Social Security... If You Are Blind How We Can help What's Inside Part 1--General Information Two Disability Programs What Do We Mean By Blind Are You Eligible For Social Security Disability Benefits? Are You Eligible For SSI Disability Benefits? How To Get A Faster Decision On Your Claim Evaluating Your Medical Condition Part 2--What Happens When You Work While Receiving Benefits Working While Receiving Social Security Benefits An Example Of How Social Security Work Incentives Can Help You Working While Receiving Supplemental Security Income Benefits An Example of How SSI Work Incentives Can Help You Part 3--Special Services For People Who Are Blind Social Security Letters Radio Reading Service Library of Congress Talking Book And Braille Booklet Audio Cassette On Work Incentives Publications Available in Braille Social Security s Toll-Free Number 1-800-772-1213 Note: This publication is also available in braille and on cassette tape. Part 1--General Information If you are blind, there are a number of Social Security rules you should know about. Some of the rules apply only to people who are blind, while others apply to nonblind persons as well. But they're important to know because they can help you qualify for Social Security or Supplemental Security Income (SSI). Once you're getting benefits, they can help supplement your monthly payments and increase your chances of getting back to work on a regular basis or entering the workplace for the first time. In fact, many of the special rules are designed specifically to make it easier for people who are blind to work. This leaflet will help you understand the rules so you can use them to help meet your life goals. We also identify those services that are available to help you get the most out of the Social Security and SSI programs. Two Disability Programs You should start by understanding the difference between Social Security and SSI and how they work together to provide a floor of income protection for people with disabilities. You can qualify for Social Security if you have enough prior work. You qualify for SSI payments if your income and resources, even with Social Security benefits, fall below certain limits. The medical rules we use to decide if you qualify for benefits because of blindness are the same under both programs. However, other rules are different under each program. For this reason, this booklet is generally divided into Social Security and SSI sections to clarify the different rules. What Do We Mean By "Blind" You also should know the medical definition of blindness under Social Security. You are considered blind under Social Security rules if your vision cannot be corrected to better than 20/200 in your better eye, or if your visual field is 20 degrees or less, even with corrective lens. Many people who meet the legal definition of blindness still have some sight and may be able to read large print and get around without a cane or guide dog. If you do not meet the legal definition of blindness, you still may qualify for benefits if your vision problems coupled with other health problems prevent you from doing substantial work. Are You Eligible For Social Security Disability Benefits? To qualify for Social Security disability benefits, you must have worked long enough in a job where you paid Social Security taxes. Or, you must be the disabled child or disabled widow(er) of somebody who did. When you work, you earn "credits"--up to four per year--that count toward future Social Security benefits. The number of credits you need depends on your age at the time you are determined to be disabled by blindness. As a general rule, you must have credits equal to the number of years after 1950, or age 21 if later, up to the year you are determined to be disabled based on blindness. Blind persons under 28 need no more than six credits of work. If you become legally blind at age 41, you need 20 credits. Nobody needs more than 40 credits. Nonblind people must meet another requirement. They must have earned half of the credits they need in recent years. For example, people over 31 must have earned 20 credits during the past 10 years. If you are blind, you do not have to meet this recent work rule. Your credits can be earned anytime during your working years. Credits for your work after you become blind can be used to qualify for benefits if you do not have enough credits at the time you become blind. Even if you are working regularly, you might want to file for a Social Security disability "freeze" if you meet the legal definition of blindness. Under this procedure, you won't get benefits now, but your benefits will be higher if you do become eligible later. Are You Eligible For SSI Disability Benefits? Regardless of whether you have enough work credits to qualify for Social Security, you may qualify for SSI disability benefits. To get SSI, you need not have worked under Social Security, but your income and resources must be under certain limits. The income limits vary from one state to another. For more information about SSI, ask your Social Security office about the income limits in your area and for a copy of the booklet SSI (Publication No. 05-11000). This booklet is also available in braille from Social Security offices and as part of a talking book from the Library of Congress. How To Get A Faster Decision On Your Claim You should apply at any Social Security office as soon as you become disabled. (You may file by phone, mail, or by visiting the nearest office.) The claims process for disability benefits is generally