OPERATION PEOPLE FIRST: TOWARD A NATIONAL DISABILITY POLICY ___________________________________________________________________ A REPORT OF THE PRESIDENT'S COMMITTEE ON EMPLOYMENT OF PEOPLE WITH DISABILITIES 1993 TELECONFERENCE PROJECT All public documents produced by the President's Committee on Employment of People with Disabilities are available in alternative formats. March 1994 TABLE OF CONTENTS I. THE EMPOWERMENT PROCESS . . . . . 1 Purpose and Goals . . . . . . . 2 Methodology of Project . . . . . . 4 Network Participants . . . . . . 4 II. PRIMARY RECOMMENDATION . . . . . 7 III. EXECUTIVE SUMMARY . . . . . . . 8 IV. PROJECT FINDINGS . . . . . . . 10 Health Care . . . . . . . . 10 Personal Assistance Services . . . . . 11 ADA Implementation and Enforcement . . . . 12 Removal of Barriers to Work . . . . . 16 Mental Health Issues . . . . . . 17 Advocacy, Coalition Building, and Empowerment . . 18 Education and the Schools . . . . . . 19 Attitudinal Change . . . . . . . 21 Minority Issues . . . . . . . 22 V. CONCLUSION AND RECOMMENDATIONS . . . . 23 Disability Action Plan . . . . . . 23 ADA Implementation . . . . . . 24 Government . . . . . . . . 25 Business . . . . . . . . 25 Media . . . . . . . . 25 Disability Community . . . . . . 26 VI. APPENDICES . . . . . . . . 27 Appendix A: Statistical Summary . . . . . 27 Appendix B: Comments on the Teleconference Format and Methodology 28 Appendix C: The People of Operation People First . . . 29 OPERATION PEOPLE FIRST: TOWARD A NATIONAL DISABILITY POLICY A REPORT OF THE PRESIDENT'S COMMITTEE ON EMPLOYMENT OF PEOPLE WITH DISABILITIES' 1993 TELECONFERENCE PROJECT "This election is about putting power back in your hands and putting government back on your side. It's about putting people first." - Bill Clinton, Democratic National Convention, 1992. "We believe that all persons with disabilities must be fully integrated into mainstream society, so they can live fulfilling and rewarding lives. During our years in public office, we have compiled strong records of support for public and private initiatives to enhance the independence and productivity of persons with disabilities. We will bring that commitment to Americans with disabilities to the White House. And we will actively involve people with disabilities in developing a national policy that promotes equality and opportunity for all Americans. People with disabilities are among our nation's greatest untapped resources. We will make sure they have every opportunity to help all of us rebuild America." - Clinton/Gore Campaign Position Paper on People with Disabilities 1992. I. THE EMPOWERMENT PROCESS According to the U.S. Census Bureau, of the nation's population of 48.9 million citizens with disabilities, an estimated 30.2 percent (14.8 million) are of working age and have a severe disability, one with a severe limitation in a functional activity or in a socially defined role or task. Of these 14.8 million people with severe disabilities over 76 percent (11.3 million) are unemployed. We believe this tremendous loss of human potential in the workplace is caused by the barriers and findings identified in this report. Over the years members of the disability community have joined other citizens to protest their exclusion from the decision-making processes of a paternalistic and increasingly bureaucratic government. President Clinton has pledged to bring the American people, including people with disabilities, into the decision-making and action processes of government. This is not simply a good thing to do; it is the only way that human society can make the transition from millennia of authoritarian paternalism and labor intensive industry to an era of science and free enterprise democracy consistently utilized for the enhancement of each individual life. The magnificent life-quality potential of an age of information and technology, of increasingly complex interdependency, can only be achieved in a society that empowers each of its members to be a decision maker and a producer -- a society that puts individual people first. President Clinton has significantly expanded pioneer policies of inclusion established in the Carter, Reagan and Bush administrations. He has appointed disability rights leaders to significant positions. He and his cabinet members have met personally with disability community leaders to discuss policy. Representatives of major disability constituencies have been involved in the development of national policy such as health care reform and the implementation of the Americans with Disabilities Act. Some Governors and Mayors have provided similar leadership for inclusion. However, the vast majority of Americans with disabilities remain outside of the decision-making process. This message has come to the President's Committee on Employment of People with Disabilities from representatives of Governors, Mayors, state and local agencies, service providers, parents, and especially from disability-rights organizations and individuals with disabilities. People labeled mentally retarded, people with psychiatric disabilities, people with multiple disabilities and very severe disabilities of all types have had problems even finding forums in which to voice their views. After many years of well-intended but not entirely effective efforts to bridge the gap between the grass roots and government through existing mechanisms, the President's Committee undertook Operation People First: the development of an ongoing communications network that would enhance the power of state and national representatives of major disability community constituencies to engage in meaningful dialogue and cooperative action with the Presidency and the federal administration, with the Congress and with each other. The final goal of these efforts, of course, is to systematically empower each person to take conscious, effective responsibility for society. Until that happens, the human dream -- the potential of science and democracy fulfilled -- cannot be achieved. Following is a report of phase one of Operation People First. In June 1992, after completing face-to-face meetings with disability community leaders in each of the 50 states, Chairman Justin Dart, Executive Director Rick Douglas and Executive Assistant John Lancaster launched Operation People First. Lancaster was designated to head the project team, assisted by Dart, Douglas, States Relations Executive, Maggie Roffee and Administrative Assistant to the Chair, Lori Pressley. In addition, a team of four special project associates with experience in outreach, communications, and political campaign operations were recruited in February 1993 to assist with the project. Purpose and Goals Chairman Justin Dart eloquently outlined the purpose of Operation People First in his introductory remarks to each of the teleconference calls with disability community leaders in the 50 states and territories. "Traditional liberalism and conservatism have reached the limits of their potential. Too many Americans are left out by systems that put political dogma ahead of people. Too many Americans are robbed of responsibilit y by the illusion of government and free market as magical sources of solutions.... The task of the nineties is to put people first, to put people before process and style.... The task of the nineties is empowerment.... We of the disability community cannot afford to stand apart ... to focus on disability issues only ... to wait for government to act.... We of the disability community must join with our fellow Americans to launch a revolution of empowerment.... We can, as we did with ADA, insist on firm commitments to a blueprint for definitive, comprehensive change...." The initial goals of Operation People First were: * to identify 20-40 authentic representatives of the major disability community agencies and constituencies in every state -- a group small enough to engage in meaningful personal dialogue with each other and with federal leaders, but large enough to represent most of the major disability constituencies; * to hold at least one teleconference in every state to discuss the network process and issues of concern to the disability community at this time; and * to create a structure for national and intrastate leadership forums for the development of national disability policy recommendations. The long-range goal of Operation People First is to create a communications network through which all who impact employment of people with disabilities can be represented in an economical, timely and democratic process of information sharing and decision making. This will require participation by the disability community, the White House, relevant federal agencies, the Congress, state and local government, business, labor, service providers, educators, media representatives and others. Because the President's Committee lacks the resources to accomplish the entire project at one time, and because empowerment must by its very nature start with those who would be empowered, the first phase of Operation People First included only representatives of the disability community. It represents a modest but significant movement away from paternalistic authority, and toward government that empowers. In addition, it has served as a forum for immediate, meaningful dialogue about historic policy decisions of the day such as the budget and health care reform. Methodology of Project 1. The project team conducted a series of 60 telephone conference calls, each lasting between 90 and 120 minutes. During the period March-September, 1993, telephone meetings were held in every state, the District of Columbia, Puerto Rico, the Virgin Islands, Guam and the Pacific territories; two teleconferences were conducted in some of the larger states: New York, California, Texas, Florida, and Pennsylvania. Many persons not able to participate in the teleconferences were talked to separately. More than 1,200 disability constituency leaders participated in the process. The teleconference agenda was designed to ensure people first participation. After brief introductions by Justin Dart and staff, each participant spoke for 2-3 minutes on issues of their choice. This was followed by free discussion of the issues. Finally, participants were asked to discuss ADA implementation in their states, cooperative action on the part of the disability community, and how the Presidency could better serve them. Participants were not required to speak officially for their groups. This enabled them to communicate more frankly and to engage more freely in creative interaction. 2. On November 22, 1993 an expanded staff team held a national two hour teleconference on President Clinton's health care plan. Several thousand leaders of the disability community participated at 131 sites covering all 50 states. Questions were directed to a distinguished panel of experts gathered at studios of Atlantic Video in Washington, DC. Executive Director Rick Douglas acted as the moderator, and Chairman Justin Dart the keynoter. The panel featured former Ohio Governor Richard Celeste, Director of the President's Health Care Campaign, Sue Daniels of the Department of Health and Human Services, Gina McDonald of the National Council of Independent Living and Janet O'Keeffe, Marty Ford and Tony Young of the Consortium of Citizens with Disabilities. There was very substantial dialogue on the major health care concerns of the disability community. America's Disability Channel video-taped the meeting at the central Washington site; it was aired later. The Network Participants Participants for the Operation People First network were identified and contacted by the project team with the assistance of national constituency groups, representatives of state Governor's Committees and disability community leaders. In all cases, a careful effort was made to identify and include persons who were democratically selected representatives of the major disability community constituencies, or who were recommended by their colleagues in their communities to be representatives at large. When designated representatives were unable to participate due to scheduling conflicts, they were encouraged to chose a proxy to participate in their place. While the project team attempted to ensure representation of the major constituencies in each state, this was not possible in every instance due to technical and logistical problems. However, more than 1,200 leaders of every major disability constituency in every state participated in Operation People First. Most participants were the democratically selected representatives of thousands of other people. Each person spoke. Unlike opinion polls that limit responses to one version of one issue, all participants expressed their opinions about issues of their choosing. All participants had the opportunity to advise and question their government on a wide range of policies. All had the benefit of immediate feedback from their state level colleagues, as well as national officials. Many leaders who were not able to participate in the scheduled call were interviewed separately by staff members of the project. An unprecedented sampling of informed opinion occurred. An unprecedented experiment in empowerment was begun. Wherever possible, at least one representative from each of the following numbered groupings of major disability constituencies, agencies and organizations was included in every teleconference. 1. Governor's Committees on Disability (or equivalent entity) 2. AIDS community - AIDS Coalition, ACT-UP, other 3. American Council of the Blind affiliate, or equivalent representative of the community of persons with visual impairments 4. ADA state coordinating entity, Disability Rights Education and Defense Fund (DREDF) trainer, regional Disability and Business Technology Access Centers (DBTAC) and other entities related to ADA implementation. 5. AFL-CIO 6. American Disabled for Attendant Programs Today (ADAPT) 7. Consortium for Citizens with Disabilities (CCD) -- State liaison 8. Developmental Disabilities Planning Council 9. The Arc (formerly Association for Retarded Citizens), TASH, Parent Network, United Cerebral Palsy affiliates 10. Brain Injury Survivors, National Head Injury Foundation 11. Epilepsy, learning disabilities and other "hidden" disabilities 12. Independent Living 13. National Alliance for the Mentally Ill, Mental Health Association affiliates 14. National Association of the Deaf affiliate, or equivalent representative of persons who are deaf 15. National Association of Psychiatric Survivors, National Mental Health Consumers Association, National Mental Health Consumer Self-Help Clearing House (people with psychiatric disabilities advocating for themselves). 16. Paralyzed Veterans of America, Disabled American Veterans affiliates, other veterans groups. 17. People First, Self-Advocates, Speaking for Ourselves (people labeled mentally retarded advocating for themselves) 18. Protection and Advocacy entities 19. State Coalitions for People with Disabilities 20. State Vocational Rehabilitation Agency and other rehabilitation agencies for persons with blindness and deafness, where those exist 21. Representatives at large -- individuals whose historic contributions have qualified them for participation in meaningful policy dialogue Representatives from many other groups were included in states where such groups were recommended as being particularly active in disability community affairs. State representatives of the National Federation of the Blind participated in the early phase of the project. However, the leadership of the organization requested that President's Committee solicit input exclusively from their national office. This request was honored. There is no illusion that this list includes all constituencies of the vast, diverse disability community, or that impact disability policy. It does reflect a sincere effort to include as many of the real players in the disability movement as could reasonably speak on one state teleconference , and that could reasonably be in ongoing personal contact with President's Committee staff at this time. Staff will continue to update and expand the list of people and organizations active in the ongoing disability community network. II. PRIMARY RECOMMENDATION As a result of initiating Operation People First and conferring with the network of disability-community leaders identified, we have reached an overriding conclusion and recommendation beyond the more specific findings and recommendations enumerated below. The nation lacks a coordinated and comprehensive policy that is consistent with and supportive of the purposes of the Americans with Disabilities Act (ADA) so eloquently stated by Congress in Section 2. Findings and Purposes of the Act. The United States lacks coordinated, comprehensive programs and laws that empower people with disabilities in the political, economic and social mainstream of our culture. Thus, we recommend the development of a coordinated, comprehensive national disability policy that is driven by and consistent with the ADA. This policy should be developed over the next several years, complete with legislative language, regulatory and programmatic change, and budget recommendations. Every government program, specific to individuals with disabilities and generic, should be considered -- from employment and training to income supports, rehabilitation, education, housing, transportation, health care, personal supports, recreation, etc. It should then be presented to the President and the Congress. This policy planning process should be undertaken with the complete cooperation of all federal government agencies, including financial and personnel resources as necessary, to complete the task in a timely manner. The President's Committee on Employment of People with Disabilities advises the President and the federal government on policy and programs to develop maximum employment opportunities for people with disabilities, and provides the nation with public education and cooperation among organizations and agencies to achieve this end. Consistent with this role the President's Committee is prepared to work with the National Council on Disability and other government agencies in carrying out the primary recommendation of this report. III. EXECUTIVE SUMMARY The following 11 points represent the major findings of Operation People First. These points were repeatedly stressed by participants as the crucial building blocks for progress by people with disabilities. These issues are the principal remaining barriers to employment for people with disabilities. For racial, ethnic, and Native American minorities with disabilities, these issues are even more problematic. Special initiatives need to be developed to ensure that minority groups, including African-Americans, Asian- Americans, Hispanics, and Native Americans, receive equal access to information, treatment and services for people with disabilities. Among them, three stood out as top priority. Nearly unanimous support was expressed for (1) health care reform, (2) ADA enforcement, and (3) empowerment. 