The International Classification of Impairments, Disabilities, and Handicaps (ICIDH) is the leading standard for defining disabilities and related terminology. The official document-- included below in electronic form--was published in 1980 by the World Health Organization. Subsequent drafts have been the subject of much discussion, testing, and evaluation. The next official version is expected some time in 1998. Consistent world-wide definitions in this area would significantly benefit scientific data, policy analysis, and product design affecting people with disabilities. Jamal Mazrui National Council on Disability Email: 74444.1076@compuserve.com ---------- FOREWORD TO THE 1993 REPRINT The International Classification of Impairments, Disabilities, and Handicaps (ICIDH), developed in the 1970s, was issued by WHO in 1980 as a tool for the classification of the consequences of disease (as well as of injuries and other disorders) and of their implications for the life of individuals. It now exists in 13 languages1 and further language versions are in preparation; more than 15 000 copies of the English and French versions and over 10 000 copies in other languages have been distributed. The bibliography maintained by the WHO Collaborating Centre on ICIDH in the Netherlands lists over 1000 references to the ICIDH. Published comments on the ICIDH include such remarks as: "[The ICIDH] concepts provide the key to rational management of chronic diseases"; at the same time, however, concern has been expressed that the ICIDH does not state clearly enough the role of social and physical environment in the process of handicap, and that it might be construed as encouraging "the medicalization of disablement". The term is "disablement" is used here to encompass the full range of impairment, disability, and handicap.) The ICIDH belongs to the "family" of classifications developed by WHO for application to various aspects of health and disease. The best established is the International Statistical Classification of Diseases, Injuries, and Causes of Death (ICD), the Ninth Revision of which (ICD-9) was issued shortly before the publication of the ICIDH. The first volume of the Tenth Revision of the ICD (ICD-10), published in June 1992, includes various changes, for instance in the area of mental and behavioural disorders, which will have to be taken into account in a revised ICIDH. The dissemination and application of the ICIDH, as well as the advocacy role of organizations and bodies devoted to the problems of people with disabilities, have been accompanied by important changes in the way impairments, disabilities and handicaps, and the various problems that may arise in each of these three areas are perceived and addressed. The listing of the classification items has allowed a better description and facilitated the assessment of people with disabilities and of their situation within a given physical and social environment. This foreword is intended to clarify certain aspects of the 1980 introduction which have been the subject of much discussion, and to indicate some of the issues to be addressed in a forthcoming revision. It also offers an opportunity to provide information on the range of uses of the ICIDH and on the developments that have occurred as a result of its publication. In other respects, the manual is essentially unchanged and includes the original introduction. Two Collaborating Centres for the ICIDH have been established, in France (Centre technique national d'Etudes et de Recherches sur les Handicaps et les Inadaptations) and in the Netherlands (Standing Committee for Classifications and Terminology). Together with other WHO Collaborating Centres for Health-related Classifications, notably those in Uppsala, Sweden for the Nordic 1A list of translations is available on request from Strengthening of Epidemiological and Statistical Services (SES/HST), World Health Organization, 1211 Geneva 27, Switzerland. i countries and at the National Center for Health Statistics, Hyattsville, MD, USA for North America, with groups such as the Canadian Society for the ICIDH and the R‚seau pour l'Etude de l'Esp‚rance de Vie en Sant‚/International Network on the Study of Healthy Life Expectancy (REVES), and with intergovernmental Organizations such as the Statistical Division of the United Nations Department of Social and Economic Development, and the Council of Europe, these Centres have formed a technical network which has been in operation since 1987. The Council of Europe has established a committee of Experts for the Application of the WHO International Classification of Impairments, Disabilities, and Handicaps, which brings together representatives of 14 countries, plus five observers. This Committee has examined specific applications of the ICIDH in rehabilitation work, surveys, and the collection of statistics, in the study of mental retardation, the assessment of vocational capacity, the assessment of technical enabling devices, and the application of the concept of handicap. The Real Patronato de Prevenci¢n y de Atenci¢n a Personas con Minusval¡a in Madrid has undertaken a survey of the use of the ICIDH in Spanish-speaking countries. Current applications of the ICIDH The ICIDH is intended to offer a conceptual framework for information; the framework is relevant to the long-term consequences of disease, injuries or disorders, and applicable both to personal health care, including early identification and prevention, and to the mitigation of environmental and societal barriers. It is also relevant to the study of health care systems, in terms both of evaluation and of policy formulation. The concepts of the ICIDH have elicited much philosophical interest, and its applications have covered activities in social security, the design of population surveys at local, national and international levels, and other areas, such as the assessment of working capacities, demography, community needs assessment, town planning, and architecture. Although the ICIDH is inherently a health-related classification, future documentation and development will need to reflect a broader spectrum of applications and users. A primary application of the ICIDH has been to describe the circumstances of individuals with disabilities across a wide range of settings. The ICIDH has been directly applied to the care of individuals in diagnosis and treatment, evaluation of treatment results, assessment for work, and information. Reports on its use in personal health care have come from nurses, occupational therapists, physicians, physiotherapists and others working with a wide variety of persons, including elderly people, children and adolescents, and psychiatric patients, in many widely different countries, including Australia, the Netherlands, Pakistan, Spain, Venezuela, and Zimbabwe. The ICIDH is also used to assess patients in rehabilitation, in nursing homes, and in homes for the elderly; its use in these areas has facilitated communication between various categories of workers and coordination between different types of care. ii At the institutional level the ICIDH has been used in order to assess the numbers and type of staff required, and to study discharge policies and the characteristics of health-care utilization. At the community level, it has helped in identifying the needs of people with disabilities and handicaps, identifying handicapping situations in the social and physical environment, and formulating the policy decisions necessary for improvements in everyday life, including modifications of the physical and social environment. In the areas of social security, occupational health, and employment, the ICIDH serves as an actual or potential basis for various assessments: for decisions on allowances, the orientation of individuals, and the nomenclature of handicaps, in France, for the assessment of working abilities in Germany and the Netherlands, and for access to institutional care and to enabling devices in Belgium (by the Flemish Fund for the Social Integration of Persons with a Handicap) and in Italy. Switzerland is investigating the use of the ICIDH in health insurance nomenclature. The framework of the ICIDH has been used successfully by demographers, epidemiologists, health planners, policy-makers, and statisticians in disability surveys at national, regional and local levels in several countries, developed (inter alia Australia, Canada, Netherlands) or developing (inter alia Algeria, China, Fiji, Kuwait). Definitions used in the ICIDH have also served as a basis for surveys in the Netherlands, the United Kingdom, and most notably Spain, and for analysis of survey results. The statistical tools developed by the Statistical Division of the United Nations Department of Social and Economic Development for the international monitoring of population and household censuses, surveys, and administrative systems include an International Disability Statistics Database (DISTAT), which uses a framework based on the ICIDH; DISTAT covers national statistics from over 95 countries both in machine-readable form and as a printed Compendium on Disability. The concepts and definitions of the ICIDH have similarly been used in REVES to determine various types of demographic indicators of Healthy Life Expectancy (impairment-free, disability- free, or handicap-free life expectancy) for a range of developing and developed countries. The use of the ICIDH in surveys has highlighted the relationships between impairment and disability and between disability and handicap; indeed, whether a survey is based on the concept of impairment or on that of disability can lead to marked differences in the resulting assessment of the population. At the conceptual and policy levels, the use of the ICIDH has changed the ways in which disabilities themselves, persons with disabilities, and the role of the physical and social environment in the development of handicap are considered. It has also changed some of the policy, planning and administrative reactions of governments, organizations, and individuals to these concepts. The action taken by France in the promotion of an adapted version of the ICIDH for the collection of data on social services, and in the application of a Nomenclature des handicaps based on the ICIDH, can be taken as one example (similar action is being considered in other countries); recent legislation in Italy is another. In Quebec, Canada, a systematic approach to policies on impairment, disability, and handicap is largely based on the ICIDH. Active interest in the ICIDH has recently been demonstrated in the USA, during and after the preparation of the Americans with Disabilities Act and in the publication of a major report on Disability in America. Even by those who do not necessarily accept it as the dominant framework, the ICIDH is widely recognized as an important standard for a conceptual framework in this field. iii Some problems identified in the use of the ICIDH An important task in the revision of the ICIDH will be to clarify the role and interrelationship of environmental factors in the definition and development of the different planes addressed by the ICIDH, most notably - but not exclusively - handicap. A report of the United Nations Commission on Human Rights for its Forty-third Session on Human Rights and Disability encouraged WHO to revise the ICIDH and to consider more specifically the role of the environment in the development of the handicap process. Much work has addressed conceptual developments for this topic, notably the proposals issued by the Canadian Society for the ICIDH on the development of the handicap process. The role of the social and physical environment is briefly addressed in the original introduction to the ICIDH (see p. 14): " Handicap is more problematical. The structure of the Handicap classification is radically different from all other ICD-related classifications. The items are not classified according to individuals or their attributes but rather according to the circumstances in which people with disabilities are likely to find themselves, circumstances that can be expected to place such individuals at a disadvantage in relation to their peers when viewed from the norms of society." This will require elaboration in the revised version. The Handicap classification is a classification of situations and not of individuals; the word "circumstances" is to be considered as referring not only to statistical aggregates of individuals, but also to characteristics of the physical and social environment. Indicators for both categories are also under development in the field of health promotion. The categories of impairment, disability and handicap remain robust; non- ICIDH-based models, embody similar concepts, although they may use different terms. A number of models of the consequences of disease which incorporate other factors, such as the physical and social environment, have been proposed in the scientific literature, and will be considered in the process of revision of the ICIDH, although they are still for the main part at the stage of theoretical development and empirical testing. In several instances, there is a degree of overlap between disability and handicap as regards functional limitations and activities of daily living. This overlap also occurs between impairment and disability, for instance as regards: intellectual impairments; the distinction between aural, ocular and language impairments and communication disabilities; incontinence; and physical independence. The problem of overlap will require further elaboration. The current model of the consequences of disease and its graphic representation (see p. 30) are effective in distinguishing between impairments, disabilities and handicaps as separate concepts, but do not provide adequate information on the relationship between these concepts. In particular, the arrows linking disease or disorder, impairment, disability and handicap have occasionally been interpreted as representing a causal model and an indication of change over time. This representation does not allow for movement from handicap and disability back to impairment, as facilitated by appropriate interventions, and has thus been taken to imply a unidirectional flow from impairment, to disability, to handicap. Furthermore, the graphic representation iv of the ICIDH framework does not adequately reflect the role of the social and physical environment in the handicap process. Although the original text states that the situation is more complex than a simple linear progression, this statement needs to be made more clearly - the arrows in the graphic presentation must be understood as meaning no more than "may lead to". These issues, as well as alternative graphic presentations, will be considered in the revision of the ICIDH. Some proposed changes to the ICIDH The ICIDH has had a wider range of uses and of users than originally envisaged. Its value as a tool for policy-makers has been amply demonstrated, notably in Canada and France, and this aspect should be stressed and extended in an introductory section of the revised version. Similar considerations apply to other facets of its use. Several reports comment that the ICIDH is not difficult to use, and this is encouraging; in an effort to broaden the application of the classification, revision should tend towards simplification rather than towards the addition of further detail. Revision, particularly of the impairment classification, must also take into account the needs of users who are not health professionals. For example, the revised version should include alphabetical indexes in addition to the index that now exists for impairments only. Consideration should also be given to the problem of application in specific population groups (e.g., children, because their status changes rapidly), and more space should be given to the problems of measurement of severity; the guidance and rulings on this included in the current version will be reconsidered. In view of the concern about the way in which the definition of handicap is presented and understood, suggestions for revision include greater emphasis on presenting handicap as a description of the circumstances that individuals encounter as a result of the interaction between their impairments or disabilities and their physical and social environment. An important task in the revision of the ICIDH will be to improve the presentation of the way in which external factors affect the ICIDH components. The introduction must stress the importance of the environment, together with the role and interaction of individual characteristics and of physical and social factors. These factors, which are major components of the handicap process, should not be developed as an additional classification scheme within the ICIDH. Social and physical factors in the environment, and their relationship to impairment, disability, and handicap are strongly culture-bound. It is unlikely that a universally acceptable classification of these determinant factors is achievable at present, for the same reasons that preclude a universally accepted classification of the determinants of health. Nevertheless, classifications of environmental factors may prove useful in the analysis of national situations and in the development of solutions at the national level. v The classifications developed in the area of mental health, whether for the entire population or for specific age groups, are based mainly on the ICD. The chapter on mental and behavioural disorders has been thoroughly updated in the Tenth Revision of the ICD, and the ICIDH will have to reflect these changes, as well as those embodied in other publications. The Council of Europe Committee of Experts has recently drawn up a report discussing the present use of the ICIDH in the study of mental retardation. Recognizing the ICIDH as an important step towards generally accepted criteria for legal definitions, the report of the United Nations Commission on Human Rights, mentioned earlier, encouraged WHO to revise the ICIDH, with special attention to the problems of impairments and disabilities related to mental health. Similar concerns also apply to the problems of cognitive function often associated with aging. Publication of the French-language version of the ICIDH in 1988 evoked particular interest among psychiatrists; as WHO Collaborating Centre for the ICIDH, the Centre technique national d'Etudes et de Recherches sur les Handicaps et les Inadaptations (CTNERHI) is devoting an important part of its activities to the applications of the ICIDH and its relation to other classifications in mental health. As a result of these developments, the area of mental health will be treated with particular care in the revision of the ICIDH. The revision process will also address detailed changes to items within the classification, and must take into account improved understanding of basic biological mechanisms, particularly as regards impairments. In some cases this will have implications for preferred terminology and will entail changes for terms that have become obsolete. The current version of the ICIDH contains definitions and examples that are highly culture-specific (e.g., references to "pouring tea") or that are inappropriately characterised according to sex. In addition, typographical and factual errors, and definitions no longer consistent with those in ICD-10 will be similarly remedied. A small number of these have been corrected in the present reprint. An "umbrella" term is needed to address the spectrum of experiences linked to impairment, disability, and handicap: the term "disablement" has been suggested, but is not universally accepted. In some languages there appears to be no unique suitable term. The official French-language version, for example, uses "handicap" as an umbrella term, stressing that it does not cover a monolithic reality, but is the result of different levels of experience; this version also uses a term signifying "disadvantage" for the third level of experience in the classification (as do the Italian, Japanese, and Portuguese versions). French-speaking Canadians, on the other hand, appear to prefer the word "handicap" for this third level and do not make use of an umbrella term. Agreement on the use of an existing term or on the use of a new term will require much thought and discussion during the revision of the ICIDH. Training and presentation materials for the ICIDH have been developed, notably in France by CTNERHI, and in Quebec, Canada (as a video presentation). In addition, the Real Patronato de Prevenci¢n y de Atenci¢n a Personas con Minusval¡a has supported the development of a computer-based program in Spanish. Identification and sharing of these and other experiences, and some standardization of approaches, will enhance their usefulness. The revision of the ICIDH will be based upon a review of reports and documents describing its use, and consultation with expert representatives from relevant disciplines. The opinions of international and nongovernmental organizations, including organizations of people with disabilities, which deal with different aspects of disability will continue to be sought and considered throughout the process of revision, and representation of experiences from countries in the various Regions of WHO will be ensured. ---------- THE CONSEQUENCES OF DISEASE This manual is concerned with improving information on the consequences of disease. Such an endeavour is dependent on appreciation of the nature of health-related experiences. It is necessary, therefore, to begin with an attempt to clarify these. The response to illness In contemplating illness phenomena it is customary to invoke the concept of disease. This notion and its derivatives, such as the International Classification of Diseases (ICD), consider pathological phenomena as though they were unrelated to the individuals in whom they occur. Long-prevalent traditions in thought have fostered such separation, tending to make categorical distinctions between the natural and human worlds, between nonliving and living, and between body and mind. However, certain limitations in this approach are evident. By isolating thoughts of disease from consideration of the sufferer, the consequences tend to be neglected. These consequences - responses by the individual himself and by those to whom he relates or upon whom he depends - assume greater importance as the burden of illness alters. The problems may be illustrated by contrast between acute and chronic processes. Acute and chronic illness In colloquial speech, "acute" tends to indicate something sharp or intense, whereas "chronic" implies severity in terms of being objectionable or very bad. For this reason patients tend to be alarmed when they learn that the official nomenclature for their condition includes the latter term - e.g., chronic bronchitis. However, professional usage of the words remains closer to their etymology. Thus "acute" means "ending in a sharp point", implying a finite duration, which, classically, culminates in a crisis. On the other hand "chronic", which is derived from a word meaning "time", indicates "long continued". A host of interrelated properties is associated with these contrasts in time scale, and these render unnecessary any precise formulation of the temporal boundary between acute and chronic processes. The characteristics of acute illness may be exemplified by acute infections. Onset of the condition is frequently sudden. There may be almost total prostration, not least because rest is commonly regarded as facilitating recovery. Furthermore, there is the prospect of a limited period in this state. These three features help to promote two important responses. First, suspension of everyday obligations comes about in such a way as to be acceptable both to the sufferer and to others. Secondly, the situation encourages unquestioning capitulation to professional advice. For the health professional the situation is also relatively straightforward. The interval between exposure to the putative dominant cause and development of the illness tends to be short, so that simple models of causality can account for disease occurrence. The high incidence of many acute conditions provides the professional with experience of a diversity of responses. Uncomplicated decisions are called for; either action is imperative or there is time for reflection on what forum of support might be appropriate. Most acute illnesses are self-limiting; some may be life-threatening, but the remainder, because of their finite duration, pose a minimal threat to the patient. These features encourage a paternalistic attitude by the professional, so that symptom relief is regarded largely as a means of tiding the patient over until the crisis has passed. Finally, the concentration of effort needed to treat acute conditions is not too difficult to justify; although primary prevention may offer a more economical solution, commitment of resources for secondary control by health services is at least time-limited. Thus, in policy terms, the options in regard to what can be accommodated within a given level of health service investment tend to be clear-cut, the choices being concerned with whether various acute health problems should be responded to at all. Chronic illness presents different challenges. The onset is usually insidious; there may be a gradual progression of symptoms, or more permanent problems may develop as the sequel to a number of acute episodes. Confidence and hopes are undermined; the experience is usually difficult to account if no end is in sight, and self-perception - the sense of identity - is assaulted by changes in the body and its functional performance. Activity restriction, though at times severe , nevertheless usually falls short of total incapacity until very late in the course of the illness. Legitimation or acceptance by others can be more difficult when a degree of independent existence is possible, not least because obligations cannot be suspended indefinitely; some way of coming to terms with the altered situation therefore becomes necessary. Finally, the persistence of problems implicitly reveals limitations in the potency of medical treatment, so that professional advice is often accepted with less assurance. The health professional is confronted with complementary difficulties. The prevalence of chronic conditions may be high, but their incidence is relatively low; common experience therefore relates more to the range of problems unfolding in a limited number of patients. This has been one of the forces contributing to the development of medical specialization and the concentration of care in large institutions such as hospitals. Clinical decisions themselves are more problematic, the insidious progress of chronic disease making diagnosis more difficult; definitive conclusions often have to be deferred, yet action may be called for in the face of this uncertainty. Demands differ in other important aspects. Thus, the impact of the condition on the individual, though important, does not dominate the scene to the exclusion of all else. Clinical status has to be set against the background of life, moving, as it does, between home and work. Symptoms reflecting impairments and disabilities call for attempts at amelioration in their own right. Sensitivity is also taxed; virtually everyone experiences acute illness at some time , so that it is not too difficult to project oneself into the situation of the patient, but personal knowledge of chronic suffering is much less widespread. Finally, the multidimensional quality of problems encountered in people with chronic illness tends to promote needs-based appraisals, which carry with them potentially inflationary consequences for health and welfare services. Thus policy formulation is more difficult and more controversial; it is necessary to choose which to respond to from the diversity of problems presented by affected individuals. A unifying framework The challenges for health care change as chronic illness comes to occupy a more dominant position. The sufferers themselves, the health professionals concerned to help them, and the policy makers and planners seeking to adapt to the different needs that arise - each in his different way encounters difficulties in coming to terms with the consequences of disease. The confusion that all three groups share stems largely from the lack of a coherent scheme or conceptual framework against which to set such experiences. These limitations in understanding are an obstacle to improving relevant information, and this in turn inhibits progress towards more helpful responses. Planes of experience The principal events in the development of illness are as follows: (i) Something abnormal occurs with the individual; this may be present at birth or acquired later. A chain of causal circumstances, the "etiology", gives rise to changes in the structure or functioning of the body, the "pathology". Pathological changes may or may not make themselves evident; when they do they are described as "manifestations", which, in medical parlance, are usually distinguished as "symptoms and signs". These features are the components of the medical model of disease, as indicated in the Introduction. (ii) Someone becomes aware of such an occurrence; in other words, the pathological state is exteriorized. Most often the individual himself becomes aware of disease manifestations, usually referred to as "clinical disease". However, it is also necessary to encompass two other types of experience. (a) Not infrequently, symptoms may develop that cannot currently be linked to any underlying disease process. Something is certainly being exteriorized, even if it cannot be accounted for. Most health professionals would attribute such symptoms to a disturbance - as yet unidentified - of some essential structure or process within the body (b) In contrast, some deviation may be identified of which the "patient" himself is unaware. Such pathology without symptoms sometimes constitutes subclinical disease, which is encountered with increasing frequency as screening programmes are extended. Alternatively, a relative or someone else may draw attention to disease manifestations. In behavioural terms, the individual has become or been made aware that he is unhealthy. His illness heralds recognition of impairments, abnormalities of body structure and appearance, and of organ or system function, resulting from any cause. Impairments represent disturbances at the organ level. (iii) The performance or behaviour of the individual may be altered as a result of this awareness, either consequentially or cognitively. Common activities may become restricted, and in this way the experience is objectified. Also relevant are psychological responses to the presence of disease, part of so-called illness behaviour, and sickness phenomena, the patterning of illness manifested as behaviour by the individual in response to the expectations others have of him when he is ill. These experiences represent disabilities, which reflect the consequences of impairments in terms of functional performance and activity by the individual. Disabilities represent disturbances at the level of the person. (iv) Either the awareness itself, or the altered behaviour or performance to which this gives rise, may place the individual at a disadvantage relative to others, thus socializing the experience. This plane reflects the response of society to the individual's experience, be this expressed in attitudes, such as the engendering of stigma, or in behaviour, which may include specific instruments such as legislation. These experiences represent handicap, the disadvantages resulting from impairment and disability. The explicit concern with the value attached to an individual's performance or status obviously makes this the most problematical plane of disease consequences. Each of the last three planes in this sequence - exteriorization, objectification, and socialization - now requires more detailed consideration. This will be followed by further examination of the interrelationships between the underlying concepts, supported by examples to highlight the distinctions. Impairment In the context of health experience, an impairment is any loss or abnormality of psychological, physiological, or anatomical structure or function Two aspects of this definition need to be stressed. First, the term "impairment" is more inclusive than "disorder" in that it also covers losses; e.g., the loss of a leg is an impairment, but not a disorder. Secondly, in reaching agreement on terminology with other international agencies, it has been necessary to make certain modifications to the definitions included in a preliminary draft of this manual.