NATIONAL TOLL-FREE NUMBERS (GR5), Update 1996 __________________ A publication of: NICHCY National Information Center for Children and Youth with Disabilities P.O. Box 1492 Washington, DC 20013 E-mail: nichcy@aed.org Web site: http://www.nichcy.org 1-800-695-0285 (Voice/TT) ____________________ The following is a selected list of toll-free numbers for national organizations concerned with disability and children's issues. Inclusion on this list does not imply endorsement by NICHCY or the Office of Special Education Programs. There are also many national disability organizations providing services and information which do not have toll-free numbers. If you would like additional help in locating assistance contact NICHCY at 1-800-695-0285 (Voice/TTY). Note: Telephone numbers are designated either Voice (V) or Text Telephone (TTY), indicating their accessibility to TTY users. Spanish-language resources are also indicated. AIDS CDC National AIDS Clearinghouse 1(800) 458-5231 (V; English/Spanish) 1(800) 243-7012 (TTY) CDC National AIDS Hotline 1(800) 342-2437 (V) 1(800) 344-7432 (V; Spanish) 1(800) 243-7889 (TTY) Hemophilia and AIDS/HIV Network for Dissemination of Information 1(800) 424-2634 (V) ALCOHOL AND OTHER DRUG ABUSE National Institute on Drug Abuse Helpline 1(800) 662-4357 (V) OSAP National Clearinghouse for Alcohol and Drug Information 1(800) 729-6686 (V) 1(800) 487-4889 (TTY) AMERICANS WITH DISABILITIES ACT (ADA) Disability Rights Education and Defense Fund ADA Technical Assistance Information Line 1(800) 466-4232 (V/TTY) Equal Employment Opportunity Commission 1(800) 669-3362 (V) 1(800) 800-3302 (TTY) Job Accommodation Network 1(800) 526-7234 (V/TTY) 1(800) 232-9675 (V/TTY; ADA Information) U.S. Architectural and Transportation Barriers Compliance Board -- Access Board 1(800) 872-2253 (V) 1(202) 272-5449 (TTY) 1(800) 993-2822 (TTY) U.S. Department of Housing and Urban Development -- HUD User 1(800) 245-2691 (V) ASSISTIVE TECHNOLOGY/DEVICES AbleNet 1(800) 322-0956 (V) Apple Office for Special Education Material 1(800) 732-3131, ext. 950 (V) AT&T Accessible Communications Product Center 1(800) 233-1222 (V) 1(800) 896-9032 (TTY) IBM Special Needs Information Referral Center 1(800) 426-4832 (V) 1(800) 284-4833 (TTY) TECHKNOWLEDGE 1(800) 726-9119 1(404) 894-4960 (V; Atlanta Metro Area) BLINDNESS/VISUAL IMPAIRMENTS American Council of the Blind 1(800) 424-8666 (V/TTY) American Foundation for the Blind 1(800) 232-5463 Blind Children's Center 1(800) 222-3566 (V) 1(800) 222-3567 (V; in CA) Hadley School for the Blind 1(800) 323-4238 (V) Job Opportunities for the Blind 1(800) 638-7518 (V) 1(410) 659-9314 (V; in MD) Lighthouse National Center for Vision and Child Development 1(800) 334-5497 (V) 1(212) 821-9713 (TTY) National Association of Parents of the Visually Impaired 1(800) 562-6265 National Society to Prevent Blindness 1(800) 331-2020 (V) Recording for the Blind 1(800) 221-4792 (V) The Foundation Fighting Blindness 1(800) 683-5555 (V) 1(410) 785-1414 (V; in MD) 1(410) 785-9687 (TTY) 1(800) 683-5551 (TTY) BURNS Phoenix Society 1(800) 888-2876 (V) CANCER Cancer Information and Counseling Line 1(800) 525-3777 (V) Candlelighters Childhood Cancer Foundation 1(800) 366-2223 (V) National Cancer Information Service 1(800) 422-6237 (V; English/Spanish) CHILD ABUSE Clearinghouse on Child Abuse and Neglect/Family Violence Information 1(800) 394-3366 (V) National Resource Center on Child Sexual Abuse 1(800) 543-7006 (V) COMMUNICATION DISORDERS National Institute on Deafness and Other Communication Disorders Clearinghouse 1(800) 241-1044 (V) 