1. Health Care. Reform of the nation's health care system was cited as a major concern by almost all 1,200 teleconference participants. Fair, effective reform of the health care system is clearly the number one priority of the disability community. For real empowerment to occur, a health care system must be established guaranteeing universal coverage, a comprehensive package of services to include long-term care, and affordable delivery of services in a manner that meets the needs of consumers. 2. ADA Enforcement and Implementation. The legal framework to assure full equality and equal opportunity for people with disabilities has been created with ADA's passage. A vigorous implementation and enforcement program must be pursued to ensure that the goals of ADA are met. Such a program should include broad educational measures for employers, government officials, media, and people with disabilities. It should also include effective enforcement tools and real sanctions for non-compliance. 3. Advocacy and Empowerment. The ADA is a means to an end, not an end in itself. To take advantage of the opportunities for change presented by the law, people with disabilities must become educated about their rights, must assume the responsibility of self-advocacy, and must seek ways to cooperate in order to make their presence felt at all levels of decision making. 4. Personal Assistance Services. The establishment of affordable, accessible and consumer- controlled personal assistance services for people with disabilities ranked among the groups' highest priorities. Access to such services represent to many the basic precondition of independence, equality and dignity. 5. Parity of Coverage for Mental Health. The stigma attached to mental, cognitive and psychiatric disabilities needs to be overcome. A critical first step towards that goal would be to ensure that parity of health care coverage for people with mental-health disabilities is included as a component of any health care reform package. 6. Removal of Work Disincentives. Rules and regulations built into Social Security disability programs, Medicaid, Medicare, and other welfare programs often make work and independence difficult and often impossible for people with disabilities. The entire spectrum of programs for people with disabilities must be reviewed and such disincentives abolished. 7. Inclusive Education. The process of full and meaningful inclusion in the schools for all young people with disabilities is the starting point for real social change and integration in all walks of life. This effort must become a national priority. However, the transition to equal, integrated education must be accompanied by a thoughtful consideration of the special needs and requirements of all people with disabilities, and should not serve as an excuse to withhold necessary services for children who require them. 8. Effective Transition Programs. In order not to lose a vast number of potentially productive, contributing members of society to the trap of post-graduate dependence and isolation, effective transition programs, work-study programs, and vocational training must be made available in schools and after graduation to all young persons with disabilities who need them. 9. Housing. There is a tremendous need nationwide for affordable, accessible, integrated and safe housing for people with all sorts of disabilities. People with mental and physical disabilities account for a high percentage of the homeless. 10. Transportation. Employment, education, health care and many other opportunities are often not available without transportation. In urban areas, there is a tremendous need for additional transportation services for people with disabilities who are unable to use mainline systems. The need for effective paratransit services for people with disabilities is critical throughout rural America. 11. Attitudinal Change. A broad, society-wide effort to change attitudes about disability and about people with disabilities needs to be carried out. Responsibility for this effort extends from members of the electronic and print media, educators, health care professionals, textbook writers and program administrators to employers, and, not least significantly, people with disabilities themselves. IV. PROJECT FINDINGS Health Care Health care reform clearly emerged from the teleconference discussions as the number one concern of people in the disability community. The implementation of a national health care plan with universal coverage for all Americans would do more to help people with disabilities enter the job market than perhaps any other measure. Many people with disabilities on Social Security Administration programs would be freed from worry that taking a job might endanger their Medicaid or Medicare benefits. At the same time, employers would be relieved of the burden of assuming higher health insurance payments for new employees with disabilities. As it currently exists, the employment-based health care system exerts subtle disincentives to businesses, particularly small businesses, to hire people with disabilities. Many participants listed health care reform as their single greatest concern, and nearly all participants agreed that health care reform was a prerequisite for advancement on issues like employment, quality of life, and independent living. Without access to adequate, affordable care, people with disabilities will continue to face tremendous obstacles integrating into the mainstream of American life. In general, Operation People First participants were highly supportive of the health care reform plan endorsed by the Consortium For Citizens With Disabilities (CCD). The CCD plan states that any ultimate solution to the health care crisis must be based on the principle of non-discrimination, ensuring that people with disabilities of all ages and their families have the opportunity to fully participate. The CCD would define a successful health care system as one that offers a comprehensive array of health, personal and support services, a system that ensures that these services are appropriate in that they are provided on the basis of each individual's need, personal choice, and circumstances. Additionally, it holds that any truly effective solution must be equitable, ensuring that no group of people bears a disproportionate burden. Finally, the CCD asserts that an effective and accessible health care system must be efficient, ensuring that system resources are utilized to meet health care needs. The CCD strongly supports the right to health care for all persons regardless of income or health status. Operation People First participants stressed that any health care reform package should include the following core set of features: * Comprehensive, universal coverage * Long-term care * Coverage for catastrophic illness * Personal Assistance Services and assistive technology, including durable medical equipment * Ensured access to specialists, drugs, and new medical technologies * No pre-existing condition clauses and * Parity of coverage for treatment of mental and psychiatric illnesses. Members of the disability community disagree over the final form that a reformed health plan should take. However, participants expressed a noticeable preference for a single-payer system. "Managed Competition" as a reform model was greeted skeptically. They also detailed several related health maintenance issues. * Recreation programs and preventative services for people with disabilities are an often overlooked but important component of a well-rounded mental and physical health care program. * Prevention efforts, particularly in such fast-growing disability areas as brain injury and AIDS, need to be intensified. Broad-based education efforts can greatly decrease the rate of disability in these areas. * Participants repeatedly stressed the need to break from the traditional "medical model" of disability health care, which emphasizes the treatment of illness through institutional and technological systems dictated by health-care professionals. In its place they advocate the adoption of a "social model" stressing community-based care, independent living, quality of life, and services which are in the control of people with disabilities themselves. * Service and health care providers need to expand focus to encompass a "continuum of care" focus on individual needs through better case management, and incorporate new techniques for "futures planning" into services and programs. * Training and education of doctors and medical professionals regarding treatment and care of people with disabilities, particularly treatment of people with AIDS or people who are HIV positive, needs to be improved. Personal Assistance Services Personal assistance services are a high-priority concern of the disability community. Approximately 17 percent of teleconference participants cited personal assistance services as the single most significant issue facing people with disabilities. As one said, "Equal rights don't mean much if you can't get out of bed." * Support is strong among participants for the proposal advocated by the disability rights group American Disabled for Attendant Programs Today (ADAPT). The ADAPT proposal advocates shifting 25 percent of federal Medicaid funds that currently are spent on nursing homes to personal assistance and in-home care programs. * Participants stressed that any system of personal assistance services must be community based and consumer driven, providing users of personal assistance services the greatest latitude to choose appropriate and effective programs. ADA Implementation and Enforcement An important outcome of the project involved the collection of impressions on the success and effectiveness of the Americans with Disabilities Act and the identification of areas of difficulty in its implementation and enforcement. The consensus among project participants was that not enough resources are being devoted at either state or federal levels to implement and enforce the ADA. A number of general issues related to ADA implementation and enforcement were identified. * There is an overwhelming need for wider dissemination of information about ADA to businesses, local and state governments, and individuals with disabilities. Practical and specific information must be provided to employers on how to make reasonable accommodations which address the needs of specific disabilities in a variety of work settings. Such information must be made available in bilingual and alternative formats accessible to non-English speaking Americans and people who are blind and those with cognitive and learning disabilities. * Methods need to be developed to identify and sanction responsible and reputable providers of information on ADA compliance. Currently, too much conflicting and inaccurate information is being provided by individuals seeking to make money from well-intentioned but uninformed employers. * Too many employers are not taking forceful, proactive steps to comply with ADA and instead are waiting to see if the law will be enforced. Strong encouragement from the highest levels of government is critical to ensure that everyone understands America is committed to the full, speedy implementation of ADA. Additionally, Americans need to be informed that compliance with the law is not only a duty but will deliver many benefits, including an expanded market of consumers and a more productive and higher quality workforce. * Across the nation, from New York City to southern Oregon, many small employers and places of public accommodations continue to ignore the law. Special initiatives such as expanded tax credits and educational efforts need to be targeted towards this sector. This is of critical importance in many rural states like Iowa and Vermont, where small businesses provide the vast majority of employment opportunities. * Many state and local governments and elected officials have been slow to respond to ADA obligations, essentially the same ones they have ignored since the passage of Section 504 of the Rehabilitation Act of 1973. Many disability leaders are frustrated and exasperated by what they perceive to be foot dragging on compliance with Title II of the ADA. * Local governments, frequently strapped for resources, desire federal assistance earmarked for barrier removal. * Greater efforts need to be made to educate employers on how to accommodate people who have AIDS or are HIV positive and people who have mental, cognitive or psychiatric disabilities. These groups remain among the most discriminated against in America. Often, simple measures such as the adoption of more flexible work schedules to accommodate particular needs are all reasonable-accommodation standards require. Jobs and employment issues are at the heart of the ADA and are critical to all people with disabilities. In recognition of this, Title I of the ADA prohibits discrimination in employment against people with disabilities. Disability advocates made it clear that full equality for people with disabilities will not be possible until they are fully integrated in the workplace as equal partners, co-workers, government officials and independent business persons. Work guarantees income and provides the cornerstone of independence and dignity for all people with disabilities. Employment of people with disabilities, furthermore, represents a dramatic enrichment of society in general, as it supplies a new source of qualified, trained workers, enhances workplace diversity, and removes dependents from the welfare roles and places them onto the tax rolls. Participants identified specific issues related to employment. * Employer, union, and the worker with a disability must engage in discussions to resolve conflicts between ADA and collective bargaining agreements. Occasionally, the union's responsibility to represent all of its members under collective bargaining procedures--on issues like job-sharing or seniority, for example--can infringe on the rights of individuals under the ADA. * States need to review their workers' compensation laws to ensure that they are in harmony with the ADA. * Alternative methods of dispute resolution and mediation need to be developed in order to speed the enforcement and implementation of ADA. * DOJ and EEOC need larger staffs devoted to ADA enforcement and claims investigation. Also needed: (1) screening mechanisms to quicken the response time for DOJ and EEOC to act on legitimate complaints, and (2) a reduction in paperwork required to file a claim under ADA. Title II, Subpart B of the ADA requires that transportation programs and services of local, state and other nonfederal government agencies be accessible to people with disabilities. Despite the mandates included in Title II of the ADA, people with disabilities across the country still are finding transportation a significant obstacle to employment, socialization and the economic marketplace. More than 20 percent of Operation People First participants named transportation as one of the most significant issues facing people with disabilities. * Transportation issues rank particularly high in rural areas like Iowa, Wyoming, and upstate New York, where long distances and thin population concentrations make convenient and accessible public transportation scarce yet correspondingly critical. Though ADA mandates existing systems to be accessible, the real problem, particularly in rural areas, is that often no transportation systems exist at all. * Paratransit systems are not complying with ADA standards. One Tennessean noted that in her area of the state a 14-day lead time was required to schedule a simple ride to the grocery store. * As mainline urban transit systems are made accessible according to ADA standards and urban paratransit is only provided to those who cannot use the mainline system, people with disabilities must accept their responsibility to transition from specialized paratransit systems to general mass transit. Title III of the ADA covers a broad spectrum of entities: places of business and commerce, educational institutions, recreational facilities and social service centers. It requires that readily achievable alterations to existing facilities be made, that all new construction of facilities and most alterations of existing facilities in public and commercial facilities be accessible to people with disabilities, and that places of public accommodation use auxiliary aids and services for effective communications. * Compliance with the accessibility requirements for public accommodations continues at a