19 General.............................................................62 Getting the Most Out of Your Health Care...........................155 Horror Stories.....................................................162 Living Wills.......................................................151 Managed Care...................................................149,154 Medical Tests.......................................................61 Osteoporosis........................................................74 Prescription Drugs..................................................63 Rehabilitation..................................................18,125 Relationships with Providers.......................................159 Rural Areas........................................................153 Self Assessment....................................................158 Injury Prevention and Safety............................................148 Internet.........................................................20,118,119 Latex Allergy...........................................................134 Living Wills............................................................151 Managed Care........................................................149,154 Medical Records..........................................................31 Nutrition...........................................................147,157 Osteoporosis.............................................................74 Pain............................................................140,157,164 Parkinson's Disease.....................................................111 Personal Attendant Services.............................................113 Physical Therapy.........................................................13 Polio.......................................15,16,22,26,52,53,58,76,118,165 Pressure Sores .....................................................141,155 Psychiatric Disabilities Effects of Medication..............................................155 Recreation (See Sports)..................................................33 Rehabilitation........................................................18,25 Resources Audio-Visuals on Aging.............................................102 Canine Companions..................................................112 Centers for Independent Living..................................99,100 Clinic: Assessment Services/Clinics............................54,145 Developmental Disabilities..........................................43 Disability Aging and Wellness Concerns.............................117 Fitness Centers.....................................................79 Listserve (Internet)...........................................101,118 Newsgroup...........................................................20 Osteoporosis........................................................74 Polio...........................................................76,118 Providers........................................................54,72 Research & Training Centers: Aging with Disability......................................93,117 Aging with Spinal Cord Injury.................................122 Developmental Disability.......................................56 Secondary Complications in Spinal Cord Injury..................73 Self-help Groups...........................................54,118 Spinal Cord Injury............................................113 Sports.........................................................42 Women.........................................................163 Scoliosis................................................................15 Self Care Breathing Support Options...........................................14 Chronic Pain Management........................................126,140 General...................................28,29,31,32,62,64,67,144,157 Mammography........................................................121 Medical Records.....................................................31 Muscles............................................................161 Physical Therapy....................................................13 Scoliosis...........................................................15 Skin...............................................................130 Stroke..............................................................17 Surgery.............................................................15 Women...........................................................75,120 Sexuality............................................................16,113 Skin....................................................................130 Spina Bifida Latex Allergy......................................................134 Preventing Secondary Conditions.....................................94 Spinal Cord Injury.......................................23,26,48,49,73,113 Aging..............................................................136 Autonomic Dysreflexia..............................................155 Bladder and Bowel Management.......................................132 Exercise...........................................................157 Joint Problems.....................................................135 Pain...............................................................131 Pregnancy..........................................................127 Pressure Sores.....................................................141 Sexuality..........................................................113 Urinary Tract Infections...........................................142 Stroke.............................................................16,17,77 Urinary Tract Infections................................................142 Wheelchair athletes......................................................25 Wheelchair users Cushions...........................................................128 Weight Bearing Arm..................................................24 Women Assessment Services/Clinics........................................145 Breast Cancer......................................................121 Health and Self-Determination...................................75,120 Menopause..........................................................159 Newsletter.........................................................137 Pain...............................................................159 Pelvic Exams...................................................159,160 Pregnancy......................................................127,159 Self Injury....................................................155,156 Sex.............................................................16,159 World Wide Web (WWW)....................................................119 Author Index AARP Fulfillment....................................................57, 154 Action Digest............................................................71 Aging/DD Clearinghouse...................................................43 Ali, K..................................................................157 Alinovi, D...............................................................34 Altshul Group Corporation...............................................105 Amadeus Press............................................................17 Anderson, B........................................................95,96,97 Asburgh, L...............................................................91 Avenues Unlimited, Inc...................................................10 Avila, D................................................................152 Balgochian-Scalise, M...................................................133 Barrett, S...............................................................28 Becker, B.E..............................................................19 Benson, H................................................................64 Berman, H.S..............................................................32 Berquist, W. H...........................................................77 Bobbitt, L...............................................................91 Bolt, B.................................................................129 Bopp, J.................................................................152 Bornell, D.G.............................................................95 Burhenne, D.P............................................................32 Campbell, M.L............................................................16 Canadian Wheelchair Sports Association...................................84 Canine Companions for Independence......................................112 Casey, M.................................................................90 Center for Disability Policy and Research...............................153 Chrisman, D............................................................3,82 Clay, J.................................................................157 Coghlan, J..............................................................128 Colgan, M................................................................14 Concept Media...........................................................106 Cooke, K.Z...............................................................25 Corbet, B................................................125, 129, 131, 149 Dalton, A................................................................21 DeJong, G................................................................18 Dempsey, T..............................................................119 Dimenet..................................................................20 Direct Cinema Limited...................................................107 Disabled USA.............................................................31 Dobbs, J................................................................127 Downtown Atlanta Senior Services..........................................9 Factor, A................................................................45 Ferrerya, F.............................................................160 Films for the Humanities & Science......................................104 Fleck, L..................................................................4 Fries, J.F...............................................................60 Gans, B.M................................................................19 Gazette International Networking Institute (G.I.N.I.)13,15,22,52,53,54,55,58 Gorman, D...............................................................116 Griffith, H.W............................................................61 Halstead, L.............................................................161 Harik, W.................................................................81 Hartman, C...............................................................85 Hawkins, B...............................................................45 Health Tapes Inc........................................................111 Health Resource Center for Women........................................137 Heller, T................................................................45 Hickey, T................................................................81 Hodges, C.C..............................................................89 Hospitals & Health Networks Magazine.....................................29 HOST Project Director...................................................110 Hughes, K...............................................................160 ILRU....................................................................100 Independent Living Center of the North Shore.......................155, 156 Independent Living Resource Center.......................................14 Institute on Life-Span Development and Gerontology...................46, 47 International Polio Network.........................13,15,22,52,53,54,55,58 Jacobs, A.W..............................................................16 Jane, A.................................................................126 Janicki, M.P......................................................21,51,139 Josephs, A...............................................................17 JSR Enterprises, Inc......................................................8 Kailes, J.I..........................................20,68,69,98,99,101,162 Kansas Research and Training Center on Independent Living............................135,136,140,141,142,143 Kemper D.W...............................................................62 Kempler, W..............................................................144 Kennedy, N.B............................................................125 Keyes, A.M..............................................................138 Kimbo Educations.....................................................5,6,66 Kirchmyer, S............................................................157 Kirschner, K. L..........................................................74 Knopf, K..................................................................4 Kobylinski, B. A.........................................................77 Krewer, S.E.............................................................114 L.A.R.E.I................................................................16 Levinson, A..............................................................67 Lockett, K.F............................................................138 Lollar, D................................................................94 Lumsdon, K...............................................................29 Lutheran Hospital - La Crosse............................................12 Machemer, R.H............................................................27 Maddox. S........................................................23,130,132 Mailhot, A..............................................................150 Mann, N.R................................................................19 Marianjoy Rehabilitation Hospital's Health and Fitness Center............79 Martin, M.................................................................4 Master Duplicators.......................................................59 McLean, R................................................................77 McWaters, G..............................................................50 Meeropol, E.............................................................134 Metler, N...............................................................144 Mettler, M...............................................................62 Milner-Fenwick, Inc.....................................................109 Murphy, K...............................................................157 National Council on the Aging.............................................2 National Eldercare Institute on Health Promotion..............................1,146,147,148 National Handicapped Sports............................36,37,38,39,40,41,42 New England INDEX........................................................72 New Mobility Magazine................................................24, 25 New York City Chapter, National Multiple Sclerosis (MS) Society..........86 