1(800) 241-1055 (TTY) CRANIOFACIAL SYNDROMES Children's Craniofacial Association 1(800) 535-3643 (V) FACES -- National Association for the Craniofacially Handicapped 1(800) 332-2373 (V) DEAFNESS/HEARING IMPAIRMENTS American Society for Deaf Children 1(800) 942-2732 (V/TTY) Better Hearing Institute 1(800) 327-9355 (V/TTY) Deafness Research Foundation 1(800) 535-3323 (V/TTY) 1(212) 684-6559 (V/TTY; in NY) Hear Now 1(800) 648-4327 (V/TTY) John Tracy Clinic 1(800) 522-4582 (V/TTY) 1(213) 748-5481 (V; in 213 area) 1(213) 747-2924 (TTY; in 213 area) National Hearing Aid Society 1(800) 521-5247 (V) National Institute on Deafness and Other Communication Disorders Clearinghouse 1(800) 241-1044 (V) 1(800) 241-1055 (TTY) TRIPOD (Information for parents of deaf children) 1(800) 352-8888 (V/TTY) 1(800) 287-4763 (V/TTY; in CA) DISABILITY AWARENESS Kids on the Block 1(800) 368-5437 EDUCATION American Association for Vocational Instructional Materials 1(800) 228-4689 (V) Association for Childhood Education International 1(800) 423-3563 (V) HEATH Resource Center 1(800) 544-3284 (V/TTY) 1(202) 939-9320 (V/TTY; in DC) National Center for Research in Vocational Education 1(800) 762-4093 (V) National Center for School Leadership 1(800) 643-3205 (V) U.S. Office of Educational Research and Improvement 1(800) 424-1616 (V) EMPLOYMENT Equal Employment Opportunity Commission 1(800) 669-3362 (V) 1(800) 800-3302 (TTY) Job Accommodation Network 1(800) 526-7234 (V/TTY) 1(800) 232-9675 (V/TTY; ADA Information) Job Opportunities for the Blind 1(800) 638-7518 1(410) 659-9314 (V; in MD) FINANCIAL COUNSELING National Foundation for Consumer Credit 1(800) 388-2227 (V) HOSPICE Children's Hospice International 1(800) 242-4453 (V/TTY) HOSPICELINK 1(800) 331-1620 1(203) 767-1620 (V; in CT) INFORMATION SERVICES ABLEDATA/National Rehabilitation Information Clearinghouse 1(800) 346-2742 (V/TTY) ACCESS ERIC 1(800) 538-3742 (V) BRS Information Technologies 1(800) 289-4277 (V) National Easter Seal Society 1(800) 221-6827 (V) 1(312) 726-4258 (TTY) National Information Clearinghouse for Infants with Disabilities and Life Threatening Conditions 1(800) 922-9234, ext. 201 (V/TTY) 1(800) 922-1107, ext. 201 (V/TTY; in SC) ODPHP National Health Information Center 1(800) 336-4797 (V) Office of Minority Health Resource Center 1(800) 444-6472 (V) LITERACY National Literacy Hotline 1(800) 228-8813 (V) 1(800) 522-9097 (TTY) MEDICAL/HEALTH DISORDERS American Association of Kidney Patients 1(800) 749-2257 (V) American Brain Tumor Association 1(800) 886-2282 American Diabetes Association 1(800) 582-8323 (V) American Kidney Fund 1(800) 638-8299 (V) American Liver Foundation 1(800) 223-0179 (V) American Lupus Society 1(800) 331-1802 (V) Asthma and Allergy Foundation of America 1(800) 727-8462 Chronic Fatigue and Immune Dysfunction Syndrome Association 1(800) 442-3437 (V) Federal Hill-Burton Free Hospital Care Program 1(800) 638-0742 (V) 1(800) 492-0359 (V; in MD) Leukemia Society of America 1(800) 955-4572 (V) Lupus Foundation of America 1(800) 558-0121 (V) 1(800) 558-0231 (V; Spanish) National Association for Sickle Cell Disease 1(800) 421-8453 (V) Shriners Hospital for Crippled Children 1(800) 237-5055 (V) 1(800) 282-9161 (V; in FL) United Ostomy Association 1(800) 826-0826 (V) MENTAL HEALTH National Alliance for the Mentally Ill 1(800) 950-6264 (V) National Clearinghouse on Family Support and Children's Mental Health 1(800) 628-1696 (V) National Mental Health Association 1(800) 969-6642 (V) MENTAL RETARDATION American Association on Mental Retardation 1(800) 424-3688 (V) The Arc 1(800) 433-5255 