U.S. Department of Health and Human Services Substance Abuse and Mental Health Services Administration Center for Mental Health Services _________________________________________________________________ PROTECTION AND ADVOCACY PROGRAM FOR INDIVIDUALS WITH MENTAL ILLNESS _________________________________________________________________ THE PEOPLE WE SERVE An elderly female State hospital resident had a long history of mental illness. She also had a history of assaultive and aggressive behavior. After multiple psychiatric hospitalizations, she contacted her State Protection and Advocacy (P&A) agency. She complained about the care she was receiving and requested assistance in returning home. Prior to her hospitalization, she lived in a rural community as a ward of the public guardian. P&A contacted the guardian and explained the woman's needs and wishes. A case manager was assigned, and a discharge plan was formulated with the participation of the woman, her guardian, and appropriate community services providers. Although she was granted a trial visit to a transitional community residential facility in her home community, the woman was denied placement because of the number of stairs she would have to climb. P&A intervened again and insisted on reasonable accommodations in her community. As a result, the woman was given a room on the ground floor. * Congress has found that people with mental illnesses are vulnerable to abuse and neglect, including lack of treatment, appropriate nutrition, clothing, health care, and discharge planning. Congress also has found that State systems which monitor compliance with an individual's rights vary and often are inadequate. * Congress established the P&A Program to protect the rights of people with mental illnesses in, or recently discharged from, residential facilities and to investigate alleged incidents of abuse or neglect. P&A programs do not provide mental health care; they are required to be independent of any organization providing care, treatment, or services in the State. * P&A programs are authorized to provide services to individuals who have a severe mental illness or emotional impairment, as determined by a mental health professional, and who are inpatients or residents in public or private residential facilities that provide care or treatment for people with mental illnesses. * People who have been discharged from such facilities in the past 90 days are eligible for P&A services. Residential facilities that discharge people without ensuring appropriate housing, followup treatment, or support services may be subject to P&A actions. MANDATE * Public Law 99-319, the Protection and Advocacy for Individuals with Mental Illness (PAIMI) Act (42 U.S.C. 10801 et seq.), authorizes formula grants to be awarded annually to P&A systems designated by the Governor of each State. FUNDING FY 1995 $ 21,957,000 STATUS * P&As engage in administrative, legal (individual and class action), systemic, and legislative activities. Each P&A system sets its own policies and priorities for the services it provides. These priorities are subject to annual public review. * There are 56 P&A systems, one in each of the 50 States and the District of Columbia, the Virgin Islands, Puerto Rico, Guam, American Samoa, and the Commonwealth of the Northern Mariana Islands. A total of 43 are private, non-profit organizations, and the rest are State government agencies or special departments. * During FY 1995, PAIMI programs served almost 17,000 clients to address nearly 25,000 complaints of abuse, neglect, and rights violations. Seventy percent of the clients served by the PAIMI program were between age 21 and 59 years old; 17 percent were younger than age 21; and 7 percent were older than 60 years. Fifty-eight percent of the clients were male, while 40 percent were female. * In addition to their direct involvement in resolving complaints for individuals, PAIMI programs represented nearly 122,000 persons in class action suits; acted on behalf of 332 groups (e.g., hospital wards and consumer organizations) representing nearly 526,000 persons; responded to 44,219 requests for information; and conducted education and training for 320,550 mental health administrators, legislators, P&A staff, clients of the mental health system, their family members, and other community organizations. * PAIMI programs work cooperatively with public and private mental health providers and administrators; legal, judicial, and law enforcement personnel; State legislative bodies; mental health consumer/ex-patient, family, and other mental health advocacy organizations; and State housing, health care, transportation, education, welfare, and other social services providers. * How To Find Your State P&A System: The P&A System telephone number should be available from the information operator. If you have difficulty locating the telephone number, call the CMHS PAIMI Program at (301) 443-3667 or the National Association of Protection and Advocacy Systems at (202) 408-9514. 9/9