slow, spotty pace. A leader from the deaf community, for example, noted that more than 90 percent of the motel and hotel facilities he visited in Oregon have not provided auxiliary aids and services for people who are deaf. * Other participants noted that compliance in public accommodations might approach no better than 20 percent. And some participants indicated that in their states major new construction projects are being erected that do not comply with ADA accessibility guidelines. * Greater efforts need to be made to encourage builders and designers to adopt universal design standards. * Despite the clear language of ADA, people with disabilities continue to find establishments refusing to allow entry of service animals and guide dogs. * The cost of interpreter services was an often cited problem in providing access to public accommodations for people who are deaf. One of the most significant barriers to the full inclusion of many people with disabilities is the lack of a fully responsive and easily accessible communications network. People with hearing and visual disabilities in particular often find access to information and communication a critical, though unnecessary, obstacle to employment, social interaction, and access to basic services like medical care. * While the deployment of a high-technology fiberoptic telecommunications system--featuring high-quality interactive information retrieval and communications, and enabling people to work, shop, socialize and learn at home--promises dramatic improvement for many persons, disabled and non-disabled alike, in the quality of living, the builders of these systems must take note of certain important principles. At minimum, any new interactive communications system must be accessible to people with all kinds of disabilities and must never be used to circumvent accommodation requirements or to keep people with disabilities segregated in their homes. * Because of ADA, the demand for interpreter services for people who are deaf or hearing-impaired has greatly increased. This has placed a tremendous strain on interpreter resources in many places, which already are stretched thin due to the scarcity of competent, trained interpreters. Steps need to be taken to resolve this problem. Suggestions include expanded funding for interpreter training, better certification standards to ensure the quality of interpreter services, and encouraging schools and universities to include ASL as a standard part of their language department curricula. * The responsibility to provide interpreter services to facilitate interactions between people with hearing disabilities and doctors and other health care professionals needs to be fully understood by the health care industry. Removal of Barriers to Work from Social Services and Creation of Employment Opportunities Unfortunately, people with disabilities continue to be unemployed at a shockingly high rate. According to the Census Bureau, 70 percent of all working-age persons with disabilities are unemployed. And the vast majority of those who do have jobs are underemployed. The reasons for this unacceptably high rate of unemployment are multiple and complex. Confusing rules, arcane procedures, and disincentives built into government programs and services like Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI), Medicaid, and welfare create tremendous barriers for people with disabilities and must be addressed. There are myriad regulations and rules built into the complex network of social services programs which have the perverse effect of discouraging otherwise qualified and eager job seekers with disabilities from obtaining employment. These rules must be changed so that people with disabilities can enter the workforce without fear of losing critical health care benefits or supplemental income. For example, restrictions and regulations of programs such as Vocational Rehabilitation often have the adverse effect of discouraging people qualified and able to work part-time from seeking employment and training. A better understanding and a quicker implementation of the 1992 Amendments to the Vocational Rehabilitation Act would help to alleviate this problem. Disincentives are a paramount reason behind the stubbornly high rate of unemployment of people with disabilities. Of those participants who indicated that jobs and employment were a primary concern, nearly 30 percent cited disincentives as the most significant obstacle preventing people with disabilities from entering the workforce. Because of their often substantial health care needs, people with disabilities are frequently reluctant to jeopardize their access to government-provided benefits or supplements. Those with mental disabilities are particularly sensitive to the problem, as the costs of necessary medication are high and the earnings threshold for losing Medicaid or Medicare benefits is low. Disability advocates are united in the belief that by removing disincentives to work, people with disabilities can get off the welfare rolls and onto the tax rolls, and contribute their fair share to the enrichment of society. * The fear of losing Medicaid and Medicare benefits constitutes perhaps the single greatest barrier to employment for people with disabilities. Universal coverage for health care regardless of employment status would go a long way towards removing barriers to work and opportunities for career advancement. * With SSI and SSDI the regulations governing the proper dispensation of disability benefits under Social Security, especially its Work Incentives program, are so complex and convoluted that even persons working for the Social Security Administration do not understand how to properly administer them. * In some states, access to vocational rehabilitation services is restricted to persons capable of working a certain minimum number of hours per week. People with certain disabilities, such as psychiatric disabilities or AIDS, often are only able to work part-time and thus sometimes fail to meet this requirement. Because of their disability, they are unfairly closed out of programs that would make them more employable workers. These program restrictions need to be reviewed on a state-by-state basis. * People with disabilities need assistance in all areas of employment, including education and vocational training for proper job skills, increased supported employment opportunities, and a greater effort by employers to make reasonable accommodations for people with both physical and mental disabilities. * More focus must be placed on assuring quality employment and real career opportunities for people with disabilities, rather than simple make-work occupations. * There is a need for financial assistance for independent businesses owned and operated by people with disabilities. The Small Business Administration should ease access to business loans for people with disabilities under the Handicapped Assistance Loans program. * People with disabilities have a right to participate in business entrepreneurs hip, and must therefore have equal access to business loans and government contracts. An equal share of government contracts should be made available by amending existing minority contracting rules to include people with disabilities (Section 8A Set-Asides). * Any government-sponsored jobs program, such as a national job corps, or broad-based worker retraining program should specifically target people with disabilities. * The Clinton administration should continue to set an example for states and the private sector by appointing qualified individuals with disabilities to high-ranking administration positions. Mental Health Issues People with mental, cognitive, and psychiatric disabilities constitute perhaps the single most persecuted and least understood group of individuals in the disability community. The stigma associated with mental illness remains an oppressive obstacle to employment and integration, hampering the efforts of people with mental disabilities to enter the workforce, attend schools and contribute their talents and energy to society. The greatest programmatic concern of participants involved with mental health issues was establishing parity in the provision of health care services for treatment of mental and psychiatric illness. Currently, state Medicaid programs cap funding for mental health treatment at levels so low they do not come close to meeting the needs of most persons requiring such treatment. Levels of coverage for treatment of mental disorders are dramatically lower than those for comparable physical disorders. Participants in the project strongly support efforts by Vice President Al Gore's wife, Tipper Gore, and others serving on the White House Health Care Reform Task Force to expand coverage for mental disorders. * Many attitudinal barriers towards people with mental disabilities can be overcome by concerted efforts to educate employers and the community at large, and by better integrating people with mental disabilities into the community to increase society's comfort level with and understanding of them. * Greater efforts must be made to educate employers about their responsibilities under ADA to develop appropriate reasonable accommodations for people with mental and psychiatric disabilities. Often, this simply means encouraging employers to provide flexible and part-time work schedules for employees who need them. * People with all kinds of disabilities are at a disproportionately high risk of alcohol and substance abuse problems. Greater treatment and rehabilitation efforts are required to treat these problems. The frequently encountered bias against inclusion in these programs of persons with disabilities, such as those who have AIDS or are HIV positive, must be overcome. * Procedures involving the involuntary institutionalization and treatment of people with mental and psychiatric disabilities must be closely scrutinized, with the presumption that such action is almost always a violation of the civil rights of those persons. Advocacy, Coalition Building, and Empowerment Empowerment rests at the heart of the disability-rights movement. People with disabilities seek to free themselves from the chains of a paternalistic social service system and assume the full range of rights and responsibilities that accompany the status of equal citizenship. Participants repeatedly stressed a concern that people in the disability community were not getting sufficient information about their rights under ADA, and thus were not taking proper advantage of the opportunities opened up to them by the law. * There is a powerful need to expand efforts to educate and train people with disabilities about their rights and responsibilities provided under ADA. * Training and development of self-advocacy skills is also critical to the further empowerment of people with disabilities. In many places across the country, particularly in many rural areas, self-advocacy groups are ineffective or non-existent. * Coalition building and increased cooperative efforts must be encouraged among different constituencies in the disability community. As one participant noted, "None of us have the Cadillac of disabilities." * Empowerment would be strongly bolstered by the formation of a broad, national organization for people with disabilities, similar to AARP, NOW and the NAACP, that would provide a focus for united advocacy efforts on a national basis and support full-time lobbyists in Washington to represent to Congress and the federal administration the needs of all people with disabilities. * People with disabilities must be recruited to oversee and implement programs and services, like state Vocational Rehabilitation agencies and special-education programs, targeted towards the disability community. * A greater emphasis must be placed on consumer choice and satisfaction in the delivery of services to people with disabilities. It was suggested that government undertake a nationwide research project designed to measure consumer satisfaction with disability programs and services. Education and the Schools High quality education and vocational training from pre-school to post graduate levels is the best way to ensure that people with disabilities integrate effectively into the economic marketplace and become full citizens and active, productive members of society. This can be most effectively achieved through the inclusion of people with disabilities into mainstream education. Currently, the national drop-out rate for children with disabilities hovers near 35 percent, and literacy rates for students with disabilities are well below their peers without disabilities. Aggressive measures must be developed and implemented by professional educators to reverse the unacceptably high drop-out and illiteracy rates and prepare young adults with disabilities to enter the workforce, get post-graduate vocational training, or go to college. The main aim of persons concerned with education issues and of parents, is to facilitate full integration of children with disabilities to the greatest extent possible into the classroom. Most participants stressed that integration, or "inclusion," is the best way to raise the self-esteem and self-expectations of children with disabilities, and to accustom their peers to work and live with them side by side throughout their lives. * Efforts to achieve full inclusion require a better understanding of the principles behind meaningful mainstreaming, and should be expanded beyond the traditional classroom to include participation in music and gym classes, recreation programs, and the whole range of extracurricular activities that are a fundamental part of a child's educational experience. * Full inclusion requires the provision of trained specialists to assist teachers in the classroom. As New York State has demonstrated, it is possible to take great strides towards integration of special education students into the mainstream by abolishing special education classes and reassigning special education teachers to provide schoolwide assistance, training, and consulting. * The special concerns of particular disability constituencies, such as people who are deaf and hearing-impaired, learning disabled, blind and sight impaired, and severely disabled, must be taken into account as the mainstreaming process is carried forward. Many representatives of the deaf community, for example, are concerned that education programs designed for persons with hearing will inevitably disadvantage those without hearing. In such circumstances, some fear, inclusion of children who are deaf in mainstream programs will result in a loss of the mastery of American Sign Language and of the unique culture in the deaf community. * Similarly, some participants were concerned that an overemphasis on mainstreaming will disadvantage students with highly specialized needs, like children with severe retardation, who may not receive the focused attention in the regular classroom that they would in specially designed programs. * Transition programs must be developed and implemented for graduating students with disabilities. Too often, these students graduate from a social environment in which they received a great deal of attention and counseling, only to be thrust into the world at age 18, unprepared to work and cut off from any vocational aid, counseling, or assistance. * High school students must be better prepared to enter the job market after graduation. Internship programs, work-study programs, vocational training programs, and business partnerships with schools have proven highly successful where they have been implemented and need to be expanded to serve all students with disabilities. * Adult education and vocational training programs need to be expanded to allow more persons with disabilities to acquire the skills necessary to take advantage of their right to compete for jobs as guaranteed by the ADA's employment provisions. Attitudinal Change Stigma and discrimination are being fought by all people with disabilities. This is the key to effecting a transformation of the role of people with disabilities in the community and society. * The media can become a powerful and effective tool to change attitudes towards people with disabilities. Coverage should emphasize the empowerment of individuals, rather than focus on the human-interest side of disability, or overstate the costs and problems of disability and the implementation of ADA. It is primarily the responsibility of activists and advocates in the disability community to lead the campaign for effective, truthful, and positive coverage of the issues affecting people with disabilities. * Employers must be educated that people with disabilities have skills and alternative methods of accomplishing job tasks effectively. For example, people who are blind can often work just as effectively as sighted persons by taking advantage of voice and braille communication techniques. * In discussions of health care reform, such as took place recently over Oregon's new health care plan, it is often assumed that people with disabilities are "unhealthy," and thus deserve a low-priority for treatment. However, people with disabilities are often perfectly healthy and have the same life expectancy as people without disabilities. The common correlation between disability and sickness must be replaced by an understanding that all people deserve equal care and attention to their particular needs. * Efforts to overcome stigma against people with disabilities must begin early and be pursued aggressively through such steps as school textbook reform, sensitivity training for elementary, junior high, and high school students, greater integration and assimilation of people with disabilities in all community activities, positive media coverage, and the positive representation of people