Norris, K...............................................................158 Nudelman, D..............................................................76 Odette, F...............................................................159 Ontario Federation for Cerebral Palsy....................................70 Overeynder, J.C................................................21,27,51,139 Pacific Geriatric Education Center......................................102 Paralyzed Veterans of America........................................33,138 PBS Video...............................................................103 Perry, Dr. Jacquelin.....................................................26 Pentland, W..............................................................24 Polio Network News..................................13,15,22,52,53,54,55,58 Powell, R...............................................................151 Ravesloot, C............................................................157 Reed, J.................................................................7,8 Resourceful Woman.......................................................121 RRTC Aging with a Disability.........................................16, 93 RRTC Consortium on Aging and Developmental Disability.................46,47 RRTC Secondary Complications in Spinal Cord Injury.......................73 RRTC Spinal Cord Injury.................................................113 Robbins, L...............................................................81 Roller, S................................................................80 Rose, L..................................................................32 Sebring, N.J.............................................................87 Seekins, T..........................................................157,158 Seltzer, G...............................................................45 Shaer. C................................................................134 Shepherd's Center........................................................11 Shepherd Center (OB-GYN)................................................145 Sieg, S..................................................................78 Skuldt, A...............................................................115 SMILE Program.............................................................1 Sneiderman, C............................................................92 Spina Bifida Association of America......................................94 Stuart, E................................................................64 Sutton, E................................................................45 The President's Committee on Employment of People with Disabilities.............................................................31 Theracise, Inc...........................................................88 Trieschmann, R...........................................................49 Turk, M.A......................................................21,27,51,139 United Cerebral Palsy Associations, Inc..................................30 University of Nevada at Las Vegas.......................................108 University Affiliated Cincinnati Center for Developmental Disorders................................................................56 University of Rochester..................................................27 Vickery, D.M.............................................................67 Wagner, N................................................................81 Wheelchair Workout........................................................7 Whiteneck, G.G...........................................................48 Whiting, P. S............................................................74 Willingham, D............................................................76 Wilson K. & M............................................................35 Wolf, F..................................................................81 Zercher..................................................................83 1 - BOOK: EXERCISE AND OLDER ADULTS, by National Eldercare Institute on Health Promotion: SEND: AARP, 601 E. Street, NW, 5th Floor, Building B, Washington, D.C. 20049. INFO: 202-434-2200. Entered - 9/2/94. 2 - BOOK: A RESOURCE GUIDE FOR FITNESS PROGRAMS, Pages 116; CONTENT: Offers an approach to fitness programming for the older adult, including tips on how to assess individual, social, and institutional barriers to programming. The guide addresses walking programs, fitness fairs, and fitness education; COST: Order No. 2019, $5.00 plus $2.00 shipping and handling. SEND: National Council on the Aging, Department 5087, Washington, D.C. 20061-5087. INFO: 202-479-1200. Entered: 9/2/94 3 - BOOK: BODY RECALL; A PROGRAM OF PHYSICAL FITNESS FOR THE ADULT, Audio Cassette to accompany book, by Chrisman, D; pages 205; 1994: CONTENT: Offers various movement and strength exercises that can be done sitting, standing or lying down, as well as information on body mechanics, including proper posture, and avoiding injury from falls. Large print, illustrations, explicit exercises for varying physical abilities, lesson plans ranging from basic movements to challenging and demanding physical activity, falls and recovery, foot care and body maintenance. COST: $21.00 including shipping and handling, $6.00 instructional tape to accompany the textbook. SEND: Body Recall, Inc., P. O. Box 4122, Berea, KY 40403. INFO: 606-986-2182, Dorothy Chrisman. Entered: 9/2/94. 4 - BOOK: WATER WORKOUTS, by Knopf, K,. Fleck, L., & Martin, M., Pages 136, 1992; CONTENT: Guide to water exercise programs for fitness which includes an extensive choice of water exercises, all performed in the shallow end of the pool and adaptable to individual needs. Suggestions included for programs on various levels of exercise and each exercise is illustrated. A non-impact exercise way to improve one's physical fitness levels without subjecting the body to the stress often associated with jogging, weight training, and/or aerobic dancing. Provides a menu of different exercises from which to develop an individualized fitness program based on personal goals. Sample exercise programs are suggested for the novice, intermediate and advanced participant. Exercise routines are provided for people involved with particular sports or people who have various types of medical conditions or disabilities. Water helps support the body without stress to the joints and ligaments. Every exercise is isokinetic (equal resistance throughout the movement). SEND: Hunter Textbooks, Inc., 823 Reynolda Road, Winston-Salem, NC 27104. INFO: 919-725-0608. Entered: 9/2/94. 5 - AUDIO CASSETTE: SEATWORKS, by Gober, B., 35 minutes, 1987. CONTENT: A workout to music for seated individuals designed to accommodate a wide range of ages and capabilities. An accompanying booklet gives specific suggestions for use with older adults with written instructions and illustrations of each exercise. Easily tailored to individual ability. Can generate an aerobic pulse rate or individuals can participate at their own pace and level of ability. Different bands of this tape can be chosen depending on the age and capability of the user. For example, those who cannot use their legs can choose only the bands that involve upper extremity movements. COST: $10.95, $11.95, plus $3.50 shipping and handling. SEND: Kimbo Educations, Box 477, Long Branch, NJ 07740. INFO: 800-631-2187. 6 - AUDIO CASSETTE: SITTERCISE, 35 minutes, 1982. CONTENT: The program begins with 1) stretching activities designed to stretch the tendons, ligaments and muscles while preparing for exercise; 2) warm-up activities are designed to gradually introduce and intensify the exercise sessions and familiarize the participants with movement opportunities; 3) fast-paced activities incorporated to achieve aerobic or near-aerobic pulse rates; 4) cool-down activities which aid in slowing the participants down gradually and preparing for the recovery phase; 5) relaxation training activities which are included so participants learn how to eliminate residual muscle tension. Using the carotid pulse, everyone can learn for themselves how they respond to exercise. The unique aspect of this cassette is that it is designed to accommodate the widest possible audience by allowing the user to make a customized tape by choosing the appropriate bands from the original tape. For example, wheelchair users unable to use their legs will only want to utilize the bands that require upper arm and shoulder movements and eliminate the one band where there are stand-up and sit-down exercises. If you are unable to use included are information sheets which illustrate the bands that deal with leg and foot work. SEND: Kimbo Educations, Box 477, Long Branch, NJ 07740. INFO: 800-631-2187. Entered: 9/20/94. 7 - AUDIO CASSETTE: WHEELCHAIR WORKOUT WITH JANET REED, with 43-page information manual with illustrated fitness and nutrition tips. 30 minutes, 1983. CONTENT: Conducted by a woman with a disability who uses a scooter. This program of upper body exercises can be done from a wheelchair, scooter, sturdy chair or standing up. Format is divided into three parts: warm-up, work-out, cool-down. Exercises are designed to increase muscle strength and endurance and promote flexibility of joints. The work-out has 47 different movements including extensions, stretches, twists, reaches and range of motion. All done from a sitting position. On one side of the tape is the exercise narration with music. On the other side is music only to tailor new or additional exercises. COST: Cassette and manual $18.75, cassette only $10.50, information manual only $8.25. SEND: Wheelchair Workout, 12275 Greenleaf Avenue, Potomac, MD 20854. INFO: 301-279-2994 - Janet Reed. Entered: 6/15/94. 8 - VIDEO: FITNESS AND INDEPENDENCE WITH JANET REED, 14 minutes, 1991. CONTENT: Conducted by a woman with a disability who uses a scooter. This program of upper body exercises can be done from a wheelchair, scooter, sturdy chair or standing up. Short tape demonstrates upper body exercises and includes quite a bit of biographical information on the instructor, Janet Reed. COST: $17.45 VIDEO, $23.70 video and information manual mentioned above, $34.20 video, audio tape and information manual mentioned above. All prices include first class postage/handling. SEND: JSR Enterprises, Inc. 12275 Greenleaf Avenue, Potomac, MD 20854. INFO: 301-279-2994 - Janet Reed. Entered: 9/3/94. 9 - VIDEO: FOCUS ON FITNESS - STAY FIT FOR LIFE, 45 minutes. CONTENT: Exercise program for adults over 50, developed by a health and fitness professional. The exercises are of mild to moderate intensity and can be modified for different fitness levels. The entire class can be done sitting, standing or both. There is a significant amount of lower and upper extremity exercises. Tape shows an exercise class which includes: warm-up of limbering movements and static stretches (10 minutes); peak period of muscle strengthening and free standing floor movements (20 minutes); cool-down stretches (10 minutes); relaxation (5 minutes). COST: $19.95 plus $3.95 shipping and handling per order. SEND: Downtown Atlanta Senior Services, 607 Peach Tree Street, Atlanta, GA 30365. INFO: 404-872-9191. Entered: 9/3/94. 10 - AUDIO CASSETTE: KEEP FIT WHILE YOU SIT, 35 minutes. CONTENT: Offers seven minutes of warm-up exercises, followed by 20 minutes of aerobics for the different parts of the upper body, and then an eight-minute cool-down. A more advanced workout designed to increase circulation, respiratory capacity, flexibility, muscle tone and strength. Not age specific. COST; $29.95. SEND; Avenues Unlimited, Inc. 1199K Avenida Acaso, Camarillo, CA 93012. INFO: 800-848-2837. Entered: 9/2/94. 11 - VIDEO: LET'S GET FIT, 60 minutes. CONTENT: Video fitness program set to music, specifically designed for the older adult. It provides guidance for use with groups or individuals. For people who are ambulatory and have good balance as well as good use of upper and lower extremities. COST; $20.00 plus $3.00 shipping and handling. SEND: Shepherd's Center, 5200 Oak Street, Kansas City, MO 64112. INFO: 816-444-1121. Entered: 9/2/94. 12 - VIDEO: SWING INTO SHAPE, Three 30-minute routines. CONTENT: A low intensity non-aerobic exercise program that includes three different levels of non- aerobic, low-intensity exercises to choose from allowing participants to build endurance over time. Designed for use by older adults and those with physical disabilities who have use of both upper and lower extremities as well as relatively good trunk balance. Level I - Exercises are done while seated in a chair. Level II - Most exercises are done while seated, but some are performed while standing using a chair for support. Level III -Primarily performed while standing, this routine does have a few exercises from a seated position. Each routine begins with warm-up, followed by continuous movement and a cool-down period. Each level can stand alone as a separate exercise class. COST: $39.95 for complete, three-level program or $14.95 for additional exercises for level I, II or III (specify), plus $4.00 shipping and handling. Check payable to: Lutheran Hospital - La Crosse. SEND: Lutheran Hospital - La Crosse, Product Marketing, 1910 South Avenue, La Crosse, WI 54601-9980. INFO: 800-362-9567, extension 4787 and to order by phone with credit card. Entered: 9/15/94. 13 - ARTICLES; BECOMING AN INTELLIGENT CONSUMER OF PHYSICAL THERAPY SERVICES IN POLIO NETWORK NEWS, by Weiss, M.T., 9 pages, Winter 1993, Vol. 9. No. 1, Part 1 pp 1-5; Spring 1993, Vol. 9, No. 2, Part II, pp 1-4. CONTENT: PART I details how to find and use the services of a physical therapist (PT). Primarily written for post-polio survivors, but has a lot of relevant information for people with other disabilities considering the services of a physical therapist. Reviews why one should consider seeing a PT, how to find and choose a PT as well as the importance of reasonable expectations. Part II deals with the importance of evaluating strength, posture, bed mobility and transfers, gait testing, skin, assessment of appliances and pain. SEND: Polio Network News, International Polio Network, Gazette International Networking Institute (G.I.N.I.) 5100 Oakland Ave., #206, St. Louis, MO 63110-1406. Entered: 9/13/94. 14 - BOOKLET: BREATHING SUPPORT OPTIONS: A CONSUMER PERSPECTIVE, Colgan, M., 43 pages. CONTENT: Resources, including a glossary, assists potential ventilator users in exploring the many options available. part I covers: The Process: Decisions in the Use of Breathing Support Equipment. Part II covers: The Opinion: Breathing Support Equipment from a Consumer Perspective. COST: $10.00 postpaid to organizations or individuals who can afford it. Free copies to individuals exploring their own breathing needs. SEND: Maureen Colgan, Independent Living Resource Center, 201-294 Portage Ave., Winnipeg, Manitoba, R3C0B9, Canada. INFO: 204-947-0194 voice/TTY. Entered: 9/2/94. 