longer than for other types of Social Security benefits--from 60 to 90 days. It takes longer to obtain medical information and to assess the nature of the disability in terms of your ability to work. However, you can help shorten the process by bringing certain documents with you when you apply. These include: * Medical records from your doctors, therapists, hospitals, clinics, and caseworkers. * The Social Security number and proof of age for each person applying for payments. This includes your spouse and children, if they are applying for benefits. * Names, addresses, and phone numbers of doctors, hospitals, clinics, and institutions that treated you and dates of treatment. * A summary of where you worked in the past 15 years and the kind of work you did. * A copy of your W-2 Form (Wage and Tax Statement), or if you are self-employed, your federal tax return for the past year. * Dates of any prior marriages if your spouse is applying. Your Social Security disability benefits will not begin to arrive until the sixth full month of the disability. This "waiting period" begins with the first full month after the date we decide your disability began. If you are applying for SSI, you also need to bring with you information about your living arrangements such as the name of your mortgage company or a copy of your lease with your landlord's name; and information about your income and the things you own, such as payroll slips, bank books, insurance policies, car registration, and burial fund records. Your SSI disability check can be paid back to the date you filed your claim. Do not delay filing for benefits just because you do not have all of the information you need. The Social Security office will be glad to help you. Evaluating Your Medical Condition You should be familiar with the process we use to decide if you are legally blind or otherwise disabled. After the Social Security office reviews your claim to make sure you meet the non-medical rules, your application goes to a state disability determination service (DDS) where the medical evaluation takes place. In the DDS, a team consisting of a physician and a disability evaluation specialist will decide if you are legally blind. This generally means reviewing medical evidence from your doctors or the hospitals, clinics, or institutions where you have been treated. If this information is not available or incomplete, you may be asked to see a doctor for an examination which we will pay for. Once we decide that you are legally blind, we will notify you that your claim has been approved. If you do not meet Social Security's definition of blindness, then we decide if your visual impairment, plus any other impairment you may have, prevents you from doing the work you did in the last 15 years. If it does not, your claim will be denied. If it does, we look to see if you can do any other type of work. We consider your age, education, past work experience, and transferable skills. If you cannot do any other kind of work, your claim will be approved. Part 2--What Happens When You Work While Receiving Benefits A number of rules make it easier for persons receiving disability benefits to work and supplement their benefits and eventually work full time. The provisions are called "work incentives." While these rules in general are not geared solely to persons who are blind, they do provide a means for persons who are blind to increase their income and work their way off the disability rolls. The Social Security and SSI work incentives are different but they are designed to accomplish the same objectives: to continue cash benefits until you are earning enough to get by on your own; to continue health care assistance (Medicare and/or Medicaid) even when earnings are too high to allow cash payments; to exclude from earnings the cost of extra work expenses caused by your disability; and to help with rehabilitation and finding new work. We will briefly explain each of these special rules and provide an example of how they work under both Social Security and SSI. For more information on these provisions, you should ask for the booklet "Working While Disabled--How We Can Help" (Publication No. 05-10095). This booklet is available in braille from Social Security. A more detailed and technical explanation of work incentives is available in the publication "A Summary Guide to Social Security and Supplemental Security Income Work Incentives for People With Disabilities" (Publication No. 64-030).This booklet is available in braille and on cassette tape from Social Security. Working While Receiving Social Security Benefits People getting Social Security disability benefits can continue to receive their benefits when they return to work as long as their earnings are not "substantial." You Can Earn More Under the Social Security disability program, persons who are blind can earn up to $960 a month in 1996 before their work is considered "substantial." This is higher than the substantial work level of $500 a month that applies to nonblind disabled workers. The level of earnings a person who is blind can earn changes each year to reflect changes in general wage levels. If you're blind and self-employed, the $960 level becomes the sole measure of substantial work. We do not make a separate evaluation of the time you spend in the business as we do for nonblind beneficiaries. This means you can be doing a lot of work for your business but still receive disability benefits as long as your net profit averages $960 or less a month in 1996. Work Figured Differently