with disabilities in advertising campaigns, movies and television programs. * Attitudes of people with disabilities must also change. People must recognize that with rights also come responsibilities, and people with disabilities must accept their responsibility to become fully equal citizens and contributors to a better America. Minority Issues For minority persons with disabilities, many of the problems faced by other persons with disabilities are doubly compounded. Minorities with disabilities are often discriminated against in the delivery of services. The dissemination of information to minority communities is even more inadequate than to the general disability community, and many minorities living in urban, inner city environments find even fewer resources are available to meet their needs. Native Americans with disabilities also face distinctive obstacles. Because of the legal relationship between the Indian nations and the federal government, provisions of the ADA do not extend to many Native Americans. Special initiatives emphasizing cooperation with Native American leaders are needed to ensure that the benefits of ADA are extended to all persons with disabilities. V. CONCLUSION AND RECOMMENDATIONS Disability Action Plan As a nation, we lack a coordinated and comprehensive policy towards disability that accords with the ADA. The ADA has been a major first step towards creating a structure of empowerment for people with disabilities to maximize their potential. But it is not by itself enough. America needs a comprehensive disability policy. Laws, regulations, programs, and services on both the federal and state level need to be revisited to ensure that they are philosophically and programmatically in tune with the spirit and letter of ADA. Everything should be put on the table: state workers' compensation laws; health care reform; Social Security Administration disability programs; housing services; transportation services; welfare programs; tax code provisions related to disability; vocational rehabilitation; developmental disability laws and programs, etc. They should all be reworked as needed to develop a coordinated, philosophically consistent national disability policy that empowers people with disabilities and puts them in control of their own destiny. The fragmented array of services now available need to be coordinated and made more easily accessible to people with disabilities. Government jurisdiction over disability needs to be rationalized and ordered to ensure clear communication of national priorities and goals. The primary recommendation of this report is that the federal government undertake the development of a coordinated, comprehensive national disability policy that is driven by and consistent with the ADA. This policy should be developed over the next several years, complete with legislative language, regulatory and programmatic change, and budget recommendations. It should then be presented to the President and the Congress. This task is totally within the purpose, scope and charge of the President's Committee and the National Council on Disability. The President's Committee and the Council would need no additional authority and could commence work on the task immediately. The President's Committee on Employment of People with Disabilities advises the President and the federal government on policy and programs to develop maximum employment opportunities for people with disabilities, and provides the nation with public education and cooperation among organizations and agencies to achieve this end. Consistent with this role the President's Committee is prepared to work cooperatively with the National Council on Disability in carrying out the primary recommendation of this report. The President's Committee will also play a role, as appropriate, in the implementation of recommendations enumerated below. The following additional recommendations are based on the comments made by Operation People First participants and would support the formation of a national disability policy. To assure continued progress for people with disabilities, these recommended actions should immediately be taken by government, business, media and the disability community. Only by pursuing an aggressive, forward-looking agenda for change will the most important goals of ADA and of people who support fairness, equality, increased productivity and full inclusion of all Americans be reached and the intent of Congress fulfilled. President Clinton has pledged to revolutionize American government by empowering individual citizens in the governmental process. The following steps represent an immediate agenda designed to put People First. ADA Implementation Though significant advances have been made in many areas due to ADA, participants in nearly every state complained of a slow response by state and local government officials to implement and enforce the law, and by the business community--particularly small business--to comply with its provisions. Numerous states were specifically named by participants as taking a "wait-and-see" attitude towards ADA enforcement and implementation. Following is a list of recommendations for the federal government to increase effectiveness and efficiency of the ADA: 1. Improve and increase efforts to educate employers and state and local government officials about ADA. 2. Provide strong leadership from White House on ADA enforcement. 3. Develop, refine and better communicate methods of "reasonable accommodation ," in particular, the accommodation needs of people with mental health conditions, developmental disabilities, learning disabilities, brain injuries, chronic fatigue syndrome and multiple chemical sensitivity. 4. Develop and institute alternative methods of dispute resolution and mediation to speed the enforcement and implementation of ADA. 5. Provide larger staffs for DOJ and EEOC for ADA enforcement and claims investigation. Recommendations to Government Government should lead by forming partnerships with business, state and local governments, the schools, and the disability community to create integrated programs that meet the needs of everyone. Government could also facilitate employment by establishing a national database or archive of job opportunities and training programs for people with disabilities. The current administration should immediately take steps: to change Medicaid-waiver procedures to allow states to pursue innovative strategies for more community based services for people with disabilities, and to mandate the closing of inappropriate, dehumanizing institutions for people with developmental and psychiatric disabilities. Special initiatives need to be designed to improve the whole spectrum of services available in rural areas. In particular, more transportation services should be established for people with disabilities. Likewise, initiatives targeted at other underserved populations, including elderly persons and minorities with disabilities need to be developed. Recommendations to Business Business should take proactive steps to comply with the ADA and to recruit, hire, train, and retain people with disabilities. Employers should seek out more information on ADA and become better informed about different kinds of "reasonable accommodations," particularly for people with cognitive and psychiatric disabilities. The Job Accommodation Network (JAN) sponsored by the President's Committee on Employment of People with Disabilities is a valuable resource which can play an important role in this educational process. Recommendations to Media The media should seek to cover people with disabilities in a responsible, dignified manner, and eschew coverage which condescends, pities, or demeans people with disabilities. The media should focus coverage of people with disabilities on positive accomplishments, successful integration into the mainstream, and the civil rights struggle of ADA. People with disabilities must be covered as people first, not as representative "disability types." Film and television media should seek to include people with disabilities as real, central characters in programming. People with disabilities need to be seen as normal, capable, three-dimensional individuals with human needs and human problems, including involvement in romantic and sexual relationships. The advertising community should include people with disabilities in advertising imagery and media. The 49 million Americans with disabilities represent an enormous potential market to which the advertising and business communities should appeal directly. Like every other sector of the employment community, the media should provide opportunities for qualified people with disabilities to work as reporters, anchors, editors and correspondents. Recommendations to the Disability Community People with disabilities should empower themselves by becoming fully educated about their rights and responsibilities under ADA, and seek actively to defend those rights and advocate on behalf of themselves in all public forums, including in the media and in governmental arenas. People with disabilities should consider greatly expanding an existing national organization, or creating a new one, to advocate their civil and social rights, Although various disability constituencies have excellent advocacy representatives in Washington, there is no organization with the staff and the responsibility to represent the disability community as a whole. All disability constituencies and organizations should work together, building effective coalitions and presenting a united front in order to be maximally effective in political struggles at all levels of government, particularly the state and local levels. VI. APPENDICES Appendix A: Statistical Summary Top Priority Issue Areas: No. of Times Listed First Percentage ADA Enforcement and Implementation 403 38.5% Health Care * 354 33.8% Empowerment and Advocacy 281 26.8% Employment 280 26.7% Education 221 21.1% Personal Assistance Services 179 17.1% Transportation 147 14.0% Housing 145 13.8% Mental Health 103 9.8% Attitudes 101 9.6% Work Disincentives 94 9.0% Assistive Technology 83 7.9% * While health care was not the issue most often identified first by the participants, it was the single most often mentioned issue in all of the teleconference calls. Over 80 percent of the participants mentioned health care for people with disabilities as one of their issues of concern. Appendix B: Comments on the Teleconference Format and Methodology 1. Teleconference format refinement: As the project proceeded, some refinements were made in the teleconference format in order to improve the quality of discussion and enhance the effectiveness of the calls. In the first few teleconferences, the President's Committee attempted to conduct an informal poll of six important issues affecting people with disabilities, including health care, personal assistance services, new telecommunications technology, and the federal budget deficit. However, in response to a sense of unease among participants in casting simple yes-no votes on highly complex issues like health care, the poll was dropped from the teleconference format. 2. Inclusion of people who are deaf: Including people with deafness provided a particular challenge for participation in the telephone conference format. In general, such individuals used the services of an interpreter to facilitate their participation in the teleconference. The President's Committee paid the costs of the interpreter when it was requested. However, due to the scarcity of qualified interpreters and short time frames, individuals often found it impossible to arrange for interpreter services in time. In these cases, the President's Committee interviewed individuals with deafness separately by TDD or through a relay service. The President's Committee recognized that this was a sub-optimal solution to the problem of full inclusion of persons who are deaf, and is seeking better ways to ensure full participation. 3. Inclusion of people with visual disabilities: While the telephone conference call format presented no problems for people with blindness or limited visual abilities, the speedy exchange of background materials in alternative format did create certain difficulties. While the President's Committee possesses the technology to create materials in alternative format, because of equipment breakdown and fast turnaround time, such materials were not always available in a timely manner. The President's Committee will continue to seek better ways to accomplish these tasks in the future. Appendix C: The People of Operation People First The Operation People First project was initiated by the immediate-past Chairman of the President's Committee on Employment of People With Disabilities, Justin Dart. The following President's Committee staff were assigned to the project: Rick Douglas - Executive Director John Lancaster - Executive Assistant to the Chairman Maggie Roffee - States Relations Executive Lori Peterson - Administrative Assistant to Chairman Dart Russell Covey - Project Coordinator Jill Gathmann - Project Coordinator Allen Gray - Project Coordinator Robin Hershman - Project Coordinator The following is a list of the some 1,200 leaders from the disability community that participated in the Operation People First teleconference calls. Our apologies to anyone we may have inadvertantly missed or left out. These leaders have become the core of the President's Committee's ongoing Disability Leaders Network. OPERATION PEOPLE FIRST TELECONFERENCE PARTICIPANTS ALABAMA David Cannon, Executive Director, Mental Health Consumers of Alabama Barry Cavin, Executive Director, Easter Seal of Alabama Margaret Coley, Executive Director, United Cerebral Palsy of Alabama Rueben W. Cook, Director, Alabama Disabilities Advocacy Program, The University of Alabama Robert Cothren, President, Alabama Council of the Blind Michael Davis, Executive Director, Independent Living Center of Mobile Gary Edwards, Director, United Cerebral Palsy of Birmingham Mary Garrett, President of Alumni, Alabama School of the Blind Judith M. Gilliam, President, Alabama State Association of the Deaf Larry Johnson, Assistant Director, Alabama Vocational Rehabilitation Dan Kessler, Executive Director, Independent Living Center in Birmingham Lisa Landers, Director, AIDS Action Coalition Lamona H. Lucas, Vice-Chairman, Governor's Committee, Division of Rehabilitative Services Ann Nelson-Marshall, Director, Alabama Disabilities Advocacy Program, University of Alabama Pat Orr, President, Learning Disabilities Association of Alabama Angeline Pinckard, Executive Director, Governor's Committee on Employment of People with Disabilities Charles D. Priest, Executive Director, Alabama Head Injury Foundation Annie Saylor, President, Alabama Alliance of the Mentally Ill Joel Slack, Director, Department of Mental Health and Mental Retardation, Division of Mental Illness Gary Tonks, Executive Director, The ARC of Alabama ALASKA Albert Berke, Past President, Alaska Association of the Deaf Don Brandon, Chairman, Governor's Committee on Employment of People with Disabilities Duane French, Executive Director, Access Alaska Inc. Mavis Hancock, President, Learning Disabilities Association of Alaska Yvonne Jacobson, Executive Director, Alaska Alliance for the Mentally Ill Tim Kruse, Administrative Aide, Governor's Committee on Employment of People with Disabilities David Maltman, Director, Governor's Council for Handicapped and Gifted Mary Jane Micheals, Executive Director, The ARC of Alaska Rodd Moline, Executive Director, REACH Carolyn Morris, Administrative Coordinator, Governor's Committee on Employment of People with Disabilities Stan Ridgeway, Staff, Division of Vocational Rehabilitation Rebecca Rogers, Executive Director, Alaska AIDS Assistance Association Jerry Shack, Executive Director, ASSETS of Alaska Rick Tessandore, Executive Director, Advocacy Services for the Disabled ARIZONA Kirk Baxter, Executive Director, Phoenix Body Positive Patricia Brown, Executive Director, The ARC of Arizona, Inc. Jim Bruzewski, Executive Director, Arizona Governor's Committee on Employment of People with Disabilities James Burr, Principal Architect, Cullen-Burr Architect Ruth Druding, Past President, Arizona Council of the Blind James Goodson, Executive Director, Arizona Association of the Deaf Randy Howe, Assistant Attorney General, Attorney General's Office Frank Kells, Past President, Disability Network of Phoenix Denise LaBreque, Program Coordinator, Disability Resource Center, Arizona State University West Sue Lehew, Executive Director, Arizona Easter Seal Society Richard Mahoney, Secretary of State, Office of the Secretary of State Frank Maurer, Executive Director, Empowerment Inc. Donna Noland, Publisher/Editor, National Focus Steve Palevitz, Staff Attorney, Arizona Center for Law in the Public Interest Ellen Pilcher, Arizona Polio Advocate, Post Polio of Arizona Tedde Scharf, Associate Director, Disabled Students Resource of Arizona State University Mike Shea, Director, AFL-CIO COPE Diane Skay, Director, Governor's Council on Developmental Disabilities Bob Swing, Consortium Representative Carol Urich, Pueblo RV Resort Sam Vagenas, Assistant Secretary of State, Office of the Secretary of State Susan A. Webb, Executive Director, Arizona Bridge to Independent Living ARKANSAS Edmond A. Benton, Executive Director, United Cerebral Palsy of Central Arkansas Carol Cato, Executive Director, Governor's Commission on People with Disabilities Nan Ellen D. East, Executive Director, Advocacy Services, Inc. Linda Gibson, Case Manager, Student Employment & Empowerment Program, University of Arkansas Brenda Gullett, President, Learning Disabilities Association of Arkansas Carol Hart, Director, Fayettville Independent Living Center John Herndon, Advocate Adeline