15 - NEWSLETTER; SPECIAL FEATURE: SCOLIOSIS IN POLIO NETWORK NEWS, 12 pages, Spring 1992, Vol. 8, No. 2. CONTENT: Features two polio survivors who share their insights as well as detail intervention options such as making a decision to consult a surgeon, being clear about what you want to improve, gathering information, how to search for an experienced surgeon, resources and finances. SEND: Polio Network News, International Polio Network, Gazette International Networking Institute (G.I.N.I.) 5100 Oakland Ave., #206, St. Louis, MO 63110-1406. Entered: 12/4/94. 16 - BOOK: AGING WITH DISABILITY IN THE NINETIES...WHAT LESSONS CAN BE LEARNED FROM AGING WITH POLIO AND STROKE, Campbell, M.L. and Jacobs, A. W., 15 pages. CONTENT: Proceedings from a conference: Meeting the Challenges of Aging with a Disability: Lessons Learned from Post-Polio and Stroke held in March of 1993, Long Beach, CA. The conference, sponsored by Rehabilitation Research and Training Center on Aging and Disability and Rancho Los Amigos Medical Center, covered current information on the medical, physical and psychosocial aspects of aging as it relates to people who have had polio or a stroke. Includes: - Aging with a Disability: A Life Course Perspective - Aging and Disability: A Comparison of Health Related Changes - The Late Effects of Polio - Welcomed New Perspectives in Meeting the Challenge of Living After Stroke - Exercise: When, How and Why - Coping with Disability: A Challenge at All Ages - Dialogue Between Physicians and Consumers: Obtaining Better Health Care - Promoting Personal Growth Through Disability - Love, Sex and Disability COST: $28.00 each, California residents add sales tax. Mail check or money order payable to L.A.R.E.I. SEND: L.A.R.E.I., Rancho Los Amigos Medical Center, P. O. Box 3500, Downey, California 90242. Entered: 12/4/94. 17 - BOOK: THE INVALUABLE GUIDE TO LIFE AFTER STROKE; AN OWNER'S MANUAL, Josephs, A., 12 pages, 1987. CONTENT: Written from the perspective of a man who has been there! This short, easy to read, guide details some of the experiences and emotional reactions one may expect after having a stroke. Written by a former lawyer the book uses anecdotal information, contains technical advice as well as some medical information which can be of help to other people who have experienced stroke. Audience is not only people who have survived strokes, but also their families and significant others. The book uses stereotypical language, rather than disability-neutral language related to people with disabilities, such as courage, bravery, imprisoned, victim, confined, etc. COST: $14.95, plus $1.75 shipping. CA Residents add sales tax. SEND: Amadeus Press-B, P. O. Box 13011, Long Beach, CA 90803. Entered: 11/12/94. 18 - ARTICLES: HEALTH CARE AFTER REHABILITATION SPONSORED BY THE AMERICAN CONGRESS OF REHABILITATION MEDICINE AND POST REHABILITATION HEALTH CARE FOR PEOPLE WITH DISABILITIES: AN UPDATE ON THE 1989 WHITE PAPER OF THE AMERICAN CONGRESS OF REHABILITATION MEDICINE. ADDRESSING THE POST-REHABILITATION HEALTH CARE NEEDS OF PERSONS WITH DISABILITIES. THE ACRM COMMITTEE ON SOCIAL, ETHICAL, AND ENVIRONMENTAL ASPECTS OF REHABILITATION IN ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, by DeJong, G., pages S1-S8. December 1993, Volume 74, No 12-S, W.B. Saunders Company, a Division of Harcourt Brace and Company Chicago, IL. CONTENT: These excellent articles detail the importance and significance of people with disabilities advocating for health services that really meet their needs after acute medical rehabilitation is completed and the lack of good health care delivery strategies in the areas of primary health care, health education and health promotion needs of people with disabilities. The articles state lack of access to these primary health care services contribute to recurring but often preventable health problems. There is a tendency for people with disabilities to assimilate into the larger society and distance themselves from rehabilitation providers who, in one sense, remind them of an earlier period many would rather forget. People with disabilities find physicians often lack knowledge of their health problems forcing them to seek assistance from rehabilitation physicians. These articles discuss the need for new innovative systems. They make the case that rehabilitation providers' higher level knowledge about the health needs of people with disabilities places a unique and high responsibility on the field of taking a leadership role with respect to health service needs after rehabilitation is completed. Rehabilitation's commitment to people with disabilities needs to extend well beyond the discharge from rehabilitation services. Entered: 9/29/94. 19 - ARTICLE: DELIVERY OF PRIMARY CARE TO THE PHYSICALLY CHALLENGED IN ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, by Gans, B.M., Mann, N. R. & Becker, B.E., pages S15-S19. December 1993, Volume 74, No. 12-S, W.B. Saunders Company, a Division of Harcourt Brace and Company Chicago, IL. CONTENT: Discusses the history of health service needs of people with disabilities and examines the issues of need and delivery of services. Model programs designed to meet those needs are also described. The models are only a couple of many innovations needed to fully address the health needs of the underserved population of people with disabilities. Entered: 9/29/94. 20 - NEWS GROUP; AGING WITH DISABILITY (AWD), hosted by Kailes, J.. FOCUS: A conference area on Dimenet (Disabled Individual's Movement for Equality Network) which offers an open forum to discuss aging with disability and related issues, questions and resources. Dimenet is a national computer networking system that is accessible at multiple locations and provides access for communications and information sharing among individuals involved in the disability rights and independent living movements. It is operated and controlled by people with disabilities. INFO: Set your communications parameters at 8 bits, one stop bit and no parity. The on-line phone numbers to reach Dimenet are (508) 880-5412 Taunton, MA; (513) 341-5205 Dayton, OH; and (918) 582-3622 Tulsa, OK. Once you are connected, first type "dime" in lower case letters then press . If you have questions, problems, or would like to obtain a user manual, call (513) 237-8360 Voice for assistance. You can download a user manual from Dimenet (located in the "General Documents File Area" the file name is manual.dme - WordPerfect or manual.txt - ASCII). Entered: 6/6/94. 21 - REPORT: "I'M WORRIED ABOUT THE FUTURE" THE AGING OF ADULTS WITH CEREBRAL PALSY, by Overeynder, J.C., Turk, M.A., Dalton, A., & Janicki, M., 16 pages, June 1992. CONTENT: This report describes the findings of a workgroup on cerebral palsy and aging. The report covers medical and physical aspects of aging and cerebral palsy and the frustrations and problems associated with assessing primary health care. Defines cerebral palsy and reviews the various manifestations of the condition, as well as its incidence and prevalence. Points to a trend that older people with CP may have earlier age-specific related conditions than their age peers without CP. The report details the epidemiological, medical, health, social and functional issues that need further research. SEND: New York State Developmental Disabilities Planning Council, 155 Washington Avenue, Albany, New York 12210. Entered: 9/29/94. 22 - FACT SHEET: POLIOMYELITIS FACT SHEET: AN OVERVIEW OF THE LATE EFFECTS OF POLIO, 1 page. CONTENT: The fact sheet addresses some of the concerns related to the late effects of polio (an overview of the information now available). SEND: Institute (G.I.N.I.), International Polio Network, 5100 Oakland Avenue, #206, Saint Louis, Missouri 63110. INFO: 314-534-0475. Entered: 9/30/94. 23 - ARTICLE: SYSTEM BY SYSTEM; THE GRIM SLIDE IN NEW MOBILITY MAGAZINE, by Maddox, S. pages 37-39, 41-43, Summer 1992. CONTENT: Summarizes some of the content of a conference on aging with spinal cord injury held in March, 1992. Specific recommendations are made for people with spinal cord injury regarding living longer and healthier. The article reviews possible changes people with spinal cord injury may experienceand advices how to cope with potential changes in skin, muscles and bones, lungs, heart, urinary system, gastrointestinal, nervous system, and immune system. Entered: 10/29/94. 24 - ARTICLE: THE WEIGHT-BEARING ARM: SINGING THE PARA-PROPULSION BLUES IN NEW MOBILITY MAGAZINE, by Pentland, W., page 41, Summer 1992. CONTENT: Reviews some of the potential liabilities of what happens to the arms of long-term wheelchair users. One finding: changes were not so much related to old age but duration of spinal cord injury. Greater than 15 years functioning with spinal cord injury was often related to decreased strength and flexibility with increased pain. Lists tips for prevention and mitigation of pain. Entered: 10/29/94. 25 - ARTICLE: JOCKS AND THEIR SHOULDERS IN NEW MOBILITY MAGAZINE, Cooke, K. Z., 42 pages, Summer 1992. CONTENT: Details experience of seven wheelchair jocks with regard to shoulder pain. Entered: 10/29/94. 26 - ARTICLE: POST-POLIO RESEARCH UPDATE in RANCHO LOS AMIGOS POST POLIO SUPOORT GROUP NEWSLETTER, Perry, Dr. Jacquelin, 5 pages, March 1996. CONTENT: Overview of current research approaches to managing Post-Polio Syndrome (PPS) including reports of studies on nerve axon overuse, medications used for treating PPS fatigue and paid, and myoneural junction overuse. COST: $5.00 + $2.00 shipping for an audio tape of Dr. Perry's lecture. SEND: Ken Baragar, 817 Irivng Place, Anaheim, CA 92805-5025. INFO: 310-401-7177. Entered: 4/7/96 27 - CHAPTER: CEREBRAL PALSY IN ADULTS WHO ARE OLDER, CHAPTER 6 from AGING AND DEVELOPMENTAL DISABILITIES - AN IN-SERVICE CURRICULUM, MACHEMER, R.H. 7 OVEREYNDER, J.C., EDS., By Turk, M.A., & Machemer, R. H., pages 111-129, 1993, University of Rochester, Rochester, NY. CONTENT: A good overview of cerebral palsy. Defines cerebral palsy, its cause and types. Explores issues related to health, aging, secondary conditions, and intervention strategies. Professional chapter full of good information. Entered: 10/29/94. 28 - ARTICLE: COMPLEMENTARY SELF-CARE STRATEGIES FOR HEALTHY AGING, IN SELF-CARE AND OLDER ADULTS MAGAZINE, by Barrett, S., pages 49-52, Fall 1993. CONTENT: Focuses on complimentary or alternative self-care both in terms of collaboration with the primary care physician and individual exploration of self-care practices. Details the definition of self-care and describes it as a growing movement. Entered: 11/6/94. 29 - ARTICLE: BABY BOOMERS GROW UP, IN HOSPITALS & HEALTH NETWORKS MAGAZINE, by Lumsdon, K., page 24, 9/20/93. CONTENT: Discusses the growing number of people who are assertive in seeking and maneuvering through their own health services. Makes the point that unlike their parents and grandparents, baby boomers don't see doctors as gods. They're looking for the right services for the right money. They have questions about treatment options and cost and then take charge of the decision. Baby boomers: tend to pore over self-help books, videos, data bases - looking for more; refuse to accept advice and advice-givers at face value; demand convenience and excellent service; ask for evidence of quality and expertise; expect continuity of care; and explore alternative therapies. Details the importance of shared decision making among physicians and patients. Baby boomers tend to be more demanding patients in any treatment setting. "After all, this is the 'challenge authority' generation. Though baby boomers have entered the mainstream in many respects, they remain suspicious of receiving bad advice or being hoodwinked." Entered: 12/4/94. 30 - NEWSLETTER: THE NETWORKER, United Cerebral Palsy Associations, Program Services Department, Vol. 7, No. 1, pages 1-23, Fall 1993. CONTENT: Issue on aging and cerebral palsy (CP) details experience from personal perspectives on aging with CP; social and emotional dilemmas; exercise and fitness; mobility issues; and gives the recommendations from a National Colloquium on Aging with CP and follow-up activities. SEND: United Cerebral Palsy Associations, Inc. Community Services Division, 1522 K Street, N.W., Suite 1112, Washington, DC 20005. INFO: 800-USA-5UCP V/TTY, 1-202-842-1266 V/TTY. 31 - MAGAZINE: DISABLED USA, Vol. 4, No. 2, pages 1-33, 1980. CONTENT: The issue deals with seeking effective medical services. Articles include: Getting Needed Treatment; Your Medical Records and Four Steps to Getting Your Medical Records (both a bit outdated); Improving Doctor Performance and Self Health. SEND: The President's Committee on Employment of People With Disabilities, 1331 F Street, N.W., Washington, DC 20004-1107. INFO: 202-376-6200 voice, 202-376-6205 TTY, 202-376-6219 FAX. 32 - ARTICLE: THE FINE ART OF GETTING WHAT YOU WANT (AND NEED) FROM A DOCTOR, IN WOMANS DAY, by Berman, H.S., Burhenne, D.P., & Rose, L., pages 1,44,26,48,51,54, 11/15/83. CONTENT: An excellent how-to article which details strategies for getting what you want from a doctor. Strategies include deciding what you really want; talking to your doctor tips; how to ask for a second opinion; why you don't want one of the top ten doctors in the country; the etiquette of referrals; when your doctor makes a mistake; why doctors don't make house calls; when there's a problem call sooner, not later; tips on absolutely enraging your doctor; three things your doctor may do to enrage you; and when to change doctors. From their book The Complete Care Advisor, published by Market/St. Martin's Press. 33 - BOOKLET: A GUIDE TO WHEELCHAIR SPORTS AND RECREATION, 28 pages. CONTENT: An excellent resource for people who want to get involved or more involved in wheelchair sports and recreation. The guide is a general introduction to the kinds of sports equipment and activities available nationally. It features an extensive list of groups and companies for activities and products. SEND: Paralyzed Veterans of America, 801 Eighteenth Street, NW, Washington, DC 20006. INFO: 202-872-1300, 202-416-7622 TTY. Entered: 11/6/94. 34 - VIDEO: SEAT-A-ROBICS, by Daria Alinovi, President, 50 minutes, 1993. CONTENT: Instructional video on fitness for people with physical disabilities and seniors. Tape includes two classes. Must have some use of upper extremities. Instructor and class participants are all people with disabilities. Class 1 - "Endurance" consists of warm-up, aerobic conditioning and cool-down. Covers monitoring resting and target heart rates; safety tips; and adaptive exercises for people with physical disabilities and older adults. Class 2 - "Body Sculpting" incorporates light hand weights. The focus is to improve muscular strength and body contour while demonstrating proper form. "How to" instructions are highlighted. A cool down segment and range of motion stretches from the floor conclude the class. These cool down stretches can also be done from a chair. COST: Each tape - $24.50 Class 1 and 2. Specify which tape. (New York State residents add tax); both classes on one tape $36.95. SEND: P. O. Box 630064, Little Neck NY 11363-0064. INFO: 800-484-7046 x1130, 718-631-4007, Dari Alinovi. Entered: 8/31/94. 35 - VIDEO: SIT AND BE FIT, 30 minutes. CONTENT: A vigorous workout for seated people of all ages. Designed to promote maximum health through aerobic work and muscle conditioning. Provides an upper-body conditioning program intended to promote better posture; more strength and muscle tone; greater flexibility; increased total-body circulation; improved energy; and confidence. SEND: Karen & Mark Wilson, 10201 North 58th Place, Scottsdale, AZ 85253. INFO: 602-998-8455. Entered: 12/4/94. 