[1] In this draft, functional limitations were regarded as being elements of disability, whereas they have now been assimilated with impairments; this alteration helps to resolve boundary distinctions that originally lacked clarity. Impairment represents deviation from some norm in the individual's biomedical status, and definition of its constituents is undertaken primarily by those qualified to judge physical and mental functioning according to generally accepted standards. Impairment is characterized by losses or abnormalities that may be temporary or permanent, and it includes the existence or occurrence of an anomaly, defect, or loss in a limb, organ, tissue, or other structure of the body, or a defect in a functional system or mechanism of the body , including the systems of mental function. Being concerned to describe identity at a particular point in time, impairment is neutral in regard to a number of associated features, and this needs to be stressed. Thus impairment is not contingent upon etiology, how the state arose or developed;both ascribed and achieved status, such as genetic abnormality or the consequences of a road traffic accident, are included. Use of the term "impairment" does not necessarily indicate that disease is present or that the individual should be regarded as sick. Equally , the deviation from the norm does not need to be perceived by the impaired individual, as should be clear from what has been said above about exteriorization. On the same grounds, a concept of latent impairment constitutes a contradiction in terms - the individual exposed to or harbouring an extraneous etiological agent of disease is not impaired; impairment ensues only when the agent has initiated a reaction by the body so that pathological processes develop. Disability In the context of health experience, a disability is any restriction or lack (resulting from an impairment) of ability to perform an activity in the manner or within the range considered normal for a human being In providing the link between impairment and handicap, it is fairly easy for the concept of disability to appear somewhat vague, variable, or arbitrary. As already noted, however, functional limitation is now regarded as an aspect of impairment, and this should resolve most of the difficulties. Impairment is concerned with individual functions of the parts of the body; as such it tends to be a somewhat idealistic notion, reflecting potential in absolute terms. Disability, on the other hand, is concerned with compound or integrated activities expected of the person or of the body as a whole, such as are represented by tasks, skills, and behaviours. Disability represents a departure from the norm in terms of performance of the individual , as opposed to that of the organ or mechanism. The concept is characterized by excesses or deficiencies of customarily expected behaviour or activity, and these may be temporary or permanent, reversible or irreversible, and progressive or regressive. The key feature relates to objectification. This is the process through which a functional limitation expresses itself as a reality in everyday life, the problem being made objective because the activities of the body are interfered with. In other words, disability takes form as the individual becomes aware of a change in his identity. Customary expectations embrace integrated functioning in physical, psychological, and social terms, and it is unrealistic to expect a neat separation between medical and social aspects of activity. For instance, physical incapacities and socially deviant behaviours equally transgress what is expected of the individual - the important differences between them concern the value that is attached to such deviations, and any sanctions that may be applied as a result; such valuations relate to the concept of handicap, rather that to that of disability. In attempting to apply the concept of disability, there is a need for caution in how the ideas are expressed. By concentrating on activities, disability is concerned with what happens - the practical - in a relatively neutral way, rather than with the absolute or ideal and any judgements that may attach thereto. To say that someone has a disability is to preserve neutrality, nuances of interpretation in regard to his potential still being possible. However, statements phrased in terms of being rather than having tend to be more categorical and disadvantageous. Thus to say that someone is disabled, as if this were an adequate description of that individual, is to risk being dismissive and invoking stigma. Handicap In the context of health experience, a handicap is a disadvantage for a given individual, resulting from an impairment or a disability, that limits or prevents the fulfillment of a role that is normal (depending on age, sex, and social and cultural factors) for that individual Three important features of this concept should be borne in mind: (i) some value is attached to departure from a structural , functional , or performance norm, either by the individual himself or by his peers in a group to which he relates; (ii) the valuation is dependent on cultural norms, so that a person may be handicapped in one group and not in another - time, place, status, and role are all contributory; (iii) in the first instance, the valuation is usually to the disadvantage of the affected individual. The state of being handicapped is relative to other people - hence the importance of existing societal values, which, in turn, ale influenced by the institutional arrangements of society. Thus, the attitudes and responses of the non-handicapped play a central role in modelling the ego concept, and defining the possibilities, of an individual who is potentially handicapped - the latter has a very limited freedom to determine or modify his own reality. In this context it is relevant to take note of differences in societal responses to visible as opposed to invisible impairments, and to serious as opposed to trivial disadvantages. Handicap is characterized by a discordance between the individual's performance or status and the expectations of the particular group of which he is a member. Disadvantage accrues as a result of his being unable to con- form to the norms of his universe. Handicap is thus a social phenomenon, representing the social and environmental consequences for the individual stemming from the presence of impairments and disabilities. The essence of an adverse valuation by society is discrimination by other people, but the concept is, nevertheless, essentially neutral as regards its origins. Thus the individual's own intention is of no immediate concern; disadvantage can arise when the individual deviates in spite of his own wishes, but it can also develop when the deviation is inadvertent or the product of his own choice. The concept also assimilates phenomena such as invalidism or excessive dependence upon an institution. Integration of concepts The ideas just discussed can be linked in the following manner: DISEASE or DISORDER-- IMPAIRMENT-- DISABILITY-- HANDICAP(intrinsic situation (exteriorized) (objectified) (socialized) Although this graphic representation suggests a simple linear progression along the full sequence, the situation is in fact more complex. In the first place , handicap may result from impairment without the mediation of a state of disability. A disfigurement may give rise to interference with the normal operation of cues in social intercourse, and it may thus constitute a very real disadvantage , to say nothing of the embarrassment that the disfigured individual may feel. In this example, though, it would be difficult to identify any disability mediating between the disfigurement and the disadvantage. Similarly, a child with coeliac disease, who is functionally limited, may be able to live a fairly normal life and not suffer activity restriction; he could nevertheless suffer disadvantage by virtue of his inability to partake of a normal diet. More important than these incomplete sequences is the possibility of interruption at any stage. Thus one can be impaired without being disabled, and disabled without being handicapped. The corollary of this is that there can be striking disparities in the degree to which the various elements of the sequence depart from their respective norms, and, as a result, one cannot assume consonance in degrees of disability and handicap. For instance , one individual with rheumatoid arthritis may be only mildly disabled and yet at a severe disadvantage, whereas another person with the same disease who is much more severely disabled may , perhaps because of greater support from the family or social network, experience considerably less disadvantage. Further complexity is introduced by two other phenomena. First, certain disabilities can retard or conceal the development or recognition of other abilities; thus, an impairment of language can interfere with the expression of other and dependent qualities, such as intelligence. Secondly, there can be a variable degree of influence in a reverse direction along the sequence. Thus, the experience of certain handicaps can engender, as part of illness behaviour, not only various disabilities but at times even the impairment of certain faculties; as already noted, each of the concepts is largely independent of its origins, so that these secondary phenomena should not be excluded. The great value of presenting the concepts in this way is that a problemsolving sequence is portrayed, intervention at the level of one element having the potential to modify succeeding elements. This is especially relevant to the purposes of this manual, since the sequence is also valuable as a means of identifying information deficits. It will probably be helpful to present further examples of how the concepts are expressed. - A child born with a finger-nail missing has a malformation - a structural impairment - but this does not in any way interfere with the function of the hand and so there is no disability; the impairment is not particularly evident, and so disadvantage or handicap would be unlikely. - A myope or a diabetic individual suffers a functional impairment but, because this can be corrected or abolished by aids, appliances, or drugs, he would not necessarily be disabled; however, the non-disabled juvenile diabetic could still be handicapped if the disadvantage is considerable, e.g., by not being allowed to partake of confectionery with his peers or by having to give himself regular injections. - An individual with red-green colour blindness has an impairment, but it would be unlikely to lead to activity restriction; whether the impairment constitutes a handicap would depend on circumstances - if his occupation were agricultural he might well be unaware of his impairment, but he would be at a disadvantage if he aspired to drive a railway engine, because he would be prevented from following this occupation. - Subnormality of intelligence is an impairment, but it may not lead to appreciable activity restriction; factors other than the impairment may determine the handicap because the disadvantage may be minimal if the individual lives in a remote rural community, whereas it could be severe in the child of university graduates living in a large city, of whom more might be expected. (This example illustrates how any attempt to differentiate between intrinsic and extrinsic components of handicap in fact neglects the fundamental property of this concept, which expresses the resultant of interaction between the intrinsic and the extrinsic; the intrinsic aspect is identified by any impairments and disabilities that may be present.) - Perhaps the most graphic example of someone who is handicapped without being disabled is the individual who has recovered from an acute psychotic episode but who bears the stigma of being a "mental patient"; note that this handicap complies with the definition, because it is consequent upon impairment and disability, but that neither the impairment nor the disability exists at the time the handicap develops. * Finally, the same handicap can arise in different situations, and therefore as a result of different disabilities. Thus, personal hygiene might be difficult to maintain, but its antecedents could be very different for someone accustomed to a washbasin as compared with a way of life where ablutions are performed in a lake, or in a fast-moving river, or yet again in a desert environment. Application of the concepts Before one can attempt to apply this conceptual framework for the consequences of disease, it is necessary to deal with two related difficulties. Terminology A major reason for the lack of information about the disabled in society? is that the various agencies concerned have not shared a common un ambiguous definition of what constitutes disablement, impairment, and limitation.[2] Incongruence in problem identification also occurs, as was highlighted in a review of the need for definitions: "The word disability refers to an abnormality which interferes with function to a significant degree. A complete diagnosis should describe the disability, the abnormality underlying it, and the cause of the abnormality. Parents tend to think in terms of disability, whereas doctors often speak of abnormalities or their causes, and this may lead to misunderstanding."[3] Most of the terms over which confusion arises have been used with common-sense meanings in everyday speech and writing. The underlying problem has been that concepts relating to disability and disadvantage have been insufficiently explored, and, as a result, no systematized language usage specific to these concerns has developed. Two initiatives by the World Health Organization have helped to transform this state of affairs. The first took place in 1975-1976, when approval in principle was given to the conceptual framework put forward in the preliminary draft of this manual. The second, built on this foundation over the succeeding years, has secured agreement on usage for the most important terms between a number of international agencies. This preferred nomenclature has been employed throughout. Although too much can be made of the importance of semantic distinctions, the acid-test for a preferred nomenclature is whether it promotes practical benefits. The latter should come about as a clearer description of processes reveals to what extent and in what way problems may be solved. Considerable care has been applied to the selection of descriptive terms in this manual, so as to reinforce the conceptual distinctions. This effort can be seen at two levels: (i) Avoidance of the same word to identify an impairment, a disability, and a handicap. In colloquial speech there has been a trend to euphemism, with words being debased as mental retardation first became mental disability and then mental handicap. This succeeds only in blurring the distinctions; the disadvantage experienced by individuals with psychological impairments can vary , so that it is inappropriate to refer to a handicap as "mental". Thus the descriptive adjectives "mental" and "physical" may correctly be applied to impairments, but their use in relation to disabilities is loose and to handicaps quite unsuitable. It is perhaps vain to hope that the tide of careless usage can be reversed , but at least in serious discourse the logic of terminology should be exploited to reinforce the conceptual framework. (ii) In addition to seeking different descriptive terms, the use of different parts of speech also seemed to be appropriate. Thus for the qualities represented by impairments an adjective derived from a substantive is apposite, but for the activities included as disabilities a participle was deemed more suitable, the "-ing" ending emphasizing the dynamic aspect. An exhaustive consistency in this regard has not been possible, but a trend should be apparent. These points can best be illustrated with examples: Impairment DisabilityHandicap language speaking hearing listening orientation vision seeing skeletal dressing, feeding physical independence walkin g mobility psychological behaving social integration For specific impairments, the nomenclature and classification preferred by relevant international organizations, such as the International Society for Prosthetics and Orthotics, have been employed wherever possible. Deviation from norms All three of the concepts relevant to the consequences of disease - impairment, disability, and handicap - depend on deviations from norms. "The amount of deviation regarded as being present depends on the operation of a definition of the norm in question, be the specification implicit or identified. There are three approaches to such definition: (i) For quantitative phenomena, such as body height, the exploitation of statistical concepts of "the normal" and of deviations therefrom is of some help. However, although the approach may be useful in indicating conformity to type, there are limitations and certainly statistical methods can have little application when the norm relates to a value. The attraction of statistical concepts is that they appear to be value-free, which appeals to the many health professionals with a scientific background. Such striving for objectivity is encouraged by the illusion that common notions of causality in science are non-normative, as if they represented matter-of-fact relations or contingent connexions between events. The reality is that the very notion of what will count as a causal agent in disease is connected with a normative view of the normal or healthy organism. (ii) Normative views, such as those just indicated, are determined by reference to some ideal. This approach to the norm implicitly relates to threshold phenomena. To some degree the situation may be circumscribed by enunciation of standardized criteria for assignment to the class of those conforming, or failing to conform, to the ideal. Such methods can be applied to unquantified phenomena in the domain of impairment, and to most disabilities. (iii) Drawing further on the theory of deviance, yet other norms are determined by social responses. These are relevant to some disabilities and to most handicaps. In general, these norms are more difficult to categorize reproducibly, other than by recourse to cumbersome and highly arbitrary methods such as those used for determining eligibility for benefits. However, the particular relevance of social norms in the present context is that they indicate that an individual's perceptions - his belief that he has a problem - or the identity that other people attribute to the individual can both give rise to disadvantage. Another problem stems from the very nature of norms. Specific individual impairments or disadvantages are not themselves universal, although when they are taken in aggregate most of us fail to escape some departure from the norm. The social definition of problems allows one to resolve the difficulties, because value orientation relates to social interest; thus, in a social context,disease occurring in wild species is likely to be of little concern, whereas maladies affecting domestic animals are of greater interest. Departures from the norm thus need to be regarded in such a way that views are tempered by consideration of the feasibility and desirability of intervention to restore the norm. This is also the place to introduce another note of caution. There has been a recent vogue for promoting the notion of social handicap, drawing attention to such problems as poverty and poor housing out of relation to their direct influences on health. While one has sympathy with any attempt to combat social deprivation, such dilution of the concept of handicap is unhelpful because it tends to confound identification of specific health-related experiences and the means by which these might be controlled. Measurement In order to measure the consequences of disease, those who are affected have to be ascertained. The process of ascertainment of the disabled and handicapped is itself somewhat dubious, at least as an absolute proposition, and two crucial questions have to be acknowledged. The first concerns the sense in which the individual is disabled or handicapped, This should have been made clear by the definitions of concepts, and it is hoped that the ideas will serve to rebut those who try to dismiss the scheme as an attempt to classify the unclassifiable. The second question, which underpins the first, is directed at the reason for ascertainment, because any attempt to clarify thinking in this area can be vulnerable to the protests of those who are concerned that categorization or labelling engenders stigma. However, this attitude surely denies the possibility of any coherent attempt to alter the present situation; until categories can be identified, one is unable to begin to count, and until counting is possible one cannot know how big the problems are or deploy the resources intelligently in an endeavour to control the problems. In order to overcome the difficulties, it has been necessary to develop three separate classification schemes supplementary to the ICD - one concerned with each of the three principal concepts. These classifications are intended to facilitate study of some of the consequences of disease. They have been designed as coding systems that will allow details from individual case records to be reduced to standardized numerical form. This will allow the simplest form of measurement,by counting the numbers in each category. In turn, these counts can then be grouped with related problems so as to promote simplification for the preparation of statistical tabulations of aggregated data. The classifications therefore exemplify the underlying conceptual framework, but to a considerable degree their value can be considered separately from that of the theoretical constructs. This means that the classifications should be evaluated in the same way as the ICD - i.e., do they assist in the derivation of information of value to users? Brief guidance on the acquisition of data compatible with these classifi- cations was offered in the Introduction, and further suggestions about assessment and assignment have been made at the end of each of the suc- ceeding chapters. However, it is now necessary to provide a more detailed description of the principles underlying the development of each of the three classifications. Classification of impairments For many clinicians, thought on an impairment axis is likely to be unfamiliar because it is cross-disciplinary. In many ways there is an approximate inverse relationship between the ICD and the impairment (I) code. Thus where the ICD allows a considerable array of causes, such as those for cardiovascular and respiratory diseases, the I code makes relatively limited provisions because the functional conditions of these various conditions are much more limited. Similarly, the functional consequences of an amputation are virtually identical, be it due to trauma or to a congenital deficiency, and so only a single series of coding categories is provided; the ICD would have to be used to distinguish which cause applied. However, amputations also illustrate how parts of the ICD fail to provide sufficient detail for clinical management, a problem that applies to other disorders of the limbs as well. An attempt has been made to embrace the diversity of the functional consequences of these conditions in some detail, although this has necessitated recourse to a fourth digit. The basic structure of the I code consists of two digits supplemented by a decimal digit; as just noted, in some parts the use of a fourth digit has been suggested as well. An attempt has been made to allot taxonomic space in relation to the frequency and importance of the various types of impairment. In form the code resembles the ICD, in that it is hierarchical and meaning is preserved even if the code is used only in abbreviated form. Again, like disease terms in the ICD, impairments are best conceived of as threshold phenomena; for any particular category, all that is involved is a judgement about whether the impairment is present or not. In developing a single exhaustive code, it has been necessary to make compromises in specificity and taxonomic purity for the sake of simplicity, and a number of aspects obviously could not be accommodated ; perhaps the most important omissions are individual composite functions such as jumping and creeping. The classification had to simplify details, and the overwhelming consideration has been to identify the most important feature influencing the intervention OI support the individual might be likely to need. As soon as multiple impairments are present, specificity becomes less important. However, to allow for specificity when it is desired,an option has been provided wherever possible ; each individual impairment may be coded (multiple coding) or special combination categories, identified by an asterisk, may be used instead if the information has to be reduced to a single category. Alternatively, the code could be used to identify the most limiting impairment. This would be by analogy with the underlying cause concept in relation to the ICD. In this connexion, the prime function of the level of detail offered is to define the content of classes. It is up to the user to determine how much detail is recorded, so that the situation resembles that with the ICD - definition of subclasses by specification of considerable detail,but tabulation of aggregated data by broader classes such as ICD chapters. One other problem is that some categories of the I code and of the ICD appear to overlap. This occurs particularly in regard to symptoms, but a review of the purposes of the two classifications is likely to settle the difficulty. Interest in the condition leading to the consumption of medical services would probably require an ICD statement. A study of the reasons why people make contact with a health care system could use either I code or ICD statements, depending on the terms of reference of the study. Evaluation of the effectiveness of a health care system would call for two I code statements - one indicating initial status, and the other the status after contact with the system. Perhaps the likeliest use of the I code, though, would be as an indicator of unmet needs. In these circumstances, one might well wish to restrict consideration to relatively persistent impairments, eliminating transitory states and other trivia by adopting duration and severity criteria - such as that I code statements should be recorded only for impairments that had been present for a specified period of time, or that had persisted after medical treatment. Finally, it can be seen that in many ways a classification of impairments may be regarded as a classification of health-related problems that individuals are likely to encounter. The I code therefore has relevance to problem-oriented record systems and may be of value to those interested in automating the processing of such records, short of introducing full interactive visual display with a computer. Classification of disabilities In the preliminary draft of this manual a limited scheme was put forward for recording disability in a rather arbitrary manner, by means of a digit supplementary to the I code. This proved to be inadequate for many purposes. As a result, a more comprehensive disability (D) code has been designed - one that encompasses the more important behaviours and activities associated with everyday life. The key influence in designing this classification has been the feasibility of recording the interface between the individual and his environment in such a way as to display his potential; this may be supplemented by the handicap classification as a means of indicating the extent to which potential is realized. Perhaps the ideal aim for the D code would be to present a proof of the individual's functional abilities, as determined from what disabilities were present, in such a way that reciprocal specification of the environment allowed matching with the individual's capabilities. For instance, in the context of job placement, a factory extending over two floors but with toilet facilities located on only one of these would require separate specification of each floor for purposes of matching with the (residual) functional abilities of potential employees. If this effort succeeded, the D code could then be used as a means of screening that could be applied not only to job placement in vocational rehabilitation but also to school placement, rehousing the disabled, identifying vulnerability in the elderly, and other related purposes. In view of these considerations, it proved necessary to eliminate much of the complexity and detail present in conventional assessments, such as those of the activities of daily living. Only in this way could procedures be developed that would be simple and confined to the most basic or key functions. The actual assessment procedures may need to retain their complexity but, as in the I code, this additional detail could be incorporated in the D code more as a means of clarifying the content of broader classes. In the circumstances, it is understandable that the D code is less developed than the schemes for impairment and handicap. However, its form allows of expansion in response to additional needs uncovered by further field experience. The basic structure of the code consists of two digits, with the option of a supplementary decimal] digit, but even the nine main chapters have not been fully utilized so far. Once again, the taxonomic form resembles that of the ICD in being hierarchical, meaning being preserved even if the code is used only in abbreviated form - this feature is essential for facilitating matching of the individual and environmental circumstances. However, there is one important difference from both the ICD and the I code - disabilities are not' threshold phenomena; they reflect failures in accomplishments, so that a gradation in performance is to be expected. Provision has therefore been made for recording the degree of disability by means of a supplementary digit. Furthermore, those engaged in rehabilitation also find a judgement on future outlook of potential value, and so provision has also been made for this on an additional supplementary digit. Dimensions of disadvantage Before proceeding to the classification of handicaps, it is necessary to consider further the nature of disadvantage. Any direct attempt to measure values is fraught with difficulties. However, one can identify certain fundamental accomplishments that are