After 55 If you are 55 or older, we figure your ability to perform substantial work differently. After age 55, even if your earnings exceed $960 a month in 1996, benefits are only suspended, not terminated, if your work requires a lower level of skill and ability than what you did before age 55. Thus, eligibility for Social Security benefits may continue indefinitely and benefits may be paid for any month your earnings fall below the substantial level. The Trial Work Period A trial work period provides a beneficiary up to nine months to test his or her ability to work and earn any amount without fear of losing benefits. The nine months need not be consecutive, and the trial work period does not end until nine months are used within a 60-month period. After the trial work period, your benefits will continue if your earnings are $960 or less a month in 1996. If your earnings exceed $960, benefits continue for three more months and then stop. If you are 55 or older, the trial work period rules may affect you differently. You should contact your local Social Security office if you have any further questions. The Extended Period Of Eligibility For 36 months after a successful trial work period, your Social Security benefits may be reinstated without a new application for any month your earnings drop to $960 or below. Impairment-Related Work Expenses Rule This rule permits you to deduct impairment-related work expenses resulting from your blindness (such as the expense of paying for a sighted reader) from your income before we decide if it is substantial. Continuation Of Medicare Coverage This rule removes the fear of losing health care benefits due to work by continuing Medicare's premium-free hospital insurance coverage for at least 39 months after the end of the trial work period. Medicare Coverage For Disabled People Who Work At the end of the 39-month period, people who continue to have a disability and who lose Medicare hospital insurance coverage because earnings are substantial are permitted to purchase Medicare hospital and medical insurance coverage. Continued Payment Under An Approved Rehabilitation Program Despite Medical Recovery Ordinarily, benefits stop when a person shows sufficient medical improvement. Under this rule, benefits may continue after medical recovery if the person is participating in an approved vocational rehabilitation program whose services are likely to enable the person to work permanently. A person involved in such a program who had a successful eye operation, for example, could continue to receive benefits and complete the program even though he/she was no longer blind. An Example Of How Social Security Work Incentives Can Help You Cathy Jones is 26 years old and receives $460 each month in Social Security benefits because she is blind. Cathy also has Medicare coverage. In December 1994, Cathy completes a secretarial training course and gets a job in January 1995. She is hired by a local hospital to work 35 hours a week as a medical transcriber trainee. Her starting salary is $750 per month. Cathy reports her work and earnings to the Social Security office and learns that her benefits will continue during her nine-month trial work period regardless of how much she earns. Her monthly $750 in earnings, and her Social Security benefit of $460 increases her income to $1,210. Cathy contacts the Social Security office in September to report that she is completing her ninth trial work period month (September 1995). She also increased her hours to 40 hours per week and has received a pay raise. She is now earning $1,000 per month, which is more than the $940 substantial earnings level allowed for beneficiaries who are blind. However, in evaluating her earnings, it is discovered that Cathy is paying a co-worker $25 a week ($100 a month) to take her to and from work because she does not have access to public transportation. This $100 qualifies as an impairment-related work expense. After subtracting the $100 per month, we find that Cathy has countable earnings of $900 per month which is less than the blind substantial earnings level of $940. Consequently, Cathy's payments continue though she completed her trial work period in September. Her monthly income is $460 plus $1,000 or $1,460. In December 1995, Cathy contacts the Social Security office to let us know that she has received another pay raise because she has been promoted from the trainee position. Her monthly earnings beginning in January 1996 will be $1,200 per month, and her transportation cost (her only impairment-related expense) remains at $100. Cathy's countable income is now $1,100 per month, more than the $960 blind substantial work level for 1996. For this reason, her Social Security disability benefit is stopped as of January 1996, but she will receive her check for three additional months--January, February and March--despite her earnings. If Cathy's earnings drop below the substantial level for any month during a 36-month period beginning October 1995 (the month following the month the trial work period ended), she can be paid her Social Security cash benefit. Additionally, Cathy's Medicare coverage will continue for at least 39 months after the end of her trial work period regardless of her earnings. Working While Receiving Supplemental Security Income Benefits There are different work rules for people receiving SSI. The $960 substantial earnings level does not apply to people receiving SSI. Instead, you are permitted to have earnings until you exceed the SSI income limits, which vary