Holden, President, Arkansas Council of the Blind Bonnie Johnson, Executive Director, Arkansas Disabilities Coalition Richard Petty, Executive Director, Independent Living Resource Center Michael Reed, Member, State Consumer Advisory Council, Independent Living Kathy Schmidt, Executive Director, Arkansas Alliance for the Mentally Ill Janet Scholl, Administrator, Personal Empowerment of the Psychiatrically Labled, Inc. Kay Schriner, Research Associate, Department of Rehabilitation, University of Arkansas Dee Sharp, Assistant Director, Mainstream Living Glenn Sharp, Advocate, ADAPT Bobby C. Simpson, Director, Arkansas Vocational Rehabilitation Cynthia Stone, Director, The ARC of Arkansas Danielle Strickman, TRNER Director, Sources for Community Independent Living Mary Anne Sullivan, Head Injury Survivor John Taylor, Day Treatment Supervisor, Counseling Associates, Inc. Keith Vire, Executive Director, Family Support Services CALIFORNIA Denny Amundson, Director, California Department of Developmental Services Jane Bagley, President, California Disabilities Association Catherine Baird, Chairperson, Governor's Committee for Employment of People with Disablities Gerald Baptiste, Associate Director, Berkeley Center for Independent Living Kim Bartlett, Manager, Independent Living Program Access Center Blain Beckwith, Representative, California ADAPT Mark Beckwith, Representative, California ADAPT Jenna Blue, Self Help and Policy Coordinator, California Network of Mental Health Clients Mike Boyd, Director, American Brain Injury Association Steven E. Brown, Training Director, RTC/PPIL, World Institute on Disability Bill Brucker, Disability Consultant Bill Campagna, ADA Consultant, California Department of Rehabilitation Chuck Campos, Coordinator, Being Alive Sylvia Caras, Representative, California Network of Mental Health Clients John Coombs, Chairman Transition Committee, Learning Disabilities Association Chapter Bill Davis, President, California Alliance for the Mentally Ill Dan Delgado, Chief Executive Officer, Ability Access Incorporated Chuck Elliot, Mind*Star Doug Fisher, Representative, Interwork Institute, San Diego State University Stanley Greenberg, Executive Director, Westside Center for Independent Living Rick Horn, Representative, United Cerebral Palsy Erica C. Jones, Executive Director, PDBTAC Berkeley Planning Associates Linda Jones, Director of Day Program, United Cerebral Palsy Spastic Children's Program Deborah Kaplan, Associate Director, World Institute on Disability Linda Kilb, Managing Director, Disability Rights, Education and Defense Fund Lou Kuehner, Executive Director, United Cerebral Palsy of California, Inc. John Lopez, President, California Council of the Blind Eldon Luce, President, California Foundation of Independent Living Centers Stella March, Board of Directors, National Alliance for the Mentally Ill Roberta A. Marlowe, Executive Director, California State Council on Developmental Disabilities Mickey Moore, Director, Learning Disabilities Association, San Diego Chapter Lonnie Nolta, Director of Advocacy Services, United Cerebral Palsy of California Robert Perrotti, Executive Director, The ARC of California Ed Roberts, President, World Institute on Disability Marta Russell, Representative, Southern California ADAPT Sharon Rust, Executive Director, Riverside Mental Health Association Maria Rutter, Representative, American Brain Injury Association Julian Singleton, President, California Association of the Deaf Terry Stimpson, CRC, Public Policy Commmittee for the California Head Injury Foundation Darlene West, Managing Partner, Accommodating Ideas of California COLORADO Arlan J. Anderson, Executive Director, Paralyzed Veterans of America State Chapter Mike Auberger, Director, ADAPT Sandra D. Burns, State ADA Coordinator, Rehabilitation Services, State of Colorado Penny Dustin, President, Learning Disabilities Association of Colorado Pat Going, Representative, ADA Technical Assistance Center Lynn Grosso, Coordinator, Colorado Protection and Advocacy Judy Ham, Executive Director, United Cerebral Palsy of Denver Brian Lensink, Division Director, Developmental Disabilities of Colorado Karen Litz, Director, ACL-Foothills Association Hedy Margolis, Chairperson, Colorado Coalition for Persons with Disabilities Bryant Moore, President, American Council of the Blind of Colorado Jane Pemberton, Executive Director, Colorado Head Injury Foundation Robert Roggow, President, Colorado Association for Persons with Severe Handicaps Mark Simon, ADA Trainer Carol Staples, Executive Director, Colorado Alliance for the Mentally Ill Bill Stricklen, President, Colorado Association of the Deaf Gary Tober, Director, Hospital Services, Colorado Division of Mental Health Allen Welch, President, Colorado Head Injury Survivors CONNECTICUT Cassandra Boryslawskyj, President, Connecticut Association of the Deaf Barbara Britton, President, Connecticut Traumatic Brain Injury Citizens Council Elaine Coleman, Executive Director, Learning Disabilities Association of Connecticut Thomas J. Connors, President, Connecticut Coalition of Citizens with Disabilities Peg Dignoti, Executive Director, The ARC of Connecticut Eliot J. Dober, Executive Director, Protection and Advocacy for Handicapped and Developmentally Disabled Persons Patricia Hartung, Second Vice President, Connecticut Alliance for the Mentally Ill Michael Kissane, Adult Issues Coordinator, Learning Disabilities Association of Connecticut Tom O'Bryant, Vice President, EEO Affairs, Champion International Corporation Arthur Pepine, Vice President, Connecticut Coalition for Independent Living Edward T. Preneta, Director, Developmental Disabilities Council Kathleen Ryan, Executive Director, Connecticut Traumatic Brain Injury Association Marcia Smith-Harris, Equal Opportunity Coordinator, Connecticut Governor's Committee Shelley Teed-Wargo, President, Connecticut Union of Disability Action Groups Suzanne Tucker, Coordinator, Disability Services for Student and Staff, Southern Connecticut State University Beverly Walton, CEO & President, Mental Health Association of Connecticut Phyllis Zlotnick, Advocate DELAWARE Marianne Aghazadian, Executive Director, Parent Information Center of Delaware, Inc. Barbara Bennett, Program Specialist, Division of Vocational Rehabilitation Rosy Cassidy, Executive Director, Easter Seal Society Bob Cichocki, Writer/Editor, HANDI Network Larry Henderson, Chairman, Booth Social Service Center James F. Linehan, Director, Delaware Developmental Disabilities Council Sy Londoner, President, Delaware Head Injury Foundation Christine Long, Administrator, Disabilities Law Program William J. McCool, Executive Director, United Cerebral Palsy of Delaware Denise McMullin-Powell, Executive Director, Post Polio Group Carol Miller, President, Delware Council of the Blind and Visually Impaired Majorie S. Mudrick, Executive Director, Mental Health Association in Delaware Robert Piech, Director, Delaware Assistive Technology Initiative Michelle Pointer, Director, Division of Vocational Rehabilitation, Department of Labor Jerry Spilecki, Program Coordinator, Residential Program of People with Severe Disabilities Diane Treacy, Executive Director, Governor's Committee on Employment of People with Disabilities FLORIDA Robert L. Billingslea, Director & CEO, The Walt Disney Company Carol Ann Breyer, Executive Director, Governor's Alliance for Employment of Disabled Citizens Stanley Carter, Director, Opportunity Development Inc., Center for Independent Living Thom DeLilla, Program Manager, Spinal Cord Injury Program, Division of Vocational Rehabilitation Pat Erwin, Director, State Coalition for the Center for Independent Living Collen Fix, Assistant to the Coordinator, Disabled Student Services William M. Graham, President, Goodwill Industries-Big Bend, Inc. Tom Haynes, Advocate Daniel S. Holder, Coordinator, Office of Handicapped Opportunities, Office of ADA, Dade County Lisa Jenson, Government Relations Specialist, Florida Association of Rehabilitation Specialists Warren Jernigan, Director, Florida Council of Handicapped Ellie Kazuk, Executive Director, National Head Injury Foundation, Florida Association Joseph Krieger, Executive Director, Florida Developmental Disabilities Planning Council Michael Lanham, Director, Accommodating the Disabled, Inc. Peter Manheimer, Director, Office of Disability Services for Students, Florida International University Harold Mayo, Director, Mental Health Clearing House Jim Parrish, Chairman, Florida Disability Caucus on Disability Issues Donna Reed, Assistant to the Executive Director, United Cerebral Palsy of Florida Peggy Schmidt, Program Administrator, Florida Council on Hearing Impaired Chris Schuh, Executive Director, The ARC of Florida Frank Travillion, Advocate, Alliance for the Employment of People with Disabilities William F. Twomey, Executive Director, Center for Independent Living in North Florida, Inc. Greg Volcanta, Senior Statistician, University of Florida, Department of Psychiatry GEORGIA Lucy Baugh, President, National Head Injury Foundation Jerry Bensman, Director, Department of Human Services Charlotte Cook, Community Specialist, Rehabilitation Services Denny Davis, Executive Director, Atlanta Buyers Club Mark Johnson, Advocacy Specialist, Clinical Research, Shepherd Spinal Center Cindy Lockhart, Community Services Coordinator, Rome Neurospinal Center David McKinney, President, Georgia Alliance of the Mentally Ill LeeAnn Pendergrass, Statewide Independent Living Coordinator, Georgia Field Services Independent Living Program J. Wyman Poole, Executive Director, Governor's Committee on Employment of Handicapped Persons Barbara Sachs, Executive Director, United Cerebral Palsy of Greater Atlanta Pat Smith, Executive Director, The ARC of Georgia Jim Sparks, President, Georgia Council of the Blind Cynthia Wainscott, Executive Director, Mental Health Association of Georgia GUAM Jesus Cruz, Executive Director, Goodwill Industries of Guam Cerrila Rapadas, Vice Chair, Commission on Persons with Disabilities Lola Rojas, Director, Independent Living Training Center Ugene Santos, Administrator, Department of Public Health Steve L. Spencer, Associate Superintendent, Department of Education, Special Education Division Maria St. Nocholas, Program Coordinator, Guam Mami Independent Living Training Center Francis Standing Soldier, Executive Director, Developmental Disabilities Planning Council Roland Taimanglo, Chairperson, Commission on Persons with Disabilities Lily Tenfingers, Department of Mental Health and Substance Abuse Norbert Ungacta, Director, Department of Vocational Rehabilitation HAWAII John Dart, Chairman, Maui Branch, Hawaii Mental Health Association Donna Fouts, Executive Director, United Cerebral Palsy of Hawaii Kathleen Gould, Executive Director, Learning Disabilities Association of Hawaii Randy Hack, Program Director, United Self Help John Noland, Assistant Administrator, Vocational Rehabilitation Services for the Blind Mark O'Donnell, Executive Director, Mental Health Association of Hawaii Mark T. Obatake, Executive Director, Hawaii Center for Independent Living Carolyn Oki, President, Big Island Alliance for the Mentally Ill Gary L. Smith, Executive Director, Protection and Advocacy Agency Ed Sullem, President, Hawaii Alliance for the Mentally Ill Filo Tu, President, Hawaii Association of the Blind Francine Wai, Executive Director, Commission on Persons with Disabilities Lambert Wai, President, The ARC of Hawaii IDAHO Janet K. Atkinson, Executive Director, United Cerebral Palsy of Idaho, Inc. Virgil Barnett, Disabled American Veterans Jackie Baxter, Executive Director, Treasure Valley Association of Hearing Impaired David Blackwell, Epilepsy League of Idaho Kelly Buckland, Director, LINC John Centa, President, Self Help for Hard of Hearing Dennis Emery, President, Idaho Council of the Blind Jack Farley, Alliance for the Mentally Ill of Idaho Joyce Ford, Chairperson, National Parent Network Dana Gover, Access Consultant Donna Grummer, Executive Director, Easter Seal Society Partick Harting, Program Coordinator, The ARC Debra Johnson, Director, Idaho Parents Unlimited Mark Leeper, North Idaho Center for Independence Edward J. McHugh, Director, Commission for the Blind Kyle Packer, Citizens Review Commission for ADA George Pelletier, Administrator, Division of Vocational Rehabilitation Richard Schmidt, Idaho Department of Health and Welfare Ramona Walhof, President, National Federation of the Blind of Idaho Frances Wright, Learning Disabilities Association Janet Wright, Governor's Committee on Employment of People with Disabilities ILLINOIS Tom Berkshire, President, Illinois Easter Seal Society Marca Bristo, President, Access Living Center for Independent Living Tammy Diakogeorgion, Co-Coordinator, Family Resource Center on Disabilities Thomas Duncan, Executive Director, Paralyzed Veterans of America, Voughan Chapter William Fielding, Executive Director, Central Illinois Center for Independent Living Lawrence J. Gorski, Special Assistant to the Mayor, Mayor's Office for Persons with Disabilities Jan Holcomb, Executive Director, Mental Health Association of Illinois Josephine Holzer, Council for Disability Rights Joyce Hrovatin, Vice President, Illinios Head Injury Association Tom Kennedy, Board Member, Illinois Association for Persons with Severe Handicaps Robert Kilbury, Executive Director, Coalition of Citizens with Disabilities in Illinois Elizabeth Langen, Chairperson, Independent Living Advisory Council, Traffic Safety Division Rene C. Leininger, Director, Independent Living Planning Council on Developmental Disabilities Rene David Luna, Disability Rights Coordinator, ADAPT Audrey McCrimon, Director, Department of Rehabilitation Services Marjorie Miller, Chairperson, Blind Services Planning Council Bruce Moore, Marketing Coordinator, Department of Rehabilitative Services Kathryn Moorie, Project Coordinator, Family Resources Center on Disabilities Don Moss, Executive Director, United Cerebral Palsy of Illinois, Inc. Dwayne Murphy, Director of Social Services, Chicago Hearing Society Tony Paulauski, Executive Director, The ARC of Illinois Maria Rodriquez-Sullivan, Director, Fiesta Educativa Joyce Russell, President, Illinois Council of the Blind, Inc. Clyde C. Smith, President, Illinois Association of the Deaf INDIANA John Dickerson, Executive Director, The ARC of Indiana Richard J. Edwards, Consultant, Vocational Rehablitation Section, Division of Aging & Rehabilitative Services Jerome Freeman, Executive Director, Deaf and Hard of Hearing Services Nancy Griffin, Executive Director, Indianapolis Resource Center for Independent Living Mary Nell High, Staff Assistant, Learning Disabilities Association of Indiana Suellen Jackson-Boner, Executive Director, Governor's Planning Council for People with Disabilities Liz Jewel, Advocacy Coordinator, Depression and Related Treatment (DART) Karen May, President, Head Injury Foundation of Indiana Costa N. Miller, Executive Director, Indiana Association of Rehabilitation Facilities Darcus Nims, President, Self-Advocacy of Indiana Donna Olsen, Executive Director, The Indiana Parent Information Network Jackie Pittman, Executive Assistant to the Director, Division of Disability and Rehabilitative Services Beverlee Preske, Director, Path, Inc. Matt Ravin, Chairman, Council on Disability Affairs Ron Ray, President, American Council of the Blind of Indiana Donna L. Roberts, Executive Director, United Cerebral Palsy of Central Indiana Cindy Rose, Attorney, Rose, Iovino, and Shinness Henry Schroder, Director, Developmental Disabilities Pat Stewart, Executive Director, ATTIC Al Tolbert, Executive Board Member, Indiana Paralyzed Veterans of America Margaret Trauner, Advocacy Coordinator, Indiana Key Mental Health Consumer Organization Sharon Wooten, President, Indiana Association of the Deaf Home Office IOWA Lesa Ackman, Iowa Association for Persons with Severe Handicaps Jay Brewer, Director, Governor's Committee on Employment of People with Disabilities Jane I. Butler, Executive Director, United Cerebral Palsy of Iowa Michael Current, Executive Director, Gay and Lesbian Research Center Ken Derby, President, Iowa Association of the Deaf, Inc. Ethel Madison, Independent Living, Inc. Christina Mathis, Black Hawk Partnership Gary Mattson, Executive Director, Exceptional Persons, Inc. Kit Olson, Executive Director, The ARC of Iowa Duane Purdy, Past President, Blackhawk Partnership of People with Disabilities Merv Roth, Executive Director, Iowa Protection and Advocacy Services, Inc. Jon R. Schneider, National Director, Iowa Paralyzed Veterans of America R. Creig Slayton, Director, Commission for the Blind Gene Smail, President, Iowa Coalition Margaret Stout, Executive Director, Alliance for the Mentally Ill of Iowa Donald W. Westergard, Administrator, Commission of Persons with Disabilities KANSAS Dick Charlton, Attorney, American Disabled for Attendant Programs Today Sergio Delgado, Past President, American Academy of Disability Evaluation Michael Donnelly, Director, Topeka Independent Living Resource Center Brenda Eddy, Executive Director, Kansas Commission for Deaf and Hard of Hearing Martha Gabehart, Executive Director, Kansas Commission on Disability Concerns Martha Hodgesmith, DREDF Trainer, Kansas Association of Rehabilitation Facilities Terry D. Hostin, President, Kansas Association of the Deaf, Kansas School for the Deaf Dave Jones, Executive Director, United Cerebral Palsy of Kansas Robert Jordan, Chairperson, Kansas Commission on Disability Concerns Jane Knight, State Coordinator, Department of Administration Terry Larson, Executive Director, Kansas Alliance for the Mentally Ill Bill Lewis, Recording Secretary, Kansas Association for the Blind and Visually Impaired Jack Markham, President, Positive Action Coalition Gina McDonald, Executive Director, Kansas Association of Centers for Independent Living Dale