related to the existence and survival of man as a social being and are expected of the individual in virtually every culture. An individual with reduced competence in any of these dimensions of existence is, ipso facto, disadvantaged in relation to his peers. The degree of disadvantage attached to reduced competence may vary appreciably in divers cultures, but some adverse valuation is almost universal. The key accomplishments include the ability of the individual to : (i) orient himself in regard to his surroundings , and to respond to these; inputs; (ii) maintain an effective i?dependent existence in regard to the more immediate physical needs of his body, including feeding and personal hygiene; (iii) move around effectively in his environment; (iv) occupy time in a fashion customary to his sex, age , and culture , including following an occupation (such as tilling the soil, running a household, or bringing up children) or carrying out physical activities such as play and recreation; (v) participate in and maintain social relationships with others; (vi) sustain socioeconomic activity and independence by virtue of labour or exploitation of material possessions, such as natural resources, livestock, or crops. These six dimensions may be designated as survival roles, and the handicap classification is based on this analysis. However, before describing this scheme, a number of other points have to be taken into account. The only value assumed in this analysis is that existence and survival are necessary and good. In a consideration of health-related problems this proposition would not appear to require justification. Survival roles have the merit of being broadly transcultural; in fact, disturbances of orientation, physical dependence, immobility, restricted occupation, social isolation, and poverty are the biggest and most frequent problems of the impaired and disabled, even in urbanized and industrialized societies with appreciable surplus wealth. Survival roles by no means exhaust the dimensions of handicap, and cognizance must be taken of other disadvantages. Maslow's hierarchy of needs[4] would appear to present a useful conceptual framework for understanding these problems. The three lowest planes are physiological, safety, and social needs, and it is with these that the handicap classification deals, largely in that order. Ego needs and status recognition come next, and the highest level is self-fulfillment. Maslow then asserts that man is motivated to satisfy needs in a predetermined order; the individual is no longer driven once a need is satisfied, but higher needs will be ignored until more basic needs are met. These hierarchical distinctions can be of value in helping to determine priorities. Certainly the dominance of survival roles emergences very clearly from such an analysis. Moreover, the symbolic values attached to such basic functions as eating and excretion can be seen to reflect a higher level of need. However, these higher needs are more difficult problems as long as basic needs are neglected. For this reason the classification makes little provision for disadvantage other than in relation to survival roles. Those interested in studying these aspects in greater detail will doubtless develop their own supplementary schemes. One important source of confusion needs to be disposed of at this stage. Disadvantage has frequently been equated with dependence. Certainly dependence has the advantage of being fairly easy to define, and therefore to measure. Moreover, a fundamental self-sufficiency in regard to physical and material accomplishments is important, not least because dependence on others entails making demands on their productivity and time. This aspect is complicated in many societies, in which changes in family size, geographical mobility, and obligations within the family have led to demands for dependence to be responded to collectively rather than individually - a problem compounded by demographic changes that increase the proportion of the population at greatest risk, the elderly. The principal obstacle to subsuming disadvantage within the term "dependence" is that it obscures social needs that can themselves, if met, go a long way to overcoming many of the disadvantages associated with irremediable physiological and safety needs. Underlying this is the fact that the notable feature of highly integrated societies is the extreme dependence of the individual on others, both for social relationships and for opportunities for occupation and economic selfsufficiency. The reality is that man is a social being; the social relations an individual enjoys are equally as essential for his survival as is competence in attending to physiological needs. Thus man's situation can more appropriately be described as one of interdependence. Moreover, this helps to highlight another important aspect - if disadvantage in one dimension is reduced, disadvantage in another may also be made more bearable. The apparent lack of a clear operational differentiation has obviously served to perpetuate confusion between disability and handicap. In the past, the means of identifying handicap usually depended on the ascertainment of disability and its severity. To infer the existence of disadvantage from the presence of certain disabilities may not appear unreasonable , but important assumptions both about values and about the interrelationship between disadvantage and the nature and severity of disability are implied by this approach. Thus there is a danger that the goal of social action may too readily become deflected to disability alone. This is a reductionist response, submerging handicap within disability, and it can encourage views that are insensitive to other dimensions of disadvantage, so that inequities result. These are exemplified by the common and yet unacceptable differences in the financial recompense offered to the disabled according to the cause of their impairment, feelings of guilt presumably accounting for the preferential rates often given to those disabled at war. There is also a tendency to concentrate excessively on disability resulting from physical impairments, to the neglect of that consequent upon psychological impairments. The difficulty is that the measure too readily determines the activity. For instance, measurements of intelligence quotients (IQ) have tended to influence educational opportunities out of relation to need, educational potential, or anything other than the availability of buildings and institutions to cope with the categories so identified. Much the same has happened with disability. Administratively , it may appear to be simpler to institute ascertainment and control at the level of disability; certainly one can see the need for some yardstick to reconcile the frequently conflicting needs of society and of the individual. However, disability will only indirectly influence disadvantage, and it is therefore important to be quite clear about one's goals. If handicap is the prime area of social concern, not all those with activity restriction are necessarily at a disadvantage - because activity restriction cannot be viewed as a sociological phenomenon per se. There is a distinct cleavage between disability and handicap, both conceptually and in the means for intervention, and methodological obstacles need not compel social action on disadvantage to be determined by measures of disability alone. As evidence for this, the handicap classification is provided as the means of studying disadvantage direct. Classification of handicaps Having indicated the challenge, it is now necessary to explain why the handicap (H) code takes the form that it does. An attempt to classify nominal variables is relatively easy. The principal requirement is that the classification should be exhaustive. In medical contexts, the other require- ment of simple logic - that the classes be exclusive - is more problematical, since more than one disease, impairment, or disability can occur in the same individual. The difficulty can be overcome , however, either with multiple coding or by adopting conventions such as combination categories or assignment rules based on concepts such as the underlying cause. A hierarchy can be imposed on a classification of nominal variables by identifying similarities and grouping these together. An example is provided by the various axes of the ICD, based on etiology, system, location, and nature. Impairments and disabilities can be classified in a similar manner. The essential property of nominal variables is that the classes are mutually exclusive. When one turns to the concept of handicap, the situation is very different. Whereas manifestations are finite, consequences relate to a more complex whole that is difficult to partition. In terms of disadvantage, the consequences are that an individual is unable to sustain the roles to which he is accustomed or to attain those to which he might otherwise aspire. Through these roles one can identify dimensions or components of disadvantage, but these interact in such a way that it is important to reflect them all, while keeping them distinct. Thus the first task in constructing a taxonomy of handicap is to identify the dimensions that one wishes to classify. This has been undertaken in the preceding section, where it was acknowledged that values, being difficult to measure, may best be studied in an indirect manner. Thus the H code classifies items not according to individuals or their attributes, but according to the circumstances in which disabled people are likely to find themselves--circumstances that can be expected to place such individuals at a disadvantage in relation to their peers when judged by societal norms. It is then necessary to recognize that one is concerned with degrees of these dimensions; thus, for each dimension, a gradation of circumstances is possible, and a specification of the individual's status in regard to each is therefore required. As a result, the code is not hierarchical in the customarily accepted sense, and abbreviation is possible only by arbitrarily neglecting certain of the dimensions - rather than by compromise between various roles or axes, as is incorporated in the ICD. Similarly, an attempt at synthesis would be both presumptuous and self-defeating; it would involve the imposition of value judgements in a dangerously subjective realm. Perusal of the outline of the H code should indicate these characteristics more clearly, when it will be seen that, as a descriptor, an H code statement is a means of summarizing the situation semi-quantitatively, rather than identifying discrete categories. Overlap between categories in the different dimensions has been kept to a minimum, but it could not be eliminated altogether. Thus an individual who is bedfast is not only immobile, but also totally dependent on others for care. Theoretically, it might be possible to eliminate such overlap, but in practice it appeared preferable for each dimension to stand on its own, for the reasons noted above. Much thought has been given to the ordination, the partitioning of the states of the various dimensions. Not only must categories be meaningful in themselves, but differentiation between them must be feasible by fairly simple and yet reliable means. For these reasons a full spectrum of sensitivity, spanning the available nine digits, has not always been possible. One must acknowledge here the value of concepts such as that of critical interval needs,[5] which has been incorporated in the physical independence dimension and is much superior to more arbitrary distinctions such as those based upon the duration for which help is needed. How successful all these attempts have been, and how appropriate the ordination within each dimension is, will become apparent only after further practical trials of the classification. Certain other problems are likely to be encountered. First,disadvantage may be perceived in three different ways - subjectively, by the individual himself; by others who are significant to the individual; and by the community as a whole. Secondly, there is ambiguity over how to regard third party handicap - i.e., handicap in an individual who is not himself impaired but who suffers disadvantage because of the demands made upon him by chronic illness or disability in the family. The difficulty is that, in following the definition of handicap with rigour, it is not possible to take account of such people in the present context, since their disadvantage is not consequent upon their own impairment and disability. Thirdly, it should be obvious from what has been said that it is not possible for any scheme intended for international use to correspond exactly with eligibility status for various benefits. 1. Wood, P.H.N. (1975) Classification of impairments and handicaps (Unpublished document WHO/ICD9/REV.CONF/75.15) 2. Townsend, P. (1967 The disabled in society. London, Greater London Associated for the Disabled. 3. Mitchell, R. G. (1973) Editorial. Develop. Med. Child. Neurol. 15, 279-280. 4. Maslow, A.H. (1954) Motivation and personality. New York, Harper & Row. 5. Isaacs, B., & Neville, Y. (1975) The measurement of need in old people, (Scottish Health Service Studies, No. 34) Edinburgh, Her Majesty's Stationery Office. ---------- SECTION 2 CLASSIFICATION OF IMPAIRMENTS List of two-digit categories 1 Intellectual impairments 2 Other psychological impairments 3 Language impairments 4 Aural impairments 5 Ocular impairments 6 Visceral impairments 7 Skeletal impairments 8 Disfiguring impairments 9 Generalized, sensory, and other impairments Guidance on assignment Index IMPAIRMENT Definition In the context of health experience, an impairment is any loss or abnormality of psychological, physiological, or anatomical structure or function (Note: "Impairment" is more inclusive than "disorder" in that it covers losses - e.g., the loss of a leg is an impairment, but not a disorder) CharacteristicsImpairment is characterized by losses or abnormalities that may be temporary or permanent, and that include the existence or occurence of an anomaly, defect or loss in a limb, organ, tissue, or other structure of the body, including the systems of mental function. Impairment represents exteriorization of a pathological state, and in principle it reflects disturbances at the level of the organ LIST OF TWO-DIGIT CATEGORIES OF IMPAIRMENT 1 INTELLECTUAL IMPAIRMENTS Impairments of intelligence (10-14) 10 Profound mental retardation 11 Severe mental retardation 12 Moderate mental retardation 13 Other mental retardation 14 Other impairment of intelligence Impairments of memory (15-16) 15 Amnesia 16 Other impairment of memory Impairments of thinking (17-18) 17 Impairment of flow and form of thought processes 18 Impairment of thought content Other intellectual impairments (19) 19 Other intellectual impairment 2 OTHER PSYCHOLOGICAL IMPAIRMENTS Impairments of consciousness and wakefulness (20-22) 20 Impairment of clarity of consciousness and the quality of conscious experience 21 Intermittent impairment of consciousness 22 Other impairment of consciousness and wakefulness Impairments of perception and attention (23-24) 23 Impairment of perception 24 Impairment of attention Impairments of emotive and volitional functions (25-28) 25 Impairment of drives 26 Impairment of emotion, affect, and mood 27 Impairment of volition 28 Impairment of psychomotor functions Behaviour pattern impairments (29) 29 Impairment of behaviour pattern 3 LANGUAGE IMPAIRMENTS Impairments of language functions (30-34) 30 Severe impairment of communication 31 Impairment of language comprehension and use 32 Impairment of extralinguistic and sublinguistic functions 33 Impairment of other linguistic functions 34 Other impairment of learning Impairments of speech (35-39) 35 Impairment of voice production 36 Other impairment of voice function 37 Impairment of speech form 38 Impairment of speech content 39 Other impairment of speech 4 AURAL IMPAIRMENTS Impairments of auditory sensitivity (40-45) 40 Total or profound impairment of development of hearing 41 Profound bilateral hearing loss 42 Profound hearing impairment in one ear with moderately severe impairment of the other ear 43 Moderately severe bilateral hearing impairment 44 Profound hearing impairment in one ear with moderate or lesser impairment of the other ear 45 Other impairment of auditory sensitivity Other auditory and aural impairments (46-49) 46 Impairment of speech discrimination 47 Other impairment of auditory function 48 Impairment of vestibular and balance function 49 Other impairment of aural function 5 OCULAR IMPAIRMENTS Impairments of visual acuity (50-55) 50 Absence of eye 51 Profound visual impairment of both eyes 52 Profound visual impairment of one eye with low vision in the other eye 53 Moderate visual impairment of both eyes 54 Profound visual impairment of one eye 55 Other impairment of visual acuity Other visual and ocular impairments (56-58) 56 Visual field impairment 57 Other visual impairment 58 Other ocular impairment 6 VISCERAL IMPAIRMENTS Impairments of internal organs (60-66) 60 Mechanical and motor impairment of internal organs 61 Impairment of cardiorespiratory function 62 Impairment of gastrointestinal function 63 Impairment of urinary function 64 Impairment of reproductive function 65 Deficiency of internal organs 66 Other impairment of internal organs Impairments of other special functions (67-69) 67 Impairment of sexual organs 68 Impairment of mastication and swallowing 69 Impairment related to olfaction and other special functions 7 SKELETAL IMPAIRMENTS Impairments of head and trunk regions (70) 70 Impairment of head and trunk regions Mechanical and motor impairments of limbs (71-74) 71 Mechanical impairment of limb 72 Spastic paralysis of more than one limb 73 Other paralysis of limb 74 Other motor impairment of limb Deficiencies of limbs (75-79) 75 Transverse deficiency of proximal parts of limb 76 Tranverse deficiency of distal parts of limb 77 Longitudinal deficiency of proximal parts of upper limb 78 Longitudinal deficiency of proximal parts of lower limb 79 Longitudinal deficiency of distal parts of limb 8 DISFIGURING IMPAIRMENTS Disfigurements of head and trunk regions (80-83) 80 Deficiency in head region 81 Structural deformity in head and trunk regions 82 Other disfigurement of head 83 Other disfigurement of trunk Disfigurements of limbs (84-87) 84 Failure of differentiation of parts 85 Other congenital malformation 86 Other structural disfigurement 87 Other disfigurement Other disfiguring impairments (88-89) 88 Abnormal orifice 89 Other disfiguring impairment 9 GENERALIZED, SENSORY, AND OTHER IMPAIRMENTS Generalized impairments (90-94) 90 Multiple impairment 91 Severe impairment of continence 92 Undue susceptibility to trauma 93 Metabolic impairment 94 Other generalized impairment Sensory impairments (95-98) 95 Sensory impairment of head 96 Sensory impairment of trunk 97 Sensory impairment of upper limb 98 Other sensory impairment Other impairments (99) 99 Other impairment 1 INTELLECTUAL IMPAIRMENTS Intellectual impairments include those of intelligence, memory, and thought Excludes: impairment of language and learning (30-34) IMPAIRMENTS OF INTELLIGENCE (10-14) Includes: disturbances of the rate and degree of development of cognitive functions, such as perception, attention, memory, and thinking, and their deterioration as a result of pathological processes 10 Profound mental retardation IQ under 20 Individuals who may respond to skill training in the use of legs, hands, and jaws 11 Severe mental retardation IQ 20-34 Individuals who can profit from systematic habit training 12 Moderate mental retardation IQ 35-49 Individuals who can learn simple communication, elementaryhealth and safety habits, and simple manual skills, but do not progress in functional reading or arithmetic 13 Other mental retardation 13.0 Mild mental retardation IQ 50-70 Individuals who can acquire practical skills and functional reading and arithmetic abilities with special education, and who can be guided towards social conformity 13.8 Other 13.9 Unspecified 14 Other impairment of intelligence 14.0 Global dementia Dementia affecting all cognitive functions and skills Includes: deterioration of cognitive functioning as a result of cerebral disease of trauma 14.1 Lacunar or patchy dementia With partial preservation of some cognitive functions and skills 14.2 Other and unspecified dementia 14.3 Loss of learned skills 14.8 Other 14.9 Unspecified IMPAIRMENTS OF MEMORY (15-16) 15 Amnesia Includes: partial or complete loss of memory for past events, and inability to register, retain, or retrieve new information 15.0 Retrograde amnesia Impaired memory for happenings prior to some well-identified event 15.1 Impairment of long-term memory 15.2 Impairment of recent memory Includes: congrade amnesia, impaired ability to acquire new information 15.3 Psychogenic amnesia Irregularity of pattern of memory loss 15.4 Impairment of memory for shapes 15.5 Impairment of memory for words 15.6 Impairment of memory for figures 15.8 Other 15.9 Unspecified 16 Other impairment of memory Memory includes the capacity to register, retain, and reproduce information Includes: false memories and distortions of memory content 16.0 Confabulation 16.1 Memory illusions Paramnesia 16.2 Cryptomnesia Recall of facts or events without recognizing them as memories 16.3 Other distortion of memory content 16.4 Forgetfulness 16.8 Other 16.9 Unspecified IMPAIRMENTS OF THINKING (17-18) 17 Impairment of flow and form of thought processes Includes: disturbances affecting the speed and organization of thought processes, and the ability to form logical sequences of ideas 17.0 Impairment of conceptualization or abstraction Relates to the ability to interpret the meaning of what is perceived, to integrate perceptions, to form meaningful relations among perceptions, and to abstract 17.1 Impairment of logical thinking Relates to the ability to relate ideas hierarchically 17.2 Slowness of thought 17.3 Acceleration of thought 17.4 Perseveration Includes: "getting stuck", repeating phrases, and constantly returning to same topic 17.5 Circumstantial thinking 17.6 Obsessional ideas 17.7 Flight of ideas Includes: association of words by sound or rhyme 17.8 Other Includes: incoherence of thought processes 17.9 Unspecified 18 Impairment of thought content Includes: restriction of thought content, excessive or unrealistic emphasis on and preoccupation with a particular set of ideas to the exclusion of critical examination of the ideas, and false beliefs not amenable to correction through logical argument and reality testing 18.0 Poverty of thought content 18.1 Overvalued ideas 18.2 Paranoid delusions A delusion is a false belief, impervious to the force of reason, and not shared by others of similar education and cultural background. A paranoid delusion or idea of reference is a delusion in which the individual considers that things in his surroundings are happening especially in connexion with him 18.3 Depressive delusions Includes: delusions of guilt and impoverishment 18.4 Delusional jealousy 18.5 Delusions of grandeur 18.6 Fantastic delusions 18.7 Hypochondriacal and nihilistic delusions 18.8 Other delusions 18.9 Other and unspecified OTHER INTELLECTUAL IMPAIRMENTS (19) 19 Other intellectual impairment Includes: Impairments of gnosis and praxis functions, where there is disturbance of higher cortical functions underlying the recognition and purposeful manipulation of objects 19.0 Agnosia Disturbed ability to recognise objects in the absence of impairments of consciousness, memory, and thinking 19.1 Apraxia Disturbed ability to perform learned purposeful movements in the absence of impairments of consciousness, memory, thinking, and motor capacity 19.2 Acalculia Disturbed ability to count and operate with numbers in the absence of impairments of consciousness, memory, and thinking 19.3 Impairment of openness to new ideas 19.4 Misinterpretation A misinterpretation is a false construction put by the individual on an occurence 19.8 Other 19.9 Unspecified 2 OTHER PSYCHOLOGICAL IMPAIRMENTS Psychological impairments have been interpreted so as to include interference with the basic functions constituting mental life. For the purpose of this scheme, the functions listed as being impaired are those that normally indicate the presence of basic neurophysiological and psychological mechanisms. The level of organization of these functions is that usually recorded in a clinical examination of the central nervous system and the examination of ``mental status''. In addition, some more complex psychological functions to do with drives, emotional control, and reality testing have also been included. Conventionally symptoms such as hallucinations and delusions are usually thought of as very closely related to what have been defined here as impairments. In terms of the classification they can be regarded as the result of impairment of some essential psychological processes, which must normally exist even though we are as yet largely ignorant of their nature. For instance, severe anxiety symptoms can be thought of as an impairment of autonomic response control mechanisms; the same applies to morbid depressive affect, and to hypomanic affect. Similarly, hallucinations presumably result from impairment of mechanisms differentiating between self and non-self, while delusions indicate impairment of analogous mechanisms concerned with reality testing. For the purpose of the classification, symptoms have been included among impairments with the understanding that there is an inferred impairment of some underlying complex psychological mechanism. Interferences with behaviour that represent complex purposeful and integrated sequences of interaction with and response to the environment and other persons are, for this purpose, properly regarded as disabilities rather than impairments. IMPAIRMENTS OF CONSCIOUSNESS AND WAKEFULNESS (20-22) 20 Impairment of clarity of consciousness and the quality of conscious experience Includes: various degrees of diminished wakefulness, and status characterized by changes in the level of wakefulness combined with altered awareness of self and the surrounding world Excludes: Intermittent impairment of consciousness (21) 20.0 Unconsciousness Includes: coma, sopor, and stupor 20.1 Clouding of consciousness Includes: transitional syndrome or post-concussional state 20.2 Narrowing of field of consciousness Includes: when due to affect 20.3 Delirium Includes: twilight status 20.4 Other confusional state Includes: disorientation for time, place, and persons 20.5 Dissociative state 20.6 Trance-like state Includes: hypnotic state 20.7 Akinetic mutism 20.8 Other 20.9 Unspecified 21 Intermittent impairment of consciousness Includes: intermittent ictal disturbances characterized by a total or partial loss of consciousness or by states of altered awareness, and a variety of local cerebral signs and symptoms 21.0 Profound intermittent interruption of consciousness Includes: epilepsy with frequency of seizures of once per day or greater 21.1 Severe intermittent interruption of consciousness Includes: epilepsy with frequency of seizures of once per week or greater 22.2 Moderate intermittent interruption of consciousness Includes: epilepsy with frequence of seizures of once per month or greater 21.3 Mild intermittent interruption of consciousness Includes: epilepsy with frequency of seizures less than once per month 21.4 Intermittent disturbance of consciousness Includes: psychomotor epilepsy 21.5 Other seizures Includes: petit mal 21.6 Other intermittent interruption of consciousness Includes: syncope and drop-attacks 21.7 Fugue states 21.8 Other 21.9 Unspecified 22 Other impairment of consciousness and wakefulness Includes: impairments of the sleep/wakefulness cycle, both disturbances affecting the quantity, quality, and pattern of the processes of sleep and wakefulness, and impairments of autonomic control of bodily functions that are influenced by the sleep cycle 22.0 Difficulty in getting off to sleep 22.1 Premature awakening from sleep Includes: insomnia NOS 22.2 Hypersomnia Excessive sleeping 22.3 Other impairment of sleep/wakefulness pattern Includes: narcolepsy 22.4 Enuresis nocturna 22.5 Other abnormality of acitivity during sleep Includes: sleep-walking and sleep-talking 22.6 Other impairment of sleep/wakefulness cycle 22.7 Sleepiness Includes: somnolence 22.8 Other Includes: impairment of awareness (which is an undifferentiated response to stimulus) 22.9 Unspecified IMPAIRMENTS OF PERCEPTION AND ATTENTION (23-24) Includes: disturbances of the functions enabling an individual to receive through the senses, to process information about the individual's own body and his environment, and to focus selectively on aspects or parts of such information 23 Impairment of perception 23.0 Impairment of the intensity of perception Includes: changes in the degree to which qualities and attributes of objects are perceived as vived and impressing on the mind 23.00 Uniform dulling of perception 23.01 Selective dulling of perception Includes: dulling in specific modalities 23.02 Uniform heightening of perception 23.03 Selective heightening of perception Includes: hypersensitivity to noise 23.08 Other 23.09 Unspecified 23.1 Distortion of perception Includes: illusions, disturbed percepts where the objective content of sense data received in different modalities is distorted - something actually to be seen or heard is experienced as something else Excludes: depersonalization (23.30) 23.10 Optical illusions 23.11 Acoustic illusions 23.12 Tactile illusions 23.13 Kinaesthetic illusions 23.14 Illusions in other sense modalities 23.15 Composite illusions Includes: pareidolic imagery 23.18Other 23.19Unspecified 23.2 False perception Includes: hallucinations and pseudohallucinations, false or abnormal percepts that are not based on objective sense data 23.20Visual hallucinations 23.21Auditory hallucinations 23.22 Tactile hallucinations 23.23Olfactory hallucinations 23.24Gustatory hallucinations 23.25Other hallucinations 23.26Pseudohallucinations Includes: those in any sense modality 23.27Oneroid or dream-like hallucinatory state 23.28Other 23.29Unspecified 23.3 Disturbance of body awareness 23.30Depersonalization Experiences of alienation from one's own body, and the experience that one's relationship to the environment and surroundings (and vice versa) is altered 23.31Derealization Alteration of the feeling of reality/unreality and familiarity/unfamiliarity accompanying the perception of objects Includes: d‚j… vu, jamais vu, and d‚j… v‚cu experiences 23.32Body image disorder Includes: phantom limb experiences 23.38Other 23.39Unspecified 23.4 Disturbances of time and space perception Includes: time-standing-still, micropsy, and macropsy experiences 23.5 Impairment of reality testing Includes: loss of ability to distinguish fantasy from reality 23.8 Other 23.9 Unspecified 24 Impairment of attention Includes: disturbances of the intensity, span, and mobility of attention, the latter being a differentiated response to specific stimulus 24.0 Distractibility 24.1 Impaired concentration 24.2 Narrowing of attention span 24.3 Impaired ability to shift focus of attention Includes: fixed attention 24.4 Blank spells Includes: sudden stoppage or inattention while speaking for a few seconds or longer (may be due to thought-blocking or hallucination) 24.5 Inattentiveness 24.6 Impairment of alertness Includes: diminished ability to stay alert as reflected by facial expression, speech, or posture 24.8 Other 24.9 Unspecified IMPAIRMENTS OF EMOTIVE AND VOLITIONAL FUNCTIONS (25-28) Refer to functions which contribute predispositions to