from state to state. As earnings rise, SSI benefits are reduced and eventually stopped. However, not all income is counted and you may earn up to $1,025 a month in 1996 before your SSI stops if there is no income other than earnings. (This figure is higher for people who live in a state that adds money or a state supplement to the SSI payment.) In addition, there are other deductions applied to working SSI recipients under the work incentives rules. The Student Earned Income Exclusion Unmarried persons under age 22 and regularly attending school may exclude up to $400 of earned income per month. The maximum annual exclusion is $1,620. The Earned Income Exclusion This rule means we don't count the first $65 ($85 in some cases) of earnings in a month plus one half of any earnings over $65 ($85) when figuring the SSI payment amount. Blind Work Expenses This rule permits a person who is blind to exclude earned income which is used to meet the expenses of working. The expenses need not be related to blindness. Examples include the portion of a person's earnings used to pay income taxes, meals consumed during work hours, transportation costs, or guide dog expenses. Plans For Achieving Self Support (PASS) A PASS lets you set aside income and/or resources over a reasonable period of time under a plan designed to enable you to become financially self-supporting. The income and resources set aside under a plan do not count against you when we decide if you're eligible for SSI and how much you will get. Property Essential To Self Support This provision allows full or partial exclusion of certain income-producing property necessary for self-support when determining SSI eligibility and payment amount. Continuation Of Medicaid Coverage Under this rule, Medicaid coverage for most working SSI beneficiaries continues even when their earnings become too high to allow an SSI cash payment. Continued Payment Under An Approved Rehabilitation Program Despite Medical Recovery As is true for people receiving Social Security benefits, people receiving SSI may have payments continue even after medical recovery if they are participating in an approved vocational rehabilitation program whose services are likely to enable them to work permanently. An Example Of How SSI Work Incentives Can Help You John Smith is 20 years old and receives SSI payments because he is blind. He receives $470 each month and has Medicaid coverage. In January 1996 John begins working part time during the evenings and on weekends for the veterinarian who cares for his guide dog. John is paid $400 a month to answer the phone, make appointments, and help with the care and feeding of animals boarded at the kennel. John reports his work and earnings to his local Social Security office and reports the following blind work expenses: Transportation to and from work......................$ 45.00 Care and feeding of his guide dog.................... 30.00 Taxes................................................ 35.50 Total blind work expenses............................$110.50 Here is how we calculate John's SSI amount based on his earnings and his blind work expenses: We first subtract $85 from John's earnings. This exclusion applies to anyone who works and has no other income: $400 minus $85 = $315.00 Then we deduct half of the remaining $315: (This exclusion also applies to anyone who works) $315 divided by 2 = $157.50 From this amount, we subtract the $110.50 in blind work expenses: $157.50 minus $110.50 = $47.00 John has $47 in countable income which we subtract from his $470.00 SSI payment, leaving $423.00 $470.00 minus $47.00 = $423.00 This means that, even though John is earning $400 per month, he loses only $47 in SSI payments, and his Medicaid coverage continues. John's monthly income is $823. In late March, John reports to us that his employer has asked him to work longer hours and is also giving him a pay raise. John begins earning $650 per month in April. He tells us that he likes working with animals so much that he would like to go to school to learn to be a dog trainer and groomer. He plans to save $200 per month from his increased earnings so that he will have $1,000 saved to pay for books and tuition by September when the course begins at a local vocational school. We help John to write a plan for achieving self-support (PASS) so that we can exclude $200 per month from the income we must use to figure his SSI payment for the months from April through August. Additionally, John reports that working longer hours and earning more will increase his transportation costs and his taxes. He reports the following blind work expenses beginning with April: Transportation..................$60.00 Expenses for the care and feeding of his guide dog........ 30.00 Taxes........................... 67.50 Total blind work expenses.......