36-41 - VIDEOS: FITNESS IS FOR EVERYONE VIDEOTAPE SERIES: Each aerobic program includes a warm-up, an aerobic routine and a cool-down. The exercise modifications are for the functional categories described below. Individuals with disabilities and their family members and friends without disabilities may work out with these tapes. A demonstrator with and without a disability is featured in each exercise routine, 30 minutes. See individual entries below for information about specific programs in this series. Produced by National Handicapped Sports. COST: See below and add $4.50 per item for shipping and handling. SEND: National Handicapped Sports/Videotapes, 451 Hungerford Drive, Suite 100, Rockville, MD 20850. INFO: 301-217-0960, 301-217-0968 FAX, 301-217-0963 TTY. 36 - VIDEO: AEROBICS FOR AMPUTEES. CONTENT: Vigorous exercise for ambulatory individuals who have impaired balance and/or coordination; people who can exercise standing up but cannot do fancy footwork that may upset balance. This program features low-impact, simple arm and leg movements. COST: $17.00 (see List #36-41 above for complete ordering information). 37 - VIDEO: AEROBICS FOR PARAPLEGICS. CONTENT: Vigorous exercise for nonambulatory individuals with good upper body functioning and coordination. Includes utilizing full trunk, arm and shoulder muscles. Incorporates simple jogging and leg movements. (Instructor - no disability) COST: $17.00 (see List #36-41 above for complete ordering information). 38 - VIDEO: AEROBICS FOR QUADRIPLEGICS. CONTENT: Vigorous exercise for nonambulatory individuals with limited upper body function such as individuals with a T-6 or higher spinal cord injury or people with significant full body impairments. Program features primarily upper torso; shoulder and arm movements; and shifts frequently to prevent muscle fatigue. Demonstrates simple low-impact, full-body movements of low intensity. Instructor - no disability. COST: $17.00 (see List #36-41 above for complete ordering information). 39 - VIDEO: AEROBICS FOR CEREBRAL PALSY. CONTENT: Vigorous exercise for ambulatory or nonambulatory individuals with muscular coordination difficulties. Program features a prolonged warm-up followed by exercise using easy-to-follow upper body movements. Low-impact, rhythmic full body actions are demonstrated. COST: $17.00 (see List #36-41 above for complete ordering information). 40 - VIDEO: STRENGTH AND FLEXIBILITY EXERCISE. CONTENT: A full body routine of strength training exercises demonstrated by a wheelchair-user and a stretching routine demonstrated by an above-the-knee amputee. Routines are presented in a head-to-toe sequence so individuals can participate in consecutive exercises as their available functioning muscle mass allows. Instructor - no disability. COST: $25.50 (see List #36-41 above for complete ordering information). 41 - VIDEO: ADAPTIVE SKI TEACHING METHODS: A Practical Approach for Instructors Video and Manual. CONTENTS: Contains information to help professional and volunteer ski instructors teach students with disabilities. COST: Video alone $29.95; manual alone $21.50; video & manual $39.95 (see List #36-41 above for complete ordering information). 42 - RESOURCE: National Handicapped Sports (NHS) is a national nonprofit charitable education association providing information as well as sports and recreation opportunities to people with physical disabilities through a network of over 85 community-based groups, currently serving over 60,000 people nationwide. NHS offers the following programs and services: - Recreational winter and summer programs through a network of community-based groups - Learn to ski and race clinics for beginning and intermediate disabled skiers Winter competition programs in alpine (downhill) and Nordic (cross country) skiing - Summer competition programs in archery, basketball, canoeing, cycling, kayaking, lawn bowling, sailing, shooting, swimming, table tennis, track and field, volleyball, water skiing and weightlifting - Training camps for members of the U.S. Disabled Ski Team and the U.S. Amputee Summer Sports Team - Aerobic fitness - Special programs for children, women and veterans with disabilities - Training and Certification for adaptive ski and adaptive fitness instructors - Educational videotapes and instruction manuals for adaptive ski and fitness instruction SEND: NHS National Headquarters, 451 Hungerford Drive, Suite 100, Rockville, MD 20850. INFO: 301-217-0960, 301-217-0968 FAX, 301-217-0963 TTY. 43 - RESOURCE: AGING/DD CLEARINGHOUSE. FOCUS: Provides information and referrals related to older persons with developmental disabilities. Sponsored by the RRTC Consortium on Aging and Developmental Disabilities. SEND: Aging/DD Clearinghouse, 159 Carroll Hall, The University of Akron, Akron, OH 44325-5007. INFO: Ruth Roberts, 800-538-6544. Entered: 12/3/94. 44 - REPORT: AGING AND DEVELOPMENTAL DISABILITIES: CHALLENGES FOR THE 1990s. PROCEEDINGS OF THE BOSTON ROUNDTABLE ON RESEARCH ISSUES AND APPLICATIONS IN AGING AND DEVELOPMENTAL DISABILITIES. SEND: Matt Janicki, NYS Dept. of MR/DD, 44 Holland Ave., Albany, NY 12229-0001. Entered: 12/4/94. 45 - BOOK: OLDER ADULTS WITH DEVELOPMENTAL DISABILITIES; OPTIMIZING CHOICE AND CHANGE, by Sutton, E., Factor, A., Hawkins, B., Heller, T., and Seltzer, G. CONTENT: Collection of recent articles on issues in aging and developmental disabilities written primarily by members of the RRTC Consortium on Aging and Developmental Disabilities. SEND: Paul H. Brookes Publishing, Baltimore. Entered: 12/4/94. 46 - BOOK: A RESOURCE GUIDE FOR TRAINING SPECIALISTS IN AGING AND DEVELOPMENTAL DISABILITIES. CONTENT: A research-based manual that provides a framework for training at preservice and inservice levels. Includes instructor objectives, training outline, training resources, and materials suitable for use as handouts and overheads. SEND: RRTC Consortium on Aging and DD, through the Institute on Life-Span Development and Gerontology, University of Akron, 179 Simmons Hall, Akron, OH 44325-4307. INFO: 800-838-6544, 216-972-7243. Entered: 12/4/94. 47 - RESEARCH BRIEFS: CONTENT: Executive summaries of the work of RRTC Consortium on Aging and Developmental Disabilities at seven universities. Topics include fiscal and program policy analysis; community service delivery; funding for family-sized community living options; aging-related physical changes; behavior capabilities assessment; intervention strategies; and others. SEND: RRTC Consortium on Aging and DD, through the Institute on Life-Span Development and Gerontology, University of Akron, 179 Simmons Hall, Akron, OH 44325-4307. Entered: 12/4/94. 48 - BOOK: AGING WITH SPINAL CORD INJURY, by Whiteneck, G. G., et al, 1992. SEND: Demos Publications, 156 Fifth Ave., New York, NY 10010. Entered: 10/27/94. 49 - BOOK: AGING WITH DISABILITY, by Trieschmann, R., 148 pages, 1987. CONTENT: One of the first important publications that substantiated the aging with disability issue. The book details that people with disabilities are now experiencing conditions that combine the problems of aging with the issues unique to a lifespan living with a specific disability. Chapters include: The Fight for Life, Liberty and the Pursuit of Happiness; Health and Physical Disability; Aging Bodies With Disabilities; Psychosocial and Environmental Implications of Aging; and Implications for Research and Policy. SEND: Demos Publications, 156 Fifth Ave., New York, NY 10010. Entered: 10/27/94. 50 - ARTICLE: "HYDRO-AEROBICS PROVIDES PAINLESS EXERCISE FOR THE AGED" in CONTINUING CARE, by McWaters, G., pages 22-23, December 1986. CONTENT: This article excerpted from the book "Deep Water Exercise for Health and Fitness" briefly summarizes exercises that can be done in the water. Although the article is primarily aimed at older people, it has application for people with disabilities. It points out deep water exercise is an excellent physical activity. By immersing the body to neck level in deep water, the joints and muscles are completely relieved of the pressure and stress caused by normal activity. The hydrotherapy of the water in motion stimulates and soothes the muscles, reducing pain and fatigue. The article makes a case for using a lightweight buoyant vest, such as the Wet Vest, a neoprene and Lycra outfit that allows wearers to keep their heads above the water with the body inclined slightly forward in a running position while exercising. While land exercise can be painful, water exercises relax muscles. Entered: 9/29/94. 51 - REPORT: AGING AND CEREBRAL PALSY: PATHWAYS TO SUCCESSFUL AGING A NATIONAL ACTION PLAN - A REPORT OF THE TASK GROUP ON AGING AND CEREBRAL PALSY, by Overeynder, J.C., Janicki, M.P., & Turk, M.A. (eds.), 37 pages, February 1994. CONTENT: This report summarizes recommendations of a national invitational colloquium on aging and cerebral palsy held in conjunction with the Annual Meeting of UCPA, Inc., in Alexandria, VA, in April, 1993. It details some changes in physical functioning people with CP are experiencing, age-related changes that seemed to occur earlier in them than in their friends without disabilities. Recommendations include: establishing a National Task Force to oversee the implementation of colloquium recommendations; designing and promoting the implementation of a health and wellness agenda that describes means to assure full access to existing programs and emphasizes independent living, self-advocacy and optimal functioning; stimulating gender-specific research; promoting best practice guidelines for prevention and intervention methods; researching lifelong impact of early childhood intervention strategies; establishing a nation-wide information and referral network; developing and disseminating educational materials for people with CCP as well as health providers; advocating for public policy changes; establishing linkages among organizations and stimulating them to address the needs of older persons with CP; and refining the definition of CP to include the concept that age associated changes may affect the functional status of people who have CP. Although focused on people with cerebral palsy, many parts of the report are relevant to cross-disability issues. SEND: New York State Developmental Disabilities Planning Council, 155 Washington Avenue, Albany, NY 12229. Entered: 9/29/94. 52 - BOOK: HANDBOOK ON THE LATE EFFECTS OF POLIOMYELITIS FOR PHYSICIANS AND SURVIVORS. CONTENT: Covers the basic information about the late effects of polio. COST: $6.75. SEND: International Polio Network, 5100 Oakland Avenue, #206, Saint Louis, Missouri 63110. INFO: 314-534-0475. Entered: 9/30/94. 53 - NEWSLETTER: POLIO NETWORK NEWS. 12 pages. CONTENT: A quarterly newsletter which keeps polio survivors and the network informed about issues relating to polio and its late effects. A sample copy of "Polio Network News" is available upon request. Five back issues of "Polio Network News" are available for $3 each. COST: $12.00 annual subscription for survivors, $3 back issues. SEND: International Polio Network, 5100 Oakland Avenue, #206, St. Louis, Missouri 63110. INFO: 314-534-0475. Entered: 9/30/94. 54 - NEWSLETTER: POST-POLIO DIRECTORY. CONTENT: Lists clinics, health professionals, and self-help groups. COST: $3 for survivors. SEND: International Polio Network, 5100 Oakland Avenue, #206, St. Louis, Missouri 63110. INFO: 314-534-0475. Entered: 9/30/94. 55 - NEWSLETTER: POLIO NETWORK NEWS, INTERNATIONAL POLIO NETWORK, Vol. 7, No. 3., 12 pages, Summer 1991. CONTENT: Focuses on the subject of exercise for polio survivors. Two articles "Suggestions for Exercise" and "Non-Fatiguing General Conditioning Exercise Program" give specific suggestions. COST: $12.00 subscription for survivors, $3 back issues. SEND: International Polio Network, 5100 Oakland Avenue, #206, St. Louis, Missouri 63110. Entered: 10/29/94. 56 - RTC: RESEARCH AND TRAINING CENTER CONSORTIUM ON AGING AND DEVELOPMENTAL DISABILITIES. FOCUS: Conducts research, training, and information dissemination. SEND: University Affiliated Cincinnati Center for Developmental Disorders, 3300 Elland Ave., Cincinnati, OH 45229. INFO: 513-559-4958, Esther Lee Pederson and Tom Lottman. Entered: 12/3/94. 57 - BOOK: PEP UP YOUR LIFE: A FITNESS BOOK FOR MID-LIFE AND OLDER PERSONS, 32 pages, 4/94. CONTENT: Describes and illustrates an exercise program that has been specifically prepared for older people. This daily routine takes 20-30 minutes. A number of the exercises can be performed from a chair or a wheelchair. They are identified with the international symbol for access (wheelchair). It appears many exercises can be performed from the sitting position than are indicated by the international access sign. COST: Free. SEND: Fulfillment, (EEO156), 601 E Street, N.W., Washington, DC 20049. Entered: 9/20/94. 58 - BIBLIOGRAPHY: THE LATE EFFECTS OF POLIO, by Weiss, M.T., 13 pages. CONTENT: A listing of articles and books related to the late effects of polio. COST: $.52 in postage on a self-addressed business envelope. SEND: International Polio Network, G.I.N.I., 5100 Oakland Ave., #206, St. Louis, MO 63110-1406. Entered: 9/20/94. 59 - AUDIO CASSETTES: WORKSHOPS FROM A CONFERENCE ON: MEETING THE CHALLENGE OF AGING WITH A DISABILITY; LESSONS LEARNED FROM POST POLIO AND STROKE, HELD IN MARCH 1993, LONG BEACH, CA (See List #16). CONTENT: Tapes available from 15 different workshops. Send or call for order information. COST: Individual audio cassettes $8.50, full set $99 (includes binder), plus CA sales tax 8.25%. Shipping $1.50 for first tape and $1 for each additional tape to a maximum of $7. SEND: Master Duplicators, 11042 Bettes Pl., Garden Grove, CA 92640. INFO: 714-530-1838. Entered: 10/25/94. 60 - BOOK: AGING WELL: THE LIFE PLAN FOR HEALTH AND VITALITY IN YOUR LATER YEARS, by Fries, J. F., 1988. PUBLISHED BY: Addison-Wesley, Menlo Park, CA. Entered: 9/20/94. 61 - BOOK: COMPLETE GUIDE TO MEDICAL TESTS, by Griffith, H.W., 1988. PUBLISHED BY: Fisher Books, Tucson, AZ. Entered: 9/20/94. 62 - BOOK: HEALTHWISE FOR LIFE; MEDICAL SELF-CARE FOR HEALTHY AGING, Mettler, M., & Kemper D. W., 350 pages, 1992. CONTENT: Includes basic guidelines on how to recognize and cope with 115 of the most common health problems facing older adults. Guidelines are based on medical information provided by physicians, nurses, pharmacists, physical therapists and other health professionals. The book is divided into five sections: what you need to know in order to be a wise medical consumer; self-care for health problems; staying healthy and independent (tips and techniques for fitness, nutrition, stress management, mental wellness and staying independent); care giver's guide; and self-care resources (managing medication and what you need to have on hand to cope with health problems). SEND: Healthwise, Inc., P. O. Box 1989, Boise, Idaho 83701. INFO: 208-345-1161, FAX 208-345-1897. Entered: 9/20/94. 63 - BOOK: THE ESSENTIAL GUIDE TO PRESCRIPTION DRUGS 1992: EVERYTHING YOU NEED TO KNOW FOR SAFE DRUG USE, 1992. PUBLISHED BY: Harper Collins Publishers, New York, NY. Entered: 9/20/94. 