action and purposeful behaviour 25 Impairment of drives Includes: increase, decrease, or changes of pattern of various behaviours related to basic physiological needs or instincts Excludes: impairment of volition (27) 25.0 Decreased appetite Includes: anorexia 25.1 Increased appetite Includes: hyperorexia and bulimia 25.2 Impairment of heterosexual role Includes: homosexuality and lack of interest in a relationship or contact with individuals of the opposite sex 25.3 Decrease of libido Includes: loss of libido 25.4 Other impairment of sexual performance In the presence of normal libido Includes: other disturbances of sexual functioning Excludes: impairment of reproductive function (64) and of sexual organs (67) 25.40Impotence 25.41Ejaculatio praecox 25.42Frigidity 25.48Other 25.49Unspecified 25.5 Alcohol dependence Includes: alcoholism 25.6 Other drug dependence Includes: drug addiction 25.7 Other pathological craving Includes: states of pathological craving related to substance dependence, and alcohol abuse 25.8 Other 25.80Inability to sustain goals 25.81Impairment of motivation 25.88Other 25.9 Unspecified 26 Impairment of emotion, affect, and mood Includes: disturbances of the intensity and quality of feelings and their somatic accompaniments, and disturbances of the duration and stability of feelings states Excludes: pathological affect leading to narrowing of field of consciousness (20.3) 26.0 Anxiety Includes: tense, worried look or posture, fearful apprehensive look, frightened tone of voice, and tremor Excludes: tremor NOS (74.90) 26.00Pathological anxiety Includes: free-floating anxiety 26.01Phobic anxiety Includes: panic attacks 26.08Other 26.09Unspecified 26.1 Depression Includes: anhedonia, and features such as sad, mournful look, tears, gloomy tone of voice, deep sighing, and choking of voice on depressing topic 26.2 Other blunting of affect Includes: apathy, expressionless face or voice, uniform blunting whatever the topic of conversation, indifference to distressing topics, and flatness of affect 26.3 Gross excitement Includes: the individual is manic, or throws things, runs or jumps around, waves arms wildly, shouts, or sreams 26.4 Other excitement Includes: euphoria, elation, hypomania, and unduly cheerful or smiling Excludes: psychomotor excitement (28.2) 26.5 Irritability Includes: angry outbursts 26.6 Emotional lability Includes: lability of one mood, changing from one mood to another, and proneness to periods of depression or elation 26.7 Incongruity of affect Includes: emotion shown but not congruent with topic, and ambivalent affect 26.8 Other 26.80"Catastrophic reaction" 26.81Attempted control of affect display Includes: attempt to suppress crying or anger, or to fake a socially appropriate affect 26.82Restlessness 26.83Feelings of guilt 26.84Emotional immaturity 26.85Distress NEC 26.88Other 26.9 Unspecified Includes: emotionally disturbed NOS, emotional impairment NEC 27 Impairment of volition Includes: disturbances of the capacity for purposeful behaviour and control of own actions Excludes: obsessional traits (29.5) and mutism (30.0) 27.0 Lack of initiative Includes: impairment of manifestations of independent or unprompted action and self determination (the latter including expression of personal opinion such as spontaneous criticism or disagreement (not negativism, 27.3), situation-relevant acts such as closing a door or lifting an object from the floor, asking questions, and making requests or demands) 27.1 Restriction of interests Includes: loss of interests 27.2 Overcompliance Includes: excessive cooperation with elements of passivity, and automatic submission 27.3 Negativism 27.4 Ambitendence 27.5 Compulsions Includes: rituals 27.6 Impairment of impulse control Includes: impulsive acts 27.8 Other Includes: impairment of adaptability, and other impairment of cooperation (e.g. misleading responses such as consistenly negative responses and frequent selfcontradiction, or appearance of being deliberately misleading) Excludes: Fatigability (28.5) 27.9 Unspecified 28 Impairment of psychomotor functions Includes: disturbances in the speed, rate, and quality of voluntary movements in the presence of an intact neural motor apparatus Excludes: involuntary movements of face (70.21), head (70.31), and body (70.54), and facial mannerisms (70.22) 28.0 Slowness Includes: slowness of psychic tempo, reduction of rate or speed of voluntary movements, and delays in responding to questions or in initiating requested tasks or movements (such as walking abnormally slowly, delay in performing movements, slowness of speech with long pauses before answering or between words, and reduction of facial movements) Excludes: indistinct speech (35.5) 28.1 Other underactivity Includes: hypoactivity, semistuporous states, and reduction of extent of voluntary movements (such as sitting abnormally still, near total lack of voluntary movement, ''doing nothing'', and immobility of face) Excludes: stupor (20.0) 28.2 Psychomotor excitement 28.3 Hyperkinesia in children 28.4 Other overactivity Includes: over-talkativeness, pacing up and down restlessly, and not sitting down for a minute 28.5 Fatigability Fatigue out of proportion to demands experienced Includes: abnormal fall-off in alertness or speed of response or initiative Excludes: sleepiness (22.7) and generalized fatigue (94.6) 28.8 Other 28.9 Unspecified BEHAVIOUR PATTERN IMPAIRMENTS (29) Refer to habitual patterns of behaviour that may interfere with social adjustment and functioning. Such patterns of behaviour may be present since adolescence and throughout most of adult life (e.g., in personality disorders), or may occur as persisting sequelae of neurological or mental illnesses. They manifest themselves mainly as accentuated character traits. Excludes: mood instability (26.6) 29 Impairment of behaviour pattern 29.0 Suspiciousness 29.1 Social withdrawal Includes: active avoidance of verbal or non-verbal interaction with other people, or of being in the physical presence of other people (e.g., avoidance of customarily expected social activities outside the home such as visiting kin or friends, going out with friends, and participating in games) 29.2 Excessive shyness Includes: excessive sensitivity and vulnerability, and other impairment of ability to mix with people 29.3 Hypochondriasis 29.4 Worrying Excludes: anxiety (26.0) 29.5 Obsessional traits Includes: insecurity, indecisiveness, and repetition compulsion 29.6 Other phobias Includes: agoraphobia 29.7 Hostility Includes: aggressivity, being uncooperative, angry, overtly hostile, discontented, antagonistic, threatening, or violent (hitting out at or attacking others) 29.8 Other 29.80Histrionic traits 29.81Perplexity Includes: puzzlement 29.82Self-injury Includes: head banging, picking at sores, and beating eyes 29.83Other destructiveness Includes: damaging furniture and tearing up pages, magazines, or clothing 29.84Attention-seeking Includes: will not leave (other) adults 29.85Solitary behaviour 29.88Other 29.9 Unspecified Includes: personality disorder NEC 3 LANGUAGE IMPAIRMENTS Language impairments relate to the comprehension and use of language and its associated functions, including learning IMPAIRMENTS OF LANGUAGE FUNCTIONS (30-34) 30 Severe impairment of communication 30.0 Severe functional impairment of communication Includes: mutism 30.1 Combined central disorders of speech and visual function with severe impairment of communication Includes autism 30.2 Impairment of higher centres for speech with inability to communicate Includes: severe dysphasia 30.3 Other dysphasia 30.4 Other severe impairment of communication due to cerebral damage 30.5 Other total or severe interference with communication 30.8 Other impairment of higher centres for speech 30.9 Unspecified 31 Impairment of language comprehension and use 31.0 Central disorders of visual function with inability to communicate Includes: severe dyslexia 31.1 Other dyslexia 31.2 Other central disorders of visual function 31.3 Impairment of vocabulary 31.4 Impairment of syntax 31.5 Impairment of semantic function 31.8 Other 31.9 Unspecified 32 Impairment of extralinguistic and sublinguistic functions 32.0 Impairment of extralinguistic functions Includes: imitation (reproduction of sounds without comprehension) 32.1 Impairment of processing, patterning, and retention of auditory stimuli in a temporal and form-integrated manner 32.8 Other impairment of sublinguistic functions 32.9 Unspecified 33 Impairment of other linguistic functions 33.0 Impairment of use of other language systems Includes: finger spelling and sign language 33.1 Impairment of listener feedback Includes: lack of signals usually emitted by listener (e.g., affirmative nodding and phrases such as "I see ...." and "Is that so?") 33.2 Other impairment of facial expression Includes: increase, reduction, or inappropriateness of quantity or range of facial expression (such as gaze avoidance, looking up, and abnormal staring) Excludes: disturbance of facial expression (70.23) 33.3 Other impairment of body language Includes: pantomime, gesture, idiosyncratic or involuntary patterns of body movement, and disturbance of posture, orientation, and tonus (such as abnormally reclined, relaxed, uncomfortable, inappropriate, or closed posture position), uncommunicative body orientation (e.g., turned away from conversation partner at 90ø angle), abnormally limited gesture, abnormal muscle tension, agitation (e.g., fidgety, restless, pacing, or frequent unnecessary movements), and catatonic movements (echopraxia, flexibilitas cerea, "Mitgehen", and echolalia) Excludes: slowness of body movement (28.0), sterotypies and postural mannerisms (70.5), negativism (27.3), and ambitendence (27.4) 33.4 Other impairment of language comprehension, verbal 33.5 Other impairment of language comprehension Includes: nonverbal 33.6 Other impairment of language formulation, oral 33.7 Other impairment of language formulation Includes: graphic 33.8 Other 33.9 Unspecified 34 Other impairment of learning Excludes: those related to impairment of intelligence (10-14), and impairment of openness to new ideas (19.3) 34.0 Delayed language comprehension and use for auditory stimuli 34.1 Delayed language comprehension and use for visual stimuli 34.2 Reading difficulties 34.3 Other impairment of reading 34.4 Impairment of writing Includes: mirror writing 34.5 Other specific learning difficulties A child with specific learning difficulties is one with average or above-average intelligence and with no evidence of major motor disorder, neurosensory loss, primary emotional disorder, or environmental disadvantage, who exhibits difficulties in understanding or using spoken or written language as manifested by disorders of listening, thinking, reading, writing, spelling, or arithmetic 34.8 Other 34.9 Unspecified IMPAIRMENTS OF SPEECH (35-39) 35 Impairment of voice production 35.0 Use of substitute voice Includes: artificial larynx 35.1 Other deficiency of larynx 35.2 Other total loss of voice production 35.3 Severe dysarthria 35.4 Other dysarthria 35.5 Indistinct speech Includes: drawling, mumbling, slurring, and other features making speech difficult to understand Excludes: impairments of speech form (37) 35.6 Other impairment of neurological control Includes: laryngeal palsy 35.7 Other impairment of speech organs 35.8 Other 35.9 Unspecified 36 Other impairment of voice function 36.0 Other impairment of nonverbal "grammar" Includes: lack of changes of pitch and loudness to amplify meaning Excludes: impaired use of gesture (33.3) 36.1 Impairment of voice modulation Includes: expressionless and flat tone of voice 36.2 Impairment of pitch 36.3 Abnormally quiet voice 36.4 Other impairment of loudness 36.5 Other impairment of intonation 36.6 Impairment of voice quality Includes: harsh, breathy 36.7 Impairment of other qualities of voice 36.8 Other 36.9 Unspecified 37 Impairment of speech form 37.0 Impairment of speech fluency Includes: stammering and stuttering 37.1 Impairment of speech pressure Includes: more copious speech than normal, too rapid speech 37.2 Other impairment of speech patterning Includes: impairment of rate, rhythm, and stress 37.3 Other impairment of phonation 37.4 Other impairment of resonation 37.5 Impairment of coherence Includes: distorted grammar, lack of logical connexion, sudden irrelevancies, and answering off the point 37.6 Nonsocial speech Includes: talking, muttering, or whispering out loud or out of context of conversation 37.7 Other impairment of conversational form Includes: simultaneous talking or talking out of turn 37.8 Other 37.9 Unspecified 38 Impairment of speech content Excludes: perseveration (17.4) and flight of ideas (17.7) 38.0 Idiosyncratic use of words or phrases Includes: use of neologisms 38.1 Other inappropriate speech Includes: excessive use of puns, rhymes, jokes, and song, and irrelevant speech 38.2 Other impairment of humour Includes: other inappropriate humour or lack of humour although appropriate occasions offered by conversation 38.3 Impairment of speech length Includes: abnormally lengthy or circumstantial speech, and individual difficult to interrupt 38.4 Other impairment of speech quantity Includes: restricted quantity of speech (frequently fails to answer, or restricted to minimum necessary, or no extra sentences or additional comments) 38.5 Poverty of speech content 38.8 Other 38.9 Unspecified 39 Other impairment of speech 4 AURAL IMPAIRMENTS Aural impairments relate not only to the ear, but also to its associated structures and functions. The most important subclass of aural impairment is made up of impairments relating to the function of hearing IMPAIRMENTS OF AUDITORY SENSITIVITY (40-45) TerminologyThe term "deaf" should be applied only to individuals whose hearing impairment is so severe that they are unable to benefit from any amplification Auditory sensitivity is determined by the average hearing threshold level, measured in decibels (dB), for pure tone stimuli of 500, 1000, and 2000 hertz (Hz), with reference to ISO: R389-1970. Distinction is customarily made between the following levels of hearing impairment: total hearing loss profound hearing impairmentmore than 91 dB(ISO) severe hearing impairment71-91 dB(ISO) moderately severe hearing impairment 56-70 dB(ISO) moderate hearing impairment41-55 dB(ISO) mild hearing impairment 26-40 dB(ISO) Coding Where hearing impairment is asymmetrical it should be classified according to the less impaired side. 40 Total or profound impairment of development of hearing An individual who has lost or never had the ability to hear and understand speech even when amplified, this loss having been suffered prior to the age of 19 years Includes: deaf mutism 41 Profound bilateral hearing loss 41.0 Total bilateral hearing loss 41.1 Total hearing loss in one ear, profound impairment in the other ear 41.2 Profound bilateral impairment of hearing 41.3 Other profound hearing impairment of one ear specified as the better ear 41.9 Unspecified Includes: (bilateral) deafness NOS, profound hearing loss NOS Excludes: profound hearing impairment where only one ear is mentioned and not specified as the better ear (44.3 and 44.7) 42 Profound hearing impairment in one ear with moderately severe impairment of the other ear 42.0 Total hearing loss in on ear, hearing impairment of the ear severe 42.1 Total hearing loss in one ear, hearing impairment of other ear moderately severe 42.2 Profound hearing impairment in one ear, hearing impairment of other ear severe 42.3 Profound hearing impairment in one ear, hearing impairment of other ear moderately severe 42.4 Other severe hearing impairment in one ear specified as the better ear 43 Moderately severe bilateral hearing impairment 43.0 Severe bilateral hearing impairment 43.1 Severe hearing impairment in one ear, hearing impairment in other ear moderately severe 43.2 Moderately severe bilateral hearing impairment 43.3 Other moderately severe hearing impairment in one ear specified as the better ear 43.8 Hard of hearing bilaterally NOS 43.9 Unspecified Includes: bilateral hearing impairment NOS, hard of hearing NOS, psychogenic deafness Excludes: moderately severe hearing impairment where only one ear mentioned and not specified as the better ear (45.1, 45.3) 44 Profound hearing impairment in one ear with moderate or lesser impairment of the other ear 44.0 Total hearing loss in one ear, hearing impairment in other ear moderate 44.1 Total hearing loss in one ear, hearing impairment in other ear mild 44.2 Total hearing loss in one ear, no hearing impairment in other ear 44.3 Total hearing loss in one ear, hearing impairment in other ear not stated 44.4 Profound hearing impairment in one ear, hearing impairment in other ear moderate 44.5 Profound hearing impairment in one ear, hearing impairment in other ear mild 44.6 Profound hearing impairment in one ear, no hearing impairment in other ear 44.7 Profound hearing impairment in one ear, hearing impairment in other ear not stated 44.9 Unspecified Includes: deafness of one ear NOS 45 Other impairment of auditory sensitivity 45.0 Severe hearing impairment in one ear, hearing impairment in other ear moderate or mild 45.1 Severe hearing impairment in one ear, hearing impairment in other ear not present or not stated 45.2 Moderately severe hearing in one ear, hearing impairment in other ear moderate or mild 45.3 Moderately severe hearing impairment in one ear, hearing impairment in other ear not present or not stated 45.4 Moderate bilateral hearing impairment 45.5 Moderate hearing impairment in one ear, hearing impairment in other ear mild 45.6 Moderate hearing impairment in one ear, hearing impairment in other ear not present or not stated 45.7 Mild bilateral hearing impairment 45.8 Mild hearing impairment in one ear, hearing impairment in other ear not present or not stated 45.9 Unspecified Includes: hearing impairment NOS OTHER AUDITORY AND AURAL IMPAIRMENTS (46-49) 46 Impairment of speech discrimination A distortion of hearing function where the basic problem exists in discrimination and recognition, involving auditory distortion not accountable in terms of sensorineural sensitivity. It is assessed by speech audiometry (discrimination for monosyllabic words in quiet, with speech presented at comfort level in sound field), but is a function of auditory sensitivity and can be calculated from the pure tone threshold of hearing, and so often is not distinguished Excludes: impairments accompanied by impairment of auditory sensitivity (40-45) 46.0 Profound bilateral impairment of discrimination (less than 40% correct) 46.1 Severe bilateral impairment of discrimination (40-49% correct) 46.2 Moderately severe bilateral impairment of discrimination (50-59% correct) 46.3 Moderate bilateral impairment of discrimination (60-79% correct) 46.4 Mild bilateral impairment of discrimination (80-90% correct) 46.5 Profound unilateral impairment of discrimination (less than 40% correct) 46.6 Severe or moderately severe unilateral impairment of discrimination (40-59% correct) 46.7 Moderate or mild unilateral impairment of discrimination (60-90%) 46.8 Other and unspecified bilateral impairment of discrimination Includes: where correctness not quantified but specified as bilateral 46.9 Other and unspecified Includes: where correctness not quantified 47 Other impairment of auditory function 47.0 Impairment of sound conduction NEC 47.1 Sensorineural impairment NEC 47.2 Tinnitus 47.3 Other subjective impairments of hearing 47.4*Mixed impairment of auditory function 47.8 Other impairment of auditory function 47.9 Unspecified 48 Impairment of vestibular and balance function 48.0 Vertigo Includes: dizziness 48.1 Impairment of labyrinthine function 48.2 Impairment of locomotion related to vestibular or cerebellar function 48.3 Other impairment of cerebellar and coordination function 48.4 Other impairment of vestibular function 48.5 Liability to falls Includes: those occurring suddenly while walking, giving rise to a tendency to walk holding on to furniture and associated with rejection of human help Excludes: impulsive falls (48.6) 48.6 Impulsive falls Includes: the impulsive elderly individual who gets up and tries to walk and then overbalances and falls (i.e., is able to walk but requires supervision because of the risk of falling) 48.7 Other impairment of balance 48.8 Other Excludes: impairment of coordination of limbs (74) 48.9 Unspecified 49 Other impairment of aural function 49.0 Deficiency of inner ear 49.1 Deformity of inner ear 49.2 Aural discharge Includes: otorrhoea 49.3 Aural irritation Includes: dermatitis and ear pain 49.4 Other aural infection 49.5 Deficiency of middle ear 49.6 Deformity of middle ear 49.7 Deformity of external ear Includes: deficiency and disfigurement 49.8 Other impairment of external ear 49.9 Other and unspecified 5 OCULAR IMPAIRMENT Ocular impairments relate not only to the eye, but also to its associated structures and functions, including the eyelids. The most important subclass of ocular impairments is made up of impairments relating to the function of vision IMPAIRMENTS OF VISUAL ACUITY (50-55) Scope The degree of impairment may be reduced by compensating aids, and a refractive error that can be fully corrected by glasses or contact lenses is generally not regarded as a visual impairment. However, provision for identifying such individuals has been made in category 57.0 TerminologyDifferent meanings are attached to the term "blindness", particularly in the context of legal definitions. In order to avoid ambiguity a preferred nomenclature for visual impairments is defined in the table, in which synonymous terms are also identified Coding 1. The degree of impairment may be different for the two eyes of an individual. Unfortunately there is no consistency in identifying these differences - sometimes the performance of both eyes is recorded, sometimes only that of what is specified as the better or the worse eye, and sometimes only that of one eye without further qualification. A reference chart is appended after category 55 2. Absence of an eye is classified separately from other profound impairments of visual function. This distinction is made because the individual with a missing eye is additionoally impaired in regard to appearance, i.e., he has a disfiguring deficiency 3. As the reference chart indicates, provision is made for all possible combinations of impairments of visual acuity; multiple coding within this section is therefore unnecessary Terminology for impairments of visual acuity WHO category Degree of Visual acuity Synonyms and alternativ e of vision impairment(with best possible correction) Normal None 0.8 or better range of normal vision vision (5/6, 6/7.5, 20/25 or better) Slight less than 0.8 near-norma l vision (< 5/6, 6/7.5, or 20/25) Low visionModerate less than 0.3 moderate low vision (< 5/15, 6/18 or 6/20, or 20/80 or 20/70) Severe less than 0.12 severe low vision - legal blind- (< 5/40 50 Absence of eye 50.0 Absence of both eyes 50.1 Absence of one eye, visual impairment of other eye total 50.2 Absence of one eye, visual impairment of other eye near-total 50.3 Abssence of one eye, visual impairment of other eye profound 50.4 Absence of one eye, visual impairment of other eye severe 50.5 Absence of one eye, visual impairment of other eye moderate 50.6 Absence of one eye, visual impairment of other eye slight 50.7 Absence of one eye, no visual impairment of other eye 50.8 Other absence of one eye Includes: absence of one eye when degree of visual performance in other eye not specified 50.9 Unspecified 51 Profound visual impairment of both eyes (see chart after category 55) 51.0 Total visual impairment of both eyes 51.1 Total visual impairment of one eye, visual impairment of other eye near-total 51.2 Total visual impairment of one eye, visual impairment of other eye profound 51.3 Near-total visual impairment of both eyes 51.4 Near-total visual impairment of one eye, visual impairment of other eye profound 51.5 Other near-total visual impairment of one eye specified as the better eye 51.6 Profound visual impairment of both eyes 51.7 Other profound visual impairment of one eye specified as the better eye 51.9 Unspecified Includes: (bilateral) blindness NOS Excludes: profound visual impairment where only one eye mentioned and not specified as the better eye (54.2, 54.5 and 54.8) 52 Profound visual impairment of one eye with low vision in the other eye (see chart after category 55) 52.0 Total visual impairment of one eye, visual impairment of other eye severe 52.1 Total visual impairment of one eye, visual impairment of other eye moderate 52.2 Near-total visual impairment of one eye, visual impairment of other eye severe 52.3 Near-total visual impairment of one eye, visual impairment of other eye moderate 52.4 Profound visual impairment of one eye, visual impairment of other eye severe 52.5 Profound visual impairment of one eye, visual impairment of other eye moderate 52.6 Other severe visual impairment of one eye specified as the better eye 52.9 Unspecified Includes: blindness (WHO category) of one eye and low vision of other eye NOS 53 Moderate visual impairment of both eyes (see chart after category 55) 53.0 Severe visual impairment of both eyes 53.1 Severe visual impairment of one eye, visual impairment of other eye moderate 53.2 Moderate visual impairment of both eyes 53.3 Other moderate visual impairment of one eye specified as the better eye 53.8 Low vision of both eyes NOS 53.9 Unspecified Includes: bilateral visual impairment NOS, low vision NOS Excludes: moderate visual impairment where only one eye mentioned and not specified as the better eye (55.2, 55.5, and 55.8) 54 Profound visual impairment of one eye (see chart after category 55) 54.0 Total visual impairment of one eye, visual impairment of other eye slight 54.1 Total visual impairment of one eye, no visual impairment of other eye 54.2 Total visual impairment of one eye, visual impairment of other eye not stated 54.3 Near-total visual impairment of one eye, visual impairment of other eye slight 54.4 Near-total visual impairment of one eye, no visual impairment of other eye 54.5 Near-total visual impairment of one eye, visual impairment of other eye not stated 54.6 Profound visual impairment of one eye, visual impairment of other eye slight 54.7 Profound visual impairment of one eye, no visual impairment of other eye 54.8 Profound visual impairment of one eye, visual impairment of other eye not stated 54.9 Unspecified Includes: blindness of one eye NOS 55 Other impairment of visual acuity (see chart below) 55.0 Severe visual impairment of one eye, visual impairment of other eye sligt 55.1 Severe visual impairment of one eye, no visual impairment of other eye 55.2 Severe visual impairment of one eye, visual impairment of other eye not stated 55.3 Moderate visual impairment of one eye, visual impairment of other eye slight 55.4 Moderate visual impairment of one eye, no visual impairment of other eye 55.5 Moderate visual impairment of one eye, visual impairment of other eye not stated 55.6 Slight visual impairment of both eyes 55.7 Slight visual impairment of one eye, no visual impairment of other eye 55.8 Slight visual impairment of one eye, visual impairment of other eye not stated 55.9 Unspecified Includes: (unilateral) impairment of vision NOS, loss of vision NOS OTHER VISUAL AND OCULAR IMPAIRMENTS (56-58) Excludes: central disorders of visual function (30.1, 31.0, and 31.2) 56 Visual field impairment Excludes: impairments accompanied by impairments of visual acuity (50-55) 56.0 Total impairment of visual fields (field diameter 0ø) 56.1 Near-total impairment of visual fields (field diameter 5ø or less) 56.2 Profound impairment of visual fields (field diameter 10ø or less) 56.3 Severe impairment of visual fields (field diameter 20ø or less) 56.4 Moderate impairment of visual fields (field diameter 60ø or less) 56.5 Slight impairment of visual fields (field diameter 120ø or less) 56.6 Tunnel vision NOS 56.7 Hemianopia 56.8 Other unilateral visual field impairment 56.9 Other and unspecified 57 Other visual impairment 57.0 Wears correcting lenses (with resultant normal of near-normal vision) 57.1 Astignatism 57.2 Impairment of visual accommodation 57.3 Diplopia Includes: strabismus 57.4 Other impairment of ocular motility and binocular vision Includes: nystagmus 57.5 Impairment of colour vision 57.6 Impairment of night vision 57.7 Subjective impairment of vision Includes: amblyopia, distortions, floaters, and transient visual loss Excludes: blurred vision, eye pain, and eye strain (58.7) 57.8 Other impairment of vision Includes: light sensitivity 57.9 Unspecified 58 Other ocular impairment 58.0 Ocular discharge Includes: excessive lacrimal secretion, running eye 58.1 Other ocular infection 58.2 Anaesthetic eye 58.3 Dry eye Includes: irritating eye 58.4 Deformity of eyeball Includes: disfigurement and exophthalmos Excludes: absence of eyeball (50) 58.5 Deformity of eyelid Includes: blepharitis, everted eyelids, ptosis, and deficiency or disfigurement of eyelids 58.6 Other impairment of eyelid 58.7 Ill-defined ocular impairment Includes: blurred vision, eye pain, eye strain 58.8 Other ocular impairment 58.9 Unspecified 6 VISCERAL IMPAIRMENTS Visceral impairments include impairments of internal organs and of other special functions. The array of underlying disorders that may give rise to these impairments is very considerable, extending over large sections of the ICD. However, the functional consequences of such disorders are much more limited. For instance, cardiovascular and respiratory diseases occupy 129 categories in two chapters of the ICD, but their common functional consequences can be identified comprehensively within a single two-digit category of the impairment classification. IMPAIRMENTS OF INTERNAL ORGANS (60-66) 60 Mechanical and motor impairment of internal organs 60.0 Tracheobronchial obstruction 60.1 Oesophageal or gastric obstruction 60.2 Intestinal obstruction 60.3 Other mechanical impairment of internal organs Excludes: urinary obstruction (63.4) and genital obstruction (66.5) 60.4 Diaphragmatic palsy 60.5 Other motor or analogous functional impairment of internalorgans Excludes: laryngeal palsy (35.6) 60.8*Combinations of the above 60.9 Unspecified 61 Impairment of cardiorespiratory function Excludes: syncope (21.6), peripheral manifestations classifiable to disfigurements of head (82) and to limbs (84-87) such as cyanosis and oedema, and gangrene (99.1-99.3) 61.0 Shortness of breath Includes: dyspnoea, orthopnoea, and respiratory failure 61.1 Other disturbance of breathing Includes: stridor and wheezing 61.2 Other abnormal sounds Includes: cardiac murmurs and abnormal sounds in chest 61.3 Exercise pain in chest 61.4 Other chest pain 61.5 Other exercise intolerance Includes: intermittent claudication Excludes: fatigue (94.6) and pain on exercise in arm (97.3) 61.6 Disturbance of cardiac rhythm Includes: arrhythmia, heart block, palpitation, and tachycardia 61.7 Cough or sputum 61.8 Other impairment of cardiorespiratory function Includes: haemopthysis Excludes: subject to corrective or prosthetic intervention or surgery (65.0) 61.9 Unspecified 62 Impairment of gastrointestinal function Excludes: impairment of mastication and swallowing (68) 62.0 Food intolerance Includes: nausea Excludes: specific dietary intolerance (93.2) and anorexia (25.0) 62.1 Vomiting and regurgitation 62.2 Flatulence Includes: borborygmi, eructation, and hiccough 62.3 Abdominal pain Includes: intestinal colic and biliary colic 62.4 Constipation 62.5 Diarrhoea 62.6 Irritable colon 62.7 Other intestinal functional impairment Includes: gastrointestinal hypermotility, dumping, and intestinal hurry 62.8 Other impairment of gastrointestinal