Moore, President, Kansas AFL-CIO William Moore, Service Officer, Paralyzed Veterans of America Mike Oakford, State Coordinator, Kansas ADAPT Lila Paslay, Executive Director, The ARC of Topeka Alan Post, Trainer, Disability Rights, Education, and Defense Fund Jane Rhys, Executive Director, Kansas Developmental Disabilities Council Sally Roberts, President, Kansas Association for Persons with Severe Handicaps John Schwenn, President, Learning Disabilities Association of Kansas Tim Steininger, Past Chairperson, Kansas Commission on Disability Concerns Joan Strickler, Executive Director, Kansas Advocacy and Protection Services Glen Yancey, Acting Commissioner, Rehabilitation Services, Department of Social and Rehabilitative Services KENTUCKY Sue Davis, Organizer, Louisville ADAPT Jan Day, Center for Accessible Living Ken Duncan, Co-Chair, Center for Accessible Living Jacqui Farmer, President, Kentucky Association for Persons with Severe Handicaps Sharon S. Fields, Chief of Staff for ADA, Governor's Office Carla Franklyn, Vice President, Kentucky Council of the Blind Roosevelt Gholston, Advocate Susan Glasgow, President, Kentucky Head Injury Association Mary Ellen Harned, Director, Access Center Jane Hart, President, Kentucky Coalition on Disabled Persons Susie McElwain, Executive Director, Kentucky Alliance for the Mentally Ill Prudence Moore, Director, Kentucky Developmental Disabilities Planning Council JoAnn Rivas, Chairperson, Kentucky Committee on Employment of People with Disabilities William Rogers, Executive Director, Commission on the Deaf and Hard of Hearing Catherine Senn, Learning Disabilities Association of Kentucky Connie Starcher, Adovocate Thelma Whiteside, State Liaison, Kentucky Committee on Employment of People with Disabilities Kathy Williams, Director, Division of Program Development, Office of Vocational Rehabilitation LOUISIANA Kammie Barfield, People First of Louisiana Patsy Barrett, Liaison to the President's Committee on Employment of People with Disabilities Harold Broussard, Managing Operator, Louisiana Council for the Blind Jay B. Childs, Executive Director, New Horizon Independent Living Center Rick DeJean, Attorney at Law Clorice Eckleberger, Program Director, Developmental Disabilities Ann Farmer, Vice President, Louisiana Head Injury Foundation Pat Johnson, Coordinator, Jefferson Parish Office for Citizens with Disabilities Linda Jones, Executive Director, Louisiana Association for Persons with Severe Handicaps Jean Keuker, Assistant Professor, Learning Disabilities Association of Louisiana Suzanne LaVerne, Administrator, Louisiana Office of Rural Health, Department of Health and Hospitals Medford Magill, President, Louisiana Association of the Deaf Yadi Mark, Advocacy Legislative Director, Paralyzed Veterans of America Larry Pate, Administrator, Podua Community Service John Schulze, Planner/Coordinator, Governor's Council on Rural Areas Lois V. Simpson, Executive Director, Advocacy Center for the Elderly and Disabled Scott Smith, Program Director, Easter Seal Society Alton Toms, Director, Division of Rehabilitation, Office of Human Development Kenneth Vince, Executive Director, Louisiana Rehabilitation Services MAINE Katherine Adams, Staff, Alpha One Center for Independent Living Claudia B. Anderson, Executive Director, Portland Coalition for the Psychiatrically Labled Geeta Balakrishnan, Director, Phoenix Industries Richard Balser, Executive Director, Maine Medicine Center Rehabilitation Medicine Department Paige Barton, Advocate, Community Support Services Lee Beadde, Staff, Muskie Institute of Public Affairs, University of Southern Maine Edward Bouchea, Director, MHCPV Nancy Chase, Executive Director, Maine Head Injury Foundation Patty Coleman, Professor, University of Maine, Orono School of Social Work Ron Hanson, Executive Secretary, Governor's Committee on Employment of the Handicapped Brenda Harvey, Staff, Maine Medicine Center, Rehabilitation Medicine Department Matt Hunter, Chairman, Governor's Committee for Supported Employment Carol Ippolitti, Program Director, Peneboscot Valley Industries Valerie Landry, Chair, Governor's Committee on Employment of the Handicapped Jean Manning, Advocate Bill Nye, Director of Adult Edcuation, National Association of the Deaf Norman Perrin, Executive Director, Division of Deafness Pete Stowell, Director, Developmental Disabilities Council Pete Vestal, Executive Director, Maine Advocacy Services MARYLAND Nancy Bloch, President, National Association of the Deaf Cristine Boswell Marchand, Executive Director, The ARC of Maryland Nate Butler, President, Marylanders for Adequate Attendant Care Diane Ebberts, Director, Office for Individuals with Disabilities James Gashel, Director, National Federation of the Blind Phil Holmes, CEO, The League: Serving People with Physical Disabilities, Inc. James S. Jeffers, Assistant State Superintendent, Division of Vocational Rehablitation, State Department of Education Elizabeth Jones, Director, Maryland Disability Law Center Marc Maurer, President, National Federation of the Blind Bill Ohge, President, People on the Go Frank Pinter, Executive Diretor, Maryland Center for Independent Living Linda Raines, Acting Executive Director, Mental Health Association of Maryland Paul Rendine, Chairman, Governor's Committee on Employment of People with Disabilities Gene Spurrier, Vice President, American Council of the Blind Hardy Stone, Committee for Change, Head Injury Survivors John Stuban, President, Coalition for People with AIDS Carol Urich, Disability Rights Advocate Marian Schooling Vessels, Executive Director, Governor's Committee on Employment of People with Disabilites Dave Ward, Chairman, Baltimore County Commission on Disability MASSACHUSETTS Jason Albert, Executive Director, Governor's Committee on Employment of People with Disabilities Moe Armstrong, Director, Consumer Affairs Elmer Bartels, Commissioner, Massachusetts Rehabilitation Commission John Butterworth, Director, New England Association for Persons with Severe Handicaps Judi Chamberlin, Center for Psychiatric Rehabilitation, Boston University John Chappell, Deputy Commissioner, Massachusetts Rehabilitation Commission Brian Charlson, President, Bay State Council of Blind Steve Collins, Executive Director, Massachusetts Alliance for the Mentally Ill Speed Davis, Director, Massachusetts Office on Disability Richard DeNoyer, Senior Benefits Advocate, Paralyzed Veterans of America Frederick Fay, President, Disability Rights and Voter Education Jeffrey W. Hamm, Employment Coordinator, Stepping Forward Sue Hertz, Executive Director, Protection and Advocacy, Disability Law Center Richard Howard, Attorney at Law, KOTINC Arlene Korab, Executive Director, Massachusetts Head Injury Association Peter Myette, Deputy Commissioner, Committee for Persons with Disabilities Kathy Petrillo, Development Management, Centers for Living and Working Heidi Reed, Executive Director, DEAF Inc. Leo Sarkissian, Executive Director, The ARC of Massachusetts Marilyn Price Spivack, President, MPS Associate, Inc., Network for Education and Training Lorelee Stewart, Director, Independent Living Center of the North Shore John E. Winske, Executive Director, Massachusetts Coalition of Citizens with Disabilities MICHIGAN Richard Baldwin, State Director, Special Education Services, Department of Education Elizabeth W. Bauer, Executive Director, Michigan Protection and Advocacy Service Larry Best, Deputy Director, Commission on Handicapper Concerns Renee Bostick, President, National Association for Rights, Protection and Advocacy Patrick Cannon, Executive Director, Commission on Handicapped Concerns Penny Crowley, Executive Director, Michigan Council for Independent Living Fred Cummins, President, Alliance for the Mentally Ill of Michigan Brad Dier, Michigan State AFL-CIO Peter P. Griswold, State Director of Vocational Rehablitation, Bureau of Rehablitaiton, Department of Education Terrance Hunt, Executive Director, United Cerebral Palsy of Michigan, Inc. Christopher Hunter, Director, Division of Deafness, Michigan Committee of Handicapper Concerns George Illingworth, President, Michigan Association of the Blind and Visually Impaired Sally Lindsey, Member, Michigan Developmental Disabilities Council Patricia McDonald, Executive Director, Michigan Multiple Sclerosis Society Linda S. Michaels, Chairperson, Michigan Commission on Handicapper Concerns Majorie Mitchell, Executive Director, The ARC of Michigan Philip E. Peterson, Director, Commission for the Blind, Department of Labor Linda Ries, Past President, Learning Disabilities Association of Michigan Clark Schuler, President, Michigan Paralyzed Veterans of America Tom M. Sovine, Executive Director, Mental Health Assocation in Michigan Lauren Thomas, Grants Director, United Cerebral Palsy of Michigan, Inc. Debra Wiese, Senior Staff Counselor, Client Assistance Program, Michigan Rehabilitation Services MINNESOTA Scott Anderson, Duluth Office Program Coordinator, Center for Independent Living in Northeast Minnesota Greg Asher, Chairman, Minnesota State Council on Disability Douglas Bahl, President, Minnesota Association of Deaf Citizens Richard Davis, Assistant Commissioner, State Services for the Blind and Visually Handicapped Jo Ann Erbes, Executive Director, United Cerebral Palsy of Minnesota Andrea Everett, Board Chairperson, Mental Health Association of Minnesota Luther A. Granquist, Director, Legal Aid Society of Minneapolis Karen Grykiewicz, Acting Executive Director, The ARC of Minnesota Stephanie Hall, President, Council of the Blind of Minnesota Ellie Hands, Executive Director, Minnesota Head Injury Association Clell L. Hemphill, Director, Minnesota State Council on Disability Margot Imdieke, Accessibility Advocate, State Council on Disability Jay Johnson, Executive Director, Options-Interstate Resource Center for Independent Living Jerry Krueger, Chairman, Minnesota Association for Centers for Independent Living Alan Lunc, Rehabilitation Program Specialist, Division of Rehabilitation Services, Department of Jobs and Training Wade Reckenger, Advocacy Director, Paralyzed Veterans of America, Minnesota Chapter Audry Richardson, Vice Chairperson, Minnesota State Council on Disability Carrie Richter, Chairperson, Learning Disabilities Association on Minnesota Lisa Shepard, Director, Minnesota AFL-CIO John Wehlan, Executive Director, Alliance for the Mentally Ill of Minnesota Colleen Wieck, Executive Director, Governor's Planning Council on Developmental Disabilities MISSISSIPPI Michelle Bahret, President, Coalition for Citizens with Disabilities E. C. Bell, Director, Developmental Disabilities Planning Council Linda Bond, Director, The ARC Ruby Bowman, State ADA Coordinator, Mississippi Department of Rehabilitative Services Betty Busbea, Parent Facilitator, Deaf/Blind Grant Nell C. Carney, Executive Director, Department of Rehabilitative Services Rebecca Floyd, Executive Director, Mississippi Protection & Advocacy System for Developmental Disaibilities, Inc. Neil Fowler, AFL-CIO Nola Gray, President, Mississippi Mental Health Consumers' Association John Lee, Director, Office of Special Services for Individuals with Disabilities David Lucas, Acting Director, Jackson Center for Independent Living Edward L. Manning, President, Mississippi Head Injury Association J. Elton Moore, Director, Rehabilitation Research and Training Center on Blindness and Low Vision Eddie Sandifer, Director, People with AIDS Project Tessie Schweitzer, Executive Director, Mississippi Families as Allies Mark Smith, Executive Director, Coalition for Citizens with Disabilities Mike Smitherman, President, Mississippi Council of the Blind Jim Zipperer, Mississippi Alliance for the Mentally Ill MISSOURI Randy Cantrell, Executive Director, Mid-Missouri AIDS Project James DeJong, ADA Project Edna Freeman, President, Missouri Council of the Blind Don L. Gann, Assistant Commissioner, Division of Vocational Rehabilitation, State Department of Education Candace Hawkins, Executive Director, Governor's Committee on Employment of People with Disabilities Dale Herrick, Executive Director, United Cerebral Palsy of Kansas City Cindi Keele, Executive Director, Missouri Coalition of the Alliance for Mentally Ill Denise Morrow, Executive Director, Missouri Mental Health Consumer Network Paul Pealer, Director, Disabled American Veterans of Missouri Richard Powell, Past Executive Director, Governor's Committee on Employment of People with Disabilities Michael Renner, Program Specialist, Developmental Disabilities Council David Roberts, Director of Rehabilitation, Education and Training, University of Missouri at Columbia Cynthia N. Schloss, Executive Director, Missouri Protection and Advocacy Services William B. Sheldon, President, Missouri Association of the Deaf Max Starkloff, Executive Director, Paraquad, Inc. Jim Tuscher, Chairman, Governor's Committee on Employment of People with Disabilities David S. Vogel, Deputy Director, Services for the Blind, Division of Family Service Nathan Walker, Executive Director, Missouri Head Injury Association Joe Wrinkle, President, People First of Kansas City MONTANA James Allen, President, Montana Association of the Deaf George Bessette, Advocate Joe Harrington, Independent Living Center Kathy Kelker, Project Director, Parents Let's Unite for Kids Bob Maffitt, Executive Director, Governor's Committee on Employment of People with Disabilities Jim Marks, Professor, Disability Student Services Kate McGathlin, Past President, The ARC of Montana Sharon Odden, Assistant Vice President of Vocational Training, Northern Rocky Mountain Easter Seal Society Greg Olsen, Executive Director, Developmental Disabilities Planning and Advisory Council Pat Pope, Executive Director, Meriwether Lewis Institute Tom Powell, Executive Board Member/Treasurer, The Association for Persons with Severe Handicaps of Montana Jim Smith, Staff, Montana Alliance for the Mentally Ill Zana Smith, Project Director, Montana Independent Living Project Jim Spall, Vice President, Montana Head Injury Association NEBRASKA Terri Bennett, Board Member, Autism Society of Nebraska Randy Brown, Lawyer, Nebraska Advocacy Services, Inc. Linda Burkey, Executive Director, Nebraska Head Injury Association Bernard E. Childerston, Executive Secretary, Governor's Committee on Employment of the Handicapped Ginger Clubine, Executive Director, The ARC Doug Eicher, Nebraska Association for Persons with Severe Handicaps Jane Elliot, Policy Analyst for ADA, Governor's Office Gary George, Executive Director, Nebraska AIDS Project Peg Goeschel, Field Representative, Nebraska Commission for the Hearing Impaired Margaret Hoffmann, Director, Vocational Rehabilitation J. Rock Johnson, President, Nebraska Depressive and Manic Depressive Association Jeanine Martin, President, Learning Disabilities Association, Lincoln Chapter Gordon L. McDonald, President, Nebraska AFL-CIO Rose Meiley, Chairperson, Nebraska Developmental Disabilities Council William Orester, President, American Council for the Blind of Nebraska Marlene Orton, Vice Chairperson, Governor's Committee on Employment of People with Disabilities Joslyn Richie, Lawyer, Nebraska Advocacy Services, Inc. Mike Schafer, Director, Center for Independent Living, League of Human Dignity, Inc. Timothy Shaw, Executive Director, Nebraska Advocacy Services, Inc. Jerry Siders, President, Nebraska Association of the Deaf Marleene Snyder, National CHAD Dean Ventor, Consultant, Private Rehabilitation Sector Tom Verkler, President, People First of Nebraska Nancy Ward, Coordinator, People First of Nebraska Virginia Wright, Chairperson, Governor's Committee on Employment of People with Disabilities NEVADA Jim Boscacci, Chair, Northern Nevada Center for Independent Living John Butterworth, President, Nevada Technologies, Inc. John Chambers, Chairman, Governor's Planning Committee on Developmental Disabilities William Couey, President, Northern Nevada Alliance for the Mentally Ill Diana Dowling, Director, Reach Out Learning Center Anthony Farris, Advocate Merv Flander, Director, Bureau of Service for the Blind Paul Haugan, Planning Director, Planning Committee on Developmental Disabilities Lonnie C. James, Executive Director, United Cerebral Palsy of Southern Nevada, Inc. Mack Johnson, Advisory Council Representative, Native Americans with Disabilities Campaign Bernard Kaufman, Chairman, Governor's Committee on Employment of People with Disabilities David Krause, President, Nevada Council of the Blind Brian Lahren, Executive Director, Washoe ARC Cecilia Leal, Self Advocate, Hispanic Issues Donny L. Loux, Chief, Planning, Research and Program Development, Rehabilitation Division Steve Moore, Facilitator/Organizer, People First of Nevada Kathleen E. Olson, Executive Director, Governor's Committee on Employment of People with Disabilities Loralie Schaus, President, Head Injury Association of Nevada Ronald Ray Smith, Consultant, Complaints Under the ADA Dick Squires, State Commander, Nevada Disabled American Veterans Suzanne Thomas, Regional Representative, Governor's Committee on Employment of People with Disabilities Frank Weinrauch, The ARC of Nevada NEW HAMPSHIRE Bruce A. Archambault, Director, Division of Vocational Rehabilitation, State Department of Education Susan Auerbach, Education Consultant, Division of Vocational Rehabilitation, Office of Hearing Impaired Joyce Bearisto, Chairperson, Vocational Rehabilitation Advisory Committee of New Hampshire Paula Bundy, Office Manager, The ARC of New Hampshire Larry Gammon, Director, Easter Seal Society of New Hampshire Michael Jenkins, Executive Director, Governor's Commission on Disability Mike Malloy, Executive Director, Alliance for the Mentally Ill of New Hampshire Lee Perselay, Director, Disability Rights Center of New Hampshire Thomas E. Pryor, Director, New Hampshire Developmental Disabilities Council Judith Raskin, Parent Information Center Kathy