FAST FACTS ON AUGMENTATIVE COMMUNICATION WHAT DOES THE MARKET LOOK LIKE? * There are 14 million Americans with speech disabilities ranging from severe to mild. * An estimated 4.5 million people in America are without speech capability or capacity, either on a temporary or permanent basis as a result of traumatic brain injury, cerebral palsy, stroke or other accident or injury. * 750,000 to 1.5 million Americans have severely limited speech which cannot be easily understood. 30% of people with cerebral palsy are in this group and 85% to 95% of all individuals with cerebral palsy have a speech disability of one kind or another. HOW MANY DEVICES ARE THERE ? * 30,000 augmentative communication devices sold by Prentke Romich Co. and 20,000 in use/reuse. * Eight companies currently manufacture assistive communications devices. WHAT DO THEY COST? * Costs range from around $3,000 for the low end Touch Talker type technology to $30,000 for the top of the line - a Liberator. (It is important that technology access means assuring that the best high tech products be readily available and affordable. The solution isn't providing only the piece of technology but matching the need with the right piece of technology, providing the necessary training and support to max out the opportunity to communicate as fully as possible. WHO PAYS? * AAC devices are paid for largely by public funds followed by out of pocket dollars. * Medicaid is a significant source of funds utilized by a third of persons with cerebral palsy, another third pay for the devices themselves. * Private charities pay for less than 10%; other public funding - Vocational Rehabilitation state systems fund 9% and school systems fund 4%. State Tech, MR/DD agency programs provide some funds. WHAT IS A BETTER WAY/ SOLUTION? In an effort to help level the playing field for persons with speech disability, equipment such as the Liberator needs to be more readily available and affordable, along with more options and choices. Devices need to match cognitive ability as well. The right piece of technology should be matched with need. Necessary training and support to max out the opportunity to communicate must be part of the access to augmentative communications devices. * Find a way to make the technology and manufacturing less expensive, more available. * Create a central revolving loan fund to serve as conduit for funding only AAC. * Develop a model to document and showcase how state of the art augmentative communication devices can level the playing field, unlock bright productive people and provide long term payback to the system by enabling a greater level of participation. ©1996, United Cerebral Pals