NUTRITION Beech-Nut Nutrition Hotline 1(800) 523-6633 (V) Gerber Consumer Information 1(800) 443-7237 (V) PHYSICAL DISABILITIES National Spinal Cord Injury Hotline 1(800) 526-3456 (V) Human Growth Foundation 1(800) 451-6434 (V) Physically Challenged Resource Center 1(800) 255-9877 (V) RARE SYNDROMES Alliance of Genetic Support Groups 1(800) 336-4363 (V) National Information Center on Orphan Drugs and Rare Diseases 1(800) 456-3505 (V) National Organization for Rare Disorders 1(800) 999-6673 (V/TTY) RECREATION Adventures in Movement for the Handicapped, Inc. 1(800) 332-8210 (V) Magic Foundation 1(800) 362-4423 (V) North American Riding for the Handicapped, Inc. 1(800) 369-7433 (V) Sunshine Foundation 1(800) 767-1976 (V) REHABILITATION Clearinghouse for Rehabilitation and Technology Information 1(800) 638-8864 (V) 1(800) 852-2892 (TTY) National Clearinghouse of Rehabilitation Training Materials 1(800) 223-5219 (V/TTY) National Rehabilitation Information Clearinghouse/ABLEDATA 1(800) 346-2742 (V/TTY) RESPIRATORY DISORDERS National Jewish Center for Immunology and Respiratory Medicine -- LUNGLINE 1(800) 222-5864 (V) RESPITE CARE Access to Respite Care and Help (ARCH) National Resource Center, National Respite Locator Service 1(800) 773-5433 (V) RURAL ERIC Clearinghouse on Rural Education and Small Schools 1(800) 624-9120 (V) 1(800) 344-6646 (V; in WV) Rural Institute on Disabilities (Montana Univ. Affiliated Program) 1(800) 732-0323 SPECIFIC DISABILITIES Attention Deficit Disorder Association 1(800) 487-2282 (V) Cleft Palate Foundation 1(800) 242-5338 Cooley's Anemia Foundation 1(800) 522-7222 (V) Cornelia de Lange Syndrome Foundation 1(800) 223-8355 (V) 1(800) 753-2357 (V; in CT) Cystic Fibrosis Foundation 1(800) 344-4823 (V) Epilepsy Foundation of America 1(800) 332-1000 (V) National Down Syndrome Congress 1(800) 232-6372 (V) National Down Syndrome Society 1(800) 221-4602 (V) National Fragile X Foundation 1(800) 688-8765 (V) National Multiple Sclerosis Society 1(800) 532-7667 (V) National Organization for Albinism and Hypopigmentation 1(800) 473-2310 (V) National Reye's Syndrome Foundation 1(800) 233-7393 (V) National Tuberous Sclerosis Association 1(800) 225-6872 (V) Orton Dyslexia Society 1(800) 222-3123 (V) Prader-Willi Syndrome Association 1(800) 926-4797 (V) Spina Bifida Associations of America 1(800) 621-3141 (V) Stuttering Foundation of America 1(800) 992-9392 (V) Sudden Infant Death Syndrome Alliance 1(800) 221-7437 (V) Tourette Syndrome Association 1(800) 237-0717 (V) United Cerebral Palsy Associations 1(800) 872-5827 (V/TTY) United Leukodystrophy Foundation 1(800) 728-5483 (V) United Scleroderma Foundation 1(800) 722-4673 (V) SUPPLEMENTAL SECURITY INCOME (SSI) Social Security Administration 1(800) 772-1213 (V) 1(800) 325-0778 (TTY) 1(800) 392-0812 (TTY; in MO) TRAUMA American Trauma Society 1(800) 556-7890 (V) National Brain Injury Association 1(800) 444-6443 (V) National Spinal Cord Injury Association 1(800) 962-9629 (V) VIETNAM VETERANS/AGENT ORANGE Access Group for Children of Vietnam Veterans 1(800) 821-8580 (V) ___________________________________________ This list is made possible through Cooperative Agreement #H030A30003 between the Academy for Educational Development and the Office of Special Education Programs, U.S. Department of Education. The contents of this publication do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government. This information is copyright free. Readers are encouraged to copy and share it, but please credit the National Information Center for Children and Youth with Disabilities (NICHCY)