function Includes: piles and rectal bleeding, mucus, and pain Excludes: severe impairment of continence (91) 62.9 Unspecified Includes: faecal incontinence NOS 63 Impairment of urinary function 63.0 Renal colic 63.1 Other impairment of renal function Includes: renal failure Excludes: renal dialysis (94.0) and transplantation (65.60) 63.2 Frequency of micturition Includes: polyuria 63.3 Reflex incontinence Voluntary loss of urine due to abnormal reflex activity in the spinal cord in the absence of the sensation usually associated with the desire to micturate Includes: automatic bladder 63.4 Overflow incontinence Involuntary loss of urine when the intravesical pressure exceeds the maximum urethral pressure owing to an elevation of intravesical pressure associated with bladder distension but in the absence of detrusor activity Includes: outflow obstruction of micturition, and prostatism 63.5 Urge incontinence Involuntary loss of urine associated with a strong desire to void; it may be motor, associated with uninhibited detrusor contractions, or sensory, not due to uninhibited detrusor contractions 63.6 Stress incontinence Involuntary loss of urine when the intravesical pressure exceeds the maximum urethral pressure but in the absence of detrusor activity 63.7 Other impairment of micturition Includes: dysuria 63.8 Other impairment of urinary function Excludes: severe impairment of continence (91) 63.9 Unspecified 64 Impairment of reproductive function Excludes: impairment of sexual organs (67), impotence (25.40), and frigidity (25.42) 64.0 Currently subject to contraceptive procedure Includes: consuming a contraceptive pill, intrauterine device in situ, and post-vasectomy 64.1 Sterility Excludes: impairments of internal genitalia (65.8 and 66.5) 64.2 Subfertility Includes: infertility other than that due to sterility 64.3 Dyspareunia Excludes: that related to vaginal discharge (67.3) 64.4 Sexual ambiguity Includes: hermaphroditism Excludes: if of psychological origin (25.2) 64.5 Dysmenorrhoea 64.6 Menorrhagia Includes: vaginal bleeding and excessive menstrual loss 64.8 Other disturbance of menstrual function 64.9 Other and unspecified 65 Deficiency of internal organs 65.0 Deficiency of tracheobronchial tree Excludes: deficiency of larynx (35.1) 65.1 Deficiency of lung 65.2 Deficiency of heart 65.20subject to corrective or prosthetic intervention or surgery Excludes: pacemaker (94.0) 65.21anomalies of cardiac development (such as patent interventricular septum) 65.22acquired valvular lesions 65.28other 65.29unspecified 65.3 Deficiency of oesophagus and stomach 65.4 Deficiency of intestine and rectum 65.5 Deficiency of gall bladder, liver, or spleen 65.6 Deficiency of kidney 65.60subject to renal transplantation 65.68other 65.69unspecified 65.7 Deficiency of bladder 65.8 Deficiency of internal genitalia 65.9 Other and unspecified 66 Other impairment of internal organs Excludes: artificial and abnormal orifices (88) 66.0 Abnormality of blood vessels of thorax and abdomen Includes: aortic aneurysm 66.1 Haemorrhage from internal organs Includes: pulmonary, intrathoracic, gastrointestinal, and intra-abdominal Excludes: epistaxis (69.3), haemoptysis (61.8), and rectal bleeding (62.8) 66.2 Transposition of viscera Includes: situs inversus viscerum 66.3 Accessory viscera Includes: splenunculus 66.4 Other structural abnormality of viscera Excludes: deficiencies (65) 66.5 Other impairment of internal genitalia Includes: tubal obstruction Excludes: deficiency (65.8) and malpositioning (67.4, 67.5) 66.8 Other impairments of internal organs 66.9 Unspecified IMPAIRMENTS OF OTHER SPECIAL FUNCTIONS (67-69) 67 Impairment of sexual organs 67.0 Absence of nipples 67.1 Hypertrophy of breasts 67.2 Other impairment of nipples and breasts 67.3 Genital discharge Includes: urethritis, vaginitis, and urethral or vaginal discharge or irritation 67.4 Prolapse Includes: procidentia 67.5 Other malposition of internal sex organs Includes: undescended testicle 67.6 Other deformity or deficiency of external genitalia Includes: hypospadias 67.7 Other impairment of external genitalia 67.8 Other impairment of sexual organs 67.9 Unspecified 68 Impairment of mastication and swallowing Excludes: impairment of jaw (70) and dentofacial impairments (80) 68.0 Currently wearing dental prosthesis 68.1 Deficiency of teeth, complete Includes: edentulous Excludes: if wearing prosthesis (68.0) 68.2 Other deficiency of teeth Includes: caries or decay Excludes: if wearing prosthesis (68.0) 68.3 Toothache 68.4 Impairment of salivation Includes: dry mouth 68.5 Other impairment of salivary function 68.6 Other impairment of mastication 68.7 Other impairment of swallowing 68.8 Other 68.9 Unspecified 69 Impairment related to olfaction and other special functions 69.0 Impairment of smell and taste 69.1 Impairment of smell 69.2 Impairment of taste 69.3 Nasal discharge Includes: epistaxis and rhinorrhoea 69.4 Nasal obstruction 69.5 Other impairment of nasal function Excludes: nasal deficiency (80.6) and nasal deformity (81.0) 69.8 Impairment of other special functions Excludes: impairment of sleep (22) 69.9 Unspecified 7 SKELETAL IMPAIRMENTS Skeletal impairments have been interpreted broadly so as to reflect the dispositon of the body and its visible parts. Skeletal impairments include mechanical and motor disturbances of the face, head, neck, trunk, and limbs, as well as deficiencies of the limbs. Recourse to a fourth-digit has often been necessary in order to encompass the level of detail desired Excludes: certain more evidently disfiguring impairments (80/87) IMPAIRMENTS OF HEAD AND TRUNK REGIONS (70) 70 Impairment of head and trunk regions Excludes: most deficiencies and disfigurements (80-83) 70.1 Mechanical and motor impairment of jaw 70.10Trismus 70.11Malocclusion 70.12Prognathism 70.13Underdevelopment of lower jaw 70.14Other disturbance of jaw development 70.15Other jaw dysfunctions Includes: clicking 70.18Other 70.19Unspecified 70.2 Mechanical and motor impairment of face 70.20Facial paralysis Includes: facial palsy 70.21Involuntary facial movements Includes: tics and masticatory movements 70.22Other facial mannerisms Includes: stereotypies and distinct idiosyncratic or repetitive movements of unclear meaning not classifiable as tics or automatisms (e.g., constant repetition of movements, or postures such as rubbing and grimacing) 70.23Other disturbance of facial expression Excludes: impairment of facial expression (33.2) 70.28Other 70.29Unspecified 70.3 Other mechanical and motor impairment of head 70.30Mechanical impairment of head 70.31Abnormal movement of head Includes: titubation 70.32Other motor impairment of head 70.38Other Includes: both mechanical and motor impairments of head 70.39Unspecified 70.4 Mechanical and motor impairment of neck 70.40Torticollis 70.41Other mechanical impairment of neck 70.42Other motor impairment of neck 70.48Other Includes: both mechanical and motor impairments of neck 70.49Unspecified 70.5 Impairment of posture 70.50Spinal curvature Includes: kyphosis, lordosis, and scoliosis 70.51Deficiency of vertebra 70.52Other deficiency of spine 70.53Other spinal deformity 70.54Involuntary body movements Includes: dyskinesia and dystonia Excludes: those of limbs (74) 70.55Postural mannerisms Includes: odd stylized movements or acts (usually idiosyncratic and often suggestive of special meaning or purpose) and stereo- typies (constant repetition of movements or postures such as rocking, rubbing, and nodding) Excludes: other impairments of body language (33.3) 70.58Other 70.59Unspecified 70.6 Impairment of physique 70.60Dwarfism Includes: short stature Excludes: generalized skeletal defect (70.65) 70.61Gigantism Includes: unduly tall stature 70.62Other impairment of stature 70.63Emaciation Includes: undue thinness 70.64Obesity 70.65Generalized skeletal defect Includes: achondroplasia 70.68Other 70.69Unspecified 70.7 Other mechanical and motor impairment of trunk 70.70Impairment of pelvis potentially interfering with normal delivery Includes: contracted pelvis Excludes: deficiency of pelvis (75.4 and 78.0-78.2) 70.71Other impairment of skeletal structures of trunk NEC 70.72Other abnormality of tissues in trunk region NEC 70.78Other 70.79Unspecified 70.8 Other impairment of head and trunk region NEC Includes: reduced plasticity or slowing of physical functions encountered in association with ageing 70.9 Unspecified MECHANICAL AND MOTOR IMPAIRMENTS OF LIMBS (71-74) As elsewhere in this section, differentiation is made between mechanical and motor impairments. The distinction is analogous to that between the physical state of a piece of machinery and its constituent parts on the one hand, and that of the power source and its transmission on the other. Throughout this section certain terms are used with particular meanings: extent of involvement:complete if there is involvement of the whole of a limb, and incomplete if only part of a limb is affected degree of involvement:total if the attribute is totally lacking, and partial if there is a reduction of the attribute 71 Mechanical impairment of limb The following fourth-digit subclassification to indicate the nature of the mechanical impairment is suggested for use with categories 71.0-71.7 0 total loss of movement, with or without deformity bilateral Includes: ankylosis and fixation specified as bilateral 1 other total loss of movement Includes: ankylosis and fixation 2 instability, bilateral Includes: flail joint specified as bilateral 3 other instability Includes: flail joint 4 other deformity, including deviation of axis, bilateral Excludes: with fixation (0, above) 5 other deformity Excludes: with fixation (1, above), or if congenital (84) 6 other restriction or loss of movement, bilateral Includes: stiffness related to mechanical impairment bilaterally Excludes: congenital contracture (84) 7 other restriction or loss of movement Includes: dislocation, and stiffness related to mechanical impairment 8* mixed impairment (e.g., otherwise classifiable to 1, above, on one side and 7, above, on other) 9 unspecified 71.0 Mechanical impairment of shoulder and upper arm 71.1 Mechanical impairment of elbow and forearm 71.2 Mechanical impairment of wrist and carpus Excludes: impairment also involving the hand (71.3) 71.3 Mechanical impairment of metacarpus and hand Includes: impairment also involving the wrist and carpus 71.4 Mechanical impairment of finger Includes: impairment of thumb Excludes: impairment of finger if hand also impaired (71.3) 71.5 Mechanical impairment of hip and thigh 71.6 Mechanical impairment of knee and leg 71.7 Mechanical impairment of ankle and foot Includes: impairment of subtaloid, tarsal, and metatarsal joints Excludes: toes (71.90 and 71.91) 71.8 Mixed and other upper limb mechanical impairment Excludes: impairments classifiable to 71.08*, 71.18*, 71,28*, 71.38*, and 71.48* 71.80* Mechanical impairment of more than one region of an upper limb or limbs Includes: shoulder-hand syndrome 71.81* Upper arm impairment on one side with forearm impairment on the other 71.82* Upper arm impairment on one side with wrist or hand impairment on the other 71.83* Upper arm impairment on one side with finger impairment on the other 71.84* Forearm impairment on one side with wrist or hand impairment on the other 71.85* Forearm impairment on one side with finger impairment on the other 71.86* Wrist or hand impairment on one side with finger impairment on the other 71.88* Other mixed mechanical impairment of upper limb 71.89Other and unspecified mechanical impairment of upper limb 71.9 Mixed and other mechanical impairment of limb Excludes: impairments classifiable to 71.58*, 71.68*, 71.78*, and 71.8 71.90Mechanical impairment of toes, bilateral 71.91Other mechanical impairment of toes 71.92Impairment of lower limbs due to unequal lenght of legs NEC 71.93Other and unspecified mechanical impairment of lower limb Includes: impairment of walking NOS 71.94* Hip or thigh impairment on one side with knee or leg impairment on the other 71.95* Hip or thigh impairment on one side with ankle, foot, or toe impairment on the other 71.96* Knee or leg impairment on one side with ankle, foot, or toe impairment on the other 71.97* Other mixed mechanical impairment of lower limb 71.98* Mixed mechanical impairment of upper and lower limb 71.99* Unspecified mechanical impairment of limb 72 Spastic paralysis of more than one limb Includes: hemiplegia, paraplegia, and tetraplegia 72.0 Complete spastic paralysis of upper and lower limbs on same side, with involvement of speech Includes: (spastic)hemiplegia, dominant side or with involvement of speech 72.1 Other complete spastic paralysis of upper and lower limbs on same side 72.2 Other spastic paralysis of upper and lower limb on same side Includes: (spastic)hemiparesis 72.3 Bilateral complete paralysis of lower limbs Includes: (spastic)paraplegia 72.4 Other bilateral spastic paralysis of lower limbs Includes: (spastic)paraparesis 72.5 Spastic paralysis of three limbs 72.6 Complete paralysis of all four limbs Includes: (spastic)tetraplegia 72.7 Other spastic paralysis of all four limbs Includes: (spastic)tetraparesis 72.8 Other spastic paralysis of more than one limb 72.9 Unspecified 73 Other paralysis of limb The following fourth-digit subclassification to indicate the nature of the paralysis is suggested for use with categories 73.0-73.9 0 complete spastic paralysis Excludes: paralysis classifiable to 72.0, 72.1, 72.3, and 72.6 1 other spastic paralysis Excludes: paralysis classifiable to 72.2, 72.4, 72.5, and 72.8 2 complete total flaccid paralysis 3 other total flaccid paralysis 4 complete partial flaccid paralysis 5 other flaccid paralysis 6 other weakness of limb 7 fatigue of limb 9 unspecified 73.0 Bilateral paralysis of upper limbs 73.1 Paralysis of dominant upper limb 73.2 Other paralysis of upper limb 73.3 Bilateral paralysis of lower limbs Excludes: paralysis classifiable to 72.3 and 72.4 73.4 Other paralysis of lower limb 73.5 Paralysis of upper and lower limbs on same side Excludes: paralysis classifiable to 72.0, 72.1, and 72.2 73.6 Paralysis of three limbs Excludes: paralysis classifiable to 72.5 73.7 Paralysis of all four limbs Excludes: paralysis classifiable to 72.6 and 72.7 73.8 Other paralysis 73.80Spastic paralysis, complete 73.81Other spastic paralysis Includes: spastic paresis or paralysis NOS 73.82Total flaccid paralysis, complete 73.83Other total flaccid paralysis 73.84Partial flaccid paralysis, complete 73.85Other flaccid paralysis Includes: flaccid paralysis NOS 73.86Other weakness of limbs 73.87Fatigue of limbs Excludes: fatigue NOS (94.5) 73.9 Unspecified 74 Other motor impairment of limb Excludes: stiffness related to mechanical impairment (71) The following fourth-digit subclassification to indicate the nature of the impairment is suggested for use with this category: 0 rigidity or stiffness, complete 1 other rigidity or stiffness 2 abnormal movement, complete Includes: tremor 3 other abnormal movement 4 lack of coordination, complete 5 other lack of coordination 6 other impairment of dexterity 7 other 8* mixed (e.g., otherwise classifiable as both 0 and 5, above) unspecified 74.0 Other bilateral motor impairment of upper limbs 74.1 Other motor impairment of dominant upper limb 74.2 Other motor impairment of upper limb 74.3 Other bilateral motor impairment of lower limbs 74.4 Other motor impairment of lower limb 74.5 Other motor impairment of upper and lower limbs on same side 74.50 Hemiballismus 74.6 Other motor impairment involving three or four limbs 74.8 Other motor impairment 74.9 Unspecified 74.92Tremor NOS 74.97Limping NOS Excludes: impairment of walking NOS (71.93) DEFICIENCIES OF LIMBS (75-79) Excludes: other congential malformations of limbs (84 and 85) Scope Transverse deficiencies (75-76) present essentially as an amputation-like stump; they may arise as a failure of formation of parts, or as the result of surgical intervention. These impairments include those previously designated as peromelia or terminal transverse deficiencies. A deficiency is customarily identified by the level at which the limb terminates (the most proximal part that is missing), it being understood that all elements distal to the level named are also absent Excludes: where a deficiency is not complete across the limb at the same level (when it is probably longitudinal rather than transverse) Longitudinal deficiencies (77-79). All skeletal limb deficiencies other than those of the transverse type should be placed in the longitudinal category, though by the same token almost all arise as a failure of formation of parts. These impairments include those previously designated as extromelias or terminal longitudinal, intercalary transverse, and intercalary longitudinal deficiences. All absent bones or portions of bones that are missing are named, any bones not named as being missing being understood to be present TerminologyThe International Society for Prosthetics and Orthotics (ISPO) has developed a preferred nomenclature and recommended abbreviations for describing the appropriate levels, and these have been incorporated in the classification Coding 1 A reference chart is appended after category 79, indicating the equivalence between preferred and previous nomenclature 2 The terms "complete" and "incomplete" have been used with consistency throughout the classification to indicate the extent of an impairment, "complete" denoting involvement of the whole of the part and "incomplete" that less than the whole of the part is affected. However, in practice the terms "total" and "partial" may be encountered and in this context they should be interpreted as equivalent to "complete" and "incomplete" respectively 3 ISPO has a strong preference for full specification of deficiencies, which calls for multiple coding. As a result only a very limited provision for combination categories has been incorporated for other users 4 The degree of detail that is desirable varies in relation to the structure of the part affected. Thus, in proximal parts, particularly those related to long bones, it is the level of the deficiency that is of most concern. In contrast, in distal parts with greater transverse differentiation it is the ray manifesting the deficiency that is of greater interest. For this reason separate subclassifi-cations have been developed for deficiencies of proximal parts, 75, 77, 78, and for those of distal parts, 76 and 79 75 Transverse deficiency of proximal parts of limb (see chart after category 79) Includes: those of arm, carpus, leg, and tarsus The following fourth-digit subclassification to indicate the extent of the deficiency is recommended for use with this category: 0 complete deficiency, right 1 other complete deficiency Includes: left, bilateral*, and side unspecified 2 incomplete deficiency, upper third right 3 other incomplete deficiency, upper third 4 incomplete deficiency, middle third right 5 other incomplete deficiency, middle third 6 incomplete deficiency, lower third right 7 other incomplete deficiency, lower third 8 other incomplete deficiency, right Includes: incomplete deficiency of carpus or tarsus,right 9 other incomplete, or unspecified extent 75.0 Transverse deficiency of shoulder (Sh) Includes: fore-quarter amputation Excludes: deficiencies where only a portion of the shoulderis missing (77) shoulder disarticulation (75.1) 75.1 Transverse deficiency of upper arm (Ar) Includes: shoulder disarticulation 75.2 Transverse deficiency of forearm (Fo) Includes: elbow disarticulation 75.3 Transverse deficiency of carpus (Ca) Includes: wrist disarticulation 75.4 Transverse deficiency of pelvis (Pel) Includes: hind-quarter amputation 75.5 Transverse deficiency of thigh (Th) Includes: hip disarticulation 75.6 Transverse deficiency of lower leg (Le) Includes: knee disarticulation 75.7 Transverse deficiency of tarsus (Ta) Includes: ankle disarticulation 75.8*Transverse deficiencies at multiple sites in proximal partsof limbs 75.9 Unspecified site in proximal parts of limb Includes: upper limb (UL) (transverse) deficiency lower limb (LL) (transverse) deficiency deficiency of hand or foot NOS 76 Transverse deficiency of distal parts of limb (see chart after category 79) Includes: where rays identifiable in hand or foot The following fourth-digit code to indicate the extent ofthe deficiency is suggested for use with this category: 0 deficiency of all rays 1 deficiency of first ray, complete 2 other deficiency of first ray 3 deficiency of second ray, complete 4 other deficiency of second ray 5 deficiency of third ray, complete 6 other deficiency of third ray 7 deficiency of fourth ray, complete 8 other deficiency of fourth ray 9 deficiency of fifth ray, or of unspecified ray 76.0 Transverse deficiency of metacarpal, right (MC) 76.1 Other transverse deficiency of metacarpal 76.2 Transverse deficiency of phalanges of fingers, right (Ph) 76.3 Other transverse deficiency of phalanges of fingers 76.4 Transverse deficiency of metatarsal, right (MT) 76.5 Other transverse deficiency of metatarsal 76.6 Transverse deficiency of phalanges of toes, right (Ph) 76.7 Other transverse deficiency of phalanges of toes 76.8*Transverse deficiencies at multiple sites in limb Includes: deficiencies at multiple sites in distal parts oflimbs, and mixed transverse deficiencies of proximal and distal parts of limbs 76.9 Unspecified site 77 Longitudinal deficiency of proximal parts of upper limb (see chart after category 79) Includes: those of arm and carpus The following fourth-digit subclassification to indicate theextent of the deficiency is suggested for use with this category, and also with 78 0 complete deficiency, right 1 other complete deficiency 2 incomplete deficiency, right 3 other incomplete deficiency 8 other 9 unspecified extent 77.0 Longitudinal deficiency of scapula (Sc) 77.1 Longitudinal deficiency of clavicle (Cl) 77.2 Longitudinal deficiency of humerus (Hu) 77.3 Longitudinal deficiency of radius (Ra) 77.4 Longitudinal deficiency of ulna (Ul) 77.5 Longitudinal deficiency of radial elements of carpus (Ca) 77.6 Longitudinal deficiency of central elements of carpus 77.7 Longitudinal deficiency of other elements of carpus 77.8 Longitudinal deficiencies at multiple sites in proximalparts of upper limb 77.9 Unspecified site in proximal part of upper limb Includes: upper limb (UL) longitudinal deficiency 78 Longitudinal deficiency of proximal parts of lower limb (see chart after category 79) Includes: those of leg and tarsus The same fourth-digit subclassification as for 77 issuggested for use with this category 78.0 Longitudinal deficiency of ilium (Il) 78.1 Longitudinal deficiency of ischium (Is) 78.2 Longitudinal deficiency of pubis (Pu) 78.3 Longitudinal deficiency of femur (Fem) 78.4 Longitudinal deficiency of tibia (Ti) 78.5 Longitudinal deficiency of fibula (Fib) 78.6 Longitudinal deficiency of tibial elements of tarsus (Ta) 78.7 Longitudinal deficiency of other elements of tarsus 78.8*Longitudinal deficiencies at multiple sites in proximalparts of limb 78.9 Unspecified site Includes: lower limb (LL) longitudinal deficiency, andlongitudinal deficiency NOS 79 Longitudinal deficiency of distal parts of limb (see chart on next page) Includes: where rays identifiable in hand or foot The following fourth-digit subclassification to indicate theextent of the deficiency is suggested for use with this category: 0 deficiency of all rays 1 deficiency of first ray, complete 2 other deficiency of first ray 3 deficiency of second ray, complete 4 other deficiency of second ray 5 deficiency of third ray, complete 6 other deficiency of third ray 7 deficiency of fourth ray, complete 8 other deficiency of fourth ray 9 deficiency of fifth ray, or of unspecified ray 79.0 Longitudinal deficiency of metacarpal, right (MC) 79.1 Other longitudinal deficiency of metacarpal 79.2 Longitudinal deficiency of phalanges of fingers, right (Ph) 79.3 Other longitudinal deficiency of phalanges of fingers 79.4 Longitudinal deficiency of metatarsal, right (MT) 79.5 Other longitudinal deficiency of metatarsal 79.6 Longitudinal deficiency of phalanges of toes, right (Ph) 79.7 Other longitudinal deficiency of phalanges of toes 79.8*Longitudinal deficiencies at multiple sites in limbs 79.9 Unspecified REFERENCE CHART FOR NOMENCLATURE OF DEFICIENCIES OF LIMBS ISPO-preferred Frantz-O'Rahilly Frantz-O'Rahilly European Other (original) (revised) TRANSVERSE DEFICIENCIES(T-) arm, complete amelia, upper amelia, upper amelia, upper shoulder disarticulation thigh, complete amelia, lower amelia, lower amelia, lower hip disarticulation arm, middle (third) hemimelia (A/E) meromelia, humerus M peromelia, mid-humeral short above-elbow stump thigh, lower (third) hemimelia (A/K) meromelia, femur D peromelia, lower femoral long above-knee stump forearm, complete hemimelia (E-D) meromelia, radio-ulnar peromelia at level of elbow elbow disarticulation leg, complete hemimelia (K-D) meromelia, tibio-fibular peromelia at level of kneeknee disarticulation forearm, lower (third) partial hemimelia meromelia, radius D, ulna D peromelia, lower radio-ulnar partial aplasia of radius and ulna leg, upper (third) partial hemimelia meromelia, tibia P, fibula Pperomelia, upper tibio-fibularpartial aplasia of tibia and fibula carpal, complete acheiria wrist disarticulation metacarpal, complete adactylia phalanges, complete aphalangia LONGITUDINAL DEFICIENCIES (L/) humerus, complete proximal phocomelia (intercalary transverse) tibial-fibular, complete distal phocomelia ulnar, complete complete paraxial meromelia, ulnar ectromelia with complete (intercalary longitudinal) hemimelia, ulnar axial aplasia, ulnar radial, complete; carpal complete paraxial meromelia, radial ectromelia with axial (terminal longitudinal) partial; MC 1.2, complete;hemimelia, radial aplasia Ph 1.2, complete tibial, partial; tarsalincomplete paraxial meromelia, tibial M, D ectromelia with partial aplasia partial; MT 1.2, complete;hemimelia, tibial of tibia and complete aplasia Ph 1.2, complete of tarsals, metatarsals, and phalanges The above are only examples, and further details may be derived from "The proposed international terminology for the classification of congenital limb deficiencies", Developmental medicine and child neurology. 17, Suppl. 34 (1975). 8 DISFIGURING IMPAIRMENTS Disfiguring impairments include those with a potential to interfere with or otherwise disturb social relationships with other people. The concept has been interpreted broadly so as to include conditions that may not be the concequence of specific diseases, such as disfigurement, as well as disorders that may impair control of bodily functions in the manner that is customary and socially acceptable. However, more specifically bio-medical impairments with a potential to engender aversion (for instance, abnormal movements of parts of the body) have been classified to one of the preceding sections DISFIGUREMENTS OF HEAD AND TRUNK REGION (80-83) Excludes: those of ear (49), of eye (58), of sexual organs (67), and of posture and physique (70) 80 Deficiency in head region 80.0 Deficiency of cranial vault 80.1 Deficiency of upper jaw 80.2 Deficiency of lower jaw Excludes: prognathism and underdevelopment of lower jaw (70.1) 80.3 Other deficiency of skull 80.4 Cleft palate 80.5 Other dentofacial deficiency 80.6 Deficiency of nose 80.8 Other 80.9 Unspecified 81 Structural deformity in head and trunk regions 81.0 Deformity of nose 81.1 Deformity of head shape Includes: hydrocephaly, microcephaly, and abnormality of skull shape 81.2 Accessory structures in head region 81.3 Other deformity of head region Includes: lips, tongue, and palate 81.4 Deficiency in neck region Excludes: deficiency of vertebra (70.51) 81.5 Deficiency in thorax Excludes: internal organs (65) 81.6 Deficiency in abdominal wall 81.7 Other deficiency in abdomen Excludes: internal organs (65) 81.8 Other Includes: funnel chest 81.9 Unspecified 82 Other disfigurement of head Includes: face 82.0 Other soft tissue deficiency of head Includes: wasting 82.1 Swelling of part of head Includes: tumours 82.2 Pigmentation of skin of head Includes: depigmentation 82.3 Other colour changes of head Includes: cyanosis, flushing, rashes, and skin infections 82.4 Baldness, partial or complete 82.5 Other abnormality of hair 82.6 Scarring of head 82.7 Other abnormality of skin of head 82.8 Other disfigurement of head Includes: marked ugliness (e.g., gargoylism) Excludes: deformity of nose (81.0), dentofacial deficiencies (80.4 and 80.5), and deformity of head shape (81.1) 82.9 Unspecified 83 Other disfigurement of trunk 83.0 Other soft tissue deficiency of trunk Includes: wasting 83.1 Swelling of trunk Includes: tumours Excludes: hypertrophy of breasts (67.1) 83.2 Pigmentation of skin of trunk Includes: depigmentation 83.3 Other colour changes of trunk Includes: rashes and skin infections 83.4 Abnormal hair on trunk 83.5 Scarring of trunk 83.6 Other abnormality of skin of trunk Excludes: absence of nipples (67.0) 83.7 Accessory structures on trunk Excludes: accessory nipples (67.2) 83.8 Other disfigurement of trunk 83.9 Unspecified DISFIGUREMENTS OF LIMBS (84-87) Excludes: limb deficiencies (76-79) The following fourth-digit subclassification to indicate thelocation of limb disfigurements is suggested for use withcategories 84-87 0 shoulder and upper arm 1 elbow and forearm 2 wrist and carpus Excludes: disfigurement also involving the hand (3, below) 3 metacarpus and hand Includes: disfigurement also involving wrist and carpus 4 finger Includes: thumb Excludes: disfigurements classifiable under 3 (above) 5 hip an thigh 6 knee and leg 7 ankle, foot, and toe 8* multiple Includes: those affecting whole of limb or affecting both upper and lower limbs 9 location unspecified 84 Failure of differentiation of parts Includes: failure of separation of parts 84.0 Congenital deformity 84.1 Synostosis 84.2 Congenital soft-tissue contracture Includes: contracture secondary to failure of differentiation of muscle, ligament, and capsularstructures, such as arthrogryposis, camptodactyly,and trigger digit 84.3 Congenital skeletal contracture Includes: clinodactyly 84.4 Simple syndactylia 84.5 Soft-tissue syndactylia Includes: synonychia 84.6 Skeletal syndactylia Includes: fusions, acrosyndactylia, Apert's syndrome, and brachysyndactylia 84.8 Other 84.9 Unspecified 85 Other congenital malformation Excludes: those of internal organs (65 and 66) 85.0 Hypoplasia of skin and nails 85.1 Hypoplasia of musculotendinous structures 85.2 Hypoplasia of neurovascular structures 85.3 Other hypoplasia Includes: hypoplasia of more than one of preceding types of tissue (85.0-85.2) Excludes: dwarfism (70.60), and achondroplasia and generalized skeletal defect (70.65) 85.4 Overgrowth Excludes: impairment of physique and gigantism (70.61) 85.5 Skeletal duplications Includes: those of bones of limbs 85.6 Other duplications Includes: those of all tissues, such as polydactylism and mirror hand 85.7 Congenital constriction band 85.8 Other Includes: arachnodactyly 85.9 Unspecified 86 Other structural disfigurement 86.0 Wasting, complete Excludes: emaciation (70.63) 86.1 Other wasting 86.2 Other soft-tissue deficiency, complete 86.3 Other soft-tissue deficiency 86.4 Swelling of tissues Includes: tumours Excludes: that due to fluid (86.5 and 86.6) 86.5 Other swelling, complete Includes: lymphoedema 86.6 Other swelling Includes: oedema 86.7 Accessory structures Excludes: accessory digits (85.6) 86.8 Other structural disfigurement 86.9 Unspecified 87 Other disfigurement 87.0 Pigmentation Includes: depigmentation 87.1 Cyanosis 87.2 Other disturbance of skin colouration Includes: bruising, rashes, and skin infections Excludes: generalized bruising (92.4) 87.3 Other circulatory disturbance of skin Includes: varicose veins 87.4 