Reilly, President, Learning Disabilities Association of New Hampshire Larry Robinson, Co-Executive Director, Granite State Independent Living Foundation Mathew Sochalski, Advocate George Tetler, Director, Employment Services Donna Woodfin, Director, Disability Rights Center Diane E. Woods, Director, International Exchange of Experts & Information in Rehabilitation Institute on Disability NEW JERSEY Sylvia Axelrod, Executive Director, New Jersey Alliance for the Mentally Ill Monroe Berkowitz, Professor, Bureau of Economic Research Jack Bucher, Director, CSP of New Jersey Ann Ciavaglia, Governor's Liaison to the President's Committee, New Jersey State Department of Labor Margaret Duthie, Administrator, Collaborative Support Program of New Jersey Ethan Ellis, Director, New Jersey Developmental Disabilities Council Colleen Fraser, Executive Director, Dial, Inc. Barbara Geiger-Parker, Executive Director, New Jersey Head Injury Association Celine Glagola, Respresentative, The ARC of New Jersey Eileen Goff, Heightened Independence and Progress Ronee Groff, President, Learning Disabilities Association of New Jersey Linda Headley, Assistant Deputy, Division of Public Advocacy Tom Jennings, Director, Department of Vocational Rehabilitation of New Jersey Anna Katz, Executive Director, AIDS Coalition of Southern New Jersey Howard Kley, Associate Executive Director, Mental Health Association of New Jersey Howard Luckeet, Chairman, New Jersey's Governor's Committee Karen Melzer, President, New Jersey Association for Persons with Severe Handicaps Jeanne Sanders, President, New Jersey Council of the Blind Coker Stogner, Coordinator, Independent Living Services, Vocational Rehabilitation for the Blind NEW MEXICO Glass Architect, Director of Programs, People Living with AIDS James Cheadle, Executive Director, Independent Living Resource Center John Foley, Executive Director, The ARC of New Mexico James Jackson, Director, Protection & Advocacy System for New Mexicans with Developmental Disabilities Judy Myers, Director, Governor's Committee on Concerns of the Handicapped Linda Tonsing-Gonzales, Advocate William Trant, Executive Director, New Mexico Association for Persons with Severe Handicaps Sallie Van Curen, Executive Director, Parents Reaching Out to Help Ron Williams, Director of Special Education, Albuquerque Public Schools NEW YORK John Bateman-Ferry, Chairperson, ARISE Inc., Center for Independent Living Christine Bevilacqua, New York Association for Persons with Severe Handicaps Marc Brandt, Executive Director, New York State Association for Retarded Citizens, Inc. Susanne Bruyere, Director, Program on Employment and Disability, Cornell University Rena Button, Executive Director, New York State Head Injury Association Marcel Chaine, Director of Advocacy Services, Commission on Quality of Care George Ebert, Project Coordinator, Mental Patients Liberation Alliance Anne Emerman, Director, New York City Mayor's Office on People with Disabilities Denise Figueroa, President, Troy Resource Center for Independent Living Susan Finisdore, Rockland Independent Living Center Christopher Fortune, Administrative Vice President, Center for the Disabled Michael Fox, Executive Director, NYSARF Dick Gelman, Director, Consumer Information Network John Heimerdinger, President, Jewish Guild for the Blind Gwen Hubbard, ADAPT Sally Johnston, Vice President, Disabled in Action Edward Knight, Program Coordinator, Mental Health Association in New York State Rosemary Lamb, Liaison to the President's Committee, State Advocate for the Disabled Michael Losow, Director of Government Affairs, National Multiple Sclerosis Society Eugene Luini, Acting Director, New York State Commission of the Blind and Visually Impaired Jean Mann, President, American Council of the Blind of New York Brian McLane, Assistant Commissioner, Office of Vocational & Educational Services for Individuals with Disabilities Terry Moakley, Associate Executive Director, Eastern Paralyzed Veterans of America Roy Neville, President, New York State Alliance for the Mentally Ill Harvey Pacht, Director of Public Education, Self-Advocacy Association of New York Ed Panarello, Civil Rights and Women's Designee, New York State AFL CIO Michael Parker, Executive Director, United Cerebral Palsy of New York State Michael Peluso, Director, New York Client Assistant Program, New York State Commission on Quality of Care Harmon Putter, Executive Director, Epilepsy Foundation of Long Island Daniel S. Robert, Board Member, Disabled in Action Larry Roberts, Coordinator, Ithaca Mental Patients Advocacy Coalition Sam Sabino, Supervisor, Disabled American Veterans Marilyn E. Saviola, Executive Director, Center for Independence of the Disabled in New York, Inc. Ralph Shields, Chair, Council of Persons with Head Injury Janet Susin, President, Alliance for the Mentally Ill Douglas Usiak, Executive Director, Independent Living Center of Western New York Victoria Zambartino, Coordinator, Protection and Advocacy of New York City Joel Ziev, Executive Director, New York Society for the Deaf Cliff Zucker, Executive Director, Disability Advocates NORTH CAROLINA Kater Cornwell, Director of Legislation/Architectural Barriers, Georgia Carolina Paralyzed Veterans Association,Inc. John B. DeLuca, Director, Division of Services for the Blind, Department of Human Resources James E. Everest, Executive Director, United Cerebral Palsy of North Carolina Roger B. Foushee, Community Liaison, Governor's Advocacy Council for Persons with Disabilities Ken Franklin, Community Liaison, Governor's Advocacy Council for Persons with Diabilities R. Franklin Gose, Former Executive Director, North Carolina Alliance for the Mentally Ill Herman Gruber, Vocational Rehabilitative Services for the Blind Connie Hawkins, Executive Director, Exceptional Children's Assistance Center Chester Helms, Director, Programs for Accessible Living Terry Ingram, President, People First of North Carolina Sherman Lewis, President, North Carolina Council of the Blind Ronald L. Mace, President, Barrier Free Environments, Inc. Deborah C. McKeithan, President, Handicapped Organized Women Learning How, Inc. Bob Philbeck, Deputy Director, Division of Vocational Rehabiltation Services Dave Richard, The ARC of North Carolina Holly Riddle, Executive Director, North Carolina on Developmental Disabilities Janet Simoneau, Executive Director, North Carolina Association Rehabilitative Services Arlene Stewart, Transition Program, Division of Vocational Rehabilitation Services Linda Voorhees, Educator, National Head Injury Foundation James Wilson, Director, Division of Services for Deaf and Hard of Hearing NORTH DAKOTA Myrt Armstrong, Executive Director, North Dakota Mental Health Association Barbara C. Braun, Director, Protection and Advocacy for Developmental Disabilities Karen Chilson, Executive Director, Head Injury Association of North Dakota Kathryn Erickson, Pathfinder Parent Training and Information Center Myles Erickson, Coordinator of Outreach Services, Dakota Center for Independent Living Darrell Farland, Executive Director, Governor's Committee on Employment of People with Disabilities Wanda Gier, ADA State Coordinator, Vocational Rehabilitation Gene Hysjulien, Executive Director, Department of Vocational Rehabilitation, State Board of Social Services James Johnson, President, North Dakota Association of the Deaf David Kemnitz, President, North Dakota AFL-CIO Kevin Kolbo, Board Member, North Dakota Association of the Blind Bob O'Keefe, Executive Director, North Dakota Alliance for the Mentally Ill Carol Riels, Chair, MHCA of North Dakota Tom Wallner, Director, North Dakota Developmental Disabilities Council Joy Wezelman, President, The ARC of North Dakota OHIO Frank Anderson, Government Relations Director, Ohio Paralyzed Veterans of America Tom Bell, Worker Compensation Representative, AFL-CIO of Ohio Renee Bostick, President, National Association for Rights, Protection and Advocacy Margaret M. Burley, Executive Director, Ohio Coalition for Education and Rehabilitative Services Ken Campbell, Executive Director, Ohio Developmental Disabilities Council Mary Lynne Capelletti, Executive Director, Alliance for the Mentally Ill of Ohio Barbara Corner, Vice President, Ohio Council of the Blind Eric Duffy, Client Advocate, Client Assistance Program Ray Ferguson, Executive Director, The ARC of Ohio J. Bradley Garner, President, Ohio Association for Persons with Severe Handicaps Cathy Heizman, Executive Director, Child Advocacy Center Janet Jodowski, Executive Director, Learning Disabilities Association of Ohio Karla Lortz, Executive Secretary, Ohio Governor's Council on Disabled Persons Suzanne Minnich, Executive Director, The Ohio Head Injury Association Beverlee Rackett, Executive Director, MOBIL Mike Repas, Executive Director, Ohio Deaf Services Center John Simpson, Executive Director, Mental Health Association in Ohio Betty Sugarman, Program Director, Ohio Easter Seal Society Anna Ward, AIDS Advocate OKLAHOMA Frank Bagley, President, Oklahoma Association of the Deaf Mike Brose, Executive Director, Mental Health Association of Tulsa Pat Burns, Director, Oklahoma Planning Council on Developmental Disabilities Bill Donovan, President, National Head Injury Foundation, Oklahoma Affiliate Jo Hill, Director, Consumer Coordination Council Jean Jones, Disability Program Specialist, Client Assistance Program Helen Kutz, Director, Client Assistance Program, Office of Handicapped Concerns George Lamb, Technical Assistance Specialist, ADA, Governor's Committee on Employment of the Handicapped George B. Lewis, Chairman, Mayor's Committee on Employment of the Handicapped Anna McBride, State President, Oklahoma Alliance for the Mentally Ill Lee McGough, Vice-Chairman, Governor's Committee on Employment of the Handicapped Debra Murphy, President, Learning Disabilities Association of Oklahoma Steve Novick, Director, Oklahoma Disability Law Center Judy Pool, Chairperson, Oklahoma Council of the Blind Jim Rankin, Executive Director, United Cerebral Palsy of Oklahoma Jerry Sell, Executive Director, Paralyzed Veterans of America Steven Stokes, Director, Governor's Committee on Employment of the Handicapped Brook Tarbel, Chairman, Metropolitan Tulsa Transit Authority Sharon Tonseth, President, Oklahoma Head Injury Foundatioin Mike Ward, Director, Oklahoma Independent Living Ross J. Williams, President, Oklahoma State AFL-CIO OREGON Charlotte Duncan, Executive Director, Developmental Disabilities Council William Hoar, Business Center Robert Joondeth, Executive Director, Oregon Advocacy Center Patty McKelvey, Executive Director, ACCESS Oregon Carla McQuillan, President, National Federation of the Blind of Oregon Sandra J. Millius, Executive Director, Mental Health Association of Oregon Eugene Organ, Executive Director, Oregon Commission for the Handicapped Kristi Schaefer, Board Chair, Oregon Head Injury Foundation Garrett Smith, President, Mind Empowered, Inc. Joil A. Southwell, Administrator, Division of Vocational Rehabilitation, Department of Human Resources Bertha Spinning, President, People First of Oregon Janna Starr, The ARC of Oregon Bill Templeman, Director, Alan Collins AIDS Project Tina Treasure, Executive Director, Spokes Unlimited Glenn VanCise, Program Director, Central Oregon Resources for Independent Living Eleanor Whissen, Director, Epilepsy Foundation PENNSYLVANIA Lynda Anthony, Program Director, Pennsylvania Coalition of Citizens with Disabilities Marsha Blanco, Executive Director, The ARC of Allegheny William Burke, Service Officer, Paralyzed Veterans of America Kevin T. Casey, Executive Director, Pennsylvania Protection and Advocacy, Inc. J. Benedict Centifanti, National Mental Health Consumer Association Judith Cohen, Executive Director, National Multiple Sclerosis Society Al Condeluci, Executive Director, United Cerebral Palsy Association of Pittsburgh Linda Dickerson, Publisher and President, Executive Report David Dinich, Executive Director, Pennsylvania Alliance for the Mentally Ill Bob Edwards, Rehabilitation Specialist, United Cerebral Palsy of Pittsburgh David A. Engel, Administrative Assistant, Allegheny County Joe Geiger, Executive Director, Keystone State Head Injury Foundation Don Hahn, Grants Manager, Pennsylvania Developmental Disabilities Planning Council Pat Halpin-Murphy, ADA Director, Governor's Office Judy Heh, Executive Vice President, Pennsylvania AFL-CIO Leslye Hess Herrmann, Assistant ADA Director, Governor's Office Ollie Jordan, Director, Mayor's Commission on People with Disabilities Pete Kennedy, Director, Community Services, National Multiple Sclerosis Society Kathleen Kleinmann, President, Pennsylvania Council on Independent Living Tim Knoster, President, Pennsylvania Association for Persons with Severe Handicaps Patti Marino, Community Relations Director, The ARC of Allegheny Carl Marshall, Administrator, Governor's Committee on Employment of People with Disabilities Robert E. Michaels, Executive Director, Resources for Living Independently Center Bob Mochan, Director of Advocacy, The ARC of Allegheny Ken Oakes, President, Coalition of People with Disabilities Carl F. Odhner, Executive Director, Lehigh Valley Center for Independent Living Ralph N. Pacinelli, Regional Commissioner, Rehabilitation Services Administratio n, US Department of Education Stephen S. Pennington, Statewide Director, Client Assistance Program Elizabeth Pollard, President, Pennsylvania Society for the Advancement of the Deaf Mabel Reese, Former President, Blindness/Visual Services Lynda Richman, Manager, Resources for Living Independently Center Debra Robinson, President, Speaking for Ourselves Joseph Rogers, Director, National Mental Health Consumer Self Help Clearing House Joe Scullin, Director, United Cerebral Palsy Association of Philadelphia and Vicinity Gil Selders, Director, Bureau of Vocational Rehabilitation Ilene W. Shane, Executive Director, Disabilities Law Project Sigi A. Shapiro, Coordinator of Disability Studies, Institute on Disabilities, Temple University Stephen A. Sheridan, Executive Director, United Cerebral Palsy Association of Philadelphia and Vicinity D. J. Stemmler, Director, Center for Independent Living of Southwestern Pennsylvania Connie Tarr, Consultant, Universal Accessibility Design Disability Issues Sheri Wilson, Associate Advocate, Eastern Pennsylvania Paralyzed Veterans Association PUERTO RICO Ester Caro, Director, Cemecav Employment Center Adela Costa, Director, Special Education Services David Cruz, Ombudsman, Office of the Ombudsman for Disabled Persons Mildred De Velazquez, President, Learning Disabilities Association of Puerto Rico Gelitza Falero, Director, Puerto Rico Epilepsy Foundation Gloria Fragoso, President, Asociacion Puertoriquena Por Ciegos Louisa Station Heidi Garcia, Director, Association of People with Disabilities of San German Nilela Goncalec, Executive Director, Easter Seal Society of Puerto Rico Dorcas Hernandez, State Coordinator, Supported Employment Program, Vocational Rehabilitation Hilda Rosa Kairuz, Executive Director, Training and Education New Horizon Center Maria Laguna, Acting Director, Developmental Disabilities Council Nayda Negron, President, Association of Retarded Citizens of Puerto Rico Eliam Olliveras, Assistant Secretary, Vocational Rehabilitation Program, Department of Social Services Rolando Ramos, Director, Independent Living Center Mive Maria Romero, Parent Trainer, Asociacion de Padres Por Bienestar de Ninos Impedidos de Peurto Rico Jose Santana, Advocate, Graduate School of Special Education of Puerto Rico Alfred Virellas, Service Officer, Paralyzed Veterans of America RHODE ISLAND Ray Bandusky, Executive Director, Rhode Island Protection and Advocacy System, Inc. Sharon Brinkworth, President, Rhode Island Head Injury Foundation Marie Cirtone, Rhode Island Developmental Disabilities Council Don Deignan, President, United Cerebral Palsy Bill Emmett, Executive Director, Alliance for the Mentally Ill of Rhode Island Bob Geller, DRIVE Sue Hamilton, President, Rhode Island Regional Council of the Blind and Visually Impaired James Healey, The ARC of Rhode Island Nancy Husted-Jensen, Chairperson, Governor's Commission on the Handicapped Mary Lomastro, Board Member, Rhode Island Association of the Deaf Bill A. Messore, Acting Administrator, Vocational Rehabilitation Department of Human Services Barbara Myron, Co-Chair, CCSA Paul Pickens, President, Vocational Resources Gregory Solas, Advocate Noma Veresko, President, Learning Disabilities Association of Rhode Island SOUTH CAROLINA Bruce Bertram, Representative, Head Injury Survivors of South Carolina Al Corbett, University of South Carolina, College of Business Joseph S. Dusenbury, Commissioner, Department of Vocational Rehabilitation Betty Easler, Director, South Carolina Developmental Disabilities Council Donald Gist, Commissioner, Commission for the Blind Eddie E. Glenn, Assistant Professor, South Carolina State College Pam Goodman, Executive Director, South Carolina Share J. Charlie McKinney, Executive Director, South Carolina Association of the Deaf Charles McLafferty, Executive Director, South Carolina Head Injury Foundation Rebecca Miles, Executive Director, Mental Health Association of South Carolina Louise R. Ravenel, Executive Director, South Carolina Protection and Advocacy System for the Handicapped, Inc. Vince Rhodes, Executive Secretary, Governor's Committee on Employment of the Handicapped Mary Tichenor, Executive Director, South Carolina Alliance for the Mentally Ill Hughey Walker, Chairman, Georgetown County Council SOUTH DAKOTA Charlie Anderson, Executive Director, Govenor's Planning Council on Developmental Disabilities Mary Baumiester, Deputy Executive Director, South Dakota Association for Persons with Severe Handicaps Deb Boman, Director, Division of Developmental Disabilities Margot Burton, Chairperson, Governor's Advisory Committee on Employment of