$157.50 Here is how we compute John's SSI payment beginning with April: $650 minus $85 (for the earned income exclusion) equals $565. We then exclude half of this amount: $565 divided by 2 = $282.50 From this amount, we subtract John's blind work expenses of $157.50 leaving $125.00 in countable income. $282.50 minus $157.50 = $125.00 Then subtract the $200 that John is setting aside each month under a PASS. $125.50 minus $200 = ZERO Because we were able to deduct so many of his work expenses, we do not have to count any of John's income so he now receives $470, which is the maximum SSI payment he can get in his state. Even though John is earning $250 more each month than he did in January, February, or March, his SSI check will increase from $423 to $470 because he has developed a PASS to allow him to go to school. His Medicaid coverage continues. John's total monthly income beginning in April is $1,120. John begins a four-month course to learn to be a dog groomer and trainer in September of 1996. His PASS ends in August because he has saved $1,000 to pay for books and tuition, but now that John is a student and is under age 22, he can use the student earned income exclusion to reduce his countable income. He can exclude earnings of $400 per month up to a maximum of $1,620 annually. Since he will be in school for only four months in the calendar year, he can use the exclusion for each of these months without exceeding the $1,620 annual maximum. John continues to work for the veterinarian and receives another pay raise which increases his earnings to $750 per month beginning in September. His blind work expenses for transportation and care and feeding of his guide dog are unchanged, but his increased wages cause his taxes to go up $10. His total blind work expenses beginning in September rise from $157.50 to $167.50 per month, including the $10 additional taxes. Here is how we compute John's countable income while he is a student from September through December: From the $750 of earnings, we subtract $400 for the student earned income exclusion: $750 minus $400 =$350.00 We then subtract the $85 income exclusion from this amount: $350 minus $85 = $265.00 We exclude half of this amount: $265 divided by 2 = $132.50 From this amount, we subtract $167.50 in blind work expenses, leaving zero countable income for September through December. $132.50 minus $167.50 = ZERO John continues to receive $470 per month from SSI in addition to his monthly earnings of $750 and his Medicaid coverage continues. John's total monthly income is $1,220. Part 3--Special Services For People Who Are Blind There are a number of services and products specifically designed to ensure that you are able to take advantage of your rights and exercise your responsibilities under the Social Security program. Social Security Letters You have the option of receiving letters and other correspondence from Social Security by certified mail, by telephone, or in person. Just let Social Security know your preference. Radio Reading Service Social Security provides special tapes of its publications to local radio stations that offer reading service for their blind and visually impaired listeners. To find out which stations in your area provide radio reading services, you should call the Social Security office. Library Of Congress (LOC) Talking Book And Braille Booklet The National Library Service for the Blind and Physically Handicapped of the Library of Congress (LOC) has prepared a "talking book" (a cassette recording) and a braille booklet for distribution to LOC's network of 160 libraries across the country. The talking booklet and the braille booklet each contain information about SSA's major programs: Retirement; Survivors; Disability; Medicare; and Supplemental Security Income. To find the LOC branch nearest you, ask your Social Security office or your local library. Audio Cassettes This booklet is available on a cassette tape. Also the booklet, "A Summary Guide to Social Security and Supplemental Security Income Work Incentives for People With Disabilities" (Publication No. 64-030), has been recorded on a cassette tape. This guide is designed to assist professionals in the public and private sectors who work with disabled or visually impaired people. Requests for these tapes should be directed to any Social Security office. Publications Available In Braille This publication is available in braille. The following publications are also available in braille. The first five are booklets that provide an overview of each of the major Social Security related programs. * Retirement Benefits (Publication No. 05-10035) * Survivors Benefits (Publication No. 05-10084) * Disability Benefits (Publication No. 05-10029) * Supplemental Security Income Benefits (SSI) (Publication No. 05-11000) * Medicare (Publication No. 05-10043) * Social Security--Understanding The Benefits (Publication No. 05-10024) A general but comprehensive overview of the Social Security program. * Working While Disabled--How We Can Help (Publication No. 05-10095) A simple explanation of the work incentives under Social Security and SSI for beneficiaries who want to work. * How Social Security Can Help With Vocational Rehabilitation (Publication No. 05-10050) An overview of Social Security's role in helping people with disabilities receive vocational rehabilitation services. * Working While Disabled (Publication No. 05-11017) A guide to plans for achieving self-support (PASS) while receiving SSI. * When You Get Social Security Disability Benefits--What You Need To Know (Publication No. 05-10153) A guide to your rights and responsibilities while receiving Social Security disability benefits. * When You Get SSI--What You Need To Know (Publication No. 05-11011) A guide to your rights and responsibilities while receiving SSI. * A Summary Guide to Social Security And Supplemental Security Income Work Incentives For People With Disabilities (Publication No. 64-030)--Known as the "Redbook," it provides a more detailed and technical explanation of work incentives than the booklet, Working While Disabled--How We Can Help. The Social Security office can order these braille publications for you on request. Social Security Administration SSA Publication No. 05-10052 June 1996 ICN 46255