Disturbance of sweating 87.5 Exudation Includes: scaling 87.6 Scarring 87.7 Abnormal hair 87.8 Other abnormality of skin 87.9 Other and unspecified OTHER DISFIGURING IMPAIRMENTS (88-89) 88 Abnormal orifice 88.0 Tracheostomy 88.1 Gastrostomy 88.2 Ileostomy 88.3 Colostomy 88.4 Other gastrointestinal diversion 88.5 Indwelling urinary catheter 88.6 Other urinary diversion Includes: extraurethral incontinence 88.7 Other artificial orifice 88.8 Other abnormal orifice 88.9 Unspecified 89 Other disfiguring impairment 9 GENERALIZED, SENSORY, AND OTHER IMPAIRMENTS GENERALIZED IMPAIRMENTS (90-94) 90 Multiple impairment 90.0*Multiple, of all classes 90.1*Multiple, of mental functions, speech, and special senses Includes: if with viscera or with skeleton 90.2*Multiple, of mental functions and speech 90.3*Multiple, of special senses, viscera, and skeleton 90.4*Multiple, of special senses 90.5*Multiple, of viscera and skeleton 90.8*Other 90.9*Unspecified 91 Severe impairment of continence Excludes: reflex, overflow, urge, and stress incontinence (63) 91.0 Subject to control by devices Includes: adaptive devices and electrical stimulators Excludes: special protective clothing (classify appropriately to 91.1-91.8) 91.1 Double incontinence with frequency greater than once everynight and once every day Includes: soiling (faecal incontinence) and wetting (incontinence of urine) greater than specified frequencies 91.2 Other double incontinence every night and every day 91.3 Double incontinence with frequency greater than once everyweek by night and day 91.4 Other double incontinence 91.5 Faecal incontinence with frequency greater than once every24 hours 91.6 Other faecal incontinence with frequency greater than onceevery week 91.7 Incontinence of urine with frequency greater than once every24 hours 91.8 Other 91.9 Unspecified Excludes: faecal incontinence NOS (62.9) 92 Undue susceptibility to trauma Excludes: intermittent impairment of consciousness (21) and impairment of balance function (48) 92.0 Haemorrhagic disorders Includes: bleeding tendencies Excludes: bruising (92.4) 92.1 Skeletal fragility 92.2 Other undue susceptibility to fracture 92.3 Undue susceptibility to pressure sores 92.4 Generalized bruising 92.5 Undue insensitivity to pain 92.6 Other undue susceptibility of tissues Includes: scurvy 92.7 Reduced recuperative powers associated with ageing 92.8 Other 92.9 Unspecified 93 Metabolic impairment Excludes: impairment of physique (70.6) and skeletal fragility (92.1) 93.0 Impairment of growth Includes: failure to thrive and failure of maturation 93.1 Delicate 93.2 Specific dietary intolerance Includes: gluten sensitivity 93.3 Other dietary limitation Includes: diabetes Excludes: food intolerance (62.0) 93.4 Malnutrition 93.5 Weight loss Excludes: emaciation (70.63) 93.6 Weight gain Excludes: obesity (70.64) 93.7 Polydipsia 93.8 Other 93.9 Unspecified 94 Other generalized impairment Excludes: impairment of sleep (22) 94.0 Subject to electromechanical devices for life support Includes: pacemaker, renal dialysis, and respirator 94.1 Intermittent prostration Includes: such as may occur with asthma or migraine Excludes: vertigo (48.0) 94.2 Generalized pain 94.3 Fever Includes: pyrexia 94.4 Generalized pruritus 94.5 Other weakness Includes: (generalized) weakness NOS 94.6 Generalized fatigue Includes: fatigue NOS Excludes: fatigability (28.5) 94.8 Other 94.9 Unspecified SENSORY IMPAIRMENTS (95-98) 95 Sensory impairment of head 95.0 Anaesthesia Excludes: anaesthetic eye (58.2) 95.1 Disturbance of sweating 95.2 Temperature change 95.3 Facial pain 95.4 Headache 95.5 Other ache in head Includes: congestion, throbbing, and tightness Excludes: earache (49.3) 95.6 Itching 95.7 Numbness Includes: paraesthesia and tingling 95.8 Other 95.9 Unspecified 96 Sensory impairment of trunk 96.0 Anaesthesia 96.1 Disturbance of sweating 96.2 Temperature change 96.3 Back pain Includes: neck pain and lumbago 96.4 Other pain in trunk region Excludes: abdominal pain (62.3), chest pain (61.3 and 61.4) and renal colic (63.0) 96.5 Other ache in trunk region Includes: congestion and tightness Excludes: chest pain (61.3 and 61.4) and tightness of chest related to exercise (61.5) 96.6 Itching 96.7 Numbness Includes: paraesthesia and tingling 96.8 Other 96.9 Unspecified 97 Sensory impairment of upper limb 97.0 Anaesthesia 97.1 Disturbance of deep sensibility Includes: astereognosis 97.2 Temperature change 97.3 Pain on exercise 97.4 Other pain Includes: causalgia 97.5 Other ache Includes: congestion and tightness 97.6 Itching 97.7 Numbness Includes: paraesthesia and tingling 97.8 Other Includes: burning or prickling, and cramp or spasm 97.9 Unspecified 98 Other sensory impairment Includes: that of lower limb 98.0 Anaesthesia 98.1 Disturbance of deep sensibility Includes: astereognosis 98.2 Temperature change 98.3 Pain Includes: causalgia Excludes: pain on exercise (61.5) 98.4 Other ache Includes: congestion or tightness Excludes: intermittent claudication (61.5) 98.5 Itching Excludes: generalized pruritus (94.4) 98.6 Numbness Includes: paraesthesia and tingling 98.8 Other Includes: burning or prickling, and cramp or spasm 98.9 Unspecified OTHER IMPAIRMENTS (99) 99 Other impairment 99.0 Currently pregnant (Pregnancy has been included within this classificationbecause it is associated with certain functionallimitations) 99.1 Gangrene of upper limb 99.2 Gangrene of lower limb 99.3 Other gangrene Includes: that affecting upper and lower limb 99.8 Other 99.9 Unspecified Includes: impairment NOS GUIDANCE ON ASSIGNMENT Impairment resemble disease terms in the ICD in that they are best conceived of as threshold phenomena; for any particular category, all that is involved is a judgement about whether the impairment is present or not. The apparent comprehensiveness of the code may at first appear to be daunting. However, the level of detail provided serves two purposes; first, as a means of defining the content of classes, and, secondly, to allow for considerable specificity for users who may wish to record such detail. The taxonomic structure of the code resembles that of the ICD in that it is hierarchical, with meaning preserved even if the code is used only in abbreviated form. Thus the level of detail to be recorded is a matter of choice for the user. Hitherto, the more immediate consequences of disease - the major impairments - are generally likely to have been noted in records. Thus coding to appropriate categories of the I code of whatever has been recorded should not present insuperable difficulties. The principal problem is likely to be concerned with under-ascertainment - the degree to which significant impairments may not have been noted. From now on, it is suggested that the nine major sections of the I code be used as a check-list that is applied to each individual. This would require that the observer ask himself a series of questions: "Does this person have an intellectual impairment, does he have any other psychological impairment, does he have a language impairment?" and so on, in sequence. Further information on any questions answered affirmatively, along the lines of the greater detail contained in the code, could then be elicited. The main aspect likely to command attention in the future relates to identification criteria and their relation to severity. The difficulties have been noted under "Deviation from norms", in the earlier section on the Consequences of disease. SECTION 3 CLASSIFICATION OF DISABILITIES List of two-digit categories 1 Behaviour disabilities 2 Communicaton disabilities 3 Personal care disabilities 4 Locomotor disabilities 5 Body disposition disabilities 6 Dexterity disabilities 7 Situational disabilities 8 Particular skill disabilities 9 Other activity restrictions Supplementary gradings Guidance on assignment DISABILITY Definition In the context of health experience, a disability is any restriction or lack (resulting from an impairment) of ability to perform an activity in the manner or within the range considered normal for a human being CharacteristicsDisability is characterized by excesses or deficiencies of customarily expected activity performance and behaviour, and these may be temporary or permanent, reversible or irreversible, and progressive or regressive. Disabilities may arise as a direct consequence of impairment or as a response by the individual, particularly psychologically, to a physical, sensory, or other impairment. Disability represents objectification of an impairment, and as such it reflects disturbances at the level of the person Disability is concerned with abilities, in the m f e t s d , t a e y d s n l s f y i . Examples include disturbances in behaving in an appropriate manner, in personal care (such as excretory control and the ability to wash and feed oneself), in the performance of other activities of daily living, and in locomotor activities (such as the ability to walk) LIST OF TWO-DIGIT CATEGORIES OF DISABILITY 1 BEHAVIOUR DISABILITIES Awareness disabilities (10-16) 10 Self-awareness disability 11 Disability relating to location in time and space 12 Other identification disability 13 Personal safety disability 14 Disability relating to situational behaviour 15 Knowledge acquisition disability 16 Other educational disability Disabilities in relations (17-19) 17 Family role disability 18 Occupational role disability 19 Other behaviour disability 2 COMMUNICATION DISABILITIES Speaking disabilities (20-22) 20 Disability in understanding speech 21 Disability in talking 22 Other speaking disability Listening disabilities (23-24) 23 Disability in listening to speech 24 Other listening disability Seeing disabilities (25-27) 25 Disability in gross visual tasks 26 Disability in detailed visual tasks 27 Other disability in seeing and related activities Other communication disabilities (28-29) 28 Disability in writing 29 Other communication disability 3 PERSONAL CARE DISABILITIES Excretion disabilities (30-32) 30 Controlled excretory difficulty 31 Uncontrolled excretory difficulty 32 Other excretion disability Personal hygiene disabilities (33-34) 33 Bathing disability 34 Other personal hygiene disability Dressing disabilities (35-36) 35 Clothing disability 36 Other dressing disability Feeding and other personal care disabilities (37-39) 37 Disability in preliminaries to feeding 38 Other feeding disability 39 Other personal care disability 4 LOCOMOTOR DISABILITIES Ambulation disabilities (40-45) 40 Walking disability 41 Traversing disability 42 Climbing stairs disability 43 Other climbing disability 44 Running disability 45 Other ambulation disability Confining disabilities (46-47) 46 Transfer disability 47 Transport disability Other locomotor disabilities (48-49) 48 Lifting disability 49 Other locomotory disability 5 BODY DISPOSITION DISABILITIES Domestic disability (50-51) 50 Subsistence disability 51 Household disability Body movement disabilities (52-27) 52 Retrieval disability 53 Reaching disability 54 Other disability in arm function 55 Kneeling disability 56 Crouching disability 57 Other body movement disability Other body disposition disabilities (58-59) 58 Postural disability 59 Other body disposition disability 6 DEXTERITY DISABILITIES Daily activity disabilities (60-61) 60 Environmental modulation disability 61 Other daily activity disability Manual activity disabilities (62-66) 62 Fingering disability 63 Gripping disability 64 Holding disability 65 Handedness disability 66 Other manual activity disability Other dexterity disabilities (67-69) 67 Foot control disability 68 Other body control disability 69 Other dexterity disability 7 SITUATIONAL DISABILITIES Dependence and endurance disabilities (70-71) 70 Circumstantial dependence 71 Disability in endurance Environmental disabilities (72-77) 72 Disability relating to temperature tolerance 73 Disability relating to tolerance of other climaticfeatures 74 Disability relating to tolerance of noise 75 Disability relating to tolerance of illumination 76 Disability relating to tolerance of work stresses 77 Disability relating to tolerance of other environmentalfactors Other situational disabilities (78) 78 Other situational disability 8 PARTICULAR SKILL DISABILITIES 9 OTHER ACTIVITY RESTRICTIONS 1 BEHAVIOUR DISABILITIES Refer to an individual's awareness and ability to conduct himself, both in everyday activities and towards others, and including the ability to learn Excludes: communication disabilities (2) AWARENESS DISABILITIES (10-16) Awareness refers to having knowledge 10 Self-awareness disability Includes: disturbance of the ability to develop or maintain a mental representation of the identity of the individual's self or body ("body image") and its continuity over time; and disturbance of behaviour resulting from interference with consciousness or sense of identity and confusion (inappropriate interpretation of and response to external events, which expresses itself in agitation, restlessness, and noisiness) 10.0 Transient self-awareness disability 10.1 Disability in body image orientation Includes: disturbance in the mental representation of the individual's body, such as inability in right-left differentiation, "phantom limb" experiences, andother related phenomena 10.2 Personal uncleanliness Includes: neglect of shaving or state of hair, and dirty clothing 10.3 Other disturbance of appearance Includes: careless dress or make-up, and appearance that is bizarre (such as "secret documents" and special clothes or ornaments with idiosyncratic meaning, which may be related to delusions), of very inappropriate taste, or conspicuously out of fashion) 10.4 Other disturbance of self-presentation Includes: disturbance of the ability to present a favourable image in social situations, such as by inattention to supportive social routines (e.g., greetings, partings, giving thanks, apologizing, excusing,and reciprocation of these), and lack of "presence" (e.g., total absence of originality, or excessive conformity in demeanour) Excludes: intended unconventional behaviour (which is not a disability) 10.8 Other 10.9 Unspecified 11 Disability relating to location in time and space Includes: disturbance of the ability of the individual to correctly locate external objects, events, and himself in relation to the dimensions of time and space 11.0 Transient disability relating to location in time and space 11.8 Other 11.9 Unspecified 12 Other identification disability Includes: disturbance of the ability to identify objects and persons correctly 12.0 Transient disability in identifying objects and persons 12.1 Conduct out of context Conduct that is generally appropriate but which isinappropriate to the place, time, or stage of maturation Includes: cultural shock (such as in immigrants), moving in different identities (e.g., transvestism and passing, such as black passing for white), pseudo-feeble-mindedness, and breaking taboos 12.8 Other 12.9 Unspecified 13 Personal safety disability Includes: disturbance of the ability to avoid hazards to the integrity of the individual's body, such as being in hazard from self-injury or from inability to safeguard self from danger 13.0 Liability to self-injury Includes: risk of suicide or self-inflicted injury 13.1 Personal safety disability in special situations Includes: being in hazard in special situations, such as those related to travel and transport, occupation,and recreation, including sport Excludes: occupational role disability (18) 13.2 Conduct potentially dangerous to the individual himself Includes: leaving gas taps or fires on 13.3 Other irresponsible conduct Includes: tossing lighted matches on carpet 13.4 Getting lost 13.5 Other wandering Includes: when inappropriately clad 13.8 Other 13.9 Unspecified 14 Disability relating to situational behaviour Includes: disturbance of the capacity to register and understand relations between objects and personsin situations of daily living Excludes: personal safety disability in special situations (13.1) 14.0 Situation comprehension disability Includes: disturbance of the capacity to perceive, register, or understand relations between things and people 14.1 Situation interpretation disability Includes: false interpretation of the relations between and meaning of things and people 14.2 Situation coping disability Includes: disturbance of the ability to perform everyday activities in specific situations, such as outsidethe home or in the presence of particular animalsor other objects Excludes: disability in crisis conduct (18.6) 14.8 Other 14.9 Unspecified 15 Knowledge acquisition disability Includes: general disturbance of the ability to learn, such as may arise from impairments of intellect or of the ability to learn new skills 16 Other educational disability Includes: other inability to benefit from educational opportunities because of disturbance of specific individual capacities for acquiring, processing, and retaining new information Excludes: those arising from communication (2) and other disabilities (3-7) 16.9 Unspecified Includes: slowing of mental functios NOS DISABILITIES IN RELATIONS (17-19) 17 Family role disability 17.0 Disability in participation in household activities Includes: customary common activities such as having meals together, doing domestic chores, going out or visiting together, playing games, and watchingtelevision, and conduct during these activities,as well as household decision-making, such as decisions about children and money 17.1 Disability in affective marital role Includes: affective relationship with steady heterosexual partner or spouse, and communication (such as talking about children, news, and ordinaryevents), ability to show affection and warmth (butexcluding culturally customary outbursts of anger or irritability), and engendering a feeling of being a source of support in the partner 17.2 Other marital role disability Includes: disturbance of sexual relations with steady heterosexual partner (including occurrence of sexual intercourse and whether both individual andpartner find sexual relations satisfactory) 17.3 Parental role disability Includes: undertaking and performance of child care tasks appropriate to the individual's position in household (such as feeding, putting to bed, ortaking to school, for small children, and lookingafter child's needs, for older children) and taking interest in child (such as playing with, reading to, and taking interest in child's problems or school work) 17.8 Other family role disability 17.9 Unspecified 18 Occupational role disability Includes: disturbance of the ability to organize and participate in routine activities connected with the occupation of time, not just confined to the performance of work Excludes: situational disabilities (70-79) 18.0 Disability in motivation Includes: interference with the ability to work by virtue of severe impairment of drive 18.1 Disability in cooperation Includes: inability to cooperate with others and to "give and take" in social interaction 18.2 Disability in work routine Includes: other aspects of conformity to work routine (such as going to work regularly and on time, and observing the rules) 18.3 Disability in organizing daily routine Includes: disturbance of the ability to organize activities in temporal sequences, and difficulty in making decisions about day-to-day matters 18.4 Other disability in work performance Includes: other inadequacy in performance and output 18.5 Recreation disability Includes: lack of interest in leisure activities (such as watching television, listening to radio, reading newspapers or books, participating in games, and hobbies) and in local and world events (including efforts to obtain information) 18.6 Disability in crisis conduct Includes: unsatisfactory or inappropriate responses to incidents (such as sickness) accident, or otherincident affecting family member or involvingother people), emergencies (such as fire), and other experiences customarily requiring quick decision and action 18.8 Other occupational role disability Includes: for individuals not working, their interest in obtaining or returning to work and actual stepsundertaken to this end Excludes: other social role disability (19.2) 18.9 Unspecified 19 Other behaviour disability Includes: disturbance of interpersonal relationships outside the household Excludes: occupational role disability (18) 19.0 Antisocial behaviour Includes: severely maladjusted, psychopathic, and delinquent 19.1 Indifference to accepted social standards Includes: conduct that is embarrassing (such as making sexual suggestions or advances, or lacking restraint in scratching genitals or in passingloud flatus), irreverent (such as singing, making facetious silly jokes or flippant remarks, or being unduly familair), or histrionic (such asexpression of feelings in an exaggerated,dramatic, or histrionic manner) 19.2 Other social role disability Includes: overt conduct by the individual involving arguments, arrogance, anger, marked irritability, or other friction arising in social situations outside own home (such as with supervisors, co-workers, or customers, if the individual engages in outside work: with neighbours and other people in the community, if the individual has a domestic role; with teachers, administrators, and fellow students, if the individual is a student; and with fellow inhabitants, if the individual lives in communal accommodation) Excludes: self-awareness (10) and identification disabilities (11-12) 19.3 Other personality disability Includes: other excess or lack of any customary trait of personality NOS 19.4 Other severe behaviour disorder Includes: other disturbance of behaviour (such as aggressiveness, destructiveness, extremeoveractivity, and attention-seeking) that presents problems in management and that are NEC 19.8 Other 19.9 Unspecified Includes: behaviour disorder NOS 2 COMMUNICATION DISABILITIES Refer to an individual's ability to generate and emit messages, and to receive and understand messages SPEAKING DISABILITIES (20-22) 20 Disability in understanding speech Includes: loss or restriction of the ability to understand the meaning of verbal messages Excludes: listening disabilities (23) and situation-related difficulties such as lack of knowledge of a local language 21 Disability in talking Includes: loss or restriction of the ability to produce audible verbal messages and to convey meaningthrough speech 22 Other speaking disability 22.0 Disability in understanding other audible messages Excludes: listening disabilities (24) 22.1 Disability in expression through substitute language codes Includes: loss or restriction of the ability to convey information by a code of sign language 22.2 Other disability with substitute language codes Includes: loss or reduction of the ability to receive information by a code of sign language 22.8 Other 22.9 Unspecified LISTENING DISABILITIES (23-24) 23 Disability in listening to speech Includes: loss or reduction of the ability to receive verbal messages 24 Other listening disability Includes: loss or reduction of the ability to receive other audible messages SEEING DISABILITIES (25-27) 25 Disability in gross visual tasks Includes: loss or reduction of the ability to execute tasks requiring adequate distant or peripheral vision 26 Disability in detailed visual tasks Includes: loss or reduction of the ability to execute tasks requiring adequate visual acuity, such as reading, recognition of faces, writing, and visual manipulation 27 Other disability in seeing and related activities Excludes: disability related to tolerance of illumination (75) 27.0 Disability in night vision 27.1 Disability in colour recognition 27.2 Disability in comprehending written messages Includes: loss or reduction of the ability to decode and understand written messages 27.3 Other disability in reading written language Includes: difficulty with speed or endurance 27.4 Disability in reading other systems of notation Includes: loss or reduction of the ability to read Braille by an individual disabled in near sight who had previously had this ability, or difficulty in learning this system of notation by an individual disabled in near sight 27.5 Disability in lip reading Includes: loss or reduction of the ability to lip-read by an individual disabled in listening who had previously had this ability, or difficulty in learning this skill by an individual disabled in listening 27.8 Other 27.9 Unspecified OTHER COMMUNICATION DISABILITIES (28-29) 28 Disability in writing Includes: loss or reduction of the ability to encode language into written words and to execute written messages or to make marks 29 Other communication disability 29.0 Disability in symbolic communication Includes: loss or restriction of the ability to understand signs and symbols associated with conventional codes (e.g., traffic lights and signs, and pictograms) and to read maps, simple diagrams, and other schematic representations of objects 29.1 Other disability in nonverbal expression Includes: loss or restriction of the ability to convey information by gesture, expression, and related means 29.2 Other disability in nonverbal communication Includes: loss or restriction of the ability to receive information by gesture, expression, and related means 29.8 Other 29.9 Unspecified Includes: communication disability NOS 3 PERSONAL CARE DISABILITIES Refer to an individual's ability to look after himself in regard to basic physiological activities, such as excretion and feeding, and to caring for himself, such as with hygiene and dressing EXCRETION DISABILITIES (30-32) 30 Controlled excretory difficulty Control relates to mitigation of the consequences of excretory difficulty by effecting a degree of regulation, either by adaptive devices, electrical stimulators, special protective clothing, or by some other means, so that an effectively customary existence becomes possible 30.0 Control by adaptive devices 30.1 Control by electrical stimulators 30.2 Gastrointestinal diversion Includes: ileostomy and colostomy Excludes: internal short-circuit operations (70.5) 30.3 Indwelling urinary catheter 30.4 Other urinary diversion Includes: with abnormal orifice (such as cystostomy) Excludes: internal short-circuit operations (70.5) 30.5 Control by special protective clothing 30.8 Other control of excretory difficulty 30.9 Unspecified 31 Uncontrolled excretory difficulty 31.0 Severe double incontinence Frequency every night and every day Includes: soiling (faecal incontinence) and wetting (incontinence of urine) 31.1 Moderate double incontinence Frequency greater than once every week by night and by day 31.2 Other double incontinence 31.3 Other faecal incontinence 31.4 Other urinary incontinence 31.8 Other uncontrolled incontinence 31.9 Unspecified 32 Other excretion disability 32.0 Associated with transfer difficulty at home Difficulty for the individual in transferring self to and from a lavatory at home 32.1 Associated with thransfer difficulty elsewhere 32.2 Other difficulty in using sanitary facilities 32.8 Other excretion disability 32.9 Unspecified PERSONAL HYGIENE DISABILITIES (33-34) 33 Bathing disability Includes: having and all-over wash, washing the body and the back, and drying self thereafter 33.0 Associated with transfer difficulty Difficulty for the individual in transferring self to and from a bath 33.1 Other difficulty in using a bath 33.2 Difficulty in using a shower 33.8 Other bathing disability 33.9 Unspecified 34 Other personal hygiene disability 34.0 Washing face 34.1 Washing hair Includes: washing neck and ears 34.2 Care of hands Includes: washing, and care of fingernails 34.3 Care of feet Includes: washing, and care of toenails 34.4 Post-excretion hygiene 34.5 Menstrual hygiene 34.6 Dental hygiene 34.7 Gender-specific care Includes: brushing and combing hair, and shaving 34.8 Other 34.9 Unspecified DRESSING DISABILITIES (35-36) 35 Clothing disability Excludes: footwear (36.1) 35.0 Underclothes 35.1 Lower part of body Includes: putting on skirts and trousers 35.2 Over arms and shoulders Includes: putting on jackets 35.3 Over the head Includes: putting on blouses, shirts, and nightdresses 35.4 Outer clothing Includes: putting on overalls, smocks, and overcoats 35.5 Fastenings Includes: doing up buttons, hooks, and zips 35.8 Other 35.9 Unspecified 36 Other dressing disability 36.0 Hosiery Includes: putting on socks and stockings 36.1 Footwear Includes: putting on shoes and tying shoelaces 36.2 Protective covering of hands 36.3 Headwear 36.4 Cosmetics 36.5 Other aspects of adornment 36.8 Other 36.9 Unspecified FEEDING AND OTHER PERSONAL CARE DISABILITIES (37-39) 37 Disability in preliminaries to feeding 37.0 Dispensing beverages Includes: pouring tea 37.1 Holding drinking vessel 37.2 Dispensing food Includes: serving food 37.3 Making food ready Includes: cutting meat and buttering bread 37.4 Eating utensils Includes: holding cutlery and other eating utensils 37.8 Other 37.9 Unspecified 38 Other feeding disability 38.0 Drinking Includes: conveying beverages to mouth and consuming (such as sipping) 38.1 Eating Includes: conveying food to mouth and ingesting 38.2 Chewing Includes: mastication 38.3 Swallowing 38.4 Gastrostomy 38.5 Poor appetite 38.8 Other 38.9 Unspecified 39 Other personal care disability 39.0 Difficulty in getting to bed Includes: difficulty in getting up, and inability to make the decision to go to bed Excludes: transfer disability (46) 39.1 Difficulty in bed Includes: difficulty in managing bedclothes 39.8 Other 39.9 Unspecified 4 LOCOMOTOR DISABILITIES Refer to an individual's ability to execute distinctive activities associated with moving, both himself and objects, from place to place Excludes: overall mobility and consideration of the degree to which this may be restored by aids (code under the handicap classification), and also disabilities arising from diminished endurance (71) AMBULATION DISABILITIES (40-45) 40 Walking disability Includes: ambulation on flat terrain Excludes: negotiation of discontinuities in terrain (41-43) 41 Traversing disability Includes: negotiation of discontinuities in terrain such as the occasional step between different levels Excludes: fights of stairs (42) and other aspects of climbing (43) 42 Climbing stairs disability Includes: negotiation of flights of stairs and similair man-made obstacles such as ladders Excludes: the occasional step (41) 43 Other climbing disability Includes: natural obstacles 44 Running disability 45 Other ambulation disability CONFINING DISABILITIES (46-47) 46 Transfer disability Excludes: those related to excretion (32), bathing (33), and transport (47) 46.0 Transfer from lying Includes: difficulty in rising from and lying down on bed Excludes: difficulties in getting to bed and getting up that are not related to the actual transfer (39.0) 46.1 Transfer from sitting Includes: difficulty in getting in and out of chairs Excludes: difficulty associated with getting on or off a lavatory (32) or in and out of a car (47.0) 46.2 Standing transfer Includes: difficulty in standing transfer to or from bed associated with manipulative problems 46.3 Reaching bed or chair Includes: difficulty in reaching a bed or chair 46.8 Other 46.9 Unspecified 47 Transport disability 47.0 Personal transport Includes: difficulty such as transfer in and out of car or in using other forms of personal transport 47.1 Other vehicles Includes: mounting and dismounting from public transport 47.2 Other difficulty with remote shopping Includes: inaccessibility from location to which transported (such as that vehicles cannot be parked sufficiently close) Excludes: neighbourhood shopping (50.0) and lack of availibility of transport (which is a handicap) 47.7 Other transport disability 47.8 Other confining disability 47.9 Unspecified OTHER LOCOMOTOR DISABILITIES (48-49) 48 Lifting disability Includes: carrying Excludes: difficulty in lifting and carrying related only to sustenance disability (50) 49 Other locomotor disability Excludes: body movement disabilities (52-27) 5 BODY DISPOSITION DISABILITIES Refer to an individual's ability to execute distinctive activities associated with the disposition of the parts of the body, and including derivative activities such as execution of tasks associated with the individual's domicile Excludes: dexterity disabilities (6) DOMESTIC DISABILITIES (50-51) 50 Subsistence disability 50.0 Procuring sustenance Includes: shopping in immediate neighbourhood Excludes: remote shopping associated with transport disability (47) 50.1 Transporting sustenance Includes: laying in supplies by transporting to home (such as carrying shopping) 50.2 Opening containers Includes: opening cans 50.3 Preparing food Includes: cutting and shopping 50.4 Mixing food Includes: beating 50.5 Cooking solids Includes: lifting and serving from pots and pans 50.6 Cooking liquids Includes: managing and pouring from containers of hot fluids 50.7 Serving food Includes: carrying trays 50.8 Catering hygiene Includes: washing up utensils after meals 50.9 Other and unspecified 51 Household disability 51.0 Care of bedding 51.1 "Smalls" laundry Includes: gentle hand washing (such as of small or delicate garments) 51.2 Bulk laundry Includes: washing large garments and household linen 51.3 Drying laundry Includes: wringing, hanging out, and spreading out 51.4 Manual cleaning Includes: wiping, dusting, rubbing, and polishing 51.5 Assisted cleaning Includes: sweeping and use of floor cleaner (such as vacuum cleaner) 51.6 Care of dependants Includes: helping children or other dependants with tasks such as feeding and dressing 51.8 Other Excludes: moving objects (61.3) and reaching or stretching up (53) 51.9 Unspecified BODY MOVEMENT DISABILITIES (52-57) Excludes: those classifiable as domestic disabilities (50- ) 52 Retrieval disability Includes: picking up objects from floor, and bending Excludes: picking and carrying small objects (61.3) 53 Reaching disability Includes: reaching or stretching up for objects 54 Other disability in arm function Includes: the ability to push or pull with the upper limbs 55 Kneeling disability 56 Crouching disability Includes: stooping 57 Other body movement disability OTHER BODY DISPOSITION DISABILITIES (58-59) 58 Postural disability Includes: difficulty in attaining or maintaining postures (such as disturbance of balance) Excludes: those related to limited endurance (71) 59 Other body disposition disability Includes: other difficulty in maintaining appropriate relations between different parts of the body 6 DEXTERITY DISABILITIES Refer to adroitness and skill in bodily movements, including manipulative skills and the ability to regulate control mechanisms Excludes: ability to write or make marks (28) DAILY ACTIVITY DISABILITIES (60-61) 60 Environmental modulation disability 60.0 Security disability Includes: operation of latches and other closures (such as door handles), and use of keys 60.1 Ingress disability Includes: opening and closing of doors 60.2 Fire Includes: kindling fire and striking matches 60.3 Domestic appliances Includes: use of taps, pumps, switches, and plugs 60.4 Ventilation Includes: opening windows 60.8 Other 60.9 Unspecified 61 Other daily activity disability 61.0 Use of standard (dial) telephone 61.1 Currency Includes: handling money 61.2 Other fine movements Includes: winding watches and clocks 61.3 Moving objects Includes: picking up and carrying small objects and avoiding dropping objects Excludes: retrieving objects (52) 61.4 Handling objects Includes: managing a newspaper 61.8 Other 61.9 Unspecified MANUAL ACTIVITY DISABILITIES (62-66) Excludes: writing disability (28) 62 Fingering disability Includes: ability to manipulate with fingers 63 Gripping disability Includes: ability to grasp or grip objects and move them 64 Holding disability Includes: ability to immobilize objects by holding them 65 Handedness disability Includes: disabled by virtue of being a sinistral in a predominantly dextral culture 66 Other manual activity disability Includes: other difficulty in coordination OTHER DEXTERITY DISABILITIES (67-69) 67 Foot control disability Includes: ability to use foot control mechanisms 68 Other body control disability Includes: ability to use parts of body to regulate control mechanisms 69 Other dexterity disability 7 SITUATIONAL DISABILITIES Although some of the difficulties incorporated in this section are not strictly disturbances of activity performance (in fact, some could more properly be conceived of as impairments), they have been included here for practical reasons - particularly in regard to reciprocal specification of the environment (see earlier section on the Consequences of disease) DEPENDENCE AND ENDURANCE DISABILITIES (70-71) 70 Circumstantial dependence Includes: dependence for continued existence and activity upon life-sustaining equipment or special procedures or care 70.1 Dependent on external mechanical equipment Includes: dependence on any form of external life-saving machine, such as an aspirator, a respirator, and a kidney (dialysis)machine, or any form of electromechanical device for the sustance or extension of activity potential, such as Possum and related enabling devices 70.2 Dependent on internal devices for life sustenance Includes: cardiac pacemaker 70.3 Dependent on other internal devices Includes: cardiac valve prostheses and joint replacements 70.4 Dependent on organ transplantation Includes: post-transplantation status 70.5 Dependent on other alterations to the internal environmentof the body Includes: internal short-circuit operations and existence of artificial orifices Excludes: organ removal without functional consequences (such as appendicectomy or cholecystectomy), and artificial orifices related to excretion (30) or feeding (38) 70.6 Dependent on special diet Includes: inability to partake of the meals customary to the individual's culture 70.8 Dependent on other forms of special care Excludes: dependence on the help of another individual (see Supplementary gradings of disability) 70.9 Unspecified dependence 71 Disability in endurance 71.0 Disability in sustaining positions Includes: sitting and standing 71.1 Disability in exercise tolerance 71.2 Disability in other aspects of physical endurance 71.8 Other disability in endurance 71.9 Unspecified ENVIRONMENTAL DISABILITIES (72-77) 72 Disability relating to temperature tolerance 72.0 Tolerance of cold 72.1 Tolerance of heat 72.8 Tolerance of other aspect of ventilation 72.9 Unspecified 73 Disability relating to tolerance of other climatic features 73.0 Tolerance of ultraviolet light Includes: sunlight Excludes: intolerance of bright illumination (75.0) 73.1 Tolerance of humidity 73.2 Tolerance of extremes of barometric pressure Includes: intolerance of pressurization associated with flying 73.9 Unspecified 74 Disability relating to tolerance of noise 75 Disability relating to tolerance of illumination 75.0 Tolerance of bright illumination 75.1 Tolerance of fluctuation in illumination 75.8 Other 75.9 Unspecified 76 Disability relating to tolerance of work stresses Includes: inability to cope with the speed or other aspects of the pressure of work Excludes: that attributable to occupational role disability (18) 77 Disability relating to tolerance of other environmentalfactors 77.0 Tolerance of dust 77.1 Tolerance of other allergens 77.2 Undue susceptibility to chemical agents Includes: that associated with liver disease, and that arising from previous exposure to safe limits of toxic chemicals 77.3 Undue susceptibility to other toxins 77.4 Undue susceptibility to ionizing radiation Includes: that arising from previous exposure to safe limits of irradiation 77.8 Tolerance of other environmental factors 77.9 Unspecified OTHER SITUATIONAL DISABILITIES (78) 78 Other situational disability Includes: generalized activity restrictions arising from such reasons as the individual's being delicate or unduly susceptible to trauma 8 PARTICULAR SKILL DISABILITIES Vocational resettlement calls for assessment of many aspects of the individual's abilities and accomplishments. These include: i) behaviour abilities, such as intelligence, drive, motivation (including attitude to rehabilitation), perception, awareness (including ability to see possibilities and limitations), learning ability (including openness to new ideas and learning potential), orientation for shape and space, concentration (including intensity and ability to be sustained), memory (for words, figures, and shapes, and longterm), and thinking (abstract and logical), as well as reaction to criticism, ability to cooperate, and other aspects of social relationships ii) task fulfilment abilities, such as capacity to plan tasks, problem solving (flexibility and resourcefulness), adaptability, independence in fulfilment, task motivation and interest, capacity to control own work and compare it with that of others, sensorimotor coordination, dexterity (fine and gross), accuracy, tidiness, punctuality, safety behaviour, endurance (both as regards sustaining full-time occupation and in relation to work circumstances, such as fatigue resistance), performance rate (both for repetitive and for complex tasks), and performance quality Most of these attributes have already been accommodated, as appropriate, in the impairment and disability classifications. However, there is also a need to accommodate particular occupation-related physical and other skills that have not been included elsewhere. This need may vary in different contexts at present, and there is insufficient basis at the moment for development of a subclassification of such skills that might have universal application. Nevertheless this section has been provided in anticipation of these needs, in the hope that preliminary experience in the use of these classifications will indicate the most useful approach. It is hoped that individual users of the disability classification will develop their own tentative subclassifications for this section 9 OTHER ACTIVITY RESTRICTIONS This section also has been made available so as to provide a means of meeting needs not satisfied in other parts of the classification. Again, it is hoped that individual users of the disability classification will develop their own tentative subclassifications for this section, so as to provide the basis for a more standardized scheme in the future SUPPLEMENTARY GRADINGS OF DISABILITY Severity Most people concerned with helping individuals who have a disability usually qualify their assessments with a grading of the severity of restriction in activity performance. Provision has therefore been made for a fourth-digit supplement to disability classification assignments for this purpose Outlook Some users have expressed a wish to be able to codify the outlook for individuals who have a disability. Provision has therefore been made for an optional fifth-digit supplement to disability classification assignments for this purpose Coding The structure of the disability classification is conventions such that it may extend to a three-digit field. In order to avoid ambiguity, therefore, it is recommended that these supplementary gradings always be coded to the fourth and fifth digit positions, even if the classification is only being used at one or two digit levels INTERVENTION AND SEVERITY In everyday life, performance is very rarely an all-or-none characteristic, and most people acknowledge this fact by grading the severity of restriction. It is recommemded that grading to the scale categories shown in the next section be recorded as a fourth-digit supplement to disability classification assignments; there are very few disabilities to which the standard scale categories are not applicable As far as scale categories are concerned, there are four goals for intervention in regard to disability: (i) Disability prevention, when the individual is able to perform activities unaided and on his own without difficulty (ii) Enhancement, when the individual is able to perform activities unaided and on his own but only with difficulty (iii)Supplementation, when the individual is able to perform activities only with aid, including that of others (iv) Substitution, when the individual cannot perform activities, even with aid These goals can be illustrated by different levels of disability in seeing. Thus: Level (i) the individual can carry out all visual tasks Level (ii)the individual's vision needs enhancement in order for him to be able to carry out detailed visual tasks without difficulty; enhancement may be accomplished directly, such as the use of reading glasses, or indirectly by adaptation, either by adjustment of illumination or by complementary assistance such as the use of large print Level (iii)the individual can accomplish gross visual tasks only by supplementing his performance with aid; supplementation may be direct, e.g., by the continuous use of appliances such as powerful correcting lenses or by help from a guide dog, or with other types of physical disability, by the assistance of other people, or indirect, e.g., by adjustment or adaptation of the environment (for instance, by use of raised marks on control gear, such as knobs, to allow tactile reinforcement of precision in adjustment) Level (iv)the individual has no useful vision and so is dependent on substitution to accomplish tasks that are customarily mediated by vision; substitution may be accomplished in various ways, such as by radio as a replacement for newspapers as a source of news, by provision of talking books, or by provision of a suitably adapted environment to eliminate hazards that the individual usually avoids by reliance on his vision At first it might be though that these four levels could provide the basis for a simple scaling of severity of disability. Certainly the categories have the merit of being fairly easy to define, and hence to ascertain, and such a fourpoint scale has been used quite widely. However, the categories are too broad to indicate with enough presion the quality of intervention required to improve performance. Moreover, they are unequal in their scope; thus levels i, ii, and iii can all refer to individuals who, under most circumstances, could be regarded as being independent, whereas both levels iii and iv are susceptible to subdivision that displays more sensitively the types of intervention required SEVERITY OF DISABILITY (optional fourth-digit supplement) Definition Severity of disability reflects the degree to which an individual's activity performance is restricted Characteristics Scale construct:the potential for intervention at the level of the individual to improve functional performance in relation to current status Includes: indications of the potential to meet some unfulfilled needs in regard to disability Excludes: severity of underlying impairments, and also the potential to reduce the individual's handicap (disadvantage) status, particularly by social policy and social welfare measures Severity scale categories 0 Not disabled (not in categories 1-9) Includes: no disability present (i.e., the individual can perform the activity or sustain the behaviour unaided and on his own without difficulty) 1 Difficulty in performance (not in categories 2-9) Includes: difficulty present (i.e., the individual can perform the activity or sustain the behaviour unaided and on his own but only with difficulty 2 Aided performance (not in categories 3-9) Includes: aids and appliances necessary (i.e., the individual can perform the activity only with a physical aid or appliance) Excludes: assistance by other people (category 3) 3 Assisted performance (not in categories 4-9) Includes: the need for a helping hand (i.e., the individual can perform the activity or sustain the behaviour, whether augmented by aids or not, only with some assistance from another person) 4 Dependent performance (not in categories 5-9) Includes: complete dependence on the presence of another person (i.e., the individual can perform the activity or sustain the behaviour, but only when someone is with him most of the time) Excludes: inability (categories 5 and 6) 5 Augmented inability (not in categories 6-9) Includes: activity impossible to achieve other than with the help of another person, the latter needing an aid or appliance to enable him to provide this help (for example, the individual cannot be got out of bed other than by the use of a hoist); behaviour can be sustained only in the presence of another person and in a protected environment 6 Complete inability (not in categories 8 or 9) Includes: activity or behaviour impossible to achieve or sustain (for example, an individual who is bed-bound is also unable to transfer) 8 Not applicable Includes: severity grading not applicable to particular disability 9 Severity unspecified It can be seen that the scale categories correspond to intervention goals in the following manner: Enhancement scale category 1 Supplementationscale categories 2-4 Substitution scale categories 5-6 Rules for assignment i categorize an individual according to his activity performance, taking account of aids, appliances, and assistance needed to permit this level of accomplishment; ii aids and appliances that it is intended to provide or prescribe should not be taken into account - this would then permit use of the scale as a rough measure of what had been accomplished when such aid or appliance was provided; iii if doubt is experienced about the category to which a disability shoud be assigned, rate it to the less favourable category (i.e., that with a higher number) ASSESSMENT OF OUTLOOK (optional fifth-digit supplement) Definition Outlook reflects the likely course of the individual's disability status Characteristics Scale construct:the potential for intervention at the level of the individual to improve functional performance in relation to expected future status Includes: indications of the potential to anticipate some needs in regard to disability Excludes: prognosis for underlying impairments, other than to the extent that disability status may correlate closely with the outlook for the impairment the potential to reduce the individual's handicap (disadvantage) status, particularly by social policy and social welfare measures Outlook scale categories 0 Not disabled (not in categories 1-9) Includes: no disability present 1 Recovery potential (not in categories 2-9) Includes: disability present but diminishing, and recovery without ultimate restriction in functional performance expected 2 Improvement potential (not in categories 3-9) Includes: disability present but diminishing, though the individual is likely to be left with residual restriction in functional performance 3 Assistance potential (not in categories 4-9) Includes: disability in stable or static state, but functional performance could be improved by provision of aids, assistance, or other support 4 Stable disability (not in categories 5-9) Includes: disability in stable or static state with no outlook for improvement in functional performance 5 Amelioration potential (not in categories 6-9) To ameliorate means to make more bearable Includes: disability increasing, but functional performance could by improved by provision of aids, assistance, or other support 6 Deteriorating disability (not in categories 8 or 9) Includes: disability increasing with no outlook for amelioration 8 Indeterminable outlook 9 Outlook unspecified Rules for assignment i categorize an individual according to the outlook for his activity performance (i.e., disability status), and not for the prognosis of the underlying impairments, other than to the extent that disability may correlate closely with the outlook for the impairments, and taking account of aids and appliances, modification or adaptation of his immediate environment, and assistance received from other persons; ii aids or adaptations that it is intended to provide or prescribe should not be taken into account - this would then permit use of the scale as a rough measure of what had been accomplished when such an aid or adaptation was provided; (Note: the ordination of this scale according to the potential for intervention determines that categories with a potential for assistance or amelioration have lower numbers than the corresponding stable or deteriorating categories - thus provision of assistance or amelioration is likely to lead reassignment to a category with a higher number, since no further potential for improvement can be assumed) iii if doubt is experienced about the category to which adisability should be assigned, rate it to the lessfavourable category (i.e., that with a higher number) GUIDANCE ON ASSIGNMENT To some extent, disabilities can be conceived of in the first instance as threshold phenomena. Thus, to establish the existence and nature of a disability calls only for a judgement about whether a particular accomplishment can be performed or not. In principle, the assignment of failures in accomplishment to the appropriate categories in the code should not prove to be unduly difficult. The taxonomic structure of the code resembles that of the ICD in that it is hierachical, with meaning preserved even if the code is used only in abbreviated form. Once again, the level of detail provided is intended to define the content of classes and to allow specificity for users who desire it. However, the scheme is less exhaustive than the I code, and provision has been made for expansion in response to needs uncovered by further experience of applying the code. Thus the level of detail to be recorded is a matter of choice for the user. Information about major difficulties is generally likely to have been noted in existing records. Coding whatever has been recorded to the appropriate categories of the D code should therefore not present insuperable difficulties. However, two problems should be acknowledged. First, existing records will usually be vulnerable in regard to under-ascertainment - the degree to which significant disabilities may not have been noted. Secondly, some caution is required in connexion with potential variability related to the method of ascertainment. Thus differences are to be expected between assignments based on clinical assessments, functional testing (including the activities of daily living), or questionnaires. From now on, it is suggested that the major sections of the D code be used as a check-list that is applied to each individual. This would require that the observer ask himself a series of questions': "Does this person have a behaviour disability, does he have a communication disability, does he have a personal care disability?" and so on, in sequence. Further information on any question answered affirmatively, along the lines of the greater detail contained in the code, could then be elicited. Having established the presence of particular disabilities, further questions then arise. This occurs because disability represents a failure in accomplishment, so that a gradation in performance is to be expected. Thus assessment of the severity of individual disabilities is called for. Assessment of outlook is also likely to prove helpful. The basis for such assessments has been indicated on the immediately preceding pages, dealing with supplementary gradings. It is unfortunate that, in attempting retrospective assessment on the basis of existing records, insufficient details of the level of performance may prevent full application of the supplementary gradings. Two aspects of the D code are likely to command particular attention in the future. First, the proposals in the code contrast fairly markedly with the complexity and exhaustiveness of conventional assessment schedules for the activities of daily living. The difference in approach is based on preliminary reappraisal of goals and methods[1], and it is hoped that further experience with the code will help resolve the differences in such a way as to promote economy in future assessment effort. Secondly, users have the opportunity to expand the code in order to meet their own needs more satisfactorily. It is hoped that, as requested in the Introduction, such developments will be communicated to the originators of these classifications. SECTION 4 CLASSIFICATION OF HANDICAPS List of dimensions 1 Orientation handicap 2 Physical independence handicap 3 Mobility handicap 4 Occupation handicap 5 Social integration handicap 6 Economic self-sufficiency handicap 7 Other handicap Guidance on assessment HANDICAP Definition In the context of health experience, a handicap is a disadvantage for a given individual, resulting from an impairment or a disability, that limits or prevenmts the fulfilment of a role that is normal (depending on age, sex, and social and cultural factors) for that individual CharacteristicsHandicap is concerned with the value attached to an individual's situation or experience when it departs from the norm. It is characterized by a discordance between the individual's performance or status and the exceptations of the individual himself or of the particular group of which he is a member. Handicap thus represents socialization of an impairment or disability, and as such it reflects the consequences for the individual - cultural, social, economic, and environmental - that stem from the presence of impairment and disability Disadvantage arises from failure or inability to conform to the exceptations or norms of the individual's universe. Handicap thus occurs when there is interference with the ability to sustain what might be designated as "survival roles" (see next page) Classification It is important to recognize that the handicap classification is neither a taxonomy of disadvantage nor a classification of individuals. Rather is it a classification of circumstances in which disabled people are likely to find themselves, circumstances that place such individuals at a disadvantager relative to their peers when viewed from the norms of society LIST OF DIMENSIONS OF HANDICAP SURVIVAL ROLES 1 Orientation handicap 2 Physical independence handicap 3 Mobility handicap 4 Occupation handicap 5 Social integration handicap 6 Economic self-sufficiency handicap OTHER HANDICAPS 7 Other handicaps Survival roles The six key dimensions of experience in which competence is expected of the individual have been designated as survival roles. For each of these dimensions the more important array of circumstances that may apply has been scaled. In contrast to the impairment and disability classifications, in which individuals are likely to be identified only in the categories that apply to them, in the handicap classification it is desirable that individuals always be identified on each dimensions or survival role. This will provide a profile of their disadvantage status Other handicapsThe six major survival roles by no means exhaust the possibilities of disadvantage, although they do cover the major problems. The varied nature of other handicaps precludes scaling, and so provision has been made just for the identification of these difficulties 1 ORIENTATION HANDICAP Definition is the individual's ability to orient himself in relation to his surroundings Characteristics Scale construct:orientation to surroundings, including reciprocation or interaction with surroundings Includes: reception of signals from surroundings (such as by seeing, listening, smelling, or touching), assimilation of these signals, and expression of response to what is assimilated; consequences of disabilities of behaviour and communication, and including the planes of seeing, listening, touching, speaking, and assimilation of the functions by the mind Excludes: response to reception and assimilation of signals from the surroundings manifest as handicaps of personal care (physical independence handicap, 2), evasion of physical hazard (mobility handicap, 3), behaviour in specific situations (occupation handicap, 4) and behaviour towards others (social integration handicap, 5) Scale categories 0 Fully oriented (not in categories 1-9) 1 Fully compensated impediment to orientation (not in categories 2-9) Includes: continuous use of aids for seeing (e.g., spectacles), listening (e.g., amplification), or extension of touching (e.g., a cane), or continuous use of medication to control behaviour or communication disabilities, with resultant restoration of full orientation Excludes: aids or medication used imtermittently (other handicaps, 7) 2 Intermittent disturbance of orientation (not in categories 3-9) Includes: episodic experiences that interfere with full orientation, such as vertigo, those associated with Menieres disease, diplopia (as may be encountered with multiple sclerosis), intermittent interruption of consciousness (e.g., epilepsy), and certain impediments of speech form (e.g., stuttering) Excludes: fully corrected or controlled disturbances (category 1) 3 Partially compensated impediment to orientation (not in categories 4-9) Includes: individuals otherwise classifiable to categories 1 or 2 but who experience disadvantage in some aspect of their lives because the impediment to orientation renders them vulnerable in certain circumstances, such as critical dependence on levels of illumination, for some seeing disabilities; critical dependence on levels of background noise and other competing signals, for listening disabilities and some speaking disabilities (e.g., where speech volume is impaired); and disadvantage attributed to the need for aids or medication (e.g., by virtue of resultant ineligibility to take up certain employments or to drive an automobile - code such instances additionally as curtailed occupation, category 2, of occupation handicap, 4) 4 Moderate impediment to orientation (not in categories 5-9) Includes: where aids or medication fail to produce satisfactory compensation of impediment, so that apreciable difficultu in orientation is experienceed; or where assistance is required from other people, such as for individuals who are partially sighted, have appreciable hearing loss, have insensitivity to touch, are confused, or have other appreciable impediments 5 Severe impediments to orientation (not in categories 6-9) Includes: severe behaviour or communication disabilities where substitution is necessary, such as more severe degrees of the states encountered in category 4 (i.e., the individual cannot perform the activity, even with aid, and so is dependent on substitution by other planes of orientation in order to compensate, such as the reliance of the blind on listening or touching), or moderate disorientation 6 Orientation deprivation (not in categories 7-9)] Includes: where there is moderate or severe impediment in more than one plane of orientation, these planes being seeing, listening, touching, and speaking Excludes: disabilities of speech form associated with deafness (assign such individuals solely according to listening status unless speaking disturbance is so severe as to interfere with communication; assign individuals in the latter situation to category 6) 7 Disorientation (not in categories 8 or 9) Includes: inability of the individual to orient himself to his surroundings to the extent that he requiries institutional care 8 Unconscious 9 Unspecified Rules for assignment i. occasional difficulty or depedence on help should not preclude assignment to a less disadvantaged category (i.e., that with a lower number); ii aids or adaptations that it is intended to provide or prescribe should not be taken into account - this would then permit use of the classification as a rough measure of what had been accomplished when such an aid or adaptation was provided; iii if doubt is experienced about