64 - BOOK: THE WELLNESS BOOK: THE COMPREHENSIVE GUIDE TO MAINTAINING HEALTH AND TREATING STRESS RELATED ILLNESS, by Benson, H., Stuart, E., et al.PUBLISHED BY: Carol Publishing Group, Secaucus, NJ. Entered: 9/20/94. 65 - BOOK: AGING AND DISABILITIES: SEEKING COMMON GROUND, 204 pages. CONTENT: Addresses the needs and interests of younger and older adults with disabilities. COST: $13,95, plus $2 shipping. SEND: Baywood Publishing Co. Inc., 26 Austin Ave., Amityville, NY 11070. INFO: 516-691-1270. Entered: 9/20/94. 66 - AUDIO CASSETTE: SEATWORKS, by Gober, B., 30 minutes, 1987. CONTENT: A muscle workout for seated individuals designed to accommodate a wide range of ages and capabilities. Can generate a pulse rate near one's target zone. Can generate an aerobic pulse rate or individuals can participate at their own pace and level of ability. The unique aspect of this tape is different bands can be chosen depending on the age and capability of the participant. For example, those who cannot use their legs can choose only the bands that involve upper extremity movements. SEND: Kimbo Educations, Box 477, Long Branch, NJ 07740. INFO: 800-631-2187. Entered: 9/20/94. 67 - ARTICLE: THE LIMITS OF SELF-CARE IN GENERATIONS, by Vickery, D.M., & Levinson, A., pages 53-56, Fall 1993. CONTENT: Discusses some of the limits of self-care. Entered: 11/6/94. 68 - AUDIO CASSETTE: TURNING 35 AND SOMETIMES FEELING 65!, 90 minutes, 4/30/94 - NCIL Annual Meeting. CONTENT: Featuring June Kailes, disability policy consultant, and Margaret A. Turk, M.D., associate professor of physical medicine and rehab. SUNY Health Science Center, Syracuse, NY, addressing audience at the National Council on Independent Living's annual meeting. The tape quality is good except for portions that deal with audience comments and questions. These comments are hard to hear as there was not a microphone for the audience. COST: $7. SEND: June Isaacson Kailes, Disability Policy Consultant, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293-7556. INFO: 310-821-7080, 310-827-0269 FAX. Entered: 6/30/94. 69 - AUDIO CASSETTE: AGING WITH DISABILITY - ADDRESS TO USC MEDICAL STUDENTS. 4/245/94. CONTENT: Lecture and discussion with June Isaacson Kailes, disability policy consultant, and Laura Mosqueda. COST: $7. SEND: June Isaacson Kailes, Disability Policy Consultant, 6201 Ocean Front Walk, Suite 2, Playa del Rey, CA 90293-7556. INFO: 310-821-7080, 310-827-0269 FAX. Entered: 9/30/94. 70 - BOOK: AGING WITH A LIFELONG PHYSICAL DISABILITY: A SELF-HELP GUIDE, 75 pages, 1992. CONTENT: Guide covers what helps people with disabilities age well; needs and strategies; and provides lists of: self-help publications, audio-visual material, and product and equipment manufacturers and suppliers. The appendices include presentations from a seminar on aging with life-long disability and includes papers on: The Aging Process and Its Effect on Body Systems; Coping with Change; Consumer and Caregiver Needs; Enhancing Independence; and a reference reading list. SEND: Ontario Federation for Cerebral Palsy, 1020 Lawrence Ave. W, Suite 303, Toronto, Ontario, Canada M6A1C8. Entered: 12/12/94. 71 - ARTICLE: PHYSICAL FITNESS: THE IMPORTANCE OF STRETCHING, IN ACTION DIGEST, Pages 8 & 9, Fall 1993. CONTENT: Suggests six stretching routines, for people who use wheelchairs, that concentrate on the wrist, elbow, shoulders, back and chest. The sample exercise routine includes three types of stretching for the wrist and arms and another three for the back and chest. Entered: 12/12/94. 72 - REGISTRY: NEW ENGLAND INDEX: INFORMATION ON DISABILITIES EXCHANGE, 1988. CONTENT: The Physician Registry is a computerized directory of physicians interested in serving people with developmental disabilities and special health care needs. Specialty areas include: primary care, psychology, gynecology, orthopedics, neurology, ophthalmology, and others. Index includes providers who have experience treating people with developmental disabilities. The Registry can be used by people with disabilities, family members, case managers and service providers, physicians, other health providers, and direct service providers. This computerized registry includes office accessibility, location, type of insurance, and particular disability experience. No lists are printed; rather, callers are recontacted with names and phone numbers of as many matches as possible. Annual requests for information review and a dated signature from each physician ensure Registry data is as up-to-date and accurate as possible. COST: Free. SEND: New England INDEX Shriver Center UAB, 200 Trapelo Road, Waltham, MA 02154. INFO: 800-642-0249 V/TTY (New England), 617-642-0248, FAX: 617-642-0122. Hours: 8:30 A.M. to 4:30 P.M. EST, Mon-Fri. Entered: 12/12/94. 73 - RTC: REHABILITATION RESEARCH AND TRAINING CENTER IN SECONDARY COMPLICATIONS IN SPINAL CORD INJURY, 1982. FOCUS: To develop and disseminate rehabilitation techniques and approaches used to prevent and treat the secondary complications associated with spinal cord injury. A "Spinal Cord Injury Audiovisuals and Publications" list is available upon request. SEND: The RTC Training Office, UAB Spain Rehabilitation Center, 1717 6th Ave. S. Birmingham, AL 35233-7330. Entered: 12/12/94. 74 - ARTICLE: OSTEOPOROSIS: WHAT ARE THE RISKS FOR WOMEN WITH DISABILITIES? IN THE RESOURCEFUL WOMAN, by Whiting, P. S., & Kirschner, K.L., pages 2 & 3, Winter 1983, Vol. 2, Issue 1. CONTENT: Reviews what is osteoporosis and examines the higher risk for women whose disabilities have resulted from trauma such as spinal cord injury or a stroke. SEND: Director, Education and Training Center, Rehabilitation Institute of Chicago, 345 East Superior Street, Chicago, IL 60611. INFO: 312-908-4744. 75 - RESOURCE: HEALTH RESOURCE CENTER FOR WOMEN WITH DISABILITIES AT THE REHABILITATION INSTITUTE OF CHICAGO. FOCUS: A program where women with disabilities work in collaboration with hospital staff to design and deliver health services for women with disabilities. The goal of the center is to empower women with disabilities to practice self-determination in achieving emotional and physical wellness. To meet this goal, the Center provides accessible medical services, conducts research in disabled women's health issues, and offers educational resources for women with disabilities and health care professionals. Accessible medical services are offered for: consultative pregnancy services, mammogram referrals, pelvic exams, family planning/contraceptive services, preventative healthcare counseling and psychological services. INFO: Kristy Kirschner, M.D., Medical Director, Judy Panko Reis, Administrative Director, Rehabilitation Institute of Chicago, 345 East Superior Street, Chicago, IL 60611. 312-908-4744. To make an appointment, call 312-908-6066 or 1-800-345-REHAB. Entered: 12/12/94. 76 - BOOK: HEALING THE BLUES: DRUG-FREE PSYCHOTHERAPY FOR DEPRESSION, by Nudelman, D., & Willingham, D., 1994. CONTENT: An account by an individual and the therapist, written in alternating chapters by both, it reads like a novel and demystifies the therapy process. The individual is a survivor of polio who is dealing with post-polio syndrome. COST: $22.00 (California residents add sales tax). Include $2.25 for one copy, plus $4.75 for each additional copy for shipping. SEND: Boxwood Press, 183 Ocean View Blvd., Pacific Grove, CA 93950. INFO: 408-375-9110, 408-375-0430 FAX. Entered: 12/12/94. 77 - BOOK: STROKE SURVIVORS, by Berquist, W. H., McLean, R. & Kobylinski, B.A., 250 pages, 1994. CONTENT: First-hand account of the experience of having a stroke and the process of recovery, based on one personal account and an extensive three-year study of 70 stroke survivors. COST: $24.00. Shipping: $50.00 and under, add $4.00; $50.01-$75.00 add $5.00; $75.01-$100.00, add $6.00; $400.01-$150.00, add $7.00; over $150.00, add $8.00. SEND: Ableforce, 84 Pilgrim Way, San Rafael, CA 94903. INFO: 415-492-0171 V/FAX. Entered: 12/12/94. 78 - ARTICLE: MOVE THOSE MUSCLES! IN PARAPLEGIA NEWS, by Sieg, S., pages 14-20, February, 1994. CONTENT: A strong case is made for people with disabilities improving their health if they perform some type of cardiovascular exercise of moderate intensity every other day. Recommendations are made regarding how to start an exercise program, find a health club and a trainer. Includes listing of exercise physical fitness videos and equipment designed for people with disabilities. Entered: 12/12/94. 79 - RESOURCE: MARIANJOY REHABILITATION HOSPITAL'S HEALTH AND FITNESS CENTER. FOCUS: Developed to meet the needs of people with disabilities who would benefit from regular cardiovascular and resistance-training exercise. Specialized equipment includes treadmills, Airdyn bicycles, upper-body exercisers, a Versa-climber, Stairmasters, Nordic Track Skier, pulleys, weight stations (Universal Paragym, Versatrainer and hand weights). Facilities include accessible showers, bathrooms and formal exercise educational classes. INFO: 26 West 171 Roosevelt Rd., Wheaton, IL 60187 (32 miles west of Chicago). 708-462-4148. Entered: 12/12/94. 80 - ARTICLE: HEALTH SPAS - CAN THEY SLOW THE PROGRESS OF DISABILITY? (WHAT CAN WE LEARN FROM EUROPEAN HOLISTIC PROGRAMS?). IN ACCENT ON LIVING, by Roller, S., Spring 1994. CONTENT: Details what European health spas have to offer people with disabilities and suggests this model could be adopted in this country and something insurance carriers should cover as a way of assisting people in preventing premature aging. Entered: 12/12/94. 81 - VIDEO: THE SMILE PROGRAM: A LOW INTENSITY PHYSICAL ACTIVITY PROGRAM FOR OLDER ADULTS, by Hickey, T., Walf, F., Robbins, L., Wagner, N., & Harik, W., 41:30 minutes, 1992, University of Michigan, Ann Arbor, Michigan. CONTENT: Program is demonstrated by older people of varying abilities, including a wheelchair user. The program consists of 41 exercise movements and was developed especially for older adults with limited mobility due to disability; however, it certainly can prove useful to younger people with disabilities. Seated options are provided for almost all exercise movements demonstrated in a standing position. Exercises can be done using a sturdy chair with a high back that provides a good hand grip, or a wheelchair. In the video approximately half of the SMILE exercises are performed while seated. The program consists of six separate sequences: warm up exercises, upper body exercises, lower body exercise, large body movements, cool down for the upper body and cool down for the lower and full body. COST: Videotape $20.00; Participant booklet $10.00; handling cost $5.00. Michigan residents add sales tax. SEND: SMILE Program, School of Public Health, Department of HB/HE, 1420 Washington Heights, Ann Arbor, MI 48019-2029. INFO: 313-747-0212 (Tom Hickey, Dr. BH). Entered: 12/12/94. 82 - VIDEO: FALLS AND RECOVERY FROM THE FLOOR, by Chrisman, D., 21.5 minutes. CONTENT: Addresses falls and recovery through discussion and demonstration of various methods to safely approach the floor and rise from the floor so that emergency situations will be less traumatic. COST: $38.00 including postage. Entered: 12/12/94. 83 - BOOK: SITTING PRETTY: A CHAIR EXERCISE PROGRAM FOR THE OLDER ADULT, by Zercher, 28 pages, 1993. CONTENT: Sitting exercises for upper body, hands, middle body, lower body and some standing exercises, as well as guidelines for deep breathing and good posture. COST: $5.00, plus $3.00 shipping. SEND: The Shepherd's Center, 5200 Oak Street, Kansas City, MO 64112. Entered: 12/12/94. 84 - VIDEO: FITNESS FOR THE BEGINNER. CONTENT: Gives people with physical disabilities an opportunity to improve fitness levels at home. SEND: Canadian Wheelchair Sports Association, 212-1600 James Naismath Drive, Gloucester, Ontario K1B5N4, Canada. INFO: 613-748-5685. Entered: 12/12/94. 85 - VIDEO: FOREVER FIT, Hartman, C., 30 minutes. CONTENT: Designed to improve muscle strength, circulation, coordination, and flexibility. All exercises are performed from a chair. A special selection provides relaxation tips for relieving stress. COST: $29.95 plus $3.00 shipping. SEND: Forever Fit, 2545 Westchester Road, Toledo, OH 43615. INFO: 419-531-4865. Entered: 12/12/94, Revised 3/31/95. 86 - VIDEO: MS WHEELCHAIR WORKOUT, 30 minutes. CONTENT: Includes a variety of exercises designed to improve balance, coordination, flexibility, and strength. Demonstrates exercise adaptations for people with MS but may be beneficial to others with extremity weakness as well. The program is divided into a section of warm-up exercises, a vigorous calisthenics program, and a relaxing cool-down period. COST: $15.00 per tape, check payable to: NYC Chapter, National MS Society. SEND: New York City Chapter, National Multiple Sclerosis (MS) Society, 30 West 26th Street, 9th Floor, New York, NY 10010-2094. INFO: 212-463-7787. Entered: 12/12/94. 87 - VIDEO: NANCY'S SPECIAL WORKOUT FOR THE PHYSICALLY CHALLENGED, by Sebring, N.J. CONTENT: Created by a registered occupational therapist, this tape's aerobic program begins with a warm-up, moves to a challenging aerobic segment, and ends with a cool-down period, all set to original upbeat music. Appropriate for those with MS, muscular dystrophy, cerebral palsy, spina bifida, amputations, blindness, mental retardation, spinal-cord injuries, head injuries, and other physical disabilities. SEND: Nancy J. Sebring, O.T.R., Nancy's Special Workout, P. O. Box 2914, Southfield, MI 48037-2914. Entered: 12/12/94. 88 - VIDEO: THERACISE, 23 minutes. CONTENT: Intended for people with upper-extremity disability. Separate exercise segments offer instruction in passive range-of-motion, self-range-of-motion, active range-of-motion, and strengthening. A modification sheet allows users to tailor the program to individual needs. SEND: Theracise, Inc., P.O. Box 9100, Unit 107, Newton Center, MA 02159. INFO: 617-332-6160. Entered: 12/12/94. 89- VIDEO: WHEELCHAIR AEROBICS, Hodges, C.C., 30 minutes. CONTENT: Features routines for neck, arms, shoulders, and trunk. Designed to help maintain the cardiovascular system, the exercises are performed by people with various disabilities. Elastic bands made for workouts are demonstrated and may be purchased in conjunction with the video. Useful for persons just getting started on a regular exercise routine. COST: $39.95. SEND: A/V Health Services, Inc., P. O. Box 20271, Roanoke, VA 24018-0028. INFO: 703-389-4330 V/FAX. Entered: 12/12/94. 90 - VIDEO: WHEELERCISE, Beginner - 10 minutes, Advanced - 20 minutes. CONTENT: Beginner and advanced workout for upper-body strengthening. Designed to increase cardiovascular fitness level and joint flexibility. The video works on shoulder depressions; triceps; biceps; medial-lateral and anterior-posterior sitting balance; rib isolation all the way down to the fingers; and wrists with wrist rolls. COST: $24.95 + $2.50 shipping and handling (NJ residents must add sales tax). SEND: Maura Productions, Inc., P. O. Box 723, Butler, NJ 07405. INFO: 212-467-6715. Entered: 12/12/94. 91 - VIDEO: THE WORKOUT, Asburgh, L., & Bobbitt, L, 50 minutes. CONTENT: Aerobic exercise program for use in wheelchair for people with spinal cord injury or amputees. COST: $15.00. SEND: Dallas Rehab Institute, 9713 Harry Hines Avenue, Dallas, TX 75220-5441. Entered: 12/12/94. 