People with Disabilities Casey Davidson, ADA Coordinator, Prairie Freedom Center for Independent Living Monica Degen, Project Director, South Dakota Parent Connection, Inc. John Ellefson, District Supervisor, Department of Vocational Rehabilitation Rochelle Folley, President, South Dakota Association for the Blind Jim Johnson, President, South Dakota Coalition of Citizens with Disabilities Robert J. Kean, Executive Director, South Dakota Advocacy Project, Inc. Grady Kickul, Director, Services for the Visually Impaired Gaye Mattke, Assistant Director, Services for the Visually Impaired Karen Mayry, President, South Dakota Board of Services to the Blind and Visually Impaired David L. Miller, Director, Division of Rehabilitation Services Randy Morris, Executive Director, South Dakota Association for Persons with Severe Handicaps Joel Niemier, Member, South Dakota Paralyzed Veterans of America Dennis E. Schmitz, Executive Director, Prairie Freedom Center for Disabled Independence Clete Sehr, Chairperson, Sioux Falls Mayor's Committee Jane Souhrada, President, South Dakota Association of the Deaf Ben Soukup, President, National Association of the Deaf John Stengle, Director, The ARC of South Dakota Rae Unzicker, Coordinator, National Association of Psychiatric Survivors Donna Yocom, Executive Director, South Dakota Alliance for the Mentally Ill TENNESSEE Roger Blue, Director, The ARC of Tennessee William L. Byrne, President, Learning Disabilities Association of Tennessee Diane Coleman, ADAPT of Tennessee Tim Craven, Citizen/Advocate Deborah Cunningham, Memphis Center for Independent Living Patricia Farmer, Executive Director, Governor's Committee on Employment of People with Disabilities Catherine Fletcher, Program Development Manager, Siskin Hospital Michael Gibson, Executive Director, TRAC and TRAIL Jerry Goley, Service Officer, Paralyzed Veterans of America Bobby Greer, Professor, Memphis State University Jim Hagy, President, Tennessee Head Injury Association Joyce Judge, Executive Director, Tennessee Alliance for the Mentally Ill Janet Kidd, Director, Nashville Independent Living Center Wendy Kurland, People First of Tennessee, Inc. Patsy J. Mathews, Assistant Commissioner, Division of Vocational Rehabilitation, Department of Human Services Carol Westlake, Director, Coalition for Tennesseans with Disabilities Wanda Willis, Director, Developmental Disabilities Planning Council TEXAS Teresa Adams, Administrative Assistant, Lonestar Paralyzed Veterans of Americans Andy Alexander, Staff, Governor's Committeee on Employment of People with Disabilities Judy Baker, Executive Director, Panhandle Action Center for Independent Living Skills Bernie L. Cantu, Deputy Regional Administrator, City of San Antonio Planning Department Belinda Carlton, Executive Director, Coalition of Texans with Disabilities Mary Deese, FAIR Coordinator, Mental Health Association of Texas Melanie Gall, Executive Director, Consumer Advantage Liaison Jerry Hassell, Advocate Sherry Hurst, Chair, Lubboch Mayor's Committee James L. Jackson, Executive Deputy Commissioner, Texas Rehabilitation Commission David Leiker, Executive Director, Texas Mental Health Consumers Stella Mullins, Executive Director, Mental Health Association of Texas Homberto Orozoto, Coordinator, Independent Living Rural Minority Outreach Valley Association Carolyn Parker, Executive Director, Texas AIDS Network Shorty Powers, President, POINT Michael Quigley, Executive Editor, Handicapped Travel Newsletter Angel Ramos, President, National Hispanic Council of the Deaf and Hard of Hearing Virginia Roberts, Executive Director, Governor's Committee on Employment of People with Disabilities Ralph D. Rouse, Director, Department of Health and Human Services David Vanderhee, Executive Director, Valley Area Independent Living Robert Vargas, Executive Director, United Cerebral Palsy of Metropolitan Dallas, Inc. Pat D. Westbrook, Executive Director, Commission for the Blind Ralph White, Executive Director, Texas Commission of the Deaf and Hard of Hearing UTAH Carole Barton, President, Utah Alliance for the Mentally Ill Ray Behle, Executive Director, The ARC of Utah Celeste Bowers-Irons, Executive Director, Utah Alliance for the Mentally Ill Marvin G. Fifield, Chair, Hatch Committee on Disabilities Issues, Utah State University Phyllis Geldzahler, Executive Director, Legal Center for the Handicapped Abe Guss, Chairman, Governor's Committee on Employment of the Handicapped Julie Hightower, Director, Utah Association for Persons with Severe Handicaps Grant Mack, President, Utah Council of the Blind Blaine Peterson, Executive Director, Utah State Office of Rehabilitation Eva Pickering, President, Learning Disabilities Association of Utah John Pinter, President, Easter Seal Society of Utah, Inc. Helen W. Post, Executive Director, Utah Parent Center Sherry L. Repscher, Executive Director, Governor's Committee on Employment of People with Disabilities Barbara Rex, Grants Coordinator, Utah Council for People with Disabilities Helen C. Roth, Executive Director, Options for Independence Linda Smith, Coalition Director, Coalition for People with Disabilities Richard Starley, Placement Specialist, Career Action Center Donna Suter, Study Project Director, At Risk and Special Education Services Barbara Toomer, Member ADAPT, Disabilities Rights Action Committee Gary Utt, Acting Chairman, Governor's Council on Disabilities Rick Zaharia, Director, Division of Services to People with Disabilities VERMONT Susan Atkinson, Co-Coordinator, Vemont Psychiatric Survivors Barry Bernstein, Executive Director, Vermont Independent Living Center Emmie Burke, Executive Director, Vermont National Head Injury Foundation Norman Case, President, Vermont Council of the Blind Glenna Copeland, Co-Chairperson, Governor's Committee on Employment of People with Disabilities Ben Coplan, Executive Director, Alliance for the Mentally Ill of Vermont Connie Curtin, Executive Director, Vermont Information and Training Network Diane Dalmasse, Director, Vocational Rehabilitation James Dooley, Clinician, Veteran's Affairs Rick Durgin, Vermont Center for Independent Living Paul Engels, Past President, National Mental Health Consumers' Association Tom Frank, President, Coalition for Disability Rights Steve Graci, Director, Vermont Advocacy Network Zeke Hanzl, President, Triad Services Susan Hasazi, University of Vermont Ann Holmblad, Recreation Program Coordinator, United Cerebral Palsy Association, Inc. Deborah Lisi, Executive Director, Vermont Protection and Advocacy System, Inc. Donna McCullough, Co-Chair, People with AIDS Coalition of Vermont David M. Mentasti, Director, Department of Social and Rehabilitation Services Renee Pavlus, President, Vermont Federation of the Blind Thomas A. Pombar, Liaison, Governor's Committee on Employment of People with Disabilities David Sagi, Coordinator, ADA Implementation Project, Vermont Department of Aging and Disabilities Jean Shiner, Assistive Technology Recycling Project Joan Sylvester, Executive Director, The ARC of Vermont Roch Thibodeau, Vermont Alliance for the Mentally Ill Christina Thurston, Learning Disabilities Association of Vermont Kevin Veller, Executive Director, Vermont Association of Business and Industry Rehabilitation Randy Wagoner, ADA Training and Implementation Network VIRGINIA Tom Bass, President, Learning Disabilities Association of Virginia Susan Bischoff, Executive Director, Epilepsy Foundation of Virginia Donald L. Cox, Commissioner, Department for the Visually Handicapped Bev Fleming, President, Virginia Alliance for the Mentally Ill Laurie Flynn, Executive Director, The National Alliance for the Mentally Ill Maureen Hollowell, Project ACT Coordinator, Endependence Center, Inc. Ann Marie Hughey, Executive Director, National Council on Independent Living Center Steve Johnson, Director, Endependence Center, Inc. Christine Lord, Director of Government Relations, National Center for Learning Disabilities Kathleen Megivern, Executive Director, Association for Education & Rehabilitatio n of the Blind & Visually Impaired Theresa Preda, Independent Living Coordinator, Department of Rehabilitative Services Sandra K. Reen, Director, Virginia Board for the Rights of People with Disabilities James Rothrock, Director, Department for Rights of Virginians with Disabilities John Ward, Senior Benefits Advocate, Paralyzed Veterans of America Paul Wehman, Professor of Physical Medicine and Rehabilitation, RRTC, Virginia Commonwealth University Betty Willeford, Executive Director, VMHCA VIRGIN ISLANDS Camille Ayala, Director, Committee on Advocacy for the Developmentally Disabled, Inc. Sedonie Halbert, Chairperson, Department of Human Services, Disability and Rehabilitative Services Delma Jackson, Project Director, Division of Mental Health Laurent Javois, Director, Division of Mental Health Carri Johns, State Supervisor, Vocational Special Education and Transition Gwendylynn Powell, Executive Director, Work Able, Inc. Irene Rithgeb, Program Coordinator, Virgin Islands Association for Independent Living Priscilla Stridiron, State Director, Virgin Islands Department of Education, Special Education WASHINGTON Babara Allen, Executive Director, Easter Seal Society of Washington Sue Ammeter, Chairperson, Governor's Committee on Disability Issues and Employment Carol Bonson, Self-Advocate, People First of Washington Debbie Cook, Program Manager, Assistive Technology Department Services for the Blind Arlene Engel, Chairperson, State Mental Health Advisory Board Rose Mary Galliger, Staff Director, Washington Independent Living Council Laurel Jones, Executive Director, Learning Disabilities Association of Washington Charles Karcvewski, Chapter President, Northwest Chapter Paralyzed Veterans of America Sherri Kerns, Executive Director, Epilepsy Foundation of Western Washington Dona Lawrey, Executive Director, People First of Washington Cecil Lindquist, Admissions Director, Child Development and Mental Retardation Center Lori Magnuson, Rehabilitation Coordinator, Client Assistance Program Huss Malik, Manager of Employment Services, Department of Social & Health Services, Mental Health Division Mel Mangum, Vice Chair, Governor's Committee on Disability Issues and Employment Jeanne Munro, Director, Division of Vocational Rehabilitation, Department of Social and Health Services Toby Olson, Executive Secretary, Governor's Committee on Disability Issues and Employment Elenor Owen, Director, Washington Alliance for the Mentally Ill Tony Screws, Executive Director, Washington State Head Injury Foundation Mark Stroh, Executive Director, Washington Protection and Advocacy System Mary Jo Wilcox, President, Washington Assembly for Citizens with Disabilities Paul J. Wysocki, Former Chair of Governor's Committee, Seattle Human Rights Department WEST VIRGINIA Hubert Anderson, Executive Director, West Virginia Commission for the Hearing Impaired Susan Edwards, Director, Client Assistance Program for West Virginia Advocates Ninetta Garner, President, Mountain State Council of the Blind Barbara Judy, Project Manager, Job Accommodation Network Judy Krull, Director, West Virginia Alliance for the Mentally Ill Jan Lilly, Huntington Center for Independent Living Carolyn J. Nelson, Executive Director, West Virginia Alliance for the Mentally Ill Sally Nemeth, Advocate Barbara O'Donnell, President, Learning Disabilities Association of West Virginia Michael A. Oliverio, Rehabilitation Administrator, West Virginia Division of Rehabilitation Services John M. Panza, Director, Division of Vocational Rehabilitation Services, State Board of Vocational Education Alice Vandelinde, Interim Director, West Virginia Advocates Anne O. Weeks, Executive Director, Huntington Center for Independent Living Dorothy Whitehurst, Executive Director, Mental Health Association of West Virginia WISCONSIN William Bertram, President, Badger Association of the Blind Joanna Boey, President, Wisconsin Brain Trauma Association Lou Brown, Professor, Special Education , University of Wisconsin at Madison Dorothy Calcott, President, Wisconsin Brain Trauma Association Bob Diest, President, Wisconsin Independent Living Center Mary Eft, Planning Analyst, Wisconsin Vocational Rehabilitation Cleo Eliason, Director, Easter Seal Society of Wisconsin Elise Frattura Kampschroer, Wisconsin Association for Persons with Severe Handicaps Tom Hlavacek, Director, Wisconsin Coalition for Advocacy Patrick Irick, Advocate Dan C. Johnson, Director, Office for Persons with Physical Disabilities, Deparment of Health and Human Services Tim Murray, Service Officer, Paralyzed Veterans of America Jon A. Nelson, Executive Director, The ARC of Wisconsin Judy Norman-Nunnery, Administrator, Division of Vocational Rehabilitation, Division of Health & Social Services John Nousaine, Director, North County Independent Living Jennifer Ondrejka, Executive Director, Alliance for the Mentally Ill of Wisconsin Dick Pomo, Disabilities Rights Coordinator, Department of Administration Gus Sorenson, Director, Paralyzed Veterans of America of Wisconsin Jayn Wittenmyer, Executive Director, Wisconsin Council on Developmental Disabilities Paul A. Yochum, Executive Director, Governor's Committee on Employment of People with Disabilities WYOMING Woody Absher, Program Manager, Governor's Committee on Employment of the Handicapped Scott Bergey, Executive Director, The ARC of Wyoming Bob Bricher, Chairman, Cody Mayor's Committee Barbara Bumgardner, Chair, National Association of the Deaf Tammy Carney, Chair, National Federation of the Blind of Wyoming Gary W. Child, Administrator, Wyoming Department of Vocational Rehabilitation Marion Cotterman, Director, Division of Vocational Rehabilitation Dennis Fransted, Executive Director, Wyoming Alliance for the Mentally Ill Jeanne Kawcak-Phobro, Executive Director, Protection and Advocacy System, Inc. Judi Kluever, Director, Wyoming Easter Seal Society Darlo Koldenhoven, Program Consultant, Independent Living Center Leslie Lanham, Executive Director, Wyoming Head Injury Association Dick Patterson, Chairman, Mayor's Council Margaret Salisbury, Executive Director, National Multiple Sclerosis Society, Wyoming Chapter Dan Shatto, ADA Coordinator, Town of Lander Wyoming Carolyn B. Simkins, Director, Wyoming Polio Survivors Network 28 March 1994 The President The White House Washington, DC 20500 Dear Mr. President: Enclosed please find our report -- Operation People First: Toward a National Disability Policy. The project was undertaken in the spirit of your Presidency, that of bringing all of the American people, including people with disabilities, into the decision-making process of government and that of putting people first. It was conducted by the previous Chairman, Justin Dart, and the staff of the President's Committee on Employment of People with Disabilities. This report provides you, and the nation, findings and recommendations toward the development of a national disability policy. It is based on over 60 teleconference meetings with more than 1,000 disability-community leaders in all states and territories. I concur with the report's findings and recommendations. As a result of this project, we have determined the need for a cohesive national policy on disability. The nation lacks coordinated and comprehensive policy and law which are consistent with and supportive of the intent of the Americans with Disabilities Act and which bring people with disabilities into the political, economic and social mainstream of our culture. The development of a national disability policy would come at a unique time in our nation's history. The ADA provides the legal framework for achieving equality and empowerment for America's 49 million citizens with physical and mental disabilities. Coordinated policy and programs consistent with the purposes of ADA would establish the foundation on which individuals with disabilities can build in reordering our society from one which fosters exclusion, dependence and paternalism to one which promotes inclusion, independence and empowerment. Operation People First: Toward a National Disability Policy is an important step forward in this journey. It is important not just for the recommendations it provides and the national leadership network it creates, but also for the process through which it was developed. All factions of the disability community were invited to participate, including representatives from frequently excluded groups like psychiatric and head-injury survivors and people labelled mentally retarded. All were represented. All spoke. All were listened to with attention, consideration and respect. We did more in our teleconferences than talk about inclusion; we practiced it. Operation People First: Toward a National Disability Policy provided a forum for over a 1,000 disability leaders in the 50 states and territories to meet. They identified and discussed key issues. They represented the views of their organizations and constituencies in a dialogue designed to shape public policy on matters of critical importance to them. Our teleconferences across the country created a national network which now numbers over 6,000 disability leaders. The President's Committee activated this national network on the single most important issue facing people with disabilities -- health care reform -- by holding a nationwide teleconference call on November 22, 1993 to explain the implications for people with disabilities of your health care proposals. As with health care, we will continue to focus on issues and policy in a way that will build the bridge to financial independence through employment for people with disabilities. Operation People First: Toward a National Disability Policy represents the beginning of what will be, and must be, an ongoing commitment to change. We have identified what we need to do. Now we need to do it. Respectfully submitted, Tony Coelho Chairman