the category to which an individual should be assigned, rate him to the less favourable category (i.e. that with a higher number); iv morale is obviously an important factor, but an individual should be assigned according to his actual degree of dependence, rather than to what the assessor thinks he may be capable of 2 PSYSICAL INDEPENCE HANDICAP Definition Psysical indepence is the individual's ability to sustain a customarily effective independent existence Characteristics Scale construct:indenpence in regard to aids and the assistance of others Includes: self-care and other activities of daily living Excludes: aids or assistance in orientation (orientation handicap,1) Scale categories 0 Fully independent (not in categories 1-9) Includes: indenpendence in self-care and without dependence on aids, appliances, environmental modification, or the assistance of other people, or dependent only on minor aids not essential to independence (the latter should be identified as other handicaps, 7) 1 Aided independence (not in categories 2-9) Assignment to this category depends on the provision and use of an aid or appliance. Individuals who have been provided with an aid or appliance but do not make use of it, and thus forfeit some of their independence, and individuals living in cultures where suitable aids and appliance are not available, should be assigned to category 3 or 4. Includes: dependence on the use of aids and appliances, such as an artificial or substitute limb, other prostheses, walking aids, or aids to daily living, as well as controlled excretory difficulty Excludes: minor aids and appliances not essential to independence, such as artificial dentures or ring pessaries to control prolaps of the womb, and seeing aids (spectacles) provided that the individual would not otherwise be dependent on assistance of the type described in categories 4-8; individuals whose lives are assisted or improved by minor aids of this type should be assigned to category 0 and should also be identified, as appropriate, under orientation (1) or other handicaps (7) 2 Adapted independence (not in categories 3-9) Assignment to this category presupposes two conditions. First, that the immediate environment customary to the way of life of the individual and the group of which he is a member creates physical ob stacles to independence, e.g., structural or architectural barriers such as ladders or stairs (for the purpose of this category immediate environment shall be interpreted as the dwelling), and secondly, that the potential to create or provide an alternative environment is available in that culture. For example, a lake dweller encounters obstacles in climbing a ladder to his dwelling, and yet the means for an alternative environment do not exist in that culture Includes: dependece on modification or adaptation of the immediate environment, such as individuals who are dependent on a wheelchair, provided that the individual can get in and out of, operate, and otherwise transfer to and from the chair without assistance from another individual; individuals who have been rehoused in order to reduce their physical dependence, because of their previous inability to cope with a dwelling of more than one storey; and individuals who have had structural alterations or special adaptations to their dwellings, such as the provision of a ramp or a lift, or an alteration in the height of working surfaces, etc. Excludes: architectural barriers not related to the individual's dwelling (difficulties in this regard should be assigned to category 3 or 4, as appropriate); individuals who decline an offer of a dwelling with amenities that would reduce their physical dependence, who should be assigned to category 3 or 4 3 Situational dependence (not in categories 4-9) Includes: difficulty in meeting personal needs but without being largely dependent on others, such as may arise because aids and appliances or environental modifications or adaptations are not feasible or not available within the culture in which the individual lives, or, if available, are declined; difficulty in mobility outside the home that is overcome only with the assistance of other people; and moderate impediments to orientation that require assistance from other people 4 Long-interval dependence (not in categories 5-9) Long-interval needs are those that arise once every 24 hours or less frequently Includes: dependence on other individuals for meeting Excludes: culturally determined dependence, such as the customary dependence of an employed male on his spouse (which in this context shall not be regarded as a disadvantage) 5 Short-interval dependence (not in categories 6-9) Short-interval needs are those that arise every few hours byday Includes: dependence on other individuals for meeting short-interval needs, such as those identified under personal hygiene, feeding, and other personal care disabilities; mobility within the home; transferring to chair or commode; emptying chamber pot, commode, or bucket; stripping beds and washing linen soiled by urine or faeces; and need for residential care in order to be looked after 6 Critical-interval dependence (not in categories 7-9) Critical-interval needs are those that arise at short and unpredictable intervals by day and which require the continuous availability of help from other persons Includes: dependence on other individuals for meeting critical-interval needs such as going to the toilet, unfastening and removing clothes, using toilet paper, and cleansing; individuals who are unabler to rise from a bed or chair, walk to the toilet unassisted, use it, and return safely without danger of falling; and individuals with physical frailty or mental instability giving rise to potential hazard; need for institutional care in order to provide supervision such as for behaviour that is socially unacceptable 7 Special-care dependence (not in categories 8 or 9) Special-care needs are those that arise predominantly throughout the day or throughout the night and that give rise to continuous demands for supervison and hel (as opposed to the mere availability of such help, category 6) Includes: individuals who need someone to suply most of their personal needs and to care for them as far as customary every day functions are concerned, or are sufficiently senile, or otherwise mentally impaired, to need a similar order of care, and who as a result require the constant attendance of other people throughout the day; substantial soiling of clothing or bedding by urine ir faeces of frequent occurence other than in response only to physical stress; and individuals who need help with excretory or similar critical functions (such as behaviour) practically every night but who are less dependent by day; need for institutional care in order to provide restraint of behaviour 8 Intensive-care dependence Intensive-care needs are those that arise practically every night as well as throughout the day and which as a result require the constant attendence of other people throughout the 24 hours Includes: individuals who need help with excretory or similar critical functions (such as behaviour) practically every night as well as throughout the day - most individuals in this category need to be fed and dressed, as well as requiring a lot help during the day with washing and excretory functions, or are incontinent 9 Unspecified Rules for assignment i occasional difficulty or dependence on help should not preclude assignment to a less disadvantaged category (i.e., that with a lower number); ii aids or adaptations that it is intended to provide or prescribe should not be taken into account - this would then permit use of the classification as a rough measure of what had been accomplished when such an aid or adaptation was provides; iii if doubt is experienced about the category to which an individual should be assigned, rate hime to the less favourable category (i.e., that with a higher number); iv morale is obviously an important factor, but an individual should be assigned according to his actual degree of dependence, rather than to what the assessor thinks he may be capable of 3 MOBILITY HANDICAP Definition Mobility is the individual's ability to move about effectively in his surroundings Characteristics Scale construct:extent of mobility from a reference point, the individual's bed Includes: the individual's abilities augmented, where appropriate, by prostheses or other physical aids, including a wheelchair (all these should have been identified in categories 1 or 2 of physical independence handicap, 2) Excludes: mobility attainments with the assistance of other individuals (the latter should be identified as long-interval dependence, category 4 of physical independence handicap, 2) Scale categories 0 Fully mobile (not in categories 1-9) 1 Variable restriction of mobility (not in categories 2-9) Includes: a bronchitic with winter impairment of exercise tolerance, or a severe asthmatic with intermittent impairment of exercise tolerance, and impairments and disabilities following a fluctuating course, such as mild rheumatoid arthritis or (osteo)arthrosis 2 Impaired mobility (not in categories 3-9) Includes: restriction such that the ability to get around is not interfered with but getting around may take longer, e.g., because seeing disability makes the individual uncertain in getting around, or because of other uncertainty, or, in an urbanized society, because the individual has difficulty but nevertheless is able to cope with public transport under all circumstances 3 Reduced mobility (not in categories 4-9) Includes: reduction such that the ability to get around is curtailed, e.g., because seeing disability interferes with the ability to get around; or curtailment because of uncertainty, frailty, or debility; or disability on severe exertion due to cardiac or respiratory impairment; or, in an urbanized society, inability to cope with public transport under all circumstances; or interference with following occupation by virtue of difficulty in getting to and from occupation when this is followed away from the individual's dwelling 4 Neighbourhood restriction (not in categories 5-9) Includes: restriction to immediate neighbourhood of dwelling, such as by disability on moderate exertion owing to cardiac or respiratory impairment 5 Dwelling restriction (not in categories 6-9) Includes: confinement to dwelling such as by severe seeing disability or disability on mild exertion owing to cardiac or respiratory impairment 6 Room restriction (not in categories 7-9) Includes: confinement to room, such as by disability at rest owing to cardiac or respiratory impairment 7 Chair restriction (not in categories 8 or 9) Includes: confinement to chair, such as by disability when recumbent owing to cardiac or respiratory impairment, or by dependence on hoists or similar appliances for getting in and out of bed 8 Total restriction of mobility Includes: bedfast or confined to bed 9 Unspecified Rules for assignment i categorize an individual according to his independent abilities, taking account of aids and appliances and modification or adaptation of his immediate environment, bus disregarding his accomplishments with the aid of other persons (thus uncertainty leading to classification to category 3 or 4 may be reduced in the company of other persons; this consequential reduction should nevertheless not be taken into account, but the dependence on other persons should be identified under category 3 or 5, as appropriate, of physical independence handicap, 2); ii occasional reduction or restriction of mobility should not preclude assignment to a less disadvantaged category (i.e., that with a lower number); iii aids or adaptations that it is intended to provide or prescribe should not be taken into account; iv if doubt is experienced about the category to which an individual should be assigned, rate him to the less favourable category (i.e., that with a higher number); v an individual should be categorized according to his actual degree of mobility, rather than to what the assessor thinks he may be capable of Notesa) Problems may be encountered in selecting categories, such as the choice between categories 2 and 3 in areas where a public transport system is not available. In instances like these the individual should be assigned to the less favourable category, in accordance with Rule iv, because it is only by providing a special vehicle that category 2 mobility can be accomplished. This convention should be applied even if the individual's occupation or way of life does not call for overall mobility; it is only the effort that would be deployed in trying to modify his category that would be influenced by these facts b) The depencence of disadvantage on cultural norms is well illustrated by a problem in urbanized societies. The behaviour of bus drivers in one area might preclude use of public transport by disabled persons in that area, whereas more sympathetic behaviour by bus drivers in another area might allow someone with the same disability to use public transport. This leads to a conflict between reproducibility (a category meaning the same thing in all places) and the ability of the classification to reflect an individual's needs. The handicap classification is intended predominantly for the latter purpose, and only secondarily for transcultural comparisons 4 OCCUPATION HANDICAP Definition Occupation is the individual's ability to occupy his time in the manner customary to his sex, age, and culture Characteristics Scale construct:the ability to sustain appropriate occupation of time for the working day Includes: play or recreation, employment, and the elderly pursuing occupations customary to their age group, which in many cultures includes their assuming a more domestic role and fulfilling this after the upper age for normal employment Excludes: restriction or loss of the ability to follow an occupation that is not due to an individual's impairment, such as might arise because of changes in employment possibilities Scale categories 0 Customarily occupied (not in categories 1-9) Includes: where educational opportunities exist, the ability of a child to attend a normal school; independent of educational opportunities, the ability of a child to participate in the activities customary for his age grouo; the ability to run a household in the accepted manner; and the ability to discharge the responsibilities customarily expected of a parent bringingup young children 1 Intermittently unoccupied (not in categories 2-9) Includes: intermittend inability to follow customary occupation or leisure-time activities, e.g., because of interference by conditions such as epilepsy, migraine, or allergy, or because of occasional falls (with or without injury) in the elderly 2 Curtailed occupation (not in categories 3-9) Includes: reduces ability to follow customary occupation, such as in children able to attend normal scholl but who suffer from disabilities that restrict participation in all the activities of the school; individuals who are unable to participate in all the activities associated with their customary occupation or recreation (e.g., "light work"); and individuals experiencing difficulty in running a household or in discharging the responsibilies customarily expected of a parent bringing up young childten, although they are able to manage these activities 3 Adjusted occupation (not in categories 4-9) Includes: inability to follow customary occupation, but the individual is able to follow modified or alternative full-time occupation (including modifications to customary occupation because of disability, e.g., alterations at work place or provision of special assistance or aids); alteration of recreations and other leisure activities (e.g., hobbies); need for special help at ordinary school (e.g., because the individual is partially sighted or partially deaf, or because he needs toilet assistance or help with feeding); restriction of career choice because of impairment or disability; necessity to change employment or occupation (including premature retirement - after attaining the customary age of retirement the individual should be reassigned to one of the categories 0-2, as appropriate); and having to make special arrangements to allow continued running of household or looking after children (e.g., by compensatory role adaptation by spouse, by some extra support from social network, by special pyrchase of labour-saving devices, or by employment of some paid assistance with general duties such as cleaning) 4 Reduced occupation (not in categories 5-9) Includes: limitations on the amount of time the individual is able to devote to his occupation, such as curtailment of recreation and other leisure activities (e.g., because of conditions such as rheumatic heart disease); able to attend school only part-time, or other reduction in amount of regular educational instruction; able to sustain only part-time employment or occupation because of impairment or disability; impaired concentration in the elderly (domestic and parental responsibilities can usually be discharged on a more fluid time scale than other occupations, and this may allow compensation for limitations in the time that can be devoted to them - interference with these activities therefore does not feature in this category) 5 Restricted occupation (not in categories 6-9) Includes: limitations on the type of occupation the individual follows, such as severe restriction of participation in activities customary for the individual's age group; disabilities that preclude a child from attending a normal school (e.g., the need to attend a special establishment for disabled children, where such exists); moderate mental retardation; able to gain employment only under special circumstances (e.g., in a sheltered workshop); has to delegate most of responsibilities for running a household or bringing up children (e.g., by appreciable support from social network or by employment of assistance); and frequent falls in the elderly 6 Confined occupation (not in categories 7-9) Includes: limitations on both the type of occupation the individual follows and the amount of time he devotes to it, such as inability to participate in activities customary for the individual's age group; disabilities that require a child to be resident in an institution for purposes of education (where such exists), or to be educated at home (where this is not customary); severe mental retardation; able to carry out only very limited domestic activities (e.g., those connected with running a household or bringing up children); an impairment of concentration leading to difficulty in sustaining an occupation Excludes: residence in an institution by virtue of behavioural maladjustment or the need for restraint (categories 5-8 of physical indepence handicap, 2) 7 No occupation (not in categories 8 or 9) Includes: inability to follow occupation because of impairment or disability, such as severe limitation in ability to benefit from educational endeavours (e.g., profound mental retardation); unable to sustain any form of employment; unable to run a household or bring up children; and severe impairment of concentration leading to inability to sustain an occupation 8 Unoccupiable Includes: inability to occupy self in a meaningful manner 9 Unspecified Rules for assignment i occasional less favourable experience should not preclude assignment to a less disadvantaged category (i.e., that with a lower number); ii if doubt is experienced about the category to which an individual should be assigned, rate him to the less favourable category ( i.e., that with as higher number) iii an individual should be categorized according to his actual occupation status, rather than to what the assessor thinks he may be capable of 5 SOCIAL INTEGRATION HANDICAP Definition Social integration is the individual's ability to participate in and maintain customary social relationships Characteristics Scale construct:individual's level of contact with a widening circle, from the reference point of self Scale categories 0 Socially integrated (not in categories 1-9) Includes: full participation in all customary social relationships 1 Inhibited participation (not in categories 2-9) Includes: individuals in whom the presence of an impairment or disability gives rise to nonspecific disadvantage that may inhibit but not prevent participation in the full range of customary social activities (includes embarrassment, shyness, and other defects of self-image due to disfigurement or other impairments and disabilities); and certain mild personality impairments or behaviour disabilities 2 Restricted participation (not in categories 3-9) Includes: individuals who do not participate in the full range of customary social activities, such as those with impairments or disabilities that interfere with opportunities for marriage; curtailment of sexual activity because of impairment or disability; and certain personality impairments or behaviour disabilities Excludes: impairments and disabilities that do not interfere with social relationships, such as prolapse of the womb controlled by a ring pessary that does not give rise to appreciable curtailment of sexual activity 3 Dimisnished participation (not in categories 4-9) Includes: individuals who are unable to relate to casual acquaintances, so that social relationships are confined to primary and secondary contacts such as family, friends, neighbours, and colleagues: and individuals who are retarded in physical, or social development but in whom development improvement is continuing 4 Impoverished relationships (not in categories 5-9) Includes: individuals who have difficulty in sustaining relations with secondary contacts such as friends, neighbours, and colleagues: and individuals who are retarded in physical, psychological, or social development and in whom there is no evidence that development improvement is occuring 5 Reduced relationships (not in categories 6-9) Includes: individuals who are able to relate only to significant others, such as parent or spouse; general withdrawal or disengagement by an elderly person; and moderately severe behaviour disorders 6 Disturbed relationships (not in categories 7-9) Includes: individuals who have difficulty in relating to significant others; and severe behaviour disorders 7 Alienated (not in categories 8 or 9) Includes: individuals who are unable to relate to other people; impairment or disability preventing the development of normal social relationships; and individuals in whom behavioural maladjustment prevents coexistence and integration in the customary home and family; and elderly persons following the loss of family and friends and with reduced capacity to enter into new relationships 8 Socially isolated Includes: individuals whose capacity for social relationships is indeterminable because if their isolated situation, such as those admitted to institutional care because of lack of social support in the home or community (e.g., children in an orphanage or otherwise abandoned, and residents in an old people's home) 9 Unspecified Rules for assignment i occasional reduction in social integration should not preclude assignment to a less disadvantaged category (i.e., that with a lower number) ii if doubt is experienced about the category to which the individual should be assigned, rate him to the less favourable category (i.e., a higher number) iii an individual should be categorized according to his actual degree of social integration, rather than to what the assessor thinks he may be capable of 6 ECONOMIC SELF-SUFFICIENCY HANDICAP Definition Economic self-sufficiency is the individual's ability to sustain customary socioecomic activity and independence Characteristics Scale construct:fundamentally related to economic self-sufficiency, from the reference point of zero economic resources, but, unlike with the other handicap scales, the construct has been extended so as to include possession or command of an unusual abundance of resources; the justification for this extension is the potential that abundant resources provide for relieving or ameliorating disadvantage in other dimensions Includes: the individual's self-sufficiency in regard to obligations to sustain others, such as members of the family; economic self-sufficiency sustained by virtue of any compensation or standard disability, invalidity, or retirement pension that the individual receives or to which he may be entitled, but excluding any supplementary allowances or benefits to which the individual's poverty may entitle him; economic self-sufficiency by virtue of income (earned or otherwise) or material possessions such as natural resources, livestock, or crops; and poverty resulting from or exacerbated by impairment or disability Excludes: economic deprivation due to factors other than impairment or disability Scale categories 0 Wealthy (not in catogories 1-9) Includes: individuals in possession of resources considerably in excess of those available to the majority of the population of which the individual forms a part 1 Comfortably off (not in categories 2-9) Includes: individuals in possession of resources sufficiently in excess of their requirements for sustaining their accustomed style of living that the additional resource expenditure incurred in attempts to ameliorate handicap and disability can be accommodated without appreciable sacrifice 2 Fully self-sufficient (not in categories 3-9) Includes: economic self-sufficiency without support from or dependence on financial or material aid from other individuals or the community (including the state, but compensation or standard disability, invalidity, or retirement pensions shall be regarded as income entitlement rather than aid in this context) and such that the burden of attempts to ameliorate handicap and disability can be accommodated without appreciable deprivation 3 Adjusted self-sufficiency (not in categories 4-9) Includes: individuals who, although economically self-sufficient, have suffered a reduction in economic wellbeing when compared with status before impairment or disability developed or that expected if the individual were not impaired or disabled, such as those who have experienced lower economic reward as a consequence of having had to change their occupation, or those who have incurred extra expenses because of their disability and to such a degree as to lead to appreciable deprivation 4 Precariously self-sufficient (not in categories (5-9) Includes: individuals who, following a reduction in economic well-being, remain self-sufficient only by virtue of appreciable support from or dependence on financial or material aid from other individuals or the community (including the state, such as an allowance or benefit supplementary to the customary provisions for disability or retirement pensions to which they are entitled), and who in the process may jeopardize their family's self-sufficiency or cause other family members to be deprived 5 Economically deprived (not in categories 6-9) Includes: individuals who economically are only partially self-sufficient because their income or possessions or financial or material aid from other individuals or the community meets only part of their needs, and who in the process may reduce their family to a subsistence level of existence 6 Impoverished (not in categories 7-9) Includes: Individuals who economically are not self-sufficient by virtue of being totally dependent for financial or material aid on the goodwill of other individuals or the community, because of ineligibility for or non-availability of disablement or retirement pensions or supplementary benefits, and who in the process may reduce their family to existence below subsistence level; or individuals residing in institutions for the indigent 7 Destitute (not in categories 8 or 9) Includes: individuals who economically are not self-sufficient and to whom support from others is not available, so that their disability status is further aggravated 8 Economically inactive Includes: individuals without family support who are unable to undertake economic activity by virtue of limited competence (such as that resulting from mental retardation) or tender years (such as a child that has not passed the customary age at which he normally becomes independent of the family for complete economic or material support) Excludes: those with family support and those often regarded as being economically inactive by virtue of their "dependent" status, such as a spouse or other cohabitant (assign to one of the categories 0-7, as appropriate, according to economic self-sufficiency of family or head of family) 9 Unspecified Rules for assignment i categorize an individual according to the economic self-sufficiency of his family, so that dependent status is not taken into account; ii occasional reduction in economic self-sufficiency should not preclude assignment to a less disadvantaged category (i.e., that with a lower number); iii pensions or supplementary benefits that it is intended to provide or prescribe should not be taken into account; iv if doubt is experienced about the category to which an individual should be assigned, rate him to the less favourable category (i.e., that with a higher number) 7 OTHER HANDICAPS Definition Other circumstances that may give rise to disadvantage Characteristics Excludes: disadvantages identified elsewhere in the handicap classification Categories 0 Not subject to disadvantage Includes: impairments or disabilities not giving rise to appreciable disadvantage, such as some chronic diseases that do not appreciably interfer with everyday life 1 Minor disadvantage Includes: the need to use minor aids that do not appreciably interfere with everyday life, such as dentures, reading glasses, or a ring pessary to control uterine prolapse; intermittent use of aids or medication to control disability 2 Nonspecific disadvantage Includes: impairments or disabilities that give rise to general or nonspecific disadvantage, such as coeliac disease or the state of being delicate 3 Specific disadvantage Includes: reduction of the quality of life as a result of specific disadvantages not elsewhere identified in the handicap classification 9 Unspecified disadvantage GUIDANCE ON ASSESSMENT The structure of the H code is radically different from that of all other ICD-related classifications. Thus the codes are not hierarchical in the customarily accepted sense, and abbreviation is not really acceptable. What is called for is that every individual should be categorized according to each dimension of the H code, the latter relating to various circumstances in which disabled people are likely to find themselves. As a result of these considerations, the difficulties in applying the H code relate not to assignment, but to assessment of the individual's status in regard to each dimension of handicap. However, the basis for such assessments has been indicated under each of the dimensions. For retrospective application to existing records, the major difficulty is likely to be incomplete information, Nevertheless, as noted in the Introduction, the orientation of whatever information may be available to the dimensions of the H code can still be very instructive. From now on, it is hoped that information will be gathered so as to permit assessment in each dimension of the code. The main aspect likely to command attention in the future relates to the development of assessment schedules. These are likely to be based on a questionnaire approach, so that problems with language will loom large, and so it will not be easy to developn instruments capable of transcultural application. 1 1. Badley, E.M., Lee J & Wood, P.H.N. (1979) Rheumatology and Rehabilitation, 18, 105-109