92 - VIDEO: KEEP ON MOVING! Sneiderman, C., 55 minutes. CONTENT: Focuses on daily range of motion program for the person at home. Includes two exercise programs -one in a supine position and the second in a wheelchair. Includes an interview with a person with SCI. COST: $79.00. SEND: Dolcar, Inc., 94 Pond Cr., Glastonbury, CT 06033. INFO: 203-659-2475. Entered: 12/12/94. 93 - RTC: REHABILITATION RESEARCH AND TRAINING CENTER ON AGING WITH A DISABILITY. FOCUS: This RTC is a collaborative effort at Rancho Los Amigos Medical Center and the University of Southern California. The purposes of the Center are 1) to conduct research in our problem area, 2) to train others about findings in this area as well as how to conduct rehabilitation research, and 3) to disseminate information to consumers and professionals. RESEARCH PROGRAM: Specific research projects are conducted to investigate problems people face as they age with a disability and to investigate problems older people face who are disabled. In most instances, the research populations include people with post-polio, rheumatoid arthritis, cerebral palsy and stroke. The following projects are under way: A Naturalistic Study of the Life Course of Disability; Identifying and Treating Late-Life Complications of Weakness; Evaluating Residential Care Facilities as Resources for Older Disabled Persons; Use of Technology Services to Maintain Employment Among People Aging with a Disability; A Study of Policy Barriers for Improving Access to Assistive Technology Services; The Role of Consumer Training to Enhance In-Home Supportive Services. TRAINING PROGRAM: Training is directed towards improving the knowledge and skills of present and future health and allied health professionals as well as consumers, family members, rehabilitation and aging agency personnel and policy makers. A variety of training projects are used, including: residencies and internships, RRTC-sponsored conferences, presentations at national conferences, and publication of articles and chapters. The following information can be requested: research reports as they become available, training events for health professionals, training events for consumers or families, consumer information, information about services, or adding a name to mailing list. SEND: Rehabilitation Research and Training Center, Rancho Los Amigos Medical Center, 7601 East Imperial Highway, Downey, CA 90242. INFO: 310-940-7402. Entered: 12/22/94. 94 - BOOK: PREVENTING SECONDARY CONDITIONS ASSOCIATED WITH SPINA BIFIDA OR CEREBRAL PALSY: PROCEEDINGS AND RECOMMENDATIONS OF A SYMPOSIUM, Lollar, D., 144 pages, 1994. CONTENT: The proceedings identify conditions likely to occur over time in people who have spina bifida or cerebral palsy. The book summarizes major preventative interventions possible for people with these disabilities and provide evidence that these prospective activities are helpful. The recommendations were written for people with spin bifida or cerebral palsy, as well as parents and providers. SEND: Spina Bifida Association of America, 4590 Mac Arthur Blvd., N.W., Suite 250, Washington, DC 20007-4226. Entered: 11/25/94. 95 - BOOK: STRETCH & STRENGTHEN, Anderson, B. & Bornell, D.G. CONTENT: This book instructs people with disabilities and older people in simple stretch and strengthening exercises. The strengthening exercises are done with an Iso-Band (circular elastic band with tubular handles). COST: $12.45 each book with Iso-band (Item #5000/5001) + $3.50 shipping and handling; $6.95 each book (Item #5000); $5.50 each Iso-band (Item #5001) SEND: Stretching, Inc., P. O. Box 767, Palmer Lake, CO 80133. INFO: 1-800-333-1307. Entered: 12/28/94. 96 - VIDEO: STRETCHING, THE VIDEO (available in Spanish), Anderson, B.J., 57 minutes. CONTENT: Offers people a variety of daily stretching with a simple, safe format. Video was not created for people with disabilities but is an excellent video for understanding the importance of stretching and how to stretch safely. Organized in six slowly paced sections: a brief introduction; stretches for the neck and back; then legs and hips; followed by stretches for the feet; and then arms and shoulders. The tape concludes with a 14-minute overall series of stretches for everyday fitness or for a specific sport or activity. People need to choose and adapt what they're able to do from the variety of stretches offered on the tape. COST: $29.25 + $3.25 shipping and handling (English - item #5005, Spanish Item #5038). Available in PAL European video format - item #5027. SEND: Stretching, Inc., P. O. Box 767, Palmer Lake, CO 80133. INFO: 1-800-333-1307. Entered: 12/28/94. 97 - BOOK: STRETCHING, Anderson, B., 192 pages. CONTENT: This book, although not specifically developed for people with disabilities, is one of the most widely-used and recommended books on stretching. There are 192 illustrated pages showing stretching methods and routines for each part of the body and a host of specific activities. The book covers exercises for developing strength, care of the back, and recommendations for sound nutrition. COST: $12.00 + $3.75 shipping and handling (Item #2001). SEND: Stretching, Inc., P. O. Box 767, Palmer Lake, CO 80133. INFO: 1-800-333-1307. Entered: 12/28/94. 98 - ARTICLE: AGING WITH A DISABILITY - EDUCATING MYSELF, IN GENERATIONS, JOURNAL OF THE AMERICAN SOCIETY ON AGING, Kailes, J., 3 pages, Winter 1992, Vol. XVI, No.1. CONTENT: Personal experiences about the lack of general information available about aging with a disability. Cites Trieschmann's book, Aging with Disability (list #49) as a first step to identifying the real problems facing people with disabilities who are middle-aged or nearing retirement. Lists specific questions in key areas (research, prevention, nutrition, and advocacy) which need answers. 99 ARTICLE: CENTERS FOR INDEPENDENT LIVING, 9 pages, March 1994. CONTENT: Offers good, clear definitions and explanations of what Centers for Independent Living are and what they do. Information includes what makes CILs unique; why CILs were created; locating a CIL; CILs impact and more. It is a useful handout for public education and independent living philosophy training. COST: $10.00, check payable to J. Kailes. SEND: June Isaacson Kailes, Disability Policy Consultant, 6201 Ocean Front Walk, Suite 2, Playa Del Rey, California 90293-7556. INFO: 310-821-7080 V, 310-827-0269 FAX. 100 - DIRECTORY: CENTERS FOR INDEPENDENT LIVING, Annually updated. COST: $10.00. SEND: ILRU, 2323 Shepherd, Suite 1000, Houston, TX 77019. INFO: 713-520-0232 V, 713-520-5136 TTY. Entered: 1/4/95. 101 - LISTSERVE: AGING WITH DISABILITY, Host: Kailes, J. FOCUS: An Internet mailing list used to periodically distribute resources and information, such as updates of this Resource List, related to aging with disability. SEND: If you have access to Internet, e-mail send a message to jkailes@tsbbs02.tnet.com asking to be placed on the aging with disability mailing list. You will periodically receive e-mail related to aging with disability issues and resources. Entered: 6/6/94. 102 - RESOURCE GUIDE: AUDIO-VISUAL GUIDE: RESOURCES FOR GERONTOLOGY AND GERIATRIC EDUCATION, 1991-92, Pacific Geriatric Education Center, 55 pages. CONTENT: Lists and describes audio-visual works available on a large variety of subjects including aging, disabilities, osteoporosis, and alternative therapeutic programs. SEND: Geriatric Education Center, c/o Los Angeles Resource Center, 3715 McClintock Ave., Los Angeles, CA 90089-0191. INFO: 213-740-8711. Entered: 2/1/95. 103 - VIDEO: AGING (1), 60 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: What happens to the brain and mind during the aging process? Why do some people age yet retain full mental capacity while others lose agility of the mind? This program questions some of the long-held stereotypes about aging and the mind. It explores the diseases of aging including stroke, Alzheimer's, and Parkinson's disease. It points out these diseases are quite distinct from normal aging. Viewers watch experiments to prove, even in old age, new brain connections can be formed. Finally, the program focuses on the phenomenon most commonly associated with older minds: the wisdom of the aged. SEND: PBS Video, 495 L'Enfant Plaza, SW, Washington, DC, 20024. INFO: 202-488-5000 OR 800-344-3337. Entered: 2/1/95. 104 - VIDEO: AGING (2), 26 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: This program covers the physical process of aging, examining the various body systems to see how and why they change with age. It shows not all the changes in older people are inevitable and some changes in the aging body can be slowed down or reversed. SEND: Films for the Humanities and Sciences, P. O. Box 2053, Princeton, NJ 08543-2053. INFO: 1-800-257-5126. Entered: 2/1/95. 105 - VIDEO: THE BODY AGES, 25 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: This program demonstrates that aging is a natural process that need not hinder an active, fulfilling lifestyle. SEND: Altshul Group Corporation, Health Division/930 Pitner Avenue, Evanston, Illinois 60202. INFO: 1-800-421-2363. Entered: 2/1/95. 106 - FILMSTRIP OR SLIDES W/ CASSETTE: HUMAN DEVELOPMENT: SUCCESSFUL AGING, 1979. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: Successful aging my be a contradiction in terms since old age is associated with poor health, poverty, loneliness, and a lack of purpose. This series overturns many myths about aging and shows, through gerontological research and interviews with people over 65, how successful and rewarding life can be in, what our society demeaningly labeled, "the twilight years". SEND: Concept Media, P. O. Box 19542, Irvine, CA 92714. Entered: 2/1/95. 107 - FILM: ACTING OUR AGE; A FILM ABOUT WOMEN GROWING OLD, 58 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: This documentary presents an unprecedented contemporary look at women and aging in America. Acting our Age introduces six women, aged 65 to 75. Through their stories of personal struggle and triumph, the film dispels the myths and challenges the stereotypes which have defined the image of old women in American culture. As they speak openly about sexuality, being alone, financial difficulties and dealing with death, their straight-forward responses reconstruct our expectations about aging and provide insight into the concerns and lives of "real" old women. SEND: Direct Cinema Limited, P. O. Box 69799, Los Angeles, CA 90069-9976. INFO: 213-650-4700. Entered: 2/1/95. 108 - VIDEO: ARTHRITIS: THERAPY EXERCISES, 25 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: Presents exercises for seniors with arthritis experiencing the early stages of restricted physical movement. It demonstrates proper stasis exercises specifically designed to increase the flexibility of all body joints and ranges of motion. The work contains close-ups which serve to facilitate observation and integration of the subtle as well as gross movements. SEND: University of Nevada at Las Vegas, 4505 Maryland Parkway, Las Vegas, NV 89102. INFO: 702-739-3453. Entered: 2/1/95. 109 - VIDEO: LIVING WITH ARTHRITIS, 13 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: This video carefully depicts how a joint works and interacts with muscles, tendons, ligaments, and bursae to the development of the two major forms of arthritis. Presents a complete look at the problems and available treatments. Stresses heat, exercise, rest, and medication (HERM) as the best therapy. Occupational and physical therapies are included as well as a warning on "miracle" cures. SEND: Milner-Fenwick, Inc., 2125 Greenspring Dr., Timonium, MD 20193. INFO: 800-638-8652. Entered: 2/1/95. 110 - VIDEO: HAVE YOU HEARD? 15 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: Most of us take hearing for granted but more than 15 million Americans, and almost 50% of those over 65, experience some degree of hearing loss. This program provides information about the proper identification, treatment, and possible correction of hearing problems. SEND: HOST Project Director, 3438 Olney-Laytonsville Rd., Olney, MD 20832. INFO: 301-775-6114. Entered: 2/1/95. 111 - VIDEO: GET UP AND GO, 25 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: Professionals in Neurology, Physical Therapy, and Rehabilitation have worked together to create a video designed specifically for older persons with Parkinson's Disease. The work has been endorsed by the Parkinson's Disease Foundation, focuses on the prevention of contractures and improvements in endurance and muscle strength. The tape attempts to facilitate social interaction among those performing the presented exercise routines. SEND: Health Tapes Inc., P. O. Box 47196, Oak Park, MI 48237. INFO: 313-662-5100. Entered: 2/1/95. 112 - VIDEO: CANINE COMPANIONS FOR INDEPENDENCE, 26 minutes. From Audio-Visual Guide: Resources for Gerontology and Geriatric Education, 1991-92. CONTENT: This video documents the incredible work of Canine Companions. This organization breeds, trains, and places signal (or hearing-ear) dogs with the deaf and hard of hearing; social dogs to visit nursing homes; and service dogs for the physically challenged. SEND: Canine Companions for Independence, P. O. Box 446, Santa Rosa, CA 95402. Entered: 2/1/95. 113 - FACTSHEETS: RRTC SPINAL CORD INJURY INFORMATION SHEETS ON SPINAL CORD INJURY: 1. Locating information about SCI - SCI Consumers, Contains a listing of organizations, agencies, 800 numbers, and computer resources for individuals with SCI and their caregivers. 2. Locating information about SCI - Professionals, lists professional organizations, agencies, 800 numbers, and computer resources for rehabilitation professionals. 3. Sexuality in males with spinal cord injury - Discusses the physical and psychological changes that can occur in a male's sexual functioning following SCI. Topics include sexual aids, relationship issues, and counseling. For use by healthcare professionals and consumers with understanding of SCI. 4. Understanding spinal cord injury - Advanced presents a concise summary of the anatomy and physiology of a spinal cord injury. Describes the neurological and functional classification of SCI. Includes illustrations. 6. Personal care assistants - Offers guidelines and ideas on employing and managing your PCA. Topics include advertising, interviewing, and qualities to consider when selecting your PCA. Can be used by rehabilitation service providers with their clients. SEND: To receive one free copy - List title and number of InfoSheet you want to order; for each requested InfoSheet, send a self-addressed stamped business envelope; if requesting more than one InfoSheet, include the correct postage - each InfoSheet requires a first class postage stamp; Send to: RRTC Training Office - Rm 506, Dept. of Rehabilitation Medicine, 1717 6th Ave. S., Birmingham, AL 35233-7330; InfoSheets that do not contain illustrations are available electronically on ENABLE and Dimenet or can be uploaded to you via INTERNET. Send INTERNET e-mail to: Lindsey@sun.rehabm.uab.edu. Entered 2/16/95. 114 - BOOK: THE ARTHRITIS EXERCISE BOOK, by Krewer, S.E., 1981. CONTENT: Describes a comprehensive program for controlling the effects of arthritis while relieving pain. The exercises are designed to increase strength, flexibility, and endurance for people who want to protect their joints while they exercise. It is preventive to the extent it may delay the onset of osteoarthritis, as well as therapeutic for those with mild to moderate rheumatoid arthritis. COST: $8.95. SEND: Simon & Schuster, Attn: Mail Order Dept., 1230 Avenue of the Americas, New York, NY 10020. Entered: 4/20/95. 115 - ARTICLE: EXERCISE LIMITATIONS FOR QUADRIPLEGICS: ANAEROBIC TRAINING METHODS CAN BENEFIT THE QUADRIPLEGIC ATHLETE IN SPORTS TN SPOKES, Vol. 10, No.1, Skuldt, A., May/June 1984. CONTENT: Focuses on people who cannot use large muscle and sustain elevated heart rates for 20 minutes. Points out arm work produces less of an aerobic training effect on a body than leg work due to smaller muscle mass being used. The anaerobic exercise sustained heart rate is lower. During anaerobic exercise, lactic acid develops in the muscles early and respiration rates are lower than aerobic exercise respiratory rates. Competitive events usually pursued by quadriplegic athletes last less than three minutes. Competitive events are short-burst, high-intensity activities, training should be anaerobic. People with spinal cord injuries at the T2 level or higher do not experience the same heart rate changes with exercise as their nondisabled counterparts. Thus, the first training tip offered is that keeping logs of time and distance are better for showing positive effects over weeks of training than monitoring heart rate which may remain unchanged. One tip involves allowing long rest periods between exercise bouts to allow anaerobic energy sources within the muscles to be replenished before exercise is resumed. This allows lactic acid buildup (which does not occur as markedly with aerobic exercise) to dissipate and thereby avoids heavy feelings of fatigue. Proper spacing of exercise bursts helps in training the respiratory muscles properly. Since perspiration is reduced to a small surface area for spinal cord-injured quadriplegics, another tip involves the importance of sitting in the shade during long rest periods, drinking fluids, and spraying the body with water to aid body heat dissipation. Entered: 4/20/95. 116 - ARTICLE: THE ROLE OF AEROBIC EXERCISE IN FAT LOSS, in Paraplegia News, Gorman, D., et al, Vol. 38, No. 2., February, 1984. CONTENT: The article clarifies basics: diet alone may result in weight loss but not fat loss without an exercise program; to be aerobic, exercise must use large muscle groups and raise the heart rate to 60-75% of maximum; and, for effective fat loss, the exercise program must last a minimum of 20 minutes per day, three days per week. Research with paraplegics indicates swimming, wheelchair basketball, arm ergometry (pedaling stationary bike), and treadmill running are effective ways to improve cardiovascular fitness and reduce body fat. Listed activities which do not generally appear effective for this purpose include archery, bowling, tennis, and several trademarked gym programs. Entered: 4/20/95. 117 - RESOURCE: COMPREHENSIVE EVALUATION CLINIC AT RANCHO LOS AMIGOS MEDICAL CENTER, DOWNEY, CALIFORNIA. FOCUS: For people with aging and wellness concerns related to disability, offers a comprehensive evaluation involving physical and occupational therapy; social work psychology; neurology; audiology; etc. Clinic is held Thursday mornings, plan for two consecutive visits. INFO: 310-940-7402, ask for the Nurse Coordinator for the comprehensive evaluation clinic. Entered: 5/5/95. 118 - LISTSERV: POLIO LIST JOIN BY SENDING THE MESSAGE. CONTENT: Includes hundreds of subscribers from all over the world who share information on Post Polio Syndrome, drug therapies, new symptoms, ventilator use, and, most important, a support network. Participants include Dr. Lair S. Halstead, one of the best known polio doctors in the United States. SEND: SUBPOLIO YOUR NAME to Listserv@sjuvm.stjohns.edu. Entered: 4/26/95. 119 - WORLD WIDE WEB (WWW): POLIO PAGE, created by Tom Dempsey includes current articles about Polio and new treatments. TO READ: the WWW Polio Page, just log on to: http://eskimo.com/~dempt/polio.html. Entered: 4/26/95. 120 - NEWSLETTER: RESOURCEFUL WOMAN: WOMEN WITH DISABILITIES STRIVING TOWARD HEALTH AND SELF-DETERMINATION. CONTENT: Focuses on a variety of health and self-determination issues for women with disabilities. SEND: Request to be placed on the mailing list: The Health Resource Center for Women With Disabilities, Rehabilitation Institute of Chicago, 345 East Superior Street, Chicago, IL 60611. INFO: 312-908-7997. Entered: 4/13/95. 121 - ARTICLE: BREAST CANCER IN DISABLED WOMEN: ARE THERE ALTERNATIVES TO MAMMOGRAPHY? IN RESOURCEFUL WOMAN: WOMEN WITH DISABILITIES STRIVING TOWARD HEALTH AND SELF DETERMINATION, Fall 1994, Volume 3, Issue 3, page 1. CONTENT: Details newer technology available to accommodate women with limited mobility but not widely available in most communities. Suggests steps women's disability-related advocacy groups can take to acquire such equipment in a near or neighboring community. Details difficulty women with disabilities have in terms of positioning. Suggests important alternatives to mammography for women who simply cannot sit or even use the accessible mammogram equipment. SEND: The Health Resource Center for Women with Disabilities, Rehabilitation Institute of Chicago, 345 East Superior Street, Chicago, IL 60611. INFO: 312-908-7997. Entered: 4/13/95. 122 - RTC: RESEARCH AND TRAINING CENTER ON AGING WITH SPINAL CORD INJURY. FOCUS: Offers research and training activities and reports on their findings regarding aging with spinal cord injury. SEND: Craig Hospital, RRTC on Aging with Spinal Cord Injury, 3425 S. Clarkson, Englewood, CO 80110. INFO: 303-789-8220. Entered: 9/9/95. 123 - VIDEO: CHAIR JAZZ WITH MAURA CASEY: "SIT TO BE FIT," 35 minutes. CONTENT: Aerobic exercises, focuses on flexibility and endurance. Consists of two workouts. 1) An aerobic workout performed from a chair, consisting of warm-up, workout, and cool-down. 2) A body tone-up segment utilizing the Theraband exerciser (included). This segment focuses on increasing strength and tone of muscles. The instructor is a physical therapist with Bachelor's degrees in physical therapy and biopsychology. COST: $24.95 + $3.50 shipping and handling (NJ residents must add sales tax). INFO: 917-467-6715, 800-25-TAPES FAX. Entered: 4/12/95. 124 - VIDEO: NUSTEP TOTAL BODY RECUMBENT STEPPER. CONTENT: Infomercial related to a new piece of exercise equipment, NuStep, a recumbent bike with back-supporting seat. Equipment sells for $1,895 plus shipping and is certainly not something an individual could easily afford; however, it would be a piece of equipment you would advocate a local health club purchase to benefit all members, including people with disabilities. Specific features of the equipment helpful to people with disabilities include: chair-height seat that makes getting on and off easy, footplates with heel cups to hold feet firmly in place, variable step-height is easy on the hips and knees, easy to read and use computer display. SEND: LifePlus, Inc., 3770 Plaza Drive, Suite 1, Ann Arbor, MI 48108. INFO: For a free video of the NuStep in use, call 1-800-322-2209. Entered: 4/4/95. 125 - ARTICLES: THE GOOD, THE BAD AND THE NON-EXISTENT and REHAB ROULETTE, Kennedy, N.B.; ARE YOU IN THE RIGHT PLACE? Corbet, B., pp. 36 - 43 in NEW MOBILITY, Vol. 6, No. 26. CONTENT: A series of articles which detail the ins and outs of rehabilitation (good rehab, bad rehab, and the difference between an acute care hospital and a rehab hospital) in the 1990s. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987 Entered: 1/3/96. 126 - ARTICLE: TREATING CHRONIC PAIN, in NEW MOBILITY, Jane, A., Vol. 6, No. 26, pp 20-21. CONTENT: An overview of some of the recent alternative treatments for pain that have been studied, used, and proven effective for some. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 127 - ARTICLE: PAST DUE: QUAD MOMS TALK ABOUT PREGNANCY, in NEW MOBILITY, Dobbs, J., Vol. 6, No. 23, pp. 28-33. CONTENT: Mothers who are quadriplegic talk about pregnancy. Includes bladder and bowel issues; labor and delivery; and post-partum concerns. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 128 - ARTICLE: CUSHIONS: SITTING PRETTY!, in NEW MOBILITY, Coghlan, J., Vol. 6, No. 23, pp. 58-60. CONTENT: Briefly details some of the ins and outs of selecting the right wheelchair cushion. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 129 - ARTICLES: FITNESS: EXERCISE YOUR RIGHTS, Corbet, B., pp. 36-38, and DOCTORS BE DAMNED, I NEED SOME EXERCISE, Bolt. B., p. 39, in NEW MOBILITY, Vol. 5, No. 18. CONTENT: Details some of the issues related to exercise: doing it right, options, resource organizations, publications, exercise machine options, and exercise tapes. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 130 - ARTICLE: SKIN: STATE OF THE ART REPAIR, in NEW MOBILITY, Maddox, S., Vol. 5, No. 18, pp. 16-19. CONTENT: Reviews issues around skin destruction, preventing pressure sores, and a speculative review of research that seeks alternatives to the common practices of skin grafting and surgical flaps. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 131 - ARTICLES: PAIN and SCI PAIN: THE SURGICAL OPTION, in NEW MOBILITY, Corbet, B., Vol. 6, No. 24, pp. 34-44. CONTENT: Pain and spinal cord injury. Readers discuss pain from a personal perspective in terms of what aggravates the pain, what helps the pain, and offer their own personal advice. The second article covers the locus of pain and two surgical procedures that are options for some: the DREZ and CA'DREZ. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 132 - ARTICLE: BLADDER AND BOWEL OPTIONS, in NEW MOBILITY, Maddox, S., Vol. 6, No. 26, pp. 20-22. CONTENT: Discusses some of the new ways, means, and procedures related to bladder and bowel management for people with spinal cord injury. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 133 - ARTICLE: FITNESS EQUIPMENT: A HEALTHY MARKET in NEW MOBILITY, Balgochian-Scalise, M., Vol. 6, No. 26, pp. 50-51. CONTENT: Reviews some of the options and resources of exercise equipment for people with disabilities. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 134 - FACT SHEET: LATEX (NATURAL RUBBER) ALLERGY IN SPINA BIFIDA PATIENTS, in SPINA BIFIDA SPOTLIGHT, Meeropol, E. & Shaer, C., 1993. CONTENT: Alerts the reader to the possibility of severe latex allergy for individuals with spina bifida. For some, this allergy could be life-threatening. Recommends some options for people at high risk. SEND: Spina Bifida Association of America, 4590 Mac Arthur Blvd. N.W., Suite 250, Washington, DC 20007-4226. INFO: 202-944-3285. Entered: 1/3/96. 135 - BOOKLET: JOINT PROBLEMS, 20 pages. CONTENT: People with spinal cord injury must deal with aging joints and muscles long before they reach their 60s and 70s - the years when most people face joint problems. Physically active people with spinal cord injury often show joint pain and problems about 15 years after their injuries. It appears their joints age well before their bodies do. This booklet overviews some of the issues around the body's joint problem areas; factors contributing to joint problems; prevention; and tips and treatments including simple remedies, change in living space, assistive technology, steroids, and surgery. The booklet touches on related problems such as aging issues, carpal tunnel syndrome, heterotopic ossification, osteoporosis, and suggests further readings. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. Make check payable to RTC/IL. INFO: 913-864-4095. Entered: 1/3/96 136 - BOOKLET: SCI & AGING, 24 pages. CONTENT: An overview of spinal cord injury and aging. Covers people with spinal cord injury aging differently; issues related to aging and skin; muscles and bones; heart; lungs; urinary system; gastrointestinal system; nervous system; immune system; medications; and working with the medical system.Suggests further readings. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. INFO: 913-864-4095. Entered: 1/3/96 137 - NEWSLETTER: RESOURCEFUL WOMEN: WOMEN WITH DISABILITIES STRIVING TOWARD HEALTH AND SELF-DETERMINATION, 8 pages. CONTENT: An information newsletter for women with disabilities which details health issues and disability cultural issues. SEND: Health Resource Center for Women with Disabilities, Rehabilitation Institute of Chicago, 345 East Superior Street, Room 106, Chicago, IL 60611. INFO: 312-908-7997. Entered: 1/3/96 138 - ARTICLES: Rx FOR FITNESS, Part 1: Physical Disability need not - and should not - mean physical inactivity, Part 2: Getting Ready to Exercise & Part 3: Start Doin' It! in PARAPLEGIA NEWS, Keyes, A.M., & Lockette, K.F., Vol. 49, No. 4, pp. 48-54; No. 5, pp. 10-16 & No. 6, pp. 442-29. CONTENT: A three-part series of articles based on information in the new book "Conditioning With Physical Disabilities." Part 1 reviews some medical aspects of spinal cord injury related to exercise; Part 2: how to start an exercise program; and Part 3 reviews some routines and options and includes a list of exercise/fitness videos designed for people with spinal cord injury. SEND: PVA Publications, 2111 East Highland Ave., Suite 180, Phoenix, AZ 85016-4702. Entered: 2/14/96 139 - REPORT: UNCERTAIN FUTURE - AGING AND CEREBRAL PALSY: CLINICAL CONCERNS, Turk, M. A.., Overeynder, J.C., & Janicki, M.P. (Eds.), Albany: The New York State Developmental Disabilities Planning Council, June 1995, 68 pages. CONTENT: Report outlines questions needing further study and highlights areas of clinical and personal concern that need attention. The report discusses what is aging, what is cerebral palsy, and how aging affects people with cerebral palsy. Clinical issues discussed include concerns related to changes in mobility and functioning; pain; fatigue; osteoporosis; fractures; eating; swallowing and dental concerns; and other concerns related to gastrointestinal; urological; reproductive; sexuality; communication; and personal effectiveness. SEND: New York State Developmental Disabilities Planning Council, 55 Washington Ave., Albany, NY 12210. INFO: 518-432-8233. Entered: 1/3/96, Update 7/3/96 140 - BOOKLET: CHRONIC PAIN MANAGEMENT, 1993. CONTENT: This booklet touches on the prevalence of chronic pain among persons with disabilities. It outlines management techniques offered by medical practitioners and presents information for self-management of pain. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. INFO: 913-864-4095. Entered: 1/3/96 141 - BOOKLET: PRESSURE SORES, 1993. CONTENT: This booklet discusses management and prevention of pressure sores. Material includes an assessment scale for predicting risks of pressure sores. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. INFO: 913-864-4095. Entered: 1/3/96 142 - BOOKLET: URINARY TRACT INFECTIONS, 1993. CONTENT: This booklet discusses how to cope with urinary tract problems. Material includes background information on causes and strategies for managing urinary tract problems and complications. A chart on warning signs of Autonomic Dysreflexia is included. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. INFO: 913-864-4095. Entered: 1/3/96. 143 - BOOKLET: CHRONIC FATIGUE, 1993. CONTENT: This booklet provides information dealing with the topic of chronic fatigue among people with disabilities. Includes tips on how to manage chronic fatigue and maintain maximum independence. SEND: The Research and Training Center on Independent Living, University of Kansas, 4089 Dole Center, Lawrence, KS 66045-2930. COST: $2.50. INFO: 913-864-4095. Entered: 1/3/96 144 - BOOK: HEALTHWISE FOR LIFE: MEDICAL SELF-CARE FOR HEALTHY AGING, Metler, N. & Kempler, W., Pub.: Healthwise, 1992, 380 pages. CONTENT: This book includes a process to follow every time a health problem arises and an "Ask-the-Doctor" checklist that helps an individual get the most out of a visit to the doctor. Chapters on wise medical consumer; prevention and early detection; and your home health center. Acts as a reference book and includes self-care information for problems such as bone, muscle and joint; chest, lung and respiratory; heart and circulation; digestive and urinary; diabetes and thyroid; headaches; nervous system; eyes and seeing; ears and hearing; mouth, throat and dental problems; skin, hair and nails; temperature control; women's and men's issues; sexual health; and mental self-care. Other chapters focus on fitness; nutrition; stress and relaxation; mental wellness; independence; a caregiver's guide; and two chapters on self-care resources. The book includes basic guidelines on how to recognize and cope with 115 of the most common health problems facing older adults. SEND: Healthwise, Inc., P.O. Box 1989, Boise, ID 83701. COST: $12.95. Entered: 1/3/96 145 - CLINIC: SHEPHERD CENTER, Atlanta, GA, every third Tuesday. Call for appointment. CONTENT: Gynecological clinic services for women with spinal cord injuries and other disabilities staffed by Dr. Stephen Goldman and Dr. John Pugh. In addition to preventative screening, the clinic offers advice and treatment for a number of health issues such as menopause, serious infections, and ovarian cysts. SEND: Shepherd Center, 2020 Peach Tree Road NW, Atlanta, GA 30309. INFO: 404-350-7369. Entered: 3/28/96. 146 - RESOURCE LIST: EXERCISE AND OLDER ADULTS, 9 pages. CONTENT: Resources for promoting health and well-being for older people through exercise. SEND: National Eldercare Institute on Health Promotion, American Association of Retired Persons, 601 E Street, NW, Fifth Floor - B, Washington, DC 20049. INFO: 202-434-2200. Entered: 1/3/96. 147 - RESOURCE LIST: NUTRITION AND OLDER ADULTS, 6 pages. CONTENT: Organizational resources for consumers and professionals for promoting good health through nutrition. SEND: National Eldercare Institute on Health Promotion, American Association of Retired Persons, 601 E Street, NW, Fifth Floor - B, Washington, DC 20049. INFO: 202-434-2200. Entered: 1/3/96. 148 - RESOURCE LIST: INJURY PREVENTION AND SAFETY FOR OLDER ADULTS, 9 pages. CONTENT: Resources for developing and conducting programs on injury prevention and safety for older people including areas of home safety; fall prevention; fire prevention; and driver and pedestrian safety. SEND: National Eldercare Institute on Health Promotion, American Association of Retired Persons, 601 E Street, NW, Fifth Floor - B, Washington, DC 20049. INFO: 202-434-2200. Entered: 1/3/96. 149 - ARTICLE: MISMANAGED CARE, in NEW MOBILITY, Corbet, B., Vol. 6, No. 25, pp. 46-48. CONTENT: Warnings regarding services for people with disabilities under managed care. SEND: New Mobility, P.O. Box 8987, Malibu, CA 90265-8987. Entered: 1/3/96. 150 - ARTICLE: ANY CHOICE YOU WANT: AS LONG AS IT'S DEATH, Mailhot, A., in THE DISABILITY RAG & RESOURCE, Jan/Feb 1995, pp. 8-13. CONTENT: A wake-up call regarding our health care in the future, how valuable will we be seen as people with disabilities? What does our life cost? SEND: The Disability Rag & ReSource, P.O. Box 145, Louisville, KY 40201. Entered: 1/4/96 151 - LIVING WILLS - DO THEY MEAN WHAT WE THINK THEY MEAN, Powell, R., in THE DISABILITY RAG & RESOURCE, Jan/Feb 1995, p. 14. CONTENT: Alerts readers to some problems and loopholes regarding living wills. SEND: The Disability Rag & ReSource, P.O. Box 145, Louisville, KY 40201. Entered: 1/4/96 152 - TOO DISABLED TO BE DISABLED?, Bopp, J., & Avila, D., in THE DISABILITY RAG & RESOURCE, Jan/Feb 1995, pp. 16-19. CONTENT: Deals with unconsciousness: the ADA and the discriminatory denial of chronic care. SEND: The Disability Rag & ReSource, P.O. Box 145, Louisville, KY 40201. Entered: 1/4/96 153 - BOOKLET: VOICES OF DISABILITY: ACCESS TO HEALTH CARE IN RURAL AMERICA, Pub. Nov. 1995 CONTENT: Examines how people with disabilities living in rural areas use the current health care system, the problem they face in assessing health care, and the strategies that have worked for them. Public policy recommendations are also included. COST: Free. SEND: Center for Disability Policy and Research, University of Washington, Box 358852, 146 N. Canal St., Suite 313, Seattle WA 98103. INFO: (206) 658-7260, (206) 616-3135 FAX. E-mail: CDPR@u.washington.edu Entered: 2/14/96 154 - BOOKLET: MANAGED CARE: AN AARP GUIDE. CONTENT: Reviews and explains managed care; the types and varieties of managed care plans including those specifically designed for MediCare beneficiaries; and the pros and cons of managed care. COST: Free. SEND: AARP, 601 E. Street, NW, Washington, DC 20049 PHONE: (202) 434-2200 Entered: 2/14/96 155 - BROCHURES: DEALING WITH PRESSURE SORES, UNDERSTANDING AUTONOMIC DYSREFLEXIA, SIDE EFFECTS OF PSYCHIATRIC MEDICATIONS, HOW TO GET THE MOST OUT OF YOUR HEALTH CARE, WOMEN AND SELF INJURY. Available in English, Spanish, Braille and audio cassette. Order in multiples of 10 and allow 4 weeks for delivery. CONTENT: A series of peer health brochures focusing on specific health issues of interest to people with disabilities and those with chronic health conditions. These brief brochures are written by and for people with disabilities. COST: Free. INFO: (617) 593-7500. SEND: Access to Health, c/o Independent Living Center of the North Shore (ILCNS), 583 Chestnut Street, Lynn, MA 01904. Entered: 2/14/96 156 - RESOURCE GUIDE: WOMEN AND SELF INJURY, RESOURCE DIRECTORY, 25 pages. CONTENT: Includes discussion of self injury - an explanation and resources; incest and childhood sexual abuse; multiple personality disorder; ritual abuse and cults; men who have been sexually abused; trauma and dissociative disorders; abuse by priests and clergy; depression; self esteem; dysfunctional families; abuse by therapists; suicide; and psychiatric disabilities. COST: Free. INFO: (617) 593-7500. SEND: The Women and Self Injury Project, c/o Independent Living Center of the North Shore (ILCNS), 583 Chestnut Street, Lynn, MA 01904. Entered: 2/14/96 157 - MANUALS: MANUAL #1: PREVENTING AND MANAGING SECONDARY CONDITIONS EXPERIENCED BY ADULTS WITH PHYSICAL DISABILITIES: A SELF-HELP PROBLEM SOLVING GUIDE. Seekins, T., Clay, J., Kirchmyer, S., Ali, K., Murphy, K., Ravesloot, C. Published: Revision 1990, 1991 Pages: 100. CONTENT: Manual focuses on approaches to preventing or managing secondary disability. Presents general information about secondary disabilities and self-help techniques for personal management of weight, physical conditioning, and psychosocial problems such as depression. Its focus is on self- management and personal responsibility for health. Issues covered weight and nutrition; physical fitness; and personal control topics (loss, grieving, adjustment to disability, depression, chronic pain, and fatigue). Unique feature: In figuring ideal weight, assists user in applying a disability filter which takes into account loss of muscle use. Excellent detailed section on exercise with many tips for getting started as well as staying out of trouble. MANUAL #2: PREVENTING AND MANAGING SECONDARY CONDITIONS EXPERIENCED BY ADULTS WITH PHYSICAL DISABILITIES: A WORKSHOP LEADER'S MANUAL. Seekins, T. 81 pages. CONTENT: Leader's guide to accompany the program in Manual #1. Outlines a series of eight workshops designed to address secondary disability prevention including scripts covering content and methods to prompt discussion. Scripts provide a standard but flexible format to adapt to the needs, interests, and resources of a community. Suggestions are included for identifying and recruiting local experts and consumer leaders to assist in conducting the workshops. MANUAL #3: DEVELOPING AND IMPLEMENTING A PROGRAM FOR PREVENTING AND MANAGING SECONDARY CONDITIONS EXPERIENCED BY ADULTS WITH PHYSICAL DISABILITIES. SEND: RTC: Rural, 52 Corbin, University of Montana, Missoula, Montana 59812. INFO: 406-243-5481. Entered: 9/21/95 158 - QUESTIONNAIRE: CHECK YOUR HEALTH, CONSUMER SCREENING MANUAL IN FORMS, Seekins, T. & Norris, K. CONTENT: A brief screening questionnaire intended as a tool to help people with disabilities and service providers identify risks for secondary conditions. Those who determine they are at risk can then seek or be guided to appropriate information, support, and services useful to maintain or improve their health. SEND: RTC: Rural, 52 Corbin, University of Montana, Missoula, Montana 59812. INFO: 406-243-5481. Entered: 9/21/95 159 - BOOKLET: STAYING HEALTHY IN THE '90s: WOMEN WITH DISABILITIES TALK ABOUT HEALTH CARE Editor: Odette, F. Published: 1994, CONTENT: A collection of stories and experiences of women with disabilities in dealing with the health care system. Issues discussed include pregnancy; breast self-examinations; pelvic examinations with positioning tips; lesbian health and disability; culture and disability; menopause; and aging with disability. Other topics include health bill of rights; risk and choices; you and your doctor; pain, holistic medicine; and safe sex. COST: No charge for women with disabilities. Agencies and organizations - $10 plus $3 postage and handling. (Canada - call for conversion rate.) SEND: DAWN-DisAbled Women's Network (Toronto), 180 Dundas Street, W. 210, Toronto, Ontario, N5G178. Info: 416-598-2438 V, 416-598-5059 TTY. Entered: 9/21/95 160 - BOOK: TABLE MANNERS: A GUIDE TO THE PELVIC EXAMINATION FOR DISABLED WOMEN AND HEALTHCARE PROVIDERS. Ferreyra, F. & Hughes, K. June 1992, 3rd printing, 1991. CONTENT: Provides specific information regarding reproductive health care with physical, visual, and hearing disabilities. Includes information on alternative positioning for examination, transfer to the examination table, and other specific considerations. COST: $1.50, make check payable to Planned Parenthood Alameda/San Francisco or indicate type of credit card, MasterCard or Visa, credit card number and expiration date. Credit card purchases require an additional 3% charge, based on the total order. Sales tax, appropriate to your county, applies only to California residents. SEND: Sex Education for Disabled People, Planned Parenthood Alameda/San Francisco, 815 Eddy Street, San Francisco, CA 94109. INFO: 415-441-7858. Entered: 9/29/95 161 - ARTICLE: "TAKING CARE OF YOUR MUSCLES" in ONE STEP AHEAD - THE DISABILITY RESOURCE, Vol. 2, #14, September 1995, Second Opinion/Medical Answers, pages 9-10 by Lauro Halstead, M.D. CONTENT: Reviews principles for caring for muscles and strategies to prevent aches and pains. Discusses muscle strain, micro-trauma (microscopic tears of muscle fibers, collagen tissue or occasionally small blood vessels), and preventing muscle injury. SEND: One Step Ahead-The Disability Resource P.O. Box 65766, Washington, DC 20035, published monthly. Subscriptions are $12 per year. INFO: 800-386-5367 V/TTY, info@eka.com. 162 - ARTICLES: "MIDLIFE CRIPDOM: GETTING FEWER MILES PER GALLON? (GOOD NEWS, BAD NEWS, AND THE CURRENT STATE OF KNOWLEDGE)" in THE DISABILITY RAG & RESOURCE, Kailes, J.I., VOL. 16, NO. 4, July/August 1995, pp. 1-18 "AGING AND CRIPDOM: NEW REALITIES, NEW CONCERNS AND A LOT OF NEW QUESTIONS!" Reviews the multiplicity of issues, concerns, and new realities surrounding aging with disability from the disability perspective. Given the newly revised life expectancy statistics most people with disabilities will live longer. "ADVOCATING FOR MORE THAN HEALTH REFORM?" Makes the case people with disabilities need to make their needs known clearly, assertively, and repeatedly in the areas of essential services and resources including: education, prevention, research and public policy change. Suggests some of the products and services needed: best practice guidelines and models, health assessment evaluation guidelines, a national information and dissemination network, health services, Americans with Disabilities Act compliance, and a stronger role in health and wellness for independent living centers and other disability-related organizations. "A FEW HORROR STORIES" The advice and opinions for everyday conditions often are not put through a "disability filter." Some this can be extremely problematic. Many people with disabilities have a narrower margin of health than most people. Delivery systems, with little or no disability-related expertise, put some people with disabilities in peril. "CRIP SYMBOL HANGUPS: MISGUIDED PRIDE VERSUS FREEDOM!" "A FEW TIPS FOR WEIGHING WHETHER YOU'LL USE THE GEAR" Briefly examines the question of pride vs. energy conservation through use of assistive technology. Should assistive technology be seen as tools of independence and freedom or as symbols of aging, helplessness, and dependence? Considering an assistive device for the first time or adding additional devices to the existing repertoire can be threatening, frightening and/or terrifying. "A FEW TIPS..." offers suggestions for deciding on whether and how to use adopt the use of a new device. COST: $17.50 for 6 issues/1 year. Available in regular or large print, Braille, audio cassette or computer diskette. SEND: The Disability Rag & ReSource, P.O. Box 145, Louisville, KY 40201. Entered: 2/14/96 163 - RESOURCE: WOMEN'S HEALTH PROJECT. CONTENT: Established January, 1995. Provides referrals to women's health practitioners and clinics throughout Alameda and Contra Costa Counties in California. Coordinates individual and group support around women's health issues, primarily provided by women with disabilities who are experienced in the field. INFO: Alameda County (510) 832-7430, Contra Costa County (510) 939-8000. Entered: 2/14/96 164 - CATALOG: AUDIO & VIDEO TAPES. A/V Health Services, Inc. CONTENT: Catalog offers exercise and motivational videos and audio cassettes, focusing on independence, activities of daily living, exercise, pain, headaches, sleep, arthritis, and more. SEND: A/V Health Services, Inc. P.O. Box 61031, Raleigh, NC 27661. INFO: (919) 872-6888 FAX. 165 - ARTICLE: POST-POLIO SYNDROME BIBLIOGRAPHY, new fourth edition, December 1995. CONTENT: Nearly 1000 articles in 15 chapters such as fatigue, respiratory, physical medicine, gastrointestinal disorders, dysphagia, neurology, OT, PT. Personal stories, psychology and general information. Available on 3.5" disk or paper. Please specify. COST: $20.00. A supplement to the third edition available for $5.00. Foreign mail: Overseas $35, Canada $27 -- US$ only, please. SEND: PPS Bib, c/o Bonnie Hatfield, 2 Coral Way, Half Moon Bay, CA 94